Science and society: Some "Made-in-Canada" options for improving integration

Accountability in Research

Volumn 18, Issue 3, 2011, Pages 194-216

  Kosseim, Patricia ^a   Chapman, Sheila ^a  

^a Genome Canada   (Canada)

Author keywords

ELSI; GE3LS; Genomics; Integration; Science; Society

Indexed keywords

CANADA; FEMALE; GENETICS; HEALTH CARE ORGANIZATION; HUMAN; HUMAN GENOME PROJECT; INTEGRATED HEALTH CARE SYSTEM; INTERPERSONAL COMMUNICATION; MALE; METHODOLOGY; ORGANIZATION AND MANAGEMENT; PUBLIC RELATIONS; REVIEW; SCIENCE; THEORETICAL MODEL; TOTAL QUALITY MANAGEMENT;

CANADA; COMMUNICATION; DELIVERY OF HEALTH CARE, INTEGRATED; FEMALE; GENETIC RESEARCH; HUMAN GENOME PROJECT; HUMANS; INTERPROFESSIONAL RELATIONS; MALE; MODELS, THEORETICAL; QUALITY IMPROVEMENT; RESEARCH DESIGN; SCIENCE; SOCIETIES;

EID: 79956151397     PISSN: 08989621     EISSN: 15455815     Source Type: Journal    
DOI: 10.1080/08989621.2011.575246     Document Type: Review

References (44)

1. Campbell, D., Archambault, É., and Côté, G. (2008). Science-Matrix, Benchmarking of Canadian Genomics 1996-2007. December 2008. Genome Canada. Available at http://www.genomecanada.ca/medias/PDF/EN/bibliometrics_benchmarking-Canadian-Genomics-Report.pdf. Last accessed 25 April 2011.
2. Centre for Society and Genomics. (2010). Mission and Methods. Available at http://www.society-genomics.nl/en/about-csg/mission-methods.html. Last accessed 25 April 2011.
3. ELSA-GEN. (2009). Initiative for collaborative research projects on "ethical, legal, socio-cultural and economic aspects of genomics and related sciences. " Available at http://www.elsagen.at/. Last accessed 25 April 2011.
4. ESRC Genomics Network. Economic and Social Research Council. Available at http://www.genomicsnetwork.ac.uk/. Last accessed 25 April 2011.
5. European Commission. (2002). The Sixth Framework Programme in Brief, December 2002. European Commission Community Research. Available at http://ec.europa.eu/research/fp6/pdf/fp6-in-brief_en.pdf. Last accessed 25 April 2011.
6. European Commission. (2007). Final Report of the Study on the Integration of Science and Society Issues in the Sixth Framework Programme. Available at http://ec.europa.eu/research/science-society/document_library/pdf_06/integratingsis-issues-in-research-full-report_en.pdf. Last accessed 25 April 2011.
7. European Commission. (2007-2013). Science in Society: Sharing Knowledge-Engaging Society. Leaflet. Available at ftp://ftp.cordis.europa.eu/pub/fp7/sis/docs/sis_en.pdf. Last accessed 25 April 2011.
8. European Communities. (2009). Challenging Futures of Science in Society: Emerging Trends and cutting-edge issues. The MASIS Report. European Research Area. Available at ftp://ftp.cordis.europa.eu/pub/fp7/sis/docs/sis_masis_report_en.pdf. Last accessed 25 April 2011.
9. Gannon, F. (2006). Science for society. European Molecular Biology Organization, 7:561. Genome British Columbia. Available at http://www.genomebc.ca/. Last accessed 25 April 2011.
10. Genome Alberta. Available at http://www.genomealberta.ca/about/. Last accessed 25 April 2011.
11. Genome Prairie. Available at http://www.genomeprairie.ca/. Last accessed 25 April 2011.
12. Ontario Genomics Institute. Available at http://www.ontariogenomics.ca/. Last accessed 25 April 2011.
13. Génome Québec. Available at http://www.genomequebec.com/v2009/home/. Last accessed 25 April 2011.
14. Genome Atlantic. Available at http://www.genomeatlantic.ca/. Last accessed 25 April 2011.
15. Genome Canada. Available at http://www.genomecanada.ca/en/ge3ls/. Last accessed 25 April 2011.
16. Genome Canada (2009). To Share or not to share-Should genetic test results be reported back to participants? Impact: Genomics and Society, Fall. Genome Canada. Available at http://www.genomecanada.ca/en/ge3ls/newsletters/fall-2009/feature-stories.aspx#story-3. Last accessed 25 April 2011.
17. Genome Canada. (2007). Draft Summary of key discussion points from Genome Canada's February 2007 Consultation Workshop. Available at http://www.genomecanada.ca/medias/pdf/en/GE3LS2007_Workshop_draft.pdf. Last accessed 25 April 2011.
18. Genome Canada. (2010). Guidelines for Funding Large-Scale Genomics Research Projects May 2010. Available at http://www.genomecanada.ca/medias/PDF/en/guidelines-competition-2010.pdf. Last accessed 25 April 2011.
19. Gibbons, M. (1999). Science's new social contract with society. Nature, 402:C81-C84.
20. Gibbons, M., Limoges, C., Nowotny, H., Schwartzman, S., Scott, P., and Trow, M. (1994). The New Production of Knowledge. London: Sage.
21. Grand Challenges in Global Health. (2005). Press Release. June 27, 2005. Available at http://www.grandchallenges.org/about/Newsroom/Pages/GroundbreakingProjects.aspx. Last accessed 25 April 2011.
22. Greely, H. T. (2006). Neuroethics and ELSI: Similarities and differences. Minnesota Journal of Law, Science, and Technology, 7:599-637.
23. Green, S. and Hartley, S. (2007). Workshop on Integration of GE3LS and Genomics Research: Approaches, Accomplishments, Challenges, July 4-5, 2007. Genome Canada. Available at http://www.genomecanada.ca/medias/pdf/en/GC_Workshop_April2008.pdf. Last accessed 25 April 2011.
24. Hartley, S. and Williams-Jones, B. (2006). The Ottawa GE3LS workshops, Feb. 6-7, 2006. Genome Canada. Available at http://www.genomecanada.ca/medias/pdf/en/GE3LS2006_Workshop.pdf. Last accessed 25 April 2011.
25. Huijer, M. (2006). Between dreams and reality: The Dutch approach to genomics and society. BioSocieties, 1:91-95.
26. Institute of Genetics. Strategic Goals and Research Priority Themes. Canadian Institutes of Health Research. Available at http://www.cihr-irsc.gc.ca/e/20677.html. Last accessed 25 April 2011.
27. Kitcher, P. (2001). Science, Truth and Democracy. Oxford: Oxford University Press.
28. KPMG. (2009). Evaluation of Genome Canada-Final Report May 22, 2009. Genome Canada. Available at http://www.genomecanada.ca/medias/PDF/EN/Fiveyear_Evaluation.pdf. Last accessed 25 April 2011.
29. Macilwain, C. (2009). Watching science at work. Nature, 462:840-842. McLaughlin-Rotman Centre for Global Health. Available at http://www.mrcglobal.org/node/144. Last accessed 25 April 2011.
30. National Human Genome Research Institute (NHGRI). ELSI Research Program. National Institutes of Health. Available at http://www.genome.gov/10001618. Last accessed 25 April 2011.
31. Nelis, A., Reddy, C., and Mulder, E. (2006). ELSA Genomics in the ERASAGE Consortium: Similarities and differences in approaches and themes in the study of the relationship between genomics and society November 2006. ERASAGE European Research Area on the Societal Aspects of Genomics. Available at http://www.erasage.org/images/erasage/documents/Reports_documents/WP1report_D1.3new.pdf. Last accessed 25 April 2011.
32. Nowotny, H. (2000) Rethinking science: From reliable knowledge to socially robust knowledge. In Jahrbuch 2000 des Collegium Helveticum. H.G. Mit Martina Weiss, Surich: vdf. 221-244.
33. Nowotny, H., Scott, P., and Gibbons, M. (2002). Re-Thinking Science: Knowledge Production in an Age of Uncertainty. Malden, MA: Blackwell.
34. Nowotny, H., Scott, P., and Gibbons, M. (2006). Re-thinking science: Mode 2 in societal context. In: Knowledge, Creation, Diffusion and Use in Innovation Networks and Knowledge Clusters: A Comparative Systems Approach across the United States, Europe and Asia. Carayannis, E. G. and Campbell, D. F. J. (eds.) pp. 39-51. Westport: Praeger.
35. Penders, B., Horstman, K., and Vos, R. (2008). A ferry between cultures: Crafting a new profession at the intersection of science and society. European Molecular Biology Organization Reports, 9:709-713.
36. Research Council of Norway. Ethical, Legal and Social Aspects of Nanotechnology, Biotechnology and Neurotechnology. Programme Description. Available at http://www.forskningsradet.no/servlet/Satellite?c=Page&cid=1224698247089&pagename=elsa%2FHovedsidemal. Last accessed 25 April 2011.
37. Rodgers, L., Hartley, S., and Laforce, D. (2009). Interim Report: Evaluative Review of the Integrated Research Model under Competition III and AGIP. Genome B.C. Forthcoming.
38. Sheremeta, L. and Williams-Jones, B. The Vancouver GE3LS Workshop, January 21, 2002. Genome Canada. Available at http://www.genomecanada.ca/medias/pdf/en/Report_GE3LS_workshop2002.pdf. Last accessed 25 April 2011.
39. Singer, P. and Lavery, J. (2003-2008). Addressing Ethical, Socio-cultural issues related to Grand Challenges in Global Health. Grand Challenges in Global Health. Available at http://www.grandchallenges.org/about/Pages/AddressingIssues.aspx. Last accessed 25 April 2011.
40. Singer, P. A., Taylor, A. D., Daar, A. S., Upshur, R. E. G., and Singh, J. A. (2007). Grand Challenges in Global Health: The Ethical, Social and Cultural Program. PLoS Medicine, 4:e265. VALGEN. http://valgen.ca/.
41. Watson, J. (1996). Lecture. The Health Report. Monday December 9. Radio National Transcripts. Available at http://www.abc.net.au/rn/talks/8.30/helthrpt/hstories/hr091296.htm. Last accessed 25 April 2011.
42. Williams, G. (2006). ERA-SAGE Workshop II Canadian GE3LS Research Funding: Articulating Best Practices and Exploring Future Directions, November 16-17, 2006. Genome Canada, Canadian Institutes of Health Research, Social Sciences and Humanities Research Council of Canada. Available at http://www.genomecanada.ca/medias/pdf/en/ERA-SAGE_WorkshopII_GE3LS.pdf. Last accessed 25 April 2011.
43. Yesley, M. S. (2008). What's ELSI got to do with it? Bioethics and the human genome project. New Genetics and Society, 27:1-6.
44. Zwart, H. and Nelis, A. (2009). What is ELSA genomics? European Molecular Biology Organization Reports, 10:540-544.