What's ELSI got to do with it? Bioethics and the Human Genome Project

New Genetics and Society

Volumn 27, Issue 1, 2008, Pages 1-6

  Yesley, Michael S ^a  

^a NONE   (United States)

Author keywords

Bioethics; ELSI; Genetics

Indexed keywords

BIOETHICS; GENETIC SERVICE; HEALTH CARE POLICY; HEALTH PROGRAM; HEALTH SURVEY; HUMAN; HUMAN GENETICS; HUMAN GENOME; MEDICAL ETHICS; MEDICAL RESEARCH; PRIORITY JOURNAL; REVIEW;

EID: 45849104270     PISSN: 14636778     EISSN: 14699915     Source Type: Journal    
DOI: 10.1080/14636770701843527     Document Type: Review

References (14)

1. Callahan, D., 1996. Bioethics, our crowd, and ideology. Hastings Center Report, 26 (6), 3-4.
2. Department of Health and Human Services & Department of Energy, 1990. Understanding our genetic inheritance. Washington DC: Government Printing Office.
3. ELSI Research Advisors, 2005. Report to the National Advisory Council for Human Genome Research [online]. Available from: www.genome.gov/Pages/ About/NACHGR/Feb2005NACHGRAgenda/ERAReportdraft5.doc [Accessed 25 May 2007].
4. ELSI Research Planning and Evaluation Group, 2000. ERPEG final report [online]. Available from: http://www.genome.gov/Pages/Hyperion/ About_NHGRI/Der/Elsi/erpeg_report.pdf [Accessed 26 May 2007].
5. Hanna, K.E., 1995. The ethical, legal, and social implications program of the National Center for Human Genome Research: a missed opportunity? In: R.E. Bulger, E.M. Bobby and H.V. Fineberg, eds. Society's choices: social and ethical decision making in biomedicine. Washington, DC: National Academy Press, 432-457.
6. Jasanoff, S., 2005. Designs on nature. New York: Princeton University Press.
7. Jonsen, A., 1998. The birth of bioethics. Oxford and New York: Oxford University Press.
8. Juengst, E., 1996. Self-critical federal science? The ethics experiment within the US Human Genome Project. In: E. Paul, F. Miller and J. Paul, eds. Scientific innovation, philosophy, and public policy. Cambridge: Cambridge University Press, 63-95.
9. Marshall, E., 1996. The genome program's conscience. Science, 274 (5287), 488-490.
10. National Commission for the Protection of Human Subjects, 1978. Special study. Washington DC: US Department of Health, Education and Welfare.
11. President's Commission for the Study of Ethical Problems in Medicine, 1982. Splicing life. Washington DC: Author.
12. Rothman, D., 1991. Strangers at the bedside. New York: BasicBooks.
13. US Congress, 1968. Hearings on S.J. Res. 145 before the Subcommittee on Government Research of the Senate Committee on Government Operations, 90th Cong., 2d Sess.
14. US Congress, 1974. National Research Act, Public Law 93-348.