External review and validation of the Swedish national inpatient register

BMC Public Health

Volumn 11, Issue , 2011, Pages

  Ludvigsson, Jonas F ^a,b   Andersson, Eva ^c   Ekbom, Anders ^b   Feychting, Maria ^d   Kim, Jeong Lim ^c   Reuterwall, Christina ^e,f   Heurgren, Mona ^g   Olausson, Petra Otterblad ^g  

^a ÖREBRO UNIVERSITY HOSPITAL   (Sweden)

^b KAROLINSKA UNIVERSITY HOSPITAL   (Sweden)

^c UNIVERSITY OF GOTHENBURG   (Sweden)

^d KAROLINSKA INSTITUTE   (Sweden)

^e Research Unit   (Sweden)

^f UMEÅ UNIVERSITY   (Sweden)

^g NATIONAL BOARD OF HEALTH AND WELFARE   (Sweden)

Author keywords

Classification of diseases; disease; epidemiology; morbidity; register

Indexed keywords

ADULT; AGED; ARTICLE; CLASSIFICATION; DISEASES; EPIDEMIOLOGY; FEMALE; HOSPITAL PATIENT; HUMAN; MALE; MIDDLE AGED; MORBIDITY; REGISTER; STANDARD; STATISTICS; SWEDEN; VALIDATION STUDY;

ADULT; AGED; DISEASE; EPIDEMIOLOGY; FEMALE; HUMANS; INPATIENTS; MALE; MIDDLE AGED; MORBIDITY; REGISTRIES; SWEDEN; YOUNG ADULT;

EID: 79958058102     PISSN: None     EISSN: 14712458     Source Type: Journal    
DOI: 10.1186/1471-2458-11-450     Document Type: Article

References (72)

1. B Smedby G Schiøler, Health Classifications in the Nordic Countries. Historic development in a national and international perspective 2006. Book Health Classifications in the Nordic Countries. Historic development in a national and international perspective 2006 (Editor ed.eds.) City: Nordisk Medicinalstatistisk Komite 2006
2. Kvalitet och innehåll i patientregistret. Utskrivningar från slutenvården 1964-2007 och besök i specialiserad öppenvård (exklusive primärvårdsbesök) 1997-2007. (Quality and content of the Patient Register)(2009-125-15). L Forsberg H Rydh A Jacobsson K Nyqvist M Heurgren, Book Kvalitet och innehåll i patientregistret. Utskrivningar från slutenvården 1964-2007 och besök i specialiserad öppenvård (exklusive primärvårdsbesök) 1997-2007. (Quality and content of the Patient Register)(2009-125-15). (Editor ed.eds.). City 2009
3. The Swedish personal identity number: possibilities and pitfalls in healthcare and medical research. JF Ludvigsson P Otterblad-Olausson BU Pettersson A Ekbom, Eur J Epidemiol 2009 24 659 667 10.1007/s10654-009-9350-y 19504049
4. Completeness of the Swedish Cancer Register. Non-notified cancer cases recorded on death certificates in 1978. B Mattsson A Wallgren, Acta Radiol Oncol 1984 23 305 313 10.3109/02841868409136026 6095600 (Pubitemid 15028463)
5. Comparing Swedish hospital discharge records with death certificates: implications for mortality statistics. LA Johansson R Westerling, Int J Epidemiol 2000 29 495 502 10.1093/ije/29.3.495 10869322 (Pubitemid 30447254)
6. The Swedish Medical Birth Register: a summary of content and quality. SNBHW, Book The Swedish Medical Birth Register: a summary of content and quality. (Editor ed.eds.) City: Swedish National Board of Health and Welfare 2003 http://www.sos.se/fulltext/112/2003-112-3/2003-112-3.pdf
7. Reliability of the hospital registry. The diagnostic data are better than their reputation. AC Nilsson CL Spetz K Carsjo R Nightingale B Smedby, Lakartidningen 1994 91 598 603-595 8114596
8. Evaluation of the Data quality in the Swedish National Hospital Discharge Register. K Carjsö B Smedby CL Spetz, Book Evaluation of the Data quality in the Swedish National Hospital Discharge Register (Editor ed.eds.). pp. 1-10. City: WHO/HST/ICD/C/98.34 1998 1 10
9. Bilaga 1-3 till ppna jämförelser av hälso- och sjukvårdens kvalitet och effektivitet 2009. B Kouchecki M Köster L Eckerström K Wiberg-Hedman, Book Bilaga 1-3 till ppna jämförelser av hälso- och sjukvårdens kvalitet och effektivitet 2009. (Editor ed.eds.) City: Socialstyrelsen (National Board of Health and Welfare) 2009
10. Amyotrophic lateral sclerosis in Sweden, 1991-2005. F Fang U Valdimarsdottir R Bellocco LO Ronnevi P Sparen K Fall W Ye, Arch Neurol 2009 66 515 519 10.1001/archneurol.2009.13 19364937
11. Incidence of postoperative gallstone disease after antiobesity surgery: population-based study from Sweden. E Jonas R Marsk F Rasmussen J Freedman, Surg Obes Relat Dis 2010 6 54 58 10.1016/j.soard.2009.03.221 19640806
12. Cancer incidence in a population-based cohort of patients with Wegener's granulomatosis. A Knight J Askling A Ekbom, Int J Cancer 2002 100 82 85 10.1002/ijc.10444 12115591 (Pubitemid 34602069)
13. A framework for evaluation of secondary data sources for epidemiological research. HT Sorensen S Sabroe J Olsen, Int J Epidemiol 1996 25 435 442 10.1093/ije/25.2.435 9119571 (Pubitemid 26137126)
14. Validity and utilization of epidemiological data: a study of ischaemic heart disease and coronary risk factors in a local population. SL Elo IH Karlberg, Public Health 2009 123 52 57 10.1016/j.puhe.2008.07.010 19084244
15. External validation of the Swedvasc registry: a first-time individual cross-matching with the unique personal identity number. T Troeng J Malmstedt M Bjorck, Eur J Vasc Endovasc Surg 2008 36 705 712 10.1016/j.ejvs.2008.08.017 18851920
16. Monitoring the "tip of the iceberg'': ambulance records as a source of injury surveillance. SN Backe R Andersson, Scand J Public Health 2008 36 250 257 10.1177/1403494807086973 18519293 (Pubitemid 351597413)
17. On the need of validating inpatient registers. C Nordgren, Spinal Cord 2008 46 748 752 10.1038/sc.2008.42 18475280
18. The Danish National Hospital Register is a valuable study base for epidemiologic research in febrile seizures. M Vestergaard C Obel TB Henriksen J Christensen KM Madsen JR Ostergaard J Olsen, J Clin Epidemiol 2006 59 61 66 10.1016/j.jclinepi.2005.05.008 16360562 (Pubitemid 41797476)
19. The validity of the diagnosis of acute myocardial infarction in routine statistics: a comparison of mortality and hospital discharge data with the Danish MONICA registry. M Madsen M Davidsen S Rasmussen SZ Abildstrom M Osler, J Clin Epidemiol 2003 56 124 130 10.1016/S0895-4356(02)00591-7 12654406 (Pubitemid 36315938)
20. Venous thromboembolism discharge diagnoses in the Danish National Patient Registry should be used with caution. MT Severinsen SR Kristensen K Overvad C Dethlefsen A Tjonneland SP Johnsen, J Clin Epidemiol 63 223 228
21. Acromegaly and gastrointestinal cancer. E Ron G Gridley Z Hrubec W Page S Arora JF Fraumeni Jr, Cancer 1991 68 1673 1677 10.1002/1097-0142(19911015)68: 8<1673::AID-CNCR2820680802>3.0.CO;2-0 1913507
22. Association of chronic inflammation, not its treatment, with increased lymphoma risk in rheumatoid arthritis. E Baecklund A Iliadou J Askling A Ekbom C Backlin F Granath AI Catrina R Rosenquist N Feltelius C Sundstrom L Klareskog, Arthritis Rheum 2006 54 692 701 10.1002/art.21675 16508929
23. Coeliac disease and risk of sepsis. JF Ludvigsson O Olen M Bell A Ekbom SM Montgomery, Gut 2008 57 1074 1080 10.1136/gut.2007.133868 18270242
24. Parity and risk of later-life maternal cardiovascular disease. NI Parikh S Cnattingius PW Dickman MA Mittleman JF Ludvigsson E Ingelsson, Am Heart J 159 215 221 e216
25. Schizophrenia, substance abuse, and violent crime. S Fazel N Langstrom A Hjern M Grann P Lichtenstein, JAMA 2009 301 2016 2023 10.1001/jama.2009.675 19454640
26. On the use of administrative databases in health care analyses (Dissertation). P Blomqvist, Karolinska Institutet 1998
27. Patientregistret för 2008 ur ett DRG-perspektiv. (The Patient Register from a DRG perspective)(2010-4-14). M Heurgren L Serden, Book Patientregistret för 2008 ur ett DRG-perspektiv. (The Patient Register from a DRG perspective)(2010-4-14). (Editor ed.eds.). City 2009
28. Collaborative systematic review of the randomised trials of organised inpatient (stroke unit) care after stroke. Stroke Unit Trialists' Collaboration. BMJ 1997 314 1151 1159 9146387
29. Small-intestinal histopathology and mortality risk in celiac disease. JF Ludvigsson SM Montgomery A Ekbom L Brandt F Granath, JAMA 2009 302 1171 1178 10.1001/jama.2009.1320 19755695
30. Increased mortality risk in patients with phenotypic hereditary hemochromatosis but not in their first-degree relatives. M Elmberg R Hultcrantz F Ebrahim S Olsson S Lindgren L Loof P Stal S Wallerstedt S Almer H Sandberg-Gertzen, et al. Gastroenterology 2009 137 1301 1309 10.1053/j.gastro.2009.07.038 19622361
31. Limitations of the application of fourfold tables to hospital data. J Berkson, Biometrics Bulletin 1946 2 47 53 10.2307/3002000 21001024
32. Identification of incident injuries in hospital discharge registers. R Gedeborg H Engquist L Berglund K Michaelsson, Epidemiology 2008 19 860 867 10.1097/EDE.0b013e318181319e 18938655
33. Quality of diagnostic coding and information flow from hospital to general practice. M Kljakovic D Abernethy I de Ruiter, Inform Prim Care 2004 12 227 234 15808024 (Pubitemid 40347659)
34. Recent time trends in acute myocardial infarction in Stockholm, Sweden. A Linnersjo N Hammar A Gustavsson C Reuterwall, Int J Cardiol 2000 76 17 21 10.1016/S0167-5273(00)00366-1 11121592
35. Guidelines for the diagnosis of heart failure. The Task Force on Heart Failure of the European Society of Cardiology. Eur Heart J 1995 16 741 751 7588917
36. The validity of a diagnosis of heart failure in a hospital discharge register. E Ingelsson J Arnlov J Sundstrom L Lind, Eur J Heart Fail 2005 7 787 791 10.1016/j.ejheart.2004.12.007 15916919 (Pubitemid 41125894)
37. Atrial fibrillation in the Malmo diet and cancer study: a study of occurrence, risk factors and diagnostic validity. JG Smith PG Platonov B Hedblad G Engstrom O Melander, Eur J Epidemiol 2009 25 95 102
38. Measuring stroke in the population: quality of routine statistics in comparison with a population-based stroke registry. B Stegmayr K Asplund, Neuroepidemiology 1992 11 204 213 10.1159/000110933 1291884 (Pubitemid 23044208)
39. Comparison of risk factors for preeclampsia and gestational hypertension in a population-based cohort study. HS Ros S Cnattingius L Lipworth, Am J Epidemiol 1998 147 1062 1070 9620050
40. Gender differences in vascular interventions for lower limb ischaemia. R Hultgren P Olofsson E Wahlberg, Eur J Vasc Endovasc Surg 2001 21 22 27 10.1053/ejvs.2000.1231 11170873 (Pubitemid 32186292)
41. The American Rheumatism Association 1987 revised criteria for the classification of rheumatoid arthritis. FC Arnett SM Edworthy DA Bloch DJ McShane JF Fries NS Cooper LA Healey SR Kaplan MH Liang HS Luthra, et al. Arthritis Rheum 1988 31 315 324 10.1002/art.1780310302 3358796 (Pubitemid 18091653)
42. Extra-articular rheumatoid arthritis: prevalence and mortality. C Turesson L Jacobsson U Bergstrom, Rheumatology (Oxford) 1999 38 668 674 10.1093/rheumatology/38.7.668 (Pubitemid 29507338)
43. The American College of Rheumatology 1990 criteria for the classification of Wegener's granulomatosis. RY Leavitt AS Fauci DA Bloch BA Michel GG Hunder WP Arend LH Calabrese JF Fries JT Lie RW Lightfoot Jr, et al. Arthritis Rheum 1990 33 1101 1107 2202308 (Pubitemid 20273294)
44. Malignant lymphomas in coeliac disease: evidence of increased risks for lymphoma types other than enteropathy-type T cell lymphoma. KE Smedby M Akerman H Hildebrand B Glimelius A Ekbom J Askling, Gut 2005 54 54 59 10.1136/gut.2003.032094 15591504 (Pubitemid 40007218)
45. Increased death risk and altered cancer incidence pattern in patients with isolated or combined autoimmune primary adrenocortical insufficiency. S Bensing L Brandt F Tabaroj O Sjoberg B Nilsson A Ekbom P Blomqvist O Kampe, Clin Endocrinol (Oxf) 2008 69 697 704 10.1111/j.1365-2265.2008.03340.x
46. The inpatient care of patients with diabetes mellitus and foot ulcers. A validation study of the correspondence between medical records and the Swedish Inpatient Registry with the consequences for cost estimations. G Ragnarson Tennvall J Apelqvist M Eneroth, J Intern Med 2000 248 397 405 10.1046/j.1365-2796.2000.00748.x 11123504
47. The epidemiology of inflammatory bowel disease: a large, population-based study in Sweden. A Ekbom C Helmick M Zack HO Adami, Gastroenterology 1991 100 350 358 1985033
48. Evaluation of diagnostic procedures in Swedish patients with schizophrenia and related psychoses. B Ekholm A Ekholm R Adolfsson M Vares U Osby GC Sedvall EG Jonsson, Nord J Psychiatry 2005 59 457 464 10.1080/08039480500360906 16316898 (Pubitemid 41801793)
49. Young cases of schizophrenia identified in a national inpatient register - are the diagnoses valid? C Dalman J Broms J Cullberg P Allebeck, Soc Psychiatry Psychiatr Epidemiol 2002 37 527 531 10.1007/s00127-002-0582-3 12395142 (Pubitemid 36097281)
50. Recurrence risks for schizophrenia in a Swedish national cohort. P Lichtenstein C Bjork CM Hultman E Scolnick P Sklar PF Sullivan, Psychol Med 2006 36 1417 1425 10.1017/S0033291706008385 16863597 (Pubitemid 44355977)
51. Life time OPCRIT generated DSM-IV diagnoses among patients with an initial clinical ICD schizophrenia spectrum diagnosis. J Reutfors, 29th Nordic Congress of Psychiatr; Stockholm 2009
52. Validity of the diagnosis schizophrenia in a psychiatric inpatient register. E Kristjansson P Allebeck B Wistedt, 1987 41 229 234
53. Mentally disorderd offenders in Sweden: Forensic and general psychiatric diagnoses. B Bergman H Belfrage M Grann, American Journal of Forensic Psychiatry 1999 20 27 37 (Pubitemid 29058307)
54. Sensitivity and specificity of dementia coding in two Swedish disease registries. YP Jin M Gatz B Johansson NL Pedersen, Neurology 2004 63 739 741 15326258 (Pubitemid 39100841)
55. Some experiences from registers of interest to forensic research in Sweden. M Grann U Haggård A Tengström A Woodhouse N Långström G Holmberg G Kullgren, Scand J Forensic Science 1998 78 80
56. Criteria for diagnosis of Guillain-Barre syndrome. Ann Neurol 1978 3 565 566 677829
57. Guillain-Barre syndrome in south-west Stockholm, 1973-1991, 1. Quality of registered hospital diagnoses and incidence. GX Jiang J de Pedro-Cuesta S Fredrikson, Acta Neurol Scand 1995 91 109 117 7785420
58. Herpes simplex encephalitis in Sweden, 1990-2001: incidence, morbidity, and mortality. A Hjalmarsson P Blomqvist B Skoldenberg, Clin Infect Dis 2007 45 875 880 10.1086/521262 17806053 (Pubitemid 47580380)
59. Hormone replacement therapy and risk of hip fracture: population based case-control study. The Swedish Hip Fracture Study Group. K Michaelsson JA Baron BY Farahmand O Johnell C Magnusson PG Persson I Persson S Ljunghall, Bmj 1998 316 1858 1863 9632404 (Pubitemid 28276930)
60. Indications for operation in suspected appendicitis and incidence of perforation. R Andersson A Hugander A Thulin PO Nystrom G Olaison, Bmj 1994 308 107 110 8298378 (Pubitemid 24052592)
61. Risk of Esophageal Adenocarcinoma in Achalasia Patients, a Retrospective Cohort Study in Sweden. K Zendehdel O Nyren A Edberg W Ye, Am J Gastroenterol 2007
62. Risk of connective tissue disease and related disorders among women with breast implants: a nation-wide retrospective cohort study in Sweden. O Nyren L Yin S Josefsson JK McLaughlin WJ Blot M Engqvist L Hakelius JD Boice HO Adami, Bmj 1998 316 417 422 9492663 (Pubitemid 28121293)
63. Comparison of different procedures to identify probable cases of myocardial infarction and stroke in two Swedish prospective cohort studies using local and national routine registers. J Merlo U Lindblad H Pessah-Rasmussen B Hedblad J Rastam SO Isacsson L Janzon L Rastam, Eur J Epidemiol 2000 16 235 243 10.1023/A:1007634722658 10870938 (Pubitemid 30351427)
64. Acute myocardial infarction in Stockholm - a medical information system as an epidemiological tool. A Ahlbom, Int J Epidemiol 1978 7 271 276 10.1093/ije/7.3.271 721364 (Pubitemid 9045169)
65. Identification of cases of myocardial infarction: hospital discharge data and mortality data compared to myocardial infarction community registers. N Hammar C Nerbrand G Ahlmark G Tibblin A Tsipogianni S Johansson L Wilhelmsen S Jacobsson O Hansen, Int J Epidemiol 1991 20 114 120 10.1093/ije/20.1.114 2066207
66. In search of the best method to predict acute coronary syndrome using only the electrocardiogram from the emergency department. JL Forberg M Green J Bjork M Ohlsson L Edenbrandt H Ohlin U Ekelund, J Electrocardiol 2009 42 58 63 10.1016/j.jelectrocard.2008.07.010 18804783
67. Lund Stroke Register: hospitalization pattern and yield of different screening methods for first-ever stroke. B Hallstrom AC Jonsson C Nerbrand B Petersen B Norrving A Lindgren, Acta Neurol Scand 2007 115 49 54 10.1111/j.1600-0404.2006.00738.x 17156265 (Pubitemid 44915498)
68. Estimating disease prevalence using a population-based administrative healthcare database. AB Wirehn HM Karlsson JM Carstensen, Scand J Public Health 2007 35 424 431 10.1080/14034940701195230 17786807 (Pubitemid 47386793)
69. Diagnosis-dependent misclassification of infections using administrative data variably affected incidence and mortality estimates in ICU patients. R Gedeborg M Furebring K Michaelsson, J Clin Epidemiol 2007 60 155 162 17208121
70. Risk and case characteristics of tuberculosis in rheumatoid arthritis associated with tumor necrosis factor antagonists in Sweden. J Askling CM Fored L Brandt E Baecklund L Bertilsson L Coster P Geborek LT Jacobsson S Lindblad J Lysholm, et al. Arthritis Rheum 2005 52 1986 1992 10.1002/art.21137 15986370 (Pubitemid 40994319)
71. Identification of dementia in epidemiological research: a study on the usefulness of various data sources. A Dahl S Berg SE Nilsson, Aging Clin Exp Res 2007 19 381 389 18007116 (Pubitemid 350285296)
72. Occurrence of dementia in advanced age: the study design of the Kungsholmen Project. L Fratiglioni M Viitanen L Backman PO Sandman B Winblad, Neuroepidemiology 1992 11 Suppl 1 29 36 1603245