Working the way up in neurological rehabilitation: The holistic approach of nursing care

Journal of Clinical Nursing

Volumn 20, Issue 11-12, 2011, Pages 1731-1743

  Portillo, Mari Carmen ^a   Cowley, Sarah ^b  

^a UNIVERSITY OF NAVARRA   (Spain)

^b KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

Advanced nursing practice; Carers; Neurology; Nurses; Nursing role; Rehabilitation

Indexed keywords

ARTICLE; HUMAN; NEUROLOGIC DISEASE; NURSING; NURSING CARE; PHILOSOPHY; SWEDEN;

HOLISTIC HEALTH; HUMANS; NERVOUS SYSTEM DISEASES; NURSING CARE; SWEDEN;

EID: 79955755669     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2010.03379.x     Document Type: Article

References (64)

1. Bakas T, Austin JK, Jessup SL, Williams LS & Oberst MT (2004) Time and Difficulty of tasks provided by family caregivers of stroke survivors. Journal of Neuroscience Nursing 36, 95-106.
2. Booth J, Hillier VF, Waters KR & Davidson I (2005) Effects of a stroke rehabilitation education programme for nurses. Journal of Advanced Nursing 49, 465-473.
3. Boter H (2004) Multicenter randomised controlled trial of an outreach nursing support program for recently discharged stroke patients. Stroke 35, 2867-2872.
4. Bowling A (2002) Research methods in health. Investigating Health and Health Services, 2nd edn. Open University Press, Berkshire, UK.
5. Bryant-Lukosius D & DiCenso A (2004) A framework for the introduction and evaluation of advanced practice nursing roles. Journal of Advanced Nursing 48, 530-540.
6. Burks KJ (1999) A nursing practice model for Chronic illness. Rehabilitation Nursing 24, 197-200.
7. Burton CR (2003) Therapeutic nursing in stroke rehabilitation, a systematic review. Clinical Effectiveness in Nursing 7, 124-133.
8. Burton C & Gibbon B (2006) Expanding the role of the stroke nurse: a pragmatic clinical trial. Journal of Advanced Nursing 52, 640-650.
9. Calne SM (2003) The psychosocial impact of late-stage Parkinson's disease. Journal of Neuroscience Nursing 35, 306-313.
10. Denzin N (1970) Strategies of multiple triangulation. In The Research Act (Denzin N ed). McGraw-Hill, New York, pp. 297-313.
11. Edwards NE & Ruettiger KM (2002) The influence of caregiver burden on patients' management of Parkinson's Disease, Implications for rehabilitation nursing. Rehabilitation Nursing 27, 182-198.
12. Fawcett Vickers LF & O'Neill CM (1998) An interdisciplinary home healthcare program for patients with Parkinson's disease. Rehabilitation Nursing 23, 286-289.
13. Forbes A, While A, Dyson L, Grocott T & Griffiths P (2003) Impact of clinical nurse specialists in multiple sclerosis-synthesis of the evidence. Journal of Advanced Nursing 42, 442-462.
14. Forster A, Dowswell G, Young J, Sheard J, Wright P & Bagley P (1999) Effects of a physiotherapist-led stroke training programme for nurses. Age and Ageing 28, 567-574.
15. Forster A, Smith J, Young J, Knapp P, House A & Wright J (2001) Information provision for stroke patients and their caregivers. The Cochrane Database of Systematic Reviews 3 (Art. No. CD001919). DOI: .
16. Gage H & Storey L (2004) Rehabilitation for Parkinson's disease: a systematic review of available evidence. Clinical Rehabilitation 18, 463-482.
17. Glass TA, Dym B, Greenberg S, Rintell D, Roesch C & Berkman LF (2000) Psychosocial intervention in stroke: families in recovery from stroke trial (FIRST). American Journal of Orthopsychiatry 70, 169-181.
18. Gold RL (1958) Roles in sociological field observations. Social Forces 36, 217-223.
19. Gottberg K, Einarsson U, Fredrikson S, vonKock L & Widén Holmqvist L (2002) Multiple Sclerosis in Stockholm County. A pilot study of utilization of health-care resources, patient satisfaction with care and impact on family caregivers. Acta Neurologica Scandinavica 106, 241-247.
20. Grant JS (1999) Social problem-solving partnerships with family caregivers. Rehabilitation Nursing 24, 254-260.
21. Grant JS, Elliott TR, Weaver M, Glandon GL, Raper JL & Giger JN (2006) Social support, social problem-solving abilities and adjustment of family caregivers of stroke survivors. Archives of Physical Medicine Rehabilitation 87, 343-350.
22. Hamric AB, Spross JA & Hanson CM (2009) Advanced Practice Nursing. An Integrative Approach, 4th edn. Saunders Elsevier, Missouri.
23. Hart E & Bond M (1995) Action Research for Health and Social Care. A guide to Practice. Open University Press, Buckingham.
24. Kellett UM (1999) Searching for new possibilities to care, a qualitative analysis of family caring involvement in nursing homes. Nursing Inquiry 6, 9-16.
25. Knapp P, Young J, House A & Forster A (2000) Non-drug strategies to resolve psychosocial difficulties after stroke. Age and Ageing 29, 23-30.
26. Koch T & Kralik D (2001) Chronic illness, reflections on a community-based action research programme. Journal of Advanced Nursing 36, 23-31.
27. Kralik D, Visentin K & van Loon A (2006) Transition: a literature review. Journal of Advanced Nursing 55, 320-329.
28. Kvigne K, Kirkevold M & Gjengedal E (2005) The nature of nursing care and rehabilitation of female stroke survivors: the perspective of hospital nurses. Journal of Clinical Nursing 14, 897-905.
29. Lackey N & Gates MF (2001) Adults' recollections of their experiences as young caregivers of family members with chronic physical illnesses. Journal of Advanced Nursing 34, 320-328.
30. Lewin K (1946) Action research and minority problems. Journal of Social Issues 2, 34-46.
31. Long AF, Kneafsey R, Ryan J & Berry J (2002) The role of the nurse within the multi-professional rehabilitation team. Journal of Advanced Nursing 37, 70-78.
32. Lui MHL, Ross FM & Thompson DR (2005) Supporting family caregivers in stroke care. A review of the evidence for problem solving. Stroke 36, 2514-2522.
33. Mackenzie AE, Holroyd EE & Lui MHL (1998) Community nurses' assessment of the needs of Hong Kong family carers who are looking after stroke patients. International Journal of Nursing Studies 35, 132-140.
34. Mackenzie AE, Lee DTF & Ross FM (2004) The context, measures and outcomes of psychosocial care interventions in long-term health care for older people. International Journal of Nursing Practice 10, 39-44.
35. Mant J, Carter J, Wade Dt & Winner S (2000) Family support for stroke: a randomised controlled trial. The Lancet 356, 808-813.
36. McKeown LP, Porter-Amstrong AP & Baxter GD (2003) The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review. Clinical Rehabilitation 17, 234-248.
37. Merino JG & Hachinski V (2003) Demencia e ictus, la importancia de la enfermedad cerebral coexistente. Revista de Neurología 36, 61-63.
38. Miles MB & Huberman AM (1994) Qualitative Data Analysis, An Expanded Sourcebook, 2nd edn. Sage publications, London.
39. Nir Z, Zolotogorsky Z & Sugarman H (2004) Structured nursing intervention versus routine rehabilitation after stroke. American Journal of Physical and Medicine Rehabilitation 83, 522-529.
40. Noble C (199899) Parkinson's disease and the role of nurse specialists. Elderly Care 10, 43-44.
41. Nolan M & Nolan J (1997) Rehabilitation in multiple sclerosis, the potential nursing contribution. British Journal of Nursing 6, 1292-1310.
42. Nolan M & Nolan J (1998a) Stroke 1, a paradigm case in nursing rehabilitation. British Journal of Nursing 6, 316-321.
43. Nolan M & Nolan J (1998b) Stroke 2, expanding the nurse's role in stroke rehabilitation. British Journal of Nursing 7, 388-392.
44. O'Connor SE (2000) Nursing interventions in stroke rehabilitation: a study of nurses' views of their pattern of care in stroke units. Rehabilitation Nursing 25, 224-230.
45. Ojeda del Pozo N, Ezquerra-Iribarren JA, Urruticoechea-Sarriegui I, Quemada-Ubis JI & Muñoz-Céspedes JM (2000) Entrenamiento en habilidades sociales en pacientes con daño cerebral adquirido. Revista de Neurología 30, 783-787.
46. Pacchetti C, Mancini F, Aglieri R, Fundarò C, Martignoni E & Nappi G (2000) Active music therapy in Parkinson's disease: an integrative method for motor and emotional rehabilitation. Psychosomatic Medicine 62, 386-393.
47. Palmer S, Glass TA, Palmer JB, Loo S & Wegener ST (2004) Crisis intervention with individuals and their families following stroke: a model for psychosocial service during inpatient rehabilitation. Rehabilitation Psychology 49, 338-343.
48. Polit-O'Hara D & Hungler BP (1997) Métodos de observación. In Essentials of Nursing Research: Methods, Appraisals and Utilization, 4th edn (Polit-O'Hara D & Hungler BP eds). Pa: Lippincott-Raven, Philadelphia, pp. 307-326.
49. Portillo MC (2009) Understanding the practical and theoretical development of social rehabilitation through action research. Journal of Clinical Nursing 18, 234-245.
50. Portillo MC, Saracíbar MI & Wilson-Barnett J (2002) Estudio desde la percepción de pacientes y familiares del proceso de participación informal en el cuidado después de un Ictus, metodología y primeros resultados. Enfermería Clínica 12, 94-103.
51. Portillo MC, Corchon S, Lopez-Dicastillo O & Cowley S (2009) Evaluation of a nurse-led social rehabilitation programme for neurological patients and carers: an action research study. International Journal of Nursing Studies 46, 204-219.
52. Portillo Vega MC (2006) Social Rehabilitation from a hospital ward: an action research study with nurses, neurological patients and their carers. doctoral thesis. King's College Department of Nursing and Midwifery Studies, London.
53. Rawl S, Easton KL, Kwiatkowski S, Zemen D & Burczyk B (1998) Effectiveness of a nurse-managed follow-up program for rehabilitation patients after discharge. Rehabilitation Nursing 23, 204-209.
54. Ross F, O'Tuathail C & Stubberfield D (2005) Towards multidisciplinary assessment of older people: exploring the change process. Journal of Clinical Nursing 14, 518-529.
55. Sandelowski M (1986) The problem of rigor in qualitative research. Advances in Nursing Science 8, 27-37.
56. Shah S, Vanclay F & Cooper B (1989) Improving the sensitivity of the Barthel Index for stroke rehabilitation. Journal of Clinical Epidemiology 42, 703-709.
57. Thorn S (2000) Neurological rehabilitation nursing: a review of the research. Journal of Advanced Nursing 31, 1029-1038.
58. Trend P, Kaye J, Gage H, Owen C & Wade D (2002) Short-term effectiveness of intensive multidisciplinary rehabilitation for people with Parkinson's disease and their carers. Clinical Rehabilitation 16, 717-725.
59. Turnock C & Gibson V (2001) Validity in action research: a discussion on theoretical and practice issues encountered whilst using observation to collect data. Journal of Advanced Nursing 36, 471-477.
60. Wade DT & Langton Hewer R (1987) Functional abilities after stroke: measurement, natural history and prognosis. Journal of Neurological and Neurosurgical Psychiatry 50, 177-182.
61. Wade D, Gage H, Owen C, Trend P, Grossmith C & Kaye J (2003) Multidisciplinary rehabilitation for people with Parkinson's disease: a randomised controlled study. Journal of Neurology and Neurosurgery Psychiatry 74, 158-162.
62. Waterman H (1998) Embracing ambiguities and valuing ourselves: issues of validity in action research. Journal of Advanced Nursing 28, 101-105.
63. Watson LD & Quinn DA (1998) Stages of stroke, a model for stroke rehabilitation. British Journal of Nursing 7, 631-640.
64. Wiles R, Pain H, Buckland S & McLellan L (1998) Providing appropriate information to patients and carers following a stroke. Journal of Advanced Nursing 28, 794-801.