Carer burden in dementia. Origins and intervention;Die belastung pflegender angehöriger bei demenz. Enstehungsbedingungen und interventionsmöglichkeiten

Nervenarzt

Volumn 82, Issue 3, 2011, Pages 336-342

  Kurz, A ^a   Wilz, G ^b  

^a TECHNICAL UNIVERSITY OF MUNICH   (Germany)

^b FRIEDRICH SCHILLER UNIVERSITY JENA   (Germany)

Author keywords

Behavioral therapy; Dementia; Family carers; Intervention; Quality of Life

Indexed keywords

AGED; CAREGIVER BURDEN; DEMENTIA; DISEASE SEVERITY; FAMILY COPING; FAMILY RELATION; GENDER; HEALTH EDUCATION; HUMAN; REVIEW;

ADAPTATION, PSYCHOLOGICAL; AGED; BEHAVIOR THERAPY; CAREGIVERS; COST OF ILLNESS; DEMENTIA; EMOTIONS; FEMALE; HOME NURSING; HUMANS; MALE; PROBLEM SOLVING; QUALITY OF LIFE; SELF-HELP GROUPS; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 79955698842     PISSN: 00282804     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00115-010-3108-3     Document Type: Review

References (68)

1. Andrén S, Elmstahl S (2008) Psychosocial intervention for family caregivers of people with dementia reduces caregiver's burden: development and effect after 6 and 12 months. Scand J Caring Sci 22:98-109
2. Bedard M, Kuzik R, Chambers L et al (2005) Understanding burden differences between men and women caregivers: the contribution of care-recipient problem behaviors. Int Psychogeriatr 17:99-118 (Pubitemid 40593651)
3. Belle SH, Burgio L, Burns R et al (2006) Enhancing the quality of life of dementia caregivers from different ethnic or racial groups. A randomized, controlled trial. Ann Intern Med 145:727-738 (Pubitemid 351650352)
4. Berger G, Bernhardt T, Wimer E et al (2005) Longitudinal study on the relationship between symptomatology of dementa and levels of subjective burden and depression among family caregivers in memory clinic patients. J Geriatr Psychiatry Neurol 18:119-128 (Pubitemid 41284961)
5. Brodaty H, Gresham M (1989) Effect of a training program to reduce stress in carers of patients with dementia. Br Med J 299:1375-1379 (Pubitemid 20005303)
6. Bruder J (1988) Filiale Reife - ein wichtiges Konzept für die familiäre Versorgung kranker, insbesondere dementer alter Menschen. Z Gerontopsychol Psychiatr 1:95-101
7. Burgio L, Stevens A, Guy D et al (2003) Impact of two psychosocial interventions on white and African American family caregivers of individuals with dementia. Gerontologist 43:568-579 (Pubitemid 37040336)
8. Chappell NL, Reid RC (2002) Burden and wellbeing among caregivers: examining the distinction. Gerontologist 42:772-780 (Pubitemid 35434881)
9. Cooper C, Katona C, Orrell M et al (2008) Coping strategies, anxiety and depression in caregivers of people with Alzheimer's disease. Int J Geriatr Psychiatry 23:929-936
10. Covinsky KE, Newcomer R, Fox P et al (2003) Patent and caregiver characteristics associated with depression in caregivers of patients with dementia. J Gen Intern Med 18:1006-1014
11. Danhauer SC, McCann J, Gilley DW et al (2004) Do behavioral disturbances in persons with Alzheimer's disease predict caregiver depression over time? Psychol Aging 19:198-202
12. Dunkin JJ, Anderson-Hanley C (1998) Dementia caregiver burden. A review of the literature and guidelines for assessment and intervention. Neurology 51:53-60
13. Eloniemi-Sulkava U, Notkola Il, Hentinen M et al (2001) Effects of supporting community-living demented patients and their caregivers: a randomized trial. J Am Geriatr Soc 49:1282-1287 (Pubitemid 33015203)
14. Etters L, Goodall D, Harrison BE (2008) Caregiver burden among dementia patient caregivers: a review of the literature. Am Acad Nurse Pract 20:423-428
15. Farran CJ, Gilley DW, McCann JJ et al (2004) Psychosocial interventions to reduce depressive symptoms of dementia caregivers: a randomized clinical trial comparing two approaches. J Ment Health Aging 10:337-350 (Pubitemid 41552352)
16. Gallagher-Thompson D, Lovett S, Rose J et al (2000) Impact of psychoeducational interventions on distressed family caregivers. J Clin Geropsychol 6:91-110
17. Gavrilova SI, Ferri CP, Mikhaylova N et al (2008) Helping carers to care - the 10/66 Dementia Research Group's randomized control trial of a caregiver intervention in Russia. Int J Geriatr Psychiatry 24:347-354
18. Gitlin LN, Corcoran M, Winter L et al (2001) A randomized, controlled trial of a home environmental intervention: effect on efficacy and upset in caregivers and on daily function of persons with dementia. Gerontologist 41:4-14 (Pubitemid 32144172)
19. Gitlin LN, Hauck WW, Dennis MP et al (2005) Maintenance of effects of the home environmental skill-building program for family caregivers and individuals with Alzheimer's disease and related disorders. J Gerontol A Biol Sci Med Sci 60:368-374 (Pubitemid 40628804)
20. Gonyea J, O'connor M, Carruth A et al (2005) Subjective appraisal of Alzheimer's disease caregiving: the role of self-efficacy and depressive symptoms in the experience of burden. Am J Alzheimer's Dis Other Demen 20:273-280
21. Gonyea JG, O'Connor MK, Boyle PA (2006) Project CARE: A randomized controlle trial of a behavioral intervention group for Alzheimer's disease caregivers. Gerontologist 46:827-832 (Pubitemid 46033548)
22. Gottlieb BH, Johnson J (2000) Respite programs for caregivers of persons with dementia: a review with practical implications. Aging Ment Health 4:119-129 (Pubitemid 30330566)
23. Große K, Kalytta T, Wilz G (2010) Kognitiv-verhaltenstherapeutische Interventionen für pflegende Angehörige von Demenzkranken. In: Haberstroh J, Pantel J (Hrsg) Demenz psychosozial behandeln. AKA, Heidelberg (im Druck)
24. Haley W, Brown L, Levine EG (1987) Experimental evaluation of the effectiveness of group interventions for dementia caregivers. Gerontologist 25:232-236
25. Hébert R, Girouard D, Leclerc G et al (1995) The impact of a support group programme for care-givers on the institutionalization of demented patients. Arch Gerontol Geriatr 20:129-143
26. Hébert R, Lévesque L, Vézina J et al (2003) Efficacy of a psychoducative group program for caregivers of demented persons living at home: a randomized controlled trial. J Gerontol Soc Sci 58B:58-67
27. Hepburn KW, Tornatore J, Center B et al (2001) Dementia family caregiver training: affecting beliefs about caregiving and caregiver outcomes. J Am Geriatr Soc 49:450-457 (Pubitemid 32390879)
28. Hughes SL, Giobbie-Hurder A, Weaver FM et al (1999) Relationship between caregiver burden and health-related quality of life. Gerontologist 39:534-545 (Pubitemid 30117056)
29. Kneebone II, Martin PR (2003) Coping and caregivers of people with dementia. Br J Health Psychol 8:1-17 (Pubitemid 36172714)
30. Kurz A, Wagenpfeil S, Hallauer J et al (2009) Evaluation of a brief educational program for dementia carers: the AENEAS Study. Int J Geriatr Psychiatry 25:861-869
31. Markowitz JS, Gutterman EM, Sadik K et al (2003) Health-related quality of life for caregivers of patients with Alzheimer disease. Alzheimer Dis Assoc Disord 17:207-214
32. Márquez-González M, Losada A, Izal M et al (2007) Modification of dysfunctional thoughts about caregiving in dementia family caregivers: Description and outcomes of an intervention programme. Aging Ment Health 1:616-625 (Pubitemid 350249310)
33. Marriott A, Donaldson C, Tarrier N et al (2000) Effectiveness of cognitive-behavioural family intervention in reducing the burden of care in carers of patients with Alzheimer's disease. Br J Psychiatry 176:557-562 (Pubitemid 30353657)
34. Martín-Carrasco M, Franco-Martin M, Pelegrín-Valero C et al (2008) Effectiveness of a psychoeducational intervention program in the reduction of caregiver burden in Alzheimer's disease patients' caregivers. Int J Geriatr Psychiatry 24:489-499
35. Martin-Cook K, Davis BA, Hynan LS et al (2005) A randomized, controlled study of an Alzheimer's caregiver skills training program. Am J Alzheimers Dis Other Demen 20:239-245
36. Mausbach BT, Patterson TL, Von Känel R et al (2007) The attenuating effect of personal master on the relations between stress and Alzheimer caregiver helath: a five-year longitudinal analysis. Aging Ment Health 11:637-644 (Pubitemid 350249314)
37. McConaghy R, Caltabiano ML (2005) Caring for a person with dementia: exploring relationships between perceived burden, depression, coping and well-being. Nurs Health Sci 7:81-91 (Pubitemid 40867581)
38. Meuser TM, Marwit SJ (2001) A comprehensive, stage-sensitive model of grief in dementia caregiving. Gerontologist 41:658-670 (Pubitemid 32959732)
39. Mittelman MS, Ferris SH, Steinberg G et al (1993) An intervention that delays institutionalization of Alzheimer's disease patients: treatment of spousecaregivers. Gerontologist 33:730-740 (Pubitemid 23353820)
40. Mittelman MS, Haley WE, Clay OJ et al (2006) Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology 67:1592-1599 (Pubitemid 44747929)
41. Mittelman MS, Roth DL, Coon DW et al (2004) Sustained benefit of supportive intervention for depressive symptoms in caregivers of patients with Alzheimer's disase. Am J Psychiatry 161:850-856 (Pubitemid 38625338)
42. Mittelman MS, Roth DL, Haley WE et al (2004) Effects of a caregiver intervention on negative caregiver appraisals of behavior problems in patients with Alzheimer's disease: reults of a randomized trial. J Gerontol Psychol Sci 59B:S27-S34
43. Morris RG (1988) Factors affecting the emotional wellbeing of the caregivers of dementia sufferers. Br J Psychiatry 153:147-156
44. Ostwald SK, Hepburn KW, Caron W et al (1999) Reducing caregiver burden: a randomized psychoeducational intervention for caregivers of persons with dementia. Gerontologist 39:299-309 (Pubitemid 29302479)
45. Ott CH, Sanders S, Kelber ST (2007) Grief and personal growth experience of spouses and adultchild caregivers of individuals with Alzheimer's disease and related dementias. Gerontologist 47:798-809 (Pubitemid 351171901)
46. Pearlin LI, Mullan JT, Semple SJ et al (1990) Caregiving and the stress process: an overview of concepts and their measures. Gerontologist 30:583-594 (Pubitemid 20370226)
47. Pinquart M, Sörensen S (2003) Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis. J Gerontol Psychol Sci 58B:112-128
48. Pinquart M, Sörensen S (2006) Gender differences in caregiver stressors, social resources, and health: an updated meta-analysis. J Gerontol Psychol Sci 61B:33-45
49. Pinquart M, Sörensen S (2006) Helping caregivers of persons with dementia: which interventions work and how large are their effects? Int Psychogeriatr 18:577-595
50. Pusey H, Richards D (2001) A systematic review of the effectiveness of psychosocial interventions for carers of people with dementia. Aging Ment Health 5:107-119 (Pubitemid 32545502)
51. Riedijk S, Duivenvoorden H, Rosso S et al (2008) Frontotemporal dementia: change of familial caregiver burden and partner relation in a Dutch cohort of 63 patients. Dement Geriatr Cogn Disord 26:398-406
52. Riedijk SR, De Vugt ME, Duivenvoorden HJ et al (2006) Caregiver burden, health-related quality of life and coping in dementia aregivers: a comparison of frontotemporal dementia and Alzheimer's disease. Dement Geriatr Cogn Disord 22:405-412 (Pubitemid 44726010)
53. Rinaldi P, Spazzafumo L, Mastriforti R et al (2005) Predictors of high level of burden and distress in caregivers of demented patients: results of an Italian multicenter study. Int J Geriatr Psychiatry 20:168-174 (Pubitemid 40277896)
54. Sanders S, Ott CH, Kelber ST et al (2008) The experience of high levels of grief in caregivers of persons with Alzheimer's disease and related dementias. Death Stud 32:495-523
55. Sansoni J, Vellone E, Piras G (2004) Anxiety and depression in community-dwelling, Italian Alzheimer's disease caregivers. Int J Nurs Pract 10:93-100
56. Schulz R, Martire LM, Klinger JN (2005) Evidence-based caregiver interventions in geriatric psychiatry. Psychiatr Clin North Am 28:1007-1036
57. Schulz R, O'Brien AT, Bookwala J et al (1995) Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes. Gerontologist 35:771-791
58. Selwood A, Johnston K, Katona C et al (2007) Systematic review of the effect of psychological interventions on family caregivers of people with dementia. J Affect Disord 101:75-89 (Pubitemid 46887614)
59. Silverberg E (2006) Introducing the 3-A grief intervention model for dementia caregivers acknowledge assess and assist. Omega 54:215-235
60. Simonelli C, Tripodi F, Rossi R et al (2008) The influence of caregiver burden on sexual intimacy and marital satisfaction in couples with an Alzheimer spouse. J Clin Pract 62:47-52 (Pubitemid 350294003)
61. Sörensen S, Duberstein P, Gill D et al (2006) Dementia care: mental health effects, intervention strategies, and clinical implications. Lancet Neurol 5:961-973 (Pubitemid 44556552)
62. Steadman PL, Tremont G, Duncan-Davis J (2007) Premorbid relationship satisfaction and caregiver burden in dementia caregivers. J Geriatr Psychiatry Neurol 20:115-119 (Pubitemid 46878181)
63. Thomas P, Lalloue F, Preux PM et al (2006) Dementia patients caregivers quality of life: the PIXEL Study. Int J Geriatr Psychiatry 21:50-56 (Pubitemid 43141496)
64. Thompson CA, Spilsbury K, Hall J et al (2007) Systematic review of information and support interventions for caregivers of people with dementia. BMC Geriatr 7:18
65. Van Den Wijngaart MA, Vernooij-Dassen MJ, Felling AJ (2007) The influence of stressors, appraisal and personal conditions on the burden of spousal caregivers of persons with dementia. Aging Ment Health 11:626-636 (Pubitemid 350249312)
66. Wettstein A, König M, Schmid R et al (2005) Belastung und Wohlbefinden bei Angehörigen von Menschen mit Demenz. Eine Interventionsstudie. Rüegger, Zürich
67. Wilz G, Kalytta T (2009) Förderung und Unterstützung der familiären Pflege von Demenzkranken - Schulung professioneller Berater und Pflegekräfte in der Durchführung eines therapeutischen Angehörigenberatungskonzepts sowie die Evaluation der therapeutischen Effekte der Interventionen. Abschlussbericht, Teilprojekt 5, Pflegeforschungsverbund Mitte-Süd, Förderkennzeichen: FKZ: 01GT0302
68. Zanetti O, Frisoni GB, Bianchetti A et al (1998) Depressive symptoms of Alzheimer caregiver are mainly due to personal rather than patient factors. Int J Geriatr Psychiatry 13:358-367 (Pubitemid 28301655)