Are Canadians providing advance directives about health care and research participation in the event of decisional incapacity?

Canadian Journal of Psychiatry

Volumn 56, Issue 4, 2011, Pages 209-218

  Bravo, Gina ^a,b   Dubois, Marie France ^a,b   Cohen, Carole ^c   Wildeman, Sheila ^d   Graham, Janice ^d   Painter, Karen ^b   Bellemare, Suzanne ^b  

^a UNIVERSITÉ DE SHERBROOKE   (Canada)

^b UNIVERSITY INSTITUTE OF GERIATRICS OF SHERBROOKE   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

^d DALHOUSIE UNIVERSITY   (Canada)

Author keywords

Advance care planning; Advance directives; Canada; Postal survey; Substitute decision making

Indexed keywords

ADULT; AGED; ARTICLE; CANADA; FEMALE; HEALTH CARE; HEALTH SURVEY; HUMAN; LIVING WILL; MALE; MEDICAL RESEARCH; MENTAL DEFICIENCY; PATIENT CARE; PATIENT DECISION MAKING; PATIENT PARTICIPATION; PATIENT PREFERENCE; POSTAL MAIL; VERBAL BEHAVIOR; WRITING;

EID: 79957607789     PISSN: 07067437     EISSN: 14970015     Source Type: Journal    
DOI: 10.1177/070674371105600404     Document Type: Article

References (44)

1. Alzheimer Society of Canada. Rising tide: the impact of dementia on Canadian society. Toronto (ON): Alzheimer Society of Canada; 2010.
2. Collins LG, Parks SM, Winter L. The state of advance care planning: one decade after SUPPORT. Am J Hosp Palliat Care. 2006;23:378-384.
3. Shalowitz DI, Garrett-Mayer E, Wendler D. The accuracy of surrogate decision makers. A systematic review. Arch Intern Med. 2006;166:493-497.
4. Sachs GA. Advance consent for dementia research. Alzheimer Dis Assoc Disord. 1994;8(Suppl 4):19-27.
5. Singer PA, Robertson G, Roy DJ. Bioethics for clinicians: 6. Advance care planning. CMAJ. 1996;155:1689-1692. (Pubitemid 27022834)
6. Dunbrack J. Advance care planning: the glossary project. Final report. Ottawa (ON): Health Canada; 2006.
7. Pierce R. A changing landscape for advance directives in dementia research. Soc Sci Med. 2010;70:623-630.
8. Hugues DL, Singer PA. Family physicians' attitudes toward advance directives. CMAJ. 1992;146:1937-1944.
9. Sam M, Singer PA. Canadian outpatients and advance directives: poor knowledge and little experience but positive attitudes. CMAJ. 1993;148:1497-1502. (Pubitemid 23169618)
10. Singer PA, Martin DK, Lavery J, et al. Reconceptualizing advance care planning from the patient's perspective. Arch Intern Med. 1998;158:879-884. (Pubitemid 28183643)
11. Blondeau D, Valois P, Keyserlingk EW, et al. Comparison of patients' and health care professionals' attitudes toward advance directives. J Med Ethics. 1998;24:328-335.
12. Douglas R, Brown H. Patients' attitudes toward advance directives. J Nurs Scholarsh. 2002;34:61-65. (Pubitemid 41755757)
13. Rurup ML, Onwuteaka-Philipsen BD, van der Heide A, et al. Frequency and determinants of advance directives concerning end-of-life care in the Netherlands. Soc Sci Med. 2006;62:1552-1563. (Pubitemid 43197837)
14. Carr D, Khodyakow D. End-of-life health care planning among young-old adults: an assessment of psychosocial influences. J Gerontol B Psychol Sci Soc Sci. 2007;62(2):135-141.
15. Lingler JH, Hirschman KB, Garand L, et al. Frequency and correlates of advance planning among cognitively impaired older adults. Am J Geriatr Psychiatry. 2008;16:643-649.
16. McCarthy EP, Pencina MJ, Kelly-Hayes M, et al. Advance care planning and health care preferences of community-dwelling elders: the Framingham Heart Study. J Gerontol A Biol Sci Med Sci. 2008;63(9):951-959.
17. Daaleman TP, Williams CS, Preisser JS, et al. Advance care planning in nursing homes and assisted living. J Am Med Dir Assoc. 2009;10:243-251.
18. Lawrence JF. The advance directive prevalence in long-term care: a comparison of relationship between a nurse practitioner healthcare model and a traditional healthcare model. J Am Acad Nurse Pract. 2009;21:179-185.
19. Gallo JJ, Straton JB, Klag MJ, et al. Life-sustaining treatments: what do physicians want and do they express their wishes to others? J Am Geriatr Soc. 2003;51:961-969. (Pubitemid 36871144)
20. Lester PE, Sykora A, Wolf-Klein GP, et al. Do geriatricians practice what they preach? Geriatricians' personal establishment of advance directives. Gerontol Geriatr Educ. 2009;30(1):61-74.
21. Sudore RL, Landefeld CS, Pantilat SZ, et al. Reach and impact of a mass media event among vulnerable patients: the Terri Schiavo Story. J Gen Intern Med. 2008;23:1854-1857.
22. Bravo G, Dubois MF, Pâquet M. Advance directives for health care and research: prevalence and correlates. Alzheimer Dis Assoc Disord. 2003;17:215-222. (Pubitemid 37517789)
23. Bravo G, Gagnon M, Wildeman S, et al. Comparison of provincial and territorial legislation governing substitute consent for research. Can J Aging. 2005;24:237-250. (Pubitemid 43001315)
24. Bravo G, Pâquet M, Dubois MF. Knowledge of the legislation governing proxy consent to treatment and research. J Med Ethics. 2003;29:44-50. (Pubitemid 36231467)
25. Bravo G, Dubois MF, Pâquet M, et al. Quebec physicians'knowledge and opinions regarding substitute consent for decisionally incapacitated older adults. IRB. 2004;26:12-17. (Pubitemid 43362253)
26. Dillman DS. Mail and internet surveys: the tailored design method, second edition. New York (NY): John Wiley & Sons; 2000.
27. Jezewski MA, Meeker MA, Sessanna L, et al. The effectiveness of interventions to increase advance directive completion rates. J Aging Health. 2007;19:519-536. (Pubitemid 46743764)
28. Malcomson H, Bisbee S. Perspectives of healthy elders on advance care planning. J Am Acad Nurse Pract. 2009;21:18-23.
29. Hirschman KB, Kapo JM, Karlawish JHT. Identifying the factors that facilitate or hinder advance planning by persons with dementia. Alzheimer Dis Assoc Disord. 2008;22:293-298.
30. Sharman SJ, Garry M, Jacobsen JA, et al. False memories for end-of-life decisions. Health Psychol. 2008;27:291-296. (Pubitemid 351626291)
31. Black BS, Fogarty LA, Phillips H, et al. Surrogate decision makers'understanding of dementia patients' prior wishes for end-of-life care. J Aging Health. 2009;21:627-650.
32. Teno JM, Gruneir A, Schwartz Z, et al. Association between advance directives and quality of end-of-life care: a national study. J Am Geriatr Soc. 2007;55:189-194. (Pubitemid 46184393)
33. Sudore RL, Schickedanz AD, Landefeld CS, et al. Engagement in multiple steps of the advance care planning process: a descriptive study of diverse older adults. J Am Geriatr Soc. 2008;56:1006-1013. (Pubitemid 351782724)
34. Kahana B, Dan A, Kahana E, et al. The personal and social context of planning for end-of-life care. J Am Geriatr Soc. 2004;52:1163-1167. (Pubitemid 38869077)
35. Gallagher R. An approach to advance care planning in the office. Can Fam Physician. 2006;52:459-464. (Pubitemid 44405811)
36. Alderman JS, Nair B, Fox MD. Residency training in advance care planning: can it be done in the outpatient clinic? Am J Hosp Palliat Care. 2008;25:190-194.
37. Nishimura A, Mueller PS, Evenson LK, et al. Patients who complete advance directives and what they prefer. Mayo Clin Proc. 2007;82:1480-1486. (Pubitemid 350211695)
38. Kim SYH, Appelbaum PS. The capacity to appoint a proxy and the possibility of concurrent proxy directives. Behav Sci Law. 2006;24:469-478. (Pubitemid 44328712)
39. Saks ER, Dunn LB, Wimer J, et al. Proxy consent to research: the legal landscape. Yale J Health Policy Law Ethics. 2008;37:37-92.
40. Black K, Reynolds SL. Factors associated with advance care planning among older women in Southwest Florida. J Women Aging. 2008;20:249-264.
41. Andersen R, Newman JF. Societal and individual determinants of medical care utilization in the United States. Milbank Mem Fund Q Health Soc. 1973;51(1):95-124.
42. Ontario Ministry of the Attorney General. The Capacity Assessment Office. Guidelines for conducting assessments of capacity. Toronto (ON): Ontario Ministry of the Attorney General; 2005.
43. Health Care (Consent) and Care Facility (Admission) Act, R.S.B.C. 1996, c. 181;
44. Representation Agreement Act, R.S.B.C. 1996, c. 405.