Utilization of psychosocial care and oncological follow-up assessments among german long-term survivors of cancer with onset during adolescence

Klinische Padiatrie

Volumn 223, Issue 3, 2011, Pages 152-158

  Dieluweit, U ^a   Seitz, D C M ^a   Besier, T ^a   Debatin, K M ^b   Grabow, D ^c   Kaatsch, P ^c   Goldbeck, L ^a  

^a UNIVERSITY OF ULM   (Germany)

^b UNIVERSITY HOSPITAL ULM   (Germany)

^c UNIVERSITY MEDICAL CENTER MAINZ   (Germany)

Author keywords

cancer; follow up assessments; longterm survivors; oncology; psycho oncology

Indexed keywords

ANTIDEPRESSANT AGENT; CENTRAL STIMULANT AGENT; HYPNOTIC AGENT; MOOD STABILIZER; NEUROLEPTIC AGENT; TRANQUILIZER;

ADOLESCENT; ADULT; ANXIETY DISORDER; ARTICLE; CANCER REGISTRY; CANCER SURVIVAL; CHILDHOOD CANCER; CONTROLLED STUDY; DEPRESSION; FEMALE; FOLLOW UP; GERMANY; HEALTH CARE UTILIZATION; HOSPITAL ANXIETY AND DEPRESSION SCALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL ASSESSMENT; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; ONSET AGE; POSTTRAUMATIC STRESS DIAGNOSTIC SCALE; POSTTRAUMATIC STRESS DISORDER; PSYCHOSOCIAL CARE; PSYCHOTHERAPY; QUESTIONNAIRE; RETROSPECTIVE STUDY; SURVIVOR; SYMPTOM;

ADOLESCENT; ADULT; AFTERCARE; ANXIETY DISORDERS; ATTITUDE TO DEATH; COMMUNITY MENTAL HEALTH SERVICES; DEPRESSIVE DISORDER; DRUG UTILIZATION; FEMALE; GERMANY; HOSPITALIZATION; HUMANS; LONGITUDINAL STUDIES; MALE; NEOPLASMS; PERSONALITY ASSESSMENT; PSYCHOTROPIC DRUGS; REGISTRIES; REHABILITATION CENTERS; STRESS DISORDERS, POST-TRAUMATIC; SURVIVORS; UTILIZATION REVIEW; YOUNG ADULT;

EID: 79956107197     PISSN: 03008630     EISSN: 14393824     Source Type: Journal    
DOI: 10.1055/s-0031-1271779     Document Type: Article

References (39)

1. Berglund G, Bolund C, Gustafsson UL et al,. Is the wish to participate in a cancer rehabilitation program an indicator of the need? Comparisons of participants and non-participants in a randomized study. Psychooncology 1997 6 35-46 (Pubitemid 27195761)
2. Bjelland I, Dahl AA, Haug TT et al,. The validity of the Hospital Anxiety and Depression Scale. An updated literature review. J Psychosom Res 2002 52 69-77 (Pubitemid 34192886)
3. Blaauwbroek R, Groenier KH, Kamps WA et al,. Late effects in adult survivors of childhood cancer: The need for life-long follow-up. Ann Oncol 2007 18 1898-1902 (Pubitemid 350119562)
4. Bölling T, Schuck A, Pape H et al,. Study protocol of the German Registry for the detection of late sequelae after radiotherapy in childhood and adolescence (RiSK). Radiat Oncol 2008 3 10
5. Debling D, Spix C, Blettner M et al,. The cohort of long-term survivors at the German Childhood Cancer Registry. Klin Padiatr 2008 220 371-377
6. Foa EB. Posttraumatic Stress Diagnostic Scale (PDS). Manual. National Computer Systems, Inc., Minneapolis 1995
7. Frey E, Gessl A, Riedel M et al,. Nachsorge im Erwachsenenalter: Entwicklung neuer interdisziplinärer Strategien [Long-term follow-up in adulthood: Development of new interdisciplinary treatment strategies]. Monatsschr Kinderheilkd 2009 157 339-345
8. Freyer DR, Brugieres L. Adolescent and young adult oncology: Transition of care. Pediatr Blood Cancer 2008 50 1116-1119 (Pubitemid 351500166)
9. Goldbeck L, Hölling I, Schlack R et al,. The impact of a family-oriented rehabilitation program on psychological symptoms of chronically ill children. [Effekte stationärer familienorientierter Rehabilitation auf die psychologische Symptomatik chronisch körperlich kranker Kinder und Jugendlicher]. Klin Padiatr 2011 223 79-84
10. Green DM. Late effects of treatment for cancer during childhood and adolescence. Curr Probl Cancer 2003 27 127-142 (Pubitemid 36627185)
11. Häberle H, Schwarz R, Mathes L. Familienorientierte Betreuung bei krebskranken Kindern und Jugendlichen [Family orientated interventions of children and adolescents with cancer disease]. Prax Kinderpsychol Kinderpsychiat 1997 46 405-419 (Pubitemid 127537946)
12. Häberle H, Weiss H, Fellhauer S et al,. Familienorientierte Nachsorge als Manahme der Rehabilitation und sekundären Prävention für krebskranke Kinder und ihre Familien [Family oriented intervention for rehabilitation and secondary prevention in children with cancer and their families]. Klin Padiatr 1991 203 206-210
13. Herrmann-Lingen C, Buss U, Snaith RP. HADS-D. Hospital Anxiety and Depression Scale Deutsche Version. Ein Fragebogen zur Erfassung von Angst und Depressivität in der somatischen Medizin. 2nd Edition Verlag Hans Huber, Hogrefe, Bern 2005
14. Jacobsen PB. Clinical practice guidelines for the psychosocial care of cancer survivors: Current status and future prospects. Cancer 2009 115 4419-4429
15. Kadan-Lottick NS, Robison LL, Gurney JG et al,. Childhood cancer survivors knowledge about their past diagnosis and treatment: Childhood cancer survivor study. JAMA 2002 287 1832-1839 (Pubitemid 34303628)
16. Kazak AE. Evidence-based interventions for survivors of childhood cancer and their families. J Pediatr Psychol 2005 30 29-39 (Pubitemid 40041438)
17. Klosky JL, Cash DK, Buscemi J et al,. Factors influencing long-term follow-up clinic attendance among survivors of childhood cancer. J Cancer Surviv 2008 2 225-232
18. Kyngäs H, Mikkonen R, Nousiainen EM et al,. Coping with the onset of cancer: Coping strategies and resources of young people with cancer. Eur J Cancer Care 2001 10 6-11 (Pubitemid 33699404)
19. Langer T, Dörr HG, Bielack S et al,. Spätfolgen in der Nachsorge von krebskranken Kindern und Jugendlichen [Detection, avoidance and treatment of late effects in the follow-up of children and adolescents with cancer]. Onkologe 2005 11 1101-1109 (Pubitemid 43074843)
20. Langer T, Henze G, Beck JD. Basic methods and the developing structure of a late effects surveillance system (LESS) in the long-term follow-up of pediatric cancer patients in Germany. Med Pediatr Oncol 2000 34 348-351 (Pubitemid 30230610)
21. Langeveld NE, Grootenhuis MA, Voûte PA et al,. Posttraumatic stress symptoms in adult survivors of childhood cancer. Pediatr Blood Cancer 2004 42 604-610 (Pubitemid 38669748)
22. Leidig E. S1 Leitlinie: Rehabilitation in der pädiatrischen Onkologie [Rehabilitation in paediatric oncology]. AWMF online 2008. http://www.awmf.org/uploads/tx-szleitlinien/070-007-S1-Rehabilitation-in-der- paediatrischen-Onkologie-02-2008-02-2013.pdf.
23. Oeffinger KC, Mertens AC, Hudson MM et al,. Health care of young adult survivors of childhood cancer: A report from the childhood cancer survivor study. Ann Fam Med 2004 2 61-70 (Pubitemid 39318021)
24. Oeffinger KC, Mertens AC, Sklar CA et al,. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med 2006 355 1572-1582 (Pubitemid 44547808)
25. Peeters J, Meitert J, Paulides M et al,. Health-related quality of life (HRQL) in all-patients treated with chemotherapy only: a report from the late effects surveillance system in Germany. Klin Padiatr 2009 221 156-161
26. Plass A, Koch U. Participation of oncological outpatients in psychosocial support. Psychooncology 2001 10 511-520 (Pubitemid 33085498)
27. Schrag NM, McKeown RE, Jackson KL et al,. Stress-related mental disorders in childhood cancer survivors. Pediatr Blood Cancer 2008 50 98-103 (Pubitemid 350234272)
28. Schröder HM, Lilienthal S, Schreiber-Gollwitzer BM et al,. S3-Leitlinie: Psychosoziale Versorgung in der Pädiatrischen Onkologie und Hämatologie [Psychosocial care in pediatric oncology and Haematology]. AWMF online 2008 http://www.awmf.org/uploads/tx-szleitlinien/025-002l.pdf.
29. Schwarz R, Rucki N, Singer S. Onkologisch Kranke als Patienten der psychotherapeutischen Praxis: Beitrag zur Qualitätserkundung und psychosozialen Versorgungslage [Cancer patients in psychotherapy: Contribution to quality assurance and psychosocial care]. Psychotherapeut 2006 51 369-375 (Pubitemid 44469710)
30. Seitz DCM, Besier T, Debatin K-M et al,. Posttraumatic stress, depression, and anxiety among adult long term survivors of cancer in adolescence. Eur J Cancer 2010 46 1596-1606
31. Seitz DCM, Besier T, Goldbeck L. Psychosocial interventions for adolescent cancer patients: a systematic review of the literature. Psychooncology 2009 18 683-690
32. Snaith RP, Zigmond AS. HADS: Hospital Anxiety and Depression Scale. NFER Nelson, Windsor 1994
33. Söllner W, Keller M. Wirksamkeit psychoonokologischer Interventionen auf die Lebensqualität der Patienten Ein systematischer Überblick über Reviews und Metaanalysen [Effectiveness of psychological interventions with cancer patients A review of meta-analyses]. Psychosom Konsiliarpsychiatr 2007 1 249-257
34. Steginga SK, Campbell A, Ferguson M et al,. Socio-demographic, psychosocial and attitudinal predictors of help seeking after cancer diagnosis. Psychooncology 2008 17 997-1005
35. von Essen L, Enskär K, Kreuger A et al,. Self-esteem, depression and anxiety among Swedish children and adolescents on and off cancer treatment. Acta Paediatr 2000 89 229-236 (Pubitemid 30339598)
36. Wasilewski-Masker K, Mertens AC, Patterson B et al,. Severity of health conditions identified in a pediatric cancer survivor program. Pediatr Blood Cancer 2010 54 976-982
37. Wittchen H-U, Jacobi F. Die Versorgungssituation psychischer Störungen in Deutschland Eine klinisch-epidemiologische Abschätzung anhand des Bundesgesundheitssurveys 1998 [Met and Unmet Needs for Intervention. Clinical-Epidemiological Estimations for Mental Disorders in the German Health Interview and Examination Survey Supplement]. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 2001 44 993-1000
38. Zebrack BJ, Casillas J, Nohr L et al,. Fertility issues for young adult survivors of childhood cancer. Psychooncology 2004 13 689-699 (Pubitemid 39378262)
39. Zebrack BJ, Eshelman DA, Hudson MM et al,. Health Care for Childhood Cancer Survivors: Insights and Perspectives from a Delphi Panel of Young Adult Survivors of Childhood Cancer. Cancer 2004 100 843-850 (Pubitemid 38176865)