Canada's Compassionate Care Benefit: Is it an adequate public health response to addressing the issue of caregiver burden in end-of-life care?

BMC Public Health

Volumn 11, Issue , 2011, Pages

  Williams, Allison M ^a   Eby, Jeanette A ^a   Crooks, Valorie A ^b   Stajduhar, Kelli ^c   Giesbrecht, Melissa ^b   Vuksan, Mirjana ^a   Cohen, S Robin ^d   Brazil, Kevin ^a   Allan, Diane ^c  

^a MCMASTER UNIVERSITY   (Canada)

^b SIMON FRASER UNIVERSITY   (Canada)

^c UNIVERSITY OF VICTORIA   (Canada)

^d MCGILL UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; ARTICLE; CANADA; CAREGIVER; COST OF ILLNESS; FEMALE; HEALTH CARE QUALITY; HUMAN; INTERVIEW; MALE; MIDDLE AGED; PSYCHOLOGICAL ASPECT; PUBLIC HEALTH; TERMINAL CARE;

AGED; CANADA; CAREGIVERS; COST OF ILLNESS; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PROGRAM EVALUATION; PUBLIC HEALTH; TERMINAL CARE;

EID: 79955960416     PISSN: None     EISSN: 14712458     Source Type: Journal    
DOI: 10.1186/1471-2458-11-335     Document Type: Article

References (72)

1. Raising the Bar: A Roadmap for the Future of Palliative Care in Canada. S Carstairs, Ottawa, Senate of Canada 2010
2. Building on values: The Future of Health Care in Canada. RJ Romanow, Government of Canada: Commission on the Future of Health Care in Canada. Ottawa 2002
3. CHPCA Fact Sheet: Hospice Palliative Care in Canada. Canadian Hospice Palliative Care Association, 2010 http://www.chpca.net/uploads/files/english/ public-policy-advocacy/Fact-Sheet-HPC-in-Canada-October-2010-FINAL.pdf Author Accessed March 12, 2010
4. Canadian Strategy on Palliative and End of Life Care: Final Report. Health Canada, Ottawa 2007 http://www.hc-sc.gc.ca/hcs-sss/pubs/palliat/2007- soin-fin-end-life/index-eng.php Author Accessed May 21, 2010
5. Tracking the evolution of hospice palliative care in Canada: A comparitive case study of seven provinces. AM Williams VA Crooks K Whitfield ML Kelley JL Richards L DeMiglio S Dykeman, BMC Health Services Research 2010 10 147 10.1186/1472-6963-10-147 20515491
6. Preferences for location of death of seriously ill hospitalized patients: perspectives from Canadian patients and their family caregivers. KI Stajduhar DE Allan SR Cohen DK Heyland, Palliative Medicine 2008 22 85 88 10.1177/0269216307084612 18216081 (Pubitemid 351351374)
7. A Framework for a Canadian Caregiving Strategy. Canadian Caregiver Coalition, 2008 http://www.ccc-ccan.ca/media.php?mid=229 Author Accessed March 4, 2010
8. The information needs of informal caregivers involved in providing support to a critically ill loved one. Health Canada, Ottawa 2005 http://www.hc-sc.gc.ca/hcs-sss/pubs/home-domicile/2005-info-caregiver-aidant/ 2005-info-caregiver-aidant-1-eng.php Author Accessed May 21, 2010
9. Achieving health for all: A framework for health promotion. J Epp, Health Promotion International 1986 4 419 428
10. A critical review of supportive interventions for family caregivers of patients with palliative-stage cancer. P Hudson, Journal of Psychosocial Oncology 2005 22 77 92 10.1300/J077v22n04-05
11. Financial payments for family carers: Policy approaches and debates. J Keefe C Glendinning P Fancey, Ageing at the intersection of work and home life: Blurring the boundaries New York: Lawrence Eribaum, A. Martin-Matthews A. and Phillips J, 2008 185 206
12. Developing targets for public health initiatives to improve palliative care. N Schneider SL Luekmann F Kuehne K Klindtwort M Behmann, BMC Public Health 2010 10 22 10.1186/1471-2458-10-22 20085637
13. Blueprint for Action 2010 to 2020. Quality End of Life Care Coalition Canada, 2010 http://www.qelccc.ca/uploads/files/information-and-resources/ Blueprint-for-Action-2010-to-2020-April-2010.pdf Author Accessed July 30, 2010
14. Researching a best-practice end-of-life care model for Canada. DM Wilson S Birch S Sheps R Thomas C Justice R MacLeod, Canadian Journal on Aging 27 4 319 330
15. Population Health Promotion: An Integrated Model of Population Health and Health Promotion. N Hamilton T Bhatti, Public Health Agency of Canada Ottawa 1996 http://www.phac-aspc.gc.ca/ph-sp/php-psp/index-eng.php Author Accessed April 2, 2010
16. What is the Population Health Approach? Public Health Agency of Canada, Public Health Agency of Canada Ottawa 2001 http://www.phac-aspc.gc.ca/ph-sp/ approach-approche/appr-eng.php Author Accessed April 2, 2010
17. Social Determinants of Health: The Canadian Facts. J Mikkonen D Raphael, York University School of Health Policy and Management Toronto 2010 http://www.thecanadianfacts.org Author Accessed May 12, 2010
18. Staying Alive: Critical Perspectives on Health, Illness and Health Care. D Raphael T Bryant M Rioux, Toronto: Canadian Scholars' Press Inc 2006
19. A Healthy, Productive Canada: A Determinant of Health Approach. Subcommittee on Population Health of the Standing Senate Committee on Social Affairs, Science and Technology, Ottawa 2009 http://www.parl.gc.ca/40/2/parlbus/ commbus/senate/Com-e/popu-e/subsite-jun09-e/Report-Home-e.htm Accessed June 1, 2010
20. The Ottawa Charter for Health Promotion. World Health Organization, 1986 http://www.who.int/hpr/NPH/docs/ottawa-charter-hp.pdf Author Accessed March 29, 2010
21. (Re)thinking the scales of lived experience. JR Masuda VA Crooks, Area 2007 39 3 257 258 10.1111/j.1475-4762.2007.00745.x (Pubitemid 47323659)
22. From women to women: Nurses, informal caregivers and the gender dimension to health care reforms in Canada. F Gregor, Health and Social Care in the Community 1997 5 1 30 36 (Pubitemid 127007605)
23. Patching up the holes: analyzing the work of home care. ME Purkis C Ceci K Bironsdottir, Canadian Journal of Public Health 2008 99 S2 27 S32
24. Introduction: space, place, and the geographies of women's caregiving work. A Williams VA Crooks, Gender, Place and Culture 2008 15 3 243 247 10.1080/09663690801996254
25. Twentieth-century social and health-care influences on location of death in Canada. DM Wilson SL Smith MC Anderson HC Northcott RL Fainsinger MJ Stingl CD Truman, Canadian Journal of Nursing Research 2002 34 3 141 161 12425015
26. National Profile of Family Caregivers in Canada - 2002: Final Report. Health Canada, Ottawa 2002 http://www.hc-sc.gc.ca/hcs-sss/pubs/home-domicile/ 2002-caregiv-interven/sum-som-eng.php Author Accessed March 18, 2010
27. Family carers in the home. KI Stajduhar SR Cohen, Family Carers in Palliative Care Oxford, Oxford University Press, Hudson P, Payne S, 2009 149 168
28. The emotions and coping strategies of family members with a terminal cancer. C Grbich D Parker I Maddocks, Journal of Palliative Care 2001 17 1 30 6 11324182 (Pubitemid 33710833)
29. Giving voice to informal caregivers of older adults. PG Hawranik LA Strain, Canadian Journal of Nursing Research 2007 39 1 157 172
30. Caregiving near the end of life: Unmet needs and potential solutions. PA Mangan KL Taylor R Yabroff DA Fleming JM Ingham, Palliative and Supportive Care 2003 1 3 247 259 16594425
31. The informal caregiver's burden of dependent people: Theory and empirical review. S Carretero J Garcés F Rádenas V Sanjose, Archives of Gerontology and Geriatrics 2009 49 1 74 79 10.1016/j.archger.2008.05.004 18597866
32. Social policy recommendations to alleviate stress among informal providers of elder care. E Chung C McLarney MC Gillen, International Journal of Socialogy and Social Policy 2008 28 9/10 340 350 10.1108/01443330810900185
33. Family members providing home-based palliative care to older adults: the enactment of multiple roles. SJ Clemmer C Ward-Griffin D Forbes, Canadian Journal on Aging 2008 27 3 267 283 10.3138/cja.27.3.285 19158043
34. Caregiver burden and health promotion. RJ Sisk, International Journal of Nursing Studies 2000 37 37 43 10.1016/S0020-7489(99)00053-X 10687808
35. Vulnerability of family caregivers in terminal palliative care at home; balancing between burden and capacity. IM Proot HH Abu-Saad HFJM Crebolder M Glodsteen KA Luker GAM Widdershoven, Scand J Caring Sci 2003 17 113 121 10.1046/j.1471-6712.2003.00220.x 12753511 (Pubitemid 36718334)
36. Caregiving as a risk factor for mortality: The Caregiver Health Effects Study. R Shulz SR Beach, Journal of the American Medical Association 1999 45 181 191
37. End-of-life care and the effects of bereavement on family caregivers of persons with dementia. R Schulz AB Mendelsohn WE Haley D Mahoney RS Allen SZ Zhang L Thompson SH Belle, New England Journal of Medicine 2003 349 20 1936 1942 10.1056/NEJMsa035373 14614169 (Pubitemid 37409711)
38. Caregiving: Challenges and Implications for Women's Health. K Donelan M Falik CM DesRoches, Women's Health Issues 2001 11 3 185 200 21598432 (Pubitemid 32381052)
39. The influence of income on the experience of informal caregiving: policy implications. A Williams DA Forbes J Mitchell M Essar B Corbett, Health Care for Women International 2003 24 280 291 12746001 (Pubitemid 37414664)
40. Costs associated with resource utilization during the palliative phase of care: a Canadian perspective. S Dumont B Jacobs K Fassbender D Anderson V Turcotte F Harrel, Palliative Medicine 2009 23 8 708 717 2009 10.1177/0269216309346546 19837702
41. Caregiving and employment: The impact of workplace characteristics on role strain. KI Fredriksen AE Scharlach, Journal of Gerontological Social Work 1997 28 2 22
42. Eldercare and employed caregivers: A public/private responsibility? BB Koerin MP Harrigan M Secret, Journal of Gerontological Social Work 2008 51 1 143 16 10.1080/01634370801967612 18826073
43. Family caregivers' experiences with community services: a qualitative analysis. BW Winslow, Public Health Nursing 2003 20 5 341 348 10.1046/j.1525-1446.2003.20502.x 12930458 (Pubitemid 37340248)
44. What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. R Harding IJ Higginson, Palliative Medicine 2003 17 63 74 10.1191/0269216303pm667oa 12597468 (Pubitemid 36193223)
45. Who is caring for the caregiver? Promoting spousal caregiver's health. SK Ostwald, Family and Community Health 2009 32 S1 5 S14 19065094
46. Factors influencing family caregivers' ability to cope when providing End of Life cancer care at home. L Stajduhar WL Martin D Barwich G Fyles, Cancer Nursing 2008 31 1 77 85 10.1097/01.NCC.0000305686.36637.b5 18176135
47. Employment Insurance (EI) Compassionate Care Benefits. Service Canada, Ottawa 2010 http://www.servicecanada.gc.ca/eng/ei/types/compassionate-care. shtml#get Author Accessed March 8, 2010
48. Compassionate Care Benefits not Compassionate Enough. P Armstrong K O'Grady, The Canadian Women's Health Network Magazine 2004 http://www.cwhn.ca/ en/node/39518 Author Accessed May 10, 2010 21592419
49. Compassionate Care Benefit: Analysis and Evaluation. K Osborne N Margo Health Council of Canada, Ottawa 2005 http://www.healthcouncilcanada.ca/docs/ papers/2005/Compassionate-Care-BenefitsEN.pdf Author Accessed July 5, 2010
50. The uncompassionate elements of the Compassionate Care Benefits Program: a critical analysis. J Flagler W Dong, Global Health Promotion 2010 17 1 50 59 10.1177/1757975909356636 20357352
51. Employment Insurance Benefits for Self-Employed People. Service Canada, Ottawa 2011 http://www.servicecanada.gc.ca/eng/sc/ei/sew/index.shtml Author Accessed May 28, 2010
52. An evaluation of Canada's Compassionate Care Benefit from a family caregiver's perspective at end of life. VA Crooks A Williams, BMC Palliative Care 2008 7 14 10.1186/1472-684X-7-14 18755040
53. Spatially informed knowledge translation: informing potential users of Canada's Compassionate Care Benefit program. M Giesbrecht VA Crooks N Schuurman A Williams, Social Science & Medicine 2009 69 411 19 10.1016/j.socscimed. 2009.05.037 21598262
54. Scale as an explanatory concept: evaluating Canada's Compassionate Care Benefit. M Giesbrecht VA Crooks A Williams, Area 2010 42 4 457 467 10.1111/j.1475-4762.2010.00941.x
55. Perspectives from the frontlines: palliative care providers' expectations of Canada's compassionate care benefit programme. M Giesbrecht VA Crooks A Williams, Health and Social Care in the Community 2010 18 6 643 652 10.1111/j.1365-2524.2010.00937.x 20584086
56. Evaluating Canada's Compassionate Care Benefit from the perspective of family caregivers. A Williams V Crooks M Giesbrecht S Dykeman, 2010 http://www.coag.uvic.ca/eolcare/documents/CCB%20evaluation%20final%20report%20- %20English.pdf Author Accessed March 8, 2010
57. Utilization-Focused Evaluation. MQ Patton, Thousand Oaks, CA: Sage 3 1997
58. Evaluating Canada's Compassionate Care Benefit using a utilization-focused evaluation framework: Successful strategies and prerequisite conditions. A Williams, Evaluation and Program Planning 2010 33 91 97 10.1016/j.evalprogplan.2009.07.015 19709748
59. Data management and analysis methods. GW Ryan H Russell, Handbook of Qualitative Research California: Sage Publications, Denzin NK, Lincoln YS, 2 2000 769 802
60. Transforming Qualitative Information: Thematic Analysis and Code Development. RE Boysatzis, California: Sage Publications 1998
61. Qualitative Research Methods in Human Geography. I Hay, Canada: Oxford University Press 3 2010
62. The challenges of family member caregiving: how the home health and hospice clinician can help at the end of life. S Ruder, Home Healthcare Nurse 2008 26 2 131 136 10.1097/01.NHH.0000311034.00721.73 18301118
63. Compassionate Cities: Public Health and End of Life Care. A Kellehear, New York: Routledge 2005
64. The end of death in late modernity: an emerging public health challenge. A Kellehear, Critical Public Health 2007 17 1 71 79 10.1080/09581590601156365 (Pubitemid 46455041)
65. Dying Matters. The National Council for Palliative Care, United Kingdom 2001 http://www.dyingmatters.org Author Accessed July 24, 2010
66. Supporting family caregivers at the end of life: "they don't know what they don't know". M Rabow JM Hauser J Adams, JAMA 2004 291 4 483 491 10.1001/jama.291.4.483 14747506 (Pubitemid 38129753)
67. Canada Revenue Agency. Ottawa 2011 http://www.cra-arc.gc.ca/tx/ndvdls/ tpcs/ncm-tx/rtrn/cmpltng/ddctns/lns300-350/315/lgbl-eng.html Author Accessed May 28, 2010
68. Family Medical Leave. Ontario Ministry of Labour, Toronto 2009 http://www.labour.gov.on.ca/english/es/pubs/guide/family.php Author Accessed May 28, 2010
69. International Comparison of Canada's Compassionate Care Benefit. Final Report. JM Keefe PJ Fancey, Maritime Data Centre for Aging Research & Policy Analysis, Halifax, NS 2005
70. Becoming an informal caregiver for a dying family member. VA Crooks A Williams, Family Geographies: The Spatiality of Families and Family Life Oxford: Oxford University Press, Hallman B, 2010 208 217
71. Immigrant women: making connections to community resources for support in family caregiving. A Neufeld MJ Harrison MJ Steward KD Hughes D Spitzer, Qual Health Res 2002 12 751 768 12109721
72. The Future of Public Health in Canada. Canadian Public Health Association, Ottawa 2001 http://www.cpha.ca/uploads/policy/future-e.pdf Author Accessed May 12, 2010