Quality of survival

Brain and Spinal Tumors of Childhood

Volumn , Issue , 2004, Pages 493-500

  Kennedy, Colin ^a   Glaser, Adam ^b  

^a SOUTHAMPTON GENERAL HOSPITAL   (United Kingdom)

^b ST JAMES S UNIVERSITY HOSPITAL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 79955570233     PISSN: None     EISSN: None     Source Type: Book    
DOI: None     Document Type: Chapter

References (64)

1. Jannoun L, Bloom H. Long-term psychological effects In children treated for intracranial tumors. Int J Radiat Oncol Biol Phys 1989; 18:747.
2. Mulhern R, Wasserman A, Friedman A, Fairclough D. Social competence and behavioural adjustment of children who are long-term survivors of cancer. Pediatrics 1989; 83:18-25.
3. Livesey E, Hindmarsh P, Brook C, et al. Endocrine disorders following treatment of childhood brain tumours. Br J Cancer1990; 64:622-5.
4. Littley M, Shalet S, CG B, Ahmed S, Applegate G, Sutton M. Hypopituitarism following external radiotherapy for pituitary tumours in adults. Q J Med 1989; 70:145-60.
5. Lustig R, Rose S, Burghen G, et al. Hypothalamic obesity caused by cranial insult in children: Altered glucose and insulin dynamics and reversal by a somatostatin agonist. J Pediatr1999; 135:162-8.
6. Société International de Oncologie Pédiatrique. Guidelines for School/education. Med Pediatr Oncol 1995; 24:429-30.
7. Editorial. Quality of life. Lancet 1991; 338:350-1.
8. Nayfield S, Ganz P, Moipour C, Cella D, Hailey B. Report from the National Cancer Institute (USA) workshop on quality of life assessment In cancer clínica! trials. Qual Life Res 1992; 1:203-10.
9. Medical Research Council. The Assessment of MRC Trials 1996-97. London: Medical Research Council, 1996.
10. Gill T, Feinstein A. A critical appraisal of the quality of life measurements. J Am Med Assoc 1994; 272:619-26.
11. WHOQOL Group. Measuring Quality ofLife: The Development of the World Health Organization Quality ofLife Instrument (WHOQOL). Geneva: World Health Organization, 1993.
12. Bradlyn A, Ritchey A, Moore IEA. Quality of life research in pediatric oncology. Cancer 1996; 78:1333-9.
13. Pantel R, Lewis C. Measuring the impact of medical care on children. J Chronic Dis 1987; 40 (suppl. 1):99-108S.
14. Guyatt G, Feeny D, Patrick D. Measuring health-related quality of life: Basic sciences review. Ann Intern Med 1993; 118:622-9.
15. Lindstrom B, Kohler L. Youth, disability and quality of life. Pediatrician 1991; 18:121-8.
16. Jenney M, Campbell S. Measuring quality of life. Arch Dis Child1997; 77:347-54.
17. Jenney M, Kane R, Lurie N. Developing a measure of health outcomes in survivors of childhood cancer: A review of the issues. Med Pediatr Oncol 1995; 24:145-53.
18. Rosenbaum P, Cadman D, Kirplani H. Pediatrics: Assessing quality of life. In: Spiker B (ed.). Quality ofLife Assessments in Clinical Trials. New York: Raven Press, 1990.
19. Natapoff J. Children's views of health: A developmental study. Am J Publ Health 1978; 68:995-1000.
20. Perrin E, Gerrity P. There's a demon in your belly: Children's understanding of illness. Pediatrics 1981; 67:841-9.
21. Millstein S, Urwin C. Concepts of health and illness: Different constructs or variations and a theme. Health Psychol 1987; 6:515-24.
22. Eiser C, Morse R. Quality of life measures in chronic diseases of childhood. Health Technol Assess 2001; 5:1-157.
23. Herjanic B, Reich W. Development of a structured psychiatric interview for children: Agreement between child and parent on individual symptoms. JAbnorm Psychol 1982; 10:307-24.
24. Glaser A, Davies K, Walker D, Brazier D. Influence of proxy respondents and setting on health status assessment following central nervous system tumours in childhood. Qual Life Res1997; 6:43-53.
25. Achenbach T, Edelbrock C. Manual for the Child Behaviour Checklist and Revised Behaviour Profile. Burlington, VT: University of Vermont, 1983.
26. Stone W, Lemanek K. Developmental issues in children's selfreports. In: La Greca A (ed.). Through the Eyes of the Child: Obtaining Self-reports from Children and Adolescents. Boston, MA: Allyn & Bacon, 1990, pp. 18-56.
27. Eiser C. Children's quality of life measures. Arch Dis Child1997; 77:347-54.
28. Glaser A, Furlong W, Walker D, etal. Applicability of the Health Utilities Index to a population of childhood survivors of central nervous system tumours in the UK. Eur J Cancer 1999; 35:256-61.
29. Sackett D, Haynes R, Guyatt G, Tugwell P. Clinical Epidemiology: A Basic Science for Clinical Medicine, 2nd edn. Boston, MA: Little Brown, 1991.
30. Kee F. Patients' prerogatives and perceptions of benefit. Br Med J 1996; 312:958-60.
31. Stiller C, Bunch K, Lewis I. Ethnic group and survival from childhood cancer: Report from the UK Children's Cancer Study group. Br J Cancer 2000; 82:1339-43.
32. Silber J, Radcliffe J, Peckham Vea. Whole brain irradiation and decline in intelligence. The influence of dose and age on IQ scores. J Clin Oncol 1992; 10:1390-6.
33. Olshan J, Gubernick J, Packer R, etal. The effects of adjuvant chemotherapy on growth in children with medulloblastoma. Cancer 1992; 70:2013-17.
34. Livesey E, Brook C. Gonadal dysfunction after treatment of intracranial tumours. Arch Dis Child 1988; 63:495-500.
35. Ogilvy-Stuart A, Shalet S, Gattamaneni H. Thyroid function after treatment of brain tumors in children. J Pediatr 1991; 119:733-7.
36. Kennedy C, Leyland K. Disability, emotional/behavioural disorders and health-related quality of life in survivors of childhood brain tumours. Int J Cancer 1999; S12:106-11.
37. Christie D, Leiper A, Chessells J, Vardga-Khadem F. Intellectual performance after presymptomatic cranial radiotherapy for leukaemia: Effects of age and sex. Arch Dis Child 1995; 73:136-40.
38. Uruena M, Stanhope R, Chessells J, Leiper A. Impaired pubertal growth in acute lymphoblastic leukaemia. Arch Dis Child 1991; 66:1403-7.
39. Didi M, Didcock E, Davies H, Ogilvy-Stuart A, Wales J, Shalet S. High incidence of obesity in young adults after treatment of acute lymphoblastic leukemia in childhood. J Pediatr 1995; 127:63-7.
40. Leiper A, Chessells J. Acute lymphoblastic leukaemia under two years. Arch Dis Child 1986; 61:1007-12.
41. Anderson V, Smibert E, Ekert H, Godber T. Intellectual, educational and behavioral sequelae after cranial irradiation and chemotherapy. Arch Dis Child 1994; 70:476-83.
42. Ball W, Prenger E, Ballard E. Neurotoxicity of radio/chemotherapy in children: Pathologic and MR correlation. Am J Neuroradiol 1992; 13:761-76.
43. Riva D, Giorgi C. The neurodevelopmental price of survival in children with malignant brain tumours. Childs NervSyst 2000; 16:751-4.
44. Hertzberg H, Huk W, Uerball Mea. CNS late effects after ALL therapy in childhood. Part 1: Neuroradiological findings in long-term survivors of childhood ALL - an evaluation of the interferences between morphology and neuropsychological performance. Med Pediatr Oncol 1997; 28:387-400.
45. Darendeliler F, Livesey E, Hindmarsh P, Brook C. Growth and growth hormone secretion in children following treatment of brain tumours with radiotherapy. Acta PaediatrScand 1990; 79:121 -7.
46. Spoudeas H, Hindmarsh P, Matthews D, Brook C. Evolution of growth hormone (GH) neurosecretory disturbance after cranial irradiation for childhood brain tumours: A prospective study. J Endocrinol 1996; 150:329-42.
47. Mulhern R, Kepner J, Thomas P, Armstrong D, Friedman H, Kun L. Neuropsychological functioning of survivors of childhood medulloblastoma randomised to receive conventional or reduced dose craniospinal irradiation: A Pediatric Oncology Group study. J Clin Oncol 1998; 16:1723-8.
48. Glauser T, Packer R. Cognitive deficits in long-term survivors of childhood brain tumours. Childs Nerv Syst 1991; 7:2-12.
49. Gregory K, Parker L, Craft A. Returning to primary school after cancer. Pediatr Hematol Oncol 1994; 11:105-9.
50. Johnson A. Follow-up studies: A case for a minimum data set. Arch Dis Child 1997; 76:F61 -3.
51. Mulhern R. Correlation of HUI2 cognition scale and neuropsychological functioning among survivors of childhood medulloblastoma. Int J Cancer 1999; S12:91 -4.
52. Fooks J, Fritz S, Tin W, et al. A comparison of two methods of follow-up in a trial of prophylactic volume expansion in preterm babies. Paediatr Perinat Epidemiol 1998; 12:199-216.
53. Fooks J, Mutch L, Yudkin P, Johnson A, Elbourne D. Comparing two methods of follow-up in a multi-centre randomised trial. Arch Dis Child 1997; 76:369-76.
54. Mulhern R, Horowitz M, Kovnar E, Langston J, Sanford R, Kun L. Neurodevelopmental status of infants and young children treated for brain tumours with pre-irradiation chemotherapy. J Clin Oncol 1989; 7:1660-6.
55. Mulhern R, Carpentieri S, Sherna S, Stone P, Fairclough D. Factors associated with social and behavioural problems among children recently diagnosed with brain tumour. J Pediatr Psychol 1993; 18:339-50.
56. Ris M, Packer R, Goldwein J, Jones-Wallace D, Boyett J. Intellectual outcome after reduced-dose radiation therapy plus adjuvant chemotherapy for medulloblastoma: A Children's Cancer Group study. J Clin Oncol 2001; 19:3470-6.
57. Glaser A, Kennedy C, Punt J, Walker D. A standardised strategy for qualitative assessment of brain tumour survivors treated within clinical trials in childhood. IntJ Cancer 1999; S12:77-82.
58. Sparrow S, Balla D, Cicchetti D. Adaptive Behavior Scales. Minnesota: Circle Press, 1984.
59. Radcliffe J, Packer R, Atkins T, et al. Three and four year cognitive outcome in children with noncortical brain tumours treated with whole-brain radiotherapy. Ann Neurol 1992; 32:551-4.
60. Kao G, Goldwein J, Schulz Dea. The impact of perioperative factors on subsequent intelligence quotient deficits in children treated for medulloblastoma/posterior fossa primitive neuroectodermal tumors. Cancer 1994; 74:965-71.
61. Kiltie A, Lashford L, Gattamaneni H. Survival and late effects in medulloblastoma patients treated with craniospinal irradiation under three years old. Med Pediatr Oncol 1997; 28:348-54.
62. Gajjar A, Mulhern R, Heidemann R, et al. Medulloblastoma in very young children: Outcome of definitive craniospinal irradiation following incomplete response to chemotherapy. J Clin Oncol 1994; 12:1212-16.
63. Kiltie A, Gattamaneni H. Survival and quality of life of paediatric intracranial germ cell tumour patients treated at the Christie Hospital 1972-1993. Med Pediatr Oncol 1995; 25:450-6.
64. Sutton L, Radcliffe J, Goldwein Jea. Quality of life of adult survivors of germinomas treated with craniospinal irradiation. Neurosurgery 1999; 45:1292-7.