Researching a best-practice end-of-life care model for Canada

Canadian Journal on Aging

Volumn 27, Issue 4, 2008, Pages 319-330

  Wilson, Donna M ^a   Birch, Stephen ^b   Sheps, Sam ^c,d   Thomas, Roger ^e   Justice, Christopher ^f,g   MacLeod, Rod ^h  

^a UNIVERSITY OF ALBERTA   (Canada)

^b MCMASTER UNIVERSITY   (Canada)

^c Western Regional Training Centre for Health Services Research   (Canada)

^d UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^e UNIVERSITY OF CALGARY   (Canada)

^f MCMASTER UNIVERSITY   (Canada)

^g UNIVERSITY OF TORONTO   (Canada)

^h UNIVERSITY OF AUCKLAND   (New Zealand)

Author keywords

Aging; Dying; End of life; Framework; Healthcare services; Model; Palliative

Indexed keywords

ARTICLE; CANADA; EPIDEMIOLOGY; HEALTH CARE DELIVERY; HEALTH SERVICE; HUMAN; METHODOLOGY; ORGANIZATION AND MANAGEMENT; PRACTICE GUIDELINE; QUALITY CONTROL; SOCIAL WORK; STANDARD; TERMINAL CARE;

BENCHMARKING; CANADA; HEALTH CARE SURVEYS; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; PRACTICE GUIDELINES AS TOPIC; RESEARCH DESIGN; SOCIAL WORK; TERMINAL CARE;

EID: 69249212520     PISSN: 07149808     EISSN: 17101107     Source Type: Journal    
DOI: 10.3138/cja.27.4.319     Document Type: Article

References (63)

1. Addington-Hall, J.M., & Karlsen, S. (1999). Age is not the crucial factor in determining how the palliative care needs of people who die from cancer differ from those of people who die from other causes. Journal of Palliative Care, 15(4), 13-19.
2. Anderson, H., Ward, C., Eardley, A., Gomm, S.A., Connolly, M., Coppinger, T., Corgie, D., Williams, J.L., & Makin, W.P. (2001). The concerns of patients under palliative care and a heart failure clinic are not being met. Palliative Medicine, 15(4), 279-286.
3. Baker, N.T., & Seager, R.D. (1991). A comparison of the psychosocial needs of hospice patients with AIDS and those with other diagnoses. Hospice Journal, 7(1/2), 61-99.
4. Brazil, K., Bedard, M., Willison, K., & Hode, M. (2003). Caregiving and its impact on families of the terminally ill. Aging & Mental Health, 7(5), 376-382.
5. Burge, F., Lawson, B., Johnston, G., & Cummings, I. (2003). Primary care continuity and location of death for those with cancer. Journal of Palliative Medicine, 6(6), 911-918.
6. Canada Health Act. 1984, c. 6, s. 1.
7. Centeno, C., & Heller, K.S. (2002). Palliative care in Spain: An evolving model. Journal of Palliative Medicine, 3(5), 123-127.
8. Centeno, C., Hernansanz, S., Arnillas, P., Flores, L.A., Gomez, M., & Lara, F. (2000). The reality of palliative care in Spain. Palliative Medicine, 14(5), 387-394.
9. Centers for Medicare, & Medicaid Services. (2005, July). Medicare hospice benefits. Retrieved 20 Nov. 2008 from http://www.medicare.gov/ publications/Pubs/pdf/02154.pdf.
10. Cheek, P., Nikpour, L., & Nowlin, H.D. (2005). Aging well with smart technology. Nursing Administration Quarterly, 29(4), 329-338.
11. Chow, E., Andersson, L., Wong, R., Vachon, M., Hruby, G., Franssen, E., Fung, K.W., Harth, T., Pach, B., Pope, J., Connolly, R., Schueller, T., Stefaniuk, K., Szumacher, E., Hayter, C., Finkelstein, J., & Danjoux, C. (2001). Patients with advanced cancer: A survey of the understanding of their illness and expectations from palliative radiotherapy for symptomatic metastases. Clinical Oncology (Royal College of Radiologists), 13(3), 204-208.
12. Cohen, S.R., & Leis, A. (2002). What determines the quality of life of terminally ill cancer patients from their own perspective? Journal of Palliative Care, 18(1), 48-58.
13. Committee on Care at the End of Life. (1997). Approaching death: Improving care at the end of life (M.J. Fields, & C.K. Cassel, Eds.). Approaching death: Improving care at the end of life. Washington, DC: National Academy Press.
14. Costello, J. (2001). Nursing older dying patients: findings from an ethnographic study of death and dying in elderly care wards. Journal of Advanced Nursing, 35(1), 59-68.
15. Cutcliffe, J.R. (2005). Adapt or adopt: Developing and transgressing the methodological boundaries of grounded theory. Journal of Advanced Nursing, 51(4), 421-428.
16. Evers, M.M., Meier, D.E., & Morrison, R.S. (2002). Assessing differences in care needs and service utilization in geriatric palliative care patients. Journal of Pain & Symptom Management, 23(5), 424-432.
17. Ferraz Gonçalves, J.A. (2001). A Portuguese palliative care unit. Supportive Care in Cancer, 9(1), 4-7.
18. Ferrell, B.R., Virani, R., Grant, M., Rhome, A., Malloy, P., Bednash, G., & Grimm, M. (2005). Evaluation of the End-of-Life Nursing Education Consortium Undergraduate Faculty Training Program. Journal of Palliative Medicine, 8(1), 107-114.
19. Froggatt, K.A., Wilson, D.M., Justice, C., MacAdam, M., Leibovici, K., Kinch, J., Thomas, R., & Choi, J. (2006). End-of-life care in long-term care settings for older people: A literature review. International Journal of Older People's Nursing, 1, 45-50.
20. Gilmer, M.J. (2002). Pediatric palliative care: A familycentered model for critical care. Critical Care Nursing Clinics of North America, 14(2), 207-214.
21. Gotay, C.C. (1983). Models of terminal care: A review of the research literature. Clinical & Investigative Medicine - Medecine Clinique et Experimentale, 6(3), 131-141.
22. Grunfeld, E., Coyle, D., Whelan, T., Clinch, J., Reyno, L., Earle, C.C., Willan, A., Viola, R., Coristine, M., Janz, T., & Glossop, R. (2004). Family caregiver burden: Results of a longitudinal study of breast cancer patients and their principal caregivers. Canadian Medical Association Journal, 170(12), 1795-1801.
23. Health Canada. (2005). Canadian strategy on palliative and end-of-life care: Progress report of the Coordinating Committee: December 2002 to March 2004. Ottawa: Author.
24. Hollander, M.J., Chappell, N.L., Prince, M.J., & Shapiro, E. (2007). Providing care and support for an aging population: Briefing notes on key policy issues. Healthcare Quarterly, 10(3), 34-45.
25. Ingleton, C., Skilbeck, J., & Clark, D. (2001). Needs assessment for palliative care: Three projects compared. Palliative Medicine, 15(5), 398-404.
26. Janssens, R.J., & ten Have, H.A. (2001). The concept of palliative care in the Netherlands. Palliative Medicine, 15(6), 481-486.
27. Janssens, R., ten Have, H., Clark, D., Broeckaert, B., Gracia, D., Illhardt, F.J., Lantz, G., Privitera, S., & Schotsmans, P. (2001). Palliative care in Europe: Towards a more comprehensive understanding. European Journal of Palliative Care, 8(1), 20-23.
28. Johnston, P.G., & Daly, P.A. (2001). The NCI-Ireland consortium: A unique international partnership in cancer care. Oncologist, 6(5), 453-458.
29. Kubler-Ross, E. (1973). On death and dying. London: Routledge.
30. Luczak, J. (1993). Palliative/hospice care in Poland. Palliative Medicine, 7(1), 67-75.
31. Maguire, P., Walsh, S., Jeacock, J., & Kingston, R. (1999). Physical and psychological needs of patients dying from colo-rectal cancer. Palliative Medicine, 13(1), 45-50.
32. Maltoni, M., Derni, S., Fabbri, L., & Sansoni, E. (2000). The specialist palliative care team in Forli, Italy. Supportive Care in Cancer, 8(5), 349-352.
33. Morasso, G., Capelli, M., Viterbori, P., Di Leo, S., Alberisio, A., Costantini, M., Fiore, M., Saccani, D., Zeitler, G., Verzolatto, N., Tirelli, W., Lazzari, L., Partinico, M., Borzoni, G., Savian, C., Obertino, E., Zotti, P., Ivaldi, G.P., & Henriquet, F. (1999). Psychological and symptom distress in terminal cancer patients with met and unmet needs. Journal of Pain & Symptom Management, 17(6), 402-409.
34. Myers, K.G., & Trotman, I.F. (1996). Palliative care needs in a district general hospital: a survey of patients with cancer. European Journal of Cancer Care, 5(2), 116-121.
35. O'Neill, W.M., O'Connor, P., & Latimer, E.J. (1992). Hospital palliative care services: three models in three countries. Journal of Pain & Symptom Management, 7(1), 406-413.
36. Raynes, N.V., Leach, J., Rawlings, B., & Bryson, R.J. (2000). Palliative care services: views of terminally ill patients. Palliative Medicine, 14(2), 159-160.
37. Ritchie, L. (2003). Adult day care: Northern perspectives. Public Health Nursing, 20(2), 120-131.
38. Romanow, R.J. (2002). Building on values. The future of health care in Canada. Commission on the Future of Health Care in Canada. Retrieved 12 Nov. 2008 from http://www.hc-sc.gc.ca/hcs-sss/alt-formats/hpb-dgps/pdf/hhr/romanow- eng.pdf.
39. Sbanotto, A., & Burnhill, R. (1998). Palliative care in Italy: The current situation. Supportive Care in Cancer, 6(5), 426-429.
40. Singer, P.A., Martin, D.K., & Kelner, M. (1999). Quality endof- life care: patients perspectives [comment]. Journal of the American Medical Association, 282(2), 163-168.
41. Special Senate Committee on Euthanasia and Assisted Suicide. (1995). Of life and death - final report. Ottawa: Minister of Supply and Services Canada.
42. Stead, S. (1998). Marie Curie Cancer Care. European Journal of Cancer Care, 7(4), 214-216.
43. Steinhauser, K.E., Christakis, N.A., Clipp, E.C., McNeilly, M., McIntyre, L., & Tulsky, J.A. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. American Medical Association Journal, 284(19), 2476-2482.
44. Stevens, K.R. (2001). Systematic reviews: The heart of evidence-based practice. AACN Clinical Issues: Advanced Practice in Acute and Critical Care, 12(4), 529-538.
45. Subcommittee to update Ottawa: Standing Senate Committee on Social Affairs, Science and Technology of Life and Death 2000 Quality end-of-life care: The right of every Canadian
46. Thomas, R., & Wilson, D. (2005). Randomized controlled trials of non-medical and non-surgical therapies for palliative care: A literature review. Alternative Medicine Review, 10(3), 204-215.
47. Thomas, R.E., Wilson, D., & Sheps, S. (2006). A literature review of randomised controlled trials of the organisation of care at the end of life. Canadian Journal on Aging, 25(3), 271-293.
48. Thomas, S.P., & Hrudey, S.E. (1997). Risk of death in Canada. What we know and how we know it. Edmonton, AB: University of Alberta Press.
49. United States Department of Health & Human Services. (2008). Health care financing administration. Retrieved 20 Nov. 2008 from http://www.hhs.gov/ about/opdivs/hcfa.html.
50. Vig, E.K., Davenport, N.A., & Pearlman, R.A. (2002). Good deaths, bad deaths, and preferences for the end of life: a qualitative study of geriatric outpatients. Journal of the American Geriatrics Society, 50(9), 1541-1548.
51. Walsh, D. (2001). The Harry R. Horvitz Center for Palliative Medicine (1987-1999): Development of a novel comprehensive integrated program. American Journal of Hospice & Palliative Care, 19(4), 239-250.
52. Williams, A., Crooks, V.A., Stajduhar, K.I., Allan, D., & Cohen, S.R. (2006). Canada's Compassionate Care Benefit: views of family caregivers in chronic illness. International Journal of Palliative Nursing, 12(9), 438-445.
53. Wilson, D.M. (2002). The duration and degree of end-of-life dependency of home care clients and hospital inpatients. Applied Nursing Research, 15(2), 81-86.
54. Wilson, D.M., Justice, C., Sheps, S., Thomas, R., Reid, P., & Leibovici, K. (2006). Planning and providing end-of-life care in rural areas. Journal of Rural Health, 22(2), 174-181.
55. Wilson, D.M., Justice, C., Thomas, R., Sheps, S., McAdam, M., & Brown, M. (2005). End-of-life care volunteers: A systematic review of the literature. Health Services Management Research, 18, 244-257.
56. Wilson, D.M., Kinch, J., Justice, C., Thomas, R., Shepherd, D., & Froggatt, K. (2005). A review of the literature on hospice or palliative day care. European Journal of Palliative Care, 12(5), 198-202.
57. Wilson, D.M., MacAdam, M., Olson, K., Brown, M., Sheps, S., Kinch, J., Justice, C., Truman, T., Thomas, R., Noseworthy, T., Reid, P., & Leibovicie, K. (2003). Integrated end-of-life care: A Health Canada Synthesis Research Project (Final Report). Edmonton, AB: Author.
58. Wilson, D.M., Northcott, H.C., Truman, C.D., Smith, S.L., Anderson, M.C., Fainsinger, R.L., & Stingl, M.J. (2001). Location of death in Canada: A comparison of 20thcentury hospital and nonhospital locations of death and corresponding population trends. Evaluation & the Health Professions, 24(4), 385-403.
59. Wilson, D.M., & Ross Kerr, J.C. (1998). An exploration of Canadian social values relative to health care. American Journal of Health Behavior, 22(2), 120-129.
60. Wilson, D.M., Smith, S., Anderson, M., Northcott, H., Fainsinger, R., Stingl, M., & Truman, C.D. (2002). Twentieth-century social and health-care influences on location of death in Canada. Canadian Journal of Nursing Research, 34(3), 141-161.
61. Wilson, D.M., Truman, C., Huang, J., Sheps, S., Birch, S., Thomas, R., & Noseworthy, T. (2007). Home care evolution in Alberta: How have palliative clients fared? Healthcare Policy Journal, 2(4), 44-56.
62. Wilson, D.M., Truman, C., Huang, J., Sheps, S., Thomas, R., & Noseworthy, T. (2005). The possibilities and realities of home care. Canadian Journal of Public Health, 96(5), 385-389.
63. Zhukovsky, D.S. (2000). A model of palliative care: The palliative medicine program of the Cleveland Clinic Foundation. A World Health Organization Demonstrations Project. Supportive Care in Cancer, 8(4), 268-277.