Partner care at the end-of-life: Identity, language and characteristics

Ageing and Society

Volumn 31, Issue 2, 2011, Pages 217-242

  Corden, Anne ^a   Hirst, Michael ^a  

^a UNIVERSITY OF YORK   (United Kingdom)

Author keywords

care giving; carers; identity; panel data; qualitative study

Indexed keywords

ELDERLY CARE; HEALTH CARE; HEALTH SERVICES; HEALTH WORKER; HOUSEHOLD SURVEY; PANEL DATA;

UNITED KINGDOM;

EID: 79957480496     PISSN: 0144686X     EISSN: 14691779     Source Type: Journal    
DOI: 10.1017/S0144686X10000838     Document Type: Article

References (52)

1. Ahmad, W. 1996. Family obligations and social change among Asian communities. In Ahmad, W. and Atkin, K. (eds), 'Race' and Community Care. Open University Press, Buckingham, UK, 51-72.
2. Arber, S. and Ginn, J. 1990. The meaning of informal care: gender and the contribution of elderly people. Ageing & Society, 10, 4, 429-54.
3. Arksey, H. and Hirst, M. 2005. Unpaid carers' access to and use of primary care services. Primary Health Care Research and Development, 6, 2, 101-16.
4. Association of Directors of Adult Social Services (ADASS) 2010. Carers as Partners in Hospital Discharge. Improving Carer Recognition, Support and Outcomes Within Timely and Supported Discharge Processes: A Review. ADASS, London.
5. Becker, S., Aldridge, J. and Dearden, C. 1998. Young Carers and Their Families. Blackwell, Oxford.
6. Beresford, B. 1994. Positively Parents: Caring for a Severely Disabled Child. Her Majesty's Stationery Office, London.
7. Bytheway, B. and Johnson, J. 1998. The social construction of 'carers'. In Symonds, A. and Kelly, A. (eds), The Social Construction of Community Care. Macmillan, Basingstoke, UK, 241-53.
8. Carnelley, K., Pietromonaco, P. and Jaffe, K. 1996. Attachment, caregiving and relationship functioning in couples: effects of self and partner. Personal Relationships, 3, 3, 257-78.
9. Cartwright, A. 1991. Changes in life and care in the year before death, 1969-1987. Journal of Public Health Medicine, 13, 2, 81-7.
10. Cavaye, J. 2006. Hidden Carers. Dunedin Academic Press, Edinburgh.
11. Clements, L. 2009. Carers and Their Rights: The Law Relating to Carers. Carers UK, London.
12. Cook, T. 2007. The History of the Carers' Movement. Carers UK, London.
13. Corden, A., Hirst, M. and Nice, K. 2008. Financial Implications of Death of a Partner. Social Policy Research Unit, University of York, York, UK.
14. Davidson, K., Arber, S. and Ginn, J. 2000. Gendered meanings of care work within late life marital relationships. Canadian Journal on Aging, 19, 4, 536-53. (Pubitemid 32155575)
15. Department of Health 1989. Caring for People: Community Care in the Next Decade and Beyond. Cm 849, HMSO, London.
16. Department of Health 1999. National Service Framework for Mental Health. Department of Health, London.
17. Department of Health 2008. End of Life Care Strategy. Promoting High Quality Care for All Adults at the End of Life. Department of Health, London.
18. Department of Health 2009. Living Well with Dementia: A National Dementia Strategy. Department of Health, London.
19. Donnellan, H. 2009. GP Carers' Project: Final Evaluation Report. RE:search South West, Faculty of Health and Social Work, University of Plymouth, Plymouth, UK.
20. Fine, M. 2007. A Caring Society? Care and the Dilemmas of Human Service in the Twenty-first Century. Palgrave Macmillan, Basingstoke, UK.
21. Finucane, M., Slovic, P., Hibbard, J., Peters, E., Mertz, C. and MacGregor, D. 2002. Aging and decision-making competence: an analysis of comprehension and consistency skills in older versus younger adults considering health-plan options. Journal of Behavioral Decision Making, 15, 2, 141-64. (Pubitemid 37282706)
22. Goldberg, D. and Williams, P. 1991. A User's Guide to the General Health Questionnaire. NFER-Nelson, Windsor, UK.
23. Gooberman-Hill, R. and Ebrahim, S. 2006. Informal care at times of change in health and mobility: a qualitative study. Age and Ageing, 35, 3, 261-66.
24. Government Equalities Office 2009. A Fairer Future: The Equality Bill and Other Action to Make Equality a Reality. Government Equalities Office, London.
25. Heaton, J. 1999. The gaze and visibility of the carer: a Foucauldian analysis of the discourse of informal care. Sociology of Health and Illness, 21, 6, 759-77.
26. Henderson, J. 2001. 'He's not my carer - he's my husband': personal and policy constructions of care in mental health. Journal of Social Work Practice, 15, 2, 149-59. (Pubitemid 33689824)
27. Henderson, J. and Forbat, L. 2002. Relationship-based social policy: personal and policy constructions of 'care'. Critical Social Policy, 22, 4, 669-87. (Pubitemid 35400237)
28. Her Majesty's Government 2008. Carers at the Heart of 21st Century Families and Communities. Department of Health, London.
29. Howarth, G. 1998. 'Just live for today': living, caring, ageing and dying. Ageing & Society, 18, 6, 673-89. (Pubitemid 29308276)
30. Howse, K., Ebrahim, S. and Gooberman-Hill, R. 2005. Help-avoidance: why older people do not always seek help. Reviews in Clinical Gerontology, 14, 1, 63-70. (Pubitemid 40193531)
31. Jarrold, K. and Yeandle, S. 2009. 'A Weight off my Mind'. Exploring the Impact and Potential Benefits of Telecare for Unpaid Carers in Scotland. Carers Scotland, Glasgow.
32. Katbamna, S., Parker, G., Ahmad, W. and Baker, R. 1998. Experiences and Needs of Carers in the South Asian Communities. Nuffield Community Care Studies Centre, University of Leicester, Leicester, UK.
33. Lewis, R. 1998. The impact of the marital relationship on the experience of caring for an elderly spouse with dementia. Ageing & Society, 18, 2, 209-31. (Pubitemid 128722296)
34. Lloyd, L. 2004. Mortality and morality: ageing and the ethics of care. Ageing & Society, 24, 2, 235-56.
35. Lloyd, L. 2006. Call us carers: limitations and risks in campaigning for recognition and exclusivity. Critical Social Policy, 26, 4, 945-60. (Pubitemid 44490085)
36. Maher, J. and Green, H. 2002. Carers 2000. Stationery Office, London.
37. National Audit Office 2009. Supporting Carers to Care. Stationery Office, London.
38. Nolan, M., Grant, G. and Keady, J. 1996. Understanding Family Care: A Multidimensional Model of Caring and Coping. Open University Press, Buckingham, UK.
39. O'Connor, D. 2007. Self-identifying as a caregiver: exploring the positioning process. Journal of Aging Studies, 21, 2, 165-74.
40. Office for National Statistics 2009a. 2008-based National Population Projections. Office for National Statistics, London.
41. Office for National Statistics 2009b. 2006-based marital status and cohabitation projections for England and Wales. Population Trends, 136, 112-20.
42. Parker, G. 1993. With this Body: Caring and Disability in Marriage. Open University Press, Buckingham, UK.
43. Parker, G. and Lawton, D. 1994. Different Types of Care, Different Types of Carer: Evidence from the General Household Survey. HMSO, London.
44. Payne, S. 2004. Carers and caregivers. In Oliviere, D. and Monroe, B. (eds), Death, Dying, and Social Differences. Oxford University Press, Oxford, 181-98.
45. Pickard, S., Jacobs, S. and Kirk, S. 2003. Challenging professional roles: lay carers' involvement in health care in the community. Social Policy and Administration, 37, 1, 82-96. (Pubitemid 36294787)
46. Pickard, L., Wittenberg, R., Comas-Herrera, A., Davies, B. and Darton, R. 2000. Relying on informal care in the new century? Informal care for elderly people in England to 2031. Ageing & Society, 20, 6, 745-72. (Pubitemid 32232792)
47. Rogers, A., Chapple, A. and Halliwell, S. 1998. The influence of paid and unpaid work on help-seeking for primary care. Social Sciences in Health, 4, 3, 187-99.
48. Roulstone, A., Hudson, V., Kearney, J., Martin, A. with Warren, J. 2006. Working Together: Carer Participation in England, Wales and Northern Ireland. Social Care Institute for Excellence, London.
49. Taylor, M. (ed.) with Brice, J., Buck, N. and Prentice-Lane, E. 2006. British Household Panel Survey User Manual. Volume A: Introduction, Technical Report and Appendices. Institute for Social and Economic Research, University of Essex, Colchester, UK.
50. Twigg, J. (ed.) 1992. Carers: Research and Practice. HMSO, London.
51. Twigg, J. and Atkin, K. 1994. Carers Perceived: Policy and Practice in Informal Care. Open University Press, Buckingham, UK.
52. Wong, S. 2004. Property regimes for home-sharers: the Civil Partnership Bill and some Antipodean models. Journal of Social Welfare and Family Law, 26, 4, 361-75.