Parents' perception of self-advocacy of children with myositis: An anonymous online survey

Pediatric Rheumatology

Volumn 9, Issue , 2011, Pages

  Katz, James D ^a   Mamyrova, Gulnara ^a   Agarwal, Shilpi ^e   Jones, Olcay Y ^c   Bollar, Harriet ^f   Huber, Adam M ^d   Rider, Lisa G ^b   White, Patience H ^a  

^a GEORGE WASHINGTON UNIVERSITY   (United States)

^b NATIONAL INSTITUTE OF ENVIRONMENTAL HEALTH SCIENCES   (United States)

^c WALTER REED ARMY MEDICAL CENTER   (United States)

^d IWK HEALTH CENTRE   (Canada)

^e Glendale Adventist Family Medicine Residency   (United States)

^f Cure JM   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CANADA; CHILD; CHILD HEALTH CARE; CHILDHOOD DISEASE; FEMALE; HEALTH SURVEY; HUMAN; IDIOPATHIC DISEASE; MALE; MYOSITIS; NON PROFIT ORGANIZATION; ONLINE SYSTEM; PARENTAL ATTITUDE; PRIORITY JOURNAL; UNITED STATES;

EID: 79957937709     PISSN: None     EISSN: 15460096     Source Type: Journal    
DOI: 10.1186/1546-0096-9-10     Document Type: Article

References (20)

1. Berkowitz S. Transitioning adolescents to adult care: putting theory into practice. Minn Med 2009, 92(3):42-44.
2. Hait EJ, Barendse RM, Arnold JH, et al. Transition of adolescents with inflammatory bowel disease from pediatric to adult care: a survey of adult gastroenterologists. J Pediatr Gastroenterol Nutr 2009, 48(1):61-65. 10.1097/MPG.0b013e31816d71d8, 19172125.
3. Betz CL. Adolescents in transition of adult care: why the concern?. Nurs Clin North Am 2004, 39(4):681-713. 10.1016/j.cnur.2004.07.008, 15561154.
4. Simon TD, Lamb S, Murphy NA, Hom B, Walker ML, Clark EB. Who Will Care for Me Next? Transitioning to Adulthood With Hydrocephalus. Pediatrics 2009, 124:1431-1437. 10.1542/peds.2008-3834, 2895548, 19841113.
5. Tuchman LK, Slap GB, Britto MT. Transition to adult care: experiences and expectations of adolescents with a chronic illness. Child Care Health Dev 2008, 34(5):557-563. 10.1111/j.1365-2214.2008.00844.x, 18796047.
6. McDonagh JE, Kelly DA. Transitioning care of the pediatric recipient to adult caregivers. Pediatr Clin N Am 2003, 50:1561-1583.
7. White PH, Shear ES. Transition/job readiness for adolescents with juvenile arthritis and other chronic illness. J Rheumatol 1992, 33(Suppl):23-27.
8. White PH. Access to health care: health insurance considerations for young adults with special health care needs/disabilities. Pediatrics 2002, 110(6 Pt 2):1328-1335.
9. Annunziato RA, Emre S, Shneider B, Barton C, Dugan CA, Shemesh E. Adherence and medical outcomes in pediatric liver transplant recipients who transition to adult services. Pediatr Transplant 2007, 11(6):578-614. 10.1111/j.1399-3046.2007.00756.x, 17663677.
10. McLaughlin SE, Diener-West M, Indurkhya A, Rubin H, Heckmann R, Boyle MP. Improving transition from pediatric to adult cystic fibrosis care: lessons from a national survey of current practices. Pediatrics 2008, 121(5):e1160-1166. 10.1542/peds.2007-2217, 18450860.
11. Bell L. Adolescent dialysis patient transition to adult care: a cross-sectional survey. Pediatr Nephrol 2007, 22(5):720-6. 10.1007/s00467-006-0404-z, 17333004.
12. Freed L, Hudson EJ. Transitioning children with chronic diseases to adult care: current knowledge, practices, and directions. J Pediatr 2006, 148:824-827. 10.1016/j.jpeds.2006.02.010, 16769396.
13. Burke R, Spoerri M, Price A, Cardosi A, Flanagan P. Survey of Primary Care Pediatricians on the Transition and Transfer of Adolescents to Adult Health Care. Clinical Pediatrics 2008, 47(4):347-354. 10.1177/0009922807310938, 18180341.
14. Andrews NR, Chaney JM, Mullins LL, Wagner JL, Hommel KA, Jarvis JN. The Differential Effect of Child Age on the Illness Intrusiveness-Parent Distress Relationship in Juvenile Rheumatic Disease. Rehabilitation Psychology 2009, 54(1):45-50.
15. Wiener LS, Zobel M, Battles H, Ryder C. Transition from a pediatric HIV intramural clinical research program to adolescent and adult community-based care services: assessing transition readiness. Soc Work Health Care 2007, 46(1):1-19. 10.1300/J010v46n01_01, 2366035, 18032153.
16. Olsen DG, Swigonski NL. Transition to Adulthood: The Important Role of the Pediatrician. Pediatrics 2004, 113(3):e159-e162. 10.1542/peds.113.3.e159, 14993570.
17. Cervia JS. Transitioning HIV-infected children to adult care. J Pediatr 2007, 150(1):e1. Comment on: J Pediatr 2006, 148(6):824-827..
18. Rubin K. Transitioning the patient with Turner's syndrome from pediatric to adult care. J Pediatr Endocrinol Metab 2003, 16(Suppl 3):651-659.
19. Burke R, Spoerri M, Price A, Cardosi A, Flanagan P. Survey of Primary Care Pediatricians on the Transition and Transfer of Adolescents to Adult Health Care. Clinical Pediatrics 2008, 47(4):347-354. 10.1177/0009922807310938, 18180341.
20. Sawin KJ, Bellin MH, Roux G, Buran CF, Brei TJ. The experience of self-management in adolescent women with spina bifida. Rehabil Nurs 2009, 34(1):26-38.