Constructing an ethical framework for embryo donation to research: Is it time for a restricted consent policy?

Human Fertility

Volumn 14, Issue 2, 2011, Pages 115-121

  Ehrich, Kathryn ^a   Farsides, Bobbie ^b   Williams, Clare ^a   Scott, Rosamund ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b BRIGHTON AND SUSSEX MEDICAL SCHOOL   (United Kingdom)

Author keywords

bioethics; Donation; embryonic stem cells

Indexed keywords

ARTICLE; BIOETHICS; DIAGNOSIS; EMBRYO; EMBRYONIC STEM CELL; FERTILITY; FERTILIZATION IN VITRO; GAMETE; HUMAN; INFORMED CONSENT; MEDICAL RESEARCH; POLICY; PREIMPLANTATION GENETIC DIAGNOSIS; UNITED KINGDOM; WORKSHOP;

EMBRYO RESEARCH; EMBRYONIC STEM CELLS; FETAL TISSUE TRANSPLANTATION; GREAT BRITAIN; HUMANS; PARENTAL CONSENT; POLICY; STEM CELL TRANSPLANTATION;

EID: 79958042899     PISSN: 14647273     EISSN: 17428149     Source Type: Journal    
DOI: 10.3109/14647273.2011.557762     Document Type: Article

References (25)

1. British Broadcasting Corporation. (1999). Health: the ethics of transplantation. BBC News Online, 7 July. http://news. bbc.co.uk/1/hi/health/ 388260.stm. Last accessed 19 November 2010.
2. Braude, P., Minger, S., & Warwick, R. (2005). Stem cell therapy: hope or hype? British Medical Journal, 330, 1159-1160. (Pubitemid 40745036)
3. Corrigan, O. (2003). Empty ethics: the problem with informed consent. Sociology of Health & Illness, 25, 768-792. (Pubitemid 37533088)
4. Corrigan, O., Liddel, K., McMillan, J., Stewart, A., & Wallace, S. (2005). Ethical, legal and social issues in stem cell research and therapy: a briefing paper from Cambridge Genetics Knowledge Park. Cambridge Genetics Knowledge Park. http://www.eescn. org.uk/pdfs/elsi-ed2.pdf. Last accessed 16 February, 2011.
5. Cutting, R., Morroll D., Roberts, S.A., Pickering, S., Rutherford, A.; BFS and ACE. (2008). Elective single embryo transfer: guidelines for practice british fertility society and association of clinical embryologists. Human Fertility, 11, 131-146.
6. Department of Health. (2005). UKstem cell initiative: [Pattison] report and recommendations. London: Department of Health. http:// www.dh.gov.uk/prod- consum-dh/groups/dh-digitalassets/@dh/ @en/documents/digitalasset/dh-4124088.pdf
7. Ehrich, K., Williams, C., & Farsides, B. (2010a). Consenting futures: professional views on social, clinical and ethical aspects of information feedback to embryo donors in hESC research. Clinical Ethics, 5, 77-85.
8. Ehrich, K., Williams, C., & Farsides, B. (2010b). Fresh or frozen? Classifying 'spare' embryos for donation to human embryonic stem cell research. Social Science & Medicine, 71, 2204-2211.
9. Ehrich, K., Williams, C., Farsides, B., Sandall, J., & Scott, R. (2007). Choosing embryos: ethical complexity and relational autonomy in staff accounts of PGD. Sociology of Health & Illness, 29, 1091-1106.
10. Fowler, R. (2008). Update on in vitro derived gametes. Scientific and Clinical Advances Advisory Committee paper SCAAC (09/09)01. http://www.hfea.gov. uk/docs/In-vitro-derived-gametes. pdf. Last accessed 28 January 2010.
11. Franklin, S. (2006). Embryonic economies: the double reproductive value of stem cells. Biosocieties, 1, 71-90.
12. Franklin, S., Hunt, C., Cornwell, G., Peddie, V., Desousa, P., Livie, M., et al. (2008). hESCCO: development of good practice models for hES cell derivation. Regenerative Medicine, 3, 105-116. (Pubitemid 351541194)
13. Holland, S., Lebacqz, K., & Zoloth, L. (2001). The human embryonic stem cell debate: science, ethics and public policy. Cambridge: MIT Press.
14. Kiessling, A. A. & Anderson, S. (2003). Human embryonic stem cells: an introduction to the science and the therapeutic potential. Boston: Jones and Bartlett.
15. Kitzinger, J. & Williams, C. (2005). Forecasting science futures: legitimising hope and calming fears in the embryo stem cell debate. Social Science and Medicine, 61, 731-740. (Pubitemid 40724616)
16. Morgan, R. (2007). Embryonic stem cells and consent: incoherence and inconsistency in the UK regulatory model. Medical Law Review, 15, 279-319.
17. Mortimer, D. (2005). A critical assessment of the impact of the European Tissue and Cells Directive (2004) on laboratory practices in assisted conception. Reproductive Biomedicine Online, 11, 162-176. (Pubitemid 41086938)
18. Nuffield Council on Bioethics. (2010). 'Give and take? Human bodies in medicine and research'. Ongoing consultation. http:// www.nuffieldbioethics.org/ human-bodies/human-bodies-consultation. Last accessed on 16 February 2011.
19. Parliamentary Office of Science & Technology.(2002a). House of Lords Stem Cell Report. http://www.parliament.the-stationery- office.co.uk/pa/ ld200102/ldselect/ldstem/83/8301.htm. Last accessed 28 January 2010
20. Parliamentary Office of Science & Technology. (2002b). The UK Biobank. Postnote: July, number 180. http://www.parliament. uk/documents/post/ pn180.pdf. Last accessed 19 January 2010.
21. Scott, C. T. (2006). Stem cell now: from the experiment that shook the world to the new politics of life. New York: Pi Press.
22. Snyder, E., Hinman, L., & Kalichman, M. (2006). Can science resolve the ethical impasse in stem cell research? Nature Biotechnology, 24, 397-400.
23. Svendsen, M. & Koch, L. (2008). Unpacking the spare embryo: facilitating stem cell research in a moral landscape. Social Studies of Science, 38, 93-110.
24. Thompson, J., Itskovitz-Eldor, J., Shapiro, S. S., Waknitz, M. A., Swiergiel, J. J., Marshall, V. S., et al. (1998). Embryonic stem cell lines derived from human blastocysts. Science, 282, 1145-1147.
25. Wainwright, S. P., Williams, C., Cribb, A., Farsides, B., & Michael, M. (2006). Ethical boundary - work in the embryonic stem cell laboratory. Sociology of Health & Illness, 28, 732-748.