Choosing embryos: Ethical complexity and relational autonomy in staff accounts of PGD

Sociology of Health and Illness

Volumn 29, Issue 7, 2007, Pages 1091-1106

  Ehrich, Kathryn ^a   Williams, Clare ^a   Farsides, Bobbie ^b   Sandall, Jane ^a   Scott, Rosamund ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b BRIGHTON AND SUSSEX MEDICAL SCHOOL   (United Kingdom)

Author keywords

Choice; Ethics; Genetics; PGD; Relational autonomy

Indexed keywords

ARTICLE; CLASSIFICATION; DECISION MAKING; ETHICS; GENETIC ENGINEERING; HEALTH CARE POLICY; HUMAN; PRENATAL DIAGNOSIS; QUALITATIVE RESEARCH; SOCIAL PSYCHOLOGY;

DECISION MAKING; HEALTH POLICY; HUMANS; PREIMPLANTATION DIAGNOSIS; QUALITATIVE RESEARCH; SEX PRESELECTION; SOCIAL VALUES;

EID: 37349107953     PISSN: 01419889     EISSN: 14679566     Source Type: Journal    
DOI: 10.1111/j.1467-9566.2007.01021.x     Document Type: Article

References (35)

1. Alderson, P., Farsides, B. Williams, C. (2002) Examining ethics in practice: health service professionals' evaluations of in-hospital ethics seminars, Nursing Ethics, 9, 508 21.
2. Allen, D. (1997) The nursing-medical boundary: a negotiated order? Sociology of Health and Illness, 19, 4, 498 520.
3. Braude, P., Pickering, S., Flinter, F. Ogilvie, C. (2002) Preimplantation genetic diagnosis, Nature Review Genetics, 3, 941 53.
4. Brock, D.W. (2005) Shaping future children: parental rights and societal interests, The Journal of Political Philosophy, 13, 377 98.
5. Buchanan, A., Brock, D.W., Daniels, N. Wikler, D. (2000) From Chance to Choice: Genetics and Justice. Cambridge : Cambridge University Press.
6. Casper, M.J. (1998) Negotiations, work objects, and the unborn patient: the interactional scaffolding of fetal surgery, Symbolic Interaction, 21, 4, 379 400.
7. Dodds, S. (2000) Choice and control in feminist bioethics. In Mackenzie, C. Stoljar, N. (eds) Relational Autonomy: Feminist Perspectives on Autonomy, Agency and the Social Self. New York : Oxford University Press.
8. Donchin, A. (2000) Autonomy and interdependence: quandaries in genetic decision making. In Mackenzie, C. Stoljar, N. (eds) Relational Autonomy: Feminist Perspectives on Autonomy, Agency and the Social Self. New York : Oxford University Press.
9. Ehrich, K., Williams, C., Scott, R., Sandall, J. Farsides, B. (2006) Social welfare, genetic welfare? Boundary work in the IVF/PGD clinic, Social Science and Medicine, 63, 1213 24.
10. Ettore, E. (1999) Experts as 'storytellers' in reproductive genetics: exploring key issues, Sociology of Health and Illness, 21, 5, 539 59.
11. Farsides, B., Williams, C. Alderson, P. (2005) Aiming towards 'moral equilibrium': health care professionals' views on working within the morally contested field of antenatal screening, Journal of Medical Ethics, 30, 505 09.
12. Getz, L. Kirkengen, A. (2003) Ultrasound screening in pregnancy: advancing technology, soft markers for fetal chromosomal aberrations, and unacknowledged ethical dilemmas, Social Science and Medicine, 56, 2045 57.
13. Haimes, E. (2002) What can the social sciences contribute to the study of ethics? Theoretical, empirical and substantive considerations, Bioethics, 16, 90 113.
14. Hedgecoe, A. (2004) Critical bioethics: beyond the social science critique of applied ethics, Bioethics, 18, 120 43.
15. Human Fertilisation Embryology Authority (2005) Guide to Infertility and Directory of Clinics 2005/06. London : HFEA/Dr Foster.
16. Kerr, A. (2004) Genetics and Society: a Sociology of Disease. London : Routledge.
17. Lavery, S., Aurell, R., Turner, C., Castello, C., Veiga, A., Barri, P. Winston, R. (2002) Preimplantation genetic diagnosis: patients' experiences and attitudes, Human Reproduction, 17, 9, 2464 67.
18. Mackenzie, C. Stoljar, N. (2000) Introduction: Autonomy Reconfigured. In Mackenzie, C. Stoljar, N. (eds) Relational Autonomy: Feminist Perspectives on Autonomy, Agency and the Social Self. New York : Oxford University Press.
19. Petersen, A. (2006) The best experts: the narratives of those who have a genetic condition, Social Science and Medicine, 63, 1, 32 42.
20. Pilnick, A. (2002) Genetics and Society. Backingham : Open University Press.
21. Press, N. Browner, C. (1997) Why women say yes to prenatal diagnosis, Social Science and Medicine, 45, 979 89.
22. Rapp, R. (1999) Testing Women, Testing the Fetus. New York : Routledge.
23. Ritchie, J. Spencer, L. (1994) Qualitative data analysis for applied policy research. In Bryman, A. Burgess, R.G. (eds) Analysing Qualitative Data. London : Routledge.
24. Rothman, B. (1986) The Tentative Pregnancy. New York : Viking Press.
25. Scully, J.L., Banks, S. Shakespeare, T. (2006) Chance, choice and control: lay debate on prenatal social sex selection, Social Science and Medicine, 63, 1, 21 31.
26. Shakespeare, T. (1998) Choice and rights: eugenics, genetics and disability equality, Disability and Society, 13, 5, 655 81.
27. Shakespeare, T. (1999) 'Losing the plot'? Medical and activist discourses of contemporary genetics and disability, Sociology of Health and Illness, 21, 5, 669 88.
28. Sherwin, S. (1998) A relational approach to autonomy in health care. In The Feminist Health Care Ethics Research Network, Susan Sherwin Coordinator. The Politics of Women's Health: Exploring Agency and Autonomy. Philadelphia : Temple University Press.
29. Soini, S., Ibarreta, D., Anastasiadou, V., Aymé, S., Braga, S., Cornel, M., Coviello, D.A., Evers-Kiebooms, G., Geraedts, J., Gianaroli, L., Harper, J., Kosztolanyi, G., Lundin, K., Rodrigues-Cerezo, E., Sermon, K., Sequeiros, J., Tranebjaerg, L. Kääriäinen, H. (2006) The interface between medically assisted reproduction and genetics: technical, social, ethical and legal issues. PGD and Europe. European Society of Human Reproduction and Embryology Monographs Volume 1, October, accessed at http://eshremonographs.oxfordjournals.org/
30. Wainwright, S., Williams, C., Michael, M., Farsides, B. Cribb, A. (2006) Ethical boundary work in the stem cell laboratory, Sociology of Health and Illness, 28, 6, 732 48.
31. Webster, A. (2002) Innovative health technologies and the social: redefining health, medicine and the body, Current Sociology, 50, 443 57.
32. Williams, C. (2006) Dilemmas in fetal medicine: premature application of a technology or responding to women's choice? Sociology of Health and Illness, 28, 1, 1 20.
33. Williams, C., Alderson, P. Farsides, B. (2002a) Is nondirectiveness possible within the context of antenatal screening and testing? Social Science and Medicine, 54, 339 47.
34. Williams, C., Alderson, P. Farsides, B. (2002b) Dilemmas encountered by health practitioners offering nuchal translucency screening, Prenatal Diagnosis, 22, 216 20.
35. Williams, C., Alderson, P. Farsides, B. (2002c) 'Drawing the line' in prenatal screening and testing: health practitioners' discussions, Health, Risk and Society, 4, 61 75.