A multidisciplinary paediatric diabetes health care team: Perspectives on adolescent care

Practical Diabetes International

Volumn 28, Issue 5, 2011, Pages 212-215

  Spencer, J ^a   Cooper, H ^a  

^a UNIVERSITY OF CHESTER   (United Kingdom)

Author keywords

adolescents; diabetes; qualitative research; team work

Indexed keywords

ADOLESCENT DISEASE; ARTICLE; AUDIO RECORDING; BLOOD GLUCOSE MONITORING; FOLLOW UP; HEALTH PRACTITIONER; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; INTERPERSONAL COMMUNICATION; MEDICAL EDUCATION; PATIENT EDUCATION; SELF CARE; SEMI STRUCTURED INTERVIEW; TEAMWORK;

EID: 79958026742     PISSN: 13578170     EISSN: 1528252X     Source Type: Journal    
DOI: 10.1002/pdi.1596     Document Type: Article

References (39)

1. SWEET Report on Children and Adolescents with Diabetes in the EU. 2009.
2. Diabetes UK. At a glance: Diabetes UK survey of people with diabetes and access to health care services. 2009.
3. Mortensen BH, Hougaard P, (for the Hvidore Study Group on Childhood Diabetes). Comparison of metabolic control in a cross-sectional study of 2873 children and adolescents with insulin-dependent diabetes from 18 countries. Diabetes Care 1997; 20: 714-20. (Pubitemid 27202518)
4. Danne T, et al,. Persistent differences among centres over 3 years in glycaemic control and hypoglycaemia in a study of 3,805 children and adolescents with type 1 diabetes from the Hvidore Study Group. Diabetes Care 2001; 24: 1342-7. (Pubitemid 33716418)
5. Brita-Rossi P, et al,. Improving the process of care: the cost-quality value of interdisciplinary collaboration. J Nursing Care Quality 1996; 10 (2): 10-6. (Pubitemid 126432543)
6. Landefield CS, et al,. A randomised trial of care in a hospital medical unit especially designed to improve the functional outcomes of acutely ill older patients. N Engl J Med 1995; 332: 1338-44.
7. Forbes EJ, Fitzsimons V., Education: the key for holistic interdisciplinary collaboration. Holistic Nurse Practitioner 1993; 7 (4): 1-10.
8. DCCT. The effect of intensive treatment of diabetes on the development and progression of long term complications in insulin-dependent diabetes mellitus. N Engl J Med 1993; 329: 977-86.
9. Hatherly K, et al,. Providing optimal service delivery for children and adolescents with type 1 diabetes: a systematic review. Pract Diabetes Int 2009; 26: 154-9.
10. Diabetes UK (in partnership with the All Parliamentary Group for Diabetes and supported by the Hansard Society). Diabetes: State of the Nations 2005. Progress made in delivering the national diabetes frameworks. 2005.
11. Murphy H., et al,. Psycho-educational interventions for children and young people with type 1 diabetes. Diabet Med 2006; 13: 935-43. (Pubitemid 44257937)
12. Jones SE, Hamilton S., The missing link: paediatric to adult transition in diabetes services. Br J Nursing 2008; 17 (13): 842-7.
13. Spencer J, et al,. Qualitative studies of type 1 diabetes in adolescence: A systematic literature review. Pediatr Diabetes 2010; 5: 364-75.
14. Edge JA, et al,., on behalf of the Youth and Family Advisory Committee of Diabetes UK. Diabetes services in the UK: fourth national survey; are we meeting NSF standards and NICE guidelines? Arch Dis Child 2005; 90: 1005-9. (Pubitemid 41406603)
15. James J, et al,. Diabetes specialist nurses and role evolvement: a survey by Diabetes UK and ABCD of specialist diabetes services 2007. Diabet Med 2009; 26: 560-5.
16. Royal College of Nursing. Specialist nursing services for children and young people with diabetes. London: RCN, 2006.
17. Heidegger MA., Being and Time. Malden, MA, Oxford: Blackwell, 1962.
18. Spencer J., Type 1 diabetes and adolescence: An exploration of lived experiences. PhD thesis, University of Liverpool, 2009.
19. Van Manen M., Researching lived experience: human science for an action sensitive pedagogy. London, Ontario: Althouse Press, 1997.
20. NICE. Clinical Guideline 15: Type 1 diabetes: diagnosis and management of type 1 diabetes in children and young people. Quick reference guide, 2004.
21. Department of Health. National Service Framework for Diabetes: Standards. 2001.
22. West MA, Slater J., Team working in primary health care: a review of its effectiveness. London: Health Education Authority, 1996.
23. Eliis DA, et al,. The role of parental monitoring in adolescent health outcomes: impact on regimen adherence in youth with type 1 diabetes. J Pediatr Psychol 2007; 32: 907-17.
24. Wysocki T., Associations among teen-parent relationships, metabolic control and adjustment to diabetes in adolescents. J Pediatr Psychol 1995; 18: 441-52. (Pubitemid 23260476)
25. Wysocki T, Gavin LA., Psychometric properties of a new measure of fathers' involvement in the management of pediatric chronic diseases. J Pediatr Psychol 2004; 29: 231-40. (Pubitemid 38657124)
26. Moreland EC, et al,. The impact of physiological, therapeutic and psychosocial variables on glycemic control in youth with type 1 diabetes mellitus. J Pediatr Endocrinol Metab 2004; 17: 1533-44. (Pubitemid 39497006)
27. Greene AC, et al,., on behalf of the Hvidore Study Group for Childhood Diabetes. Cross-cultural differences in the management of children and adolescents with diabetes. Hormone Res 2002; 57 (Suppl 1): 75-7. (Pubitemid 34458088)
28. Helgeson VS, et al,. Parent and adolescent distribution of responsibility for diabetes self-care: Links to health outcomes. J Pediatr Psychol 2008; 33: 497-508.
29. Dickinson JK, O'Reilly MM. The lived experience of adolescent females with type 1 diabetes. Diabetes Educ 2004; 30: 99-107. (Pubitemid 38315525)
30. Fleming E, et al,. The transition of adolescents with diabetes from the children's health care service into the adult health care service: a review of the literature. J Clin Nursing 2002; 11: 560-7. (Pubitemid 41697949)
31. Lundin CS, et al,. Handling the transition of adolescents with diabetes: participant observations and interviews with care providers in paediatric and adult diabetes outpatient clinics. Int J Integrated Care 2007;Jan-Mar; 7:e05.
32. Scott A, Donnelly R., Improving outcomes for people with diabetes: use of new technology and a skills based approach is urgently needed. Diabet Med 2001; 18: 861-3. (Pubitemid 34062952)
33. Cooper H, Geyer R., Riding the Diabetes Rollercoaster: A New Approach for Health Professionals, Patients and Carers. Oxon: Radcliffe, 2007.
34. Price MJ., An experiential model of learning diabetes self-management. Qualitative Health Res 1993; 3: 29-54.
35. 'KICk-OFF', an adapted version of an adult centred 'Dose Adjustment For Normal Eating' (DAFNE) programme. 2010.
36. 'Child and Adolescent Structured Competencies Approach to Diabetes Education' (CASCADE), a comparative study of individual versus group education with young people and their parents. 2010.
37. Cooper H, et al,. Development of an Adolescent Diabetes Needs Assessment Tool (ADNAT Study). Diabet Med 2010; 27 (Suppl 1):118.
38. Kennedy E., Teenagers in control. Balance 2010; Sept-Oct No. 237.
39. Cooper H, et al,. Technology-based approaches to patient education for young people living with diabetes: a systematic literature review. Pediatr Diabetes 2009; 10: 474-83.