Can parents rate their children's quality of life? perspectives on pediatric orthopedic outcomes

Journal of Pediatric Orthopaedics Part B

Volumn 20, Issue 3, 2011, Pages 184-190

  Matsumoto, Hiroko ^a,b,c   Vitale, Michael G ^a,b   Hyman, Joshua E ^a,b   Roye, David P ^a,b  

^a College of Physicians and Surgeons ^*  (United States)

^b NewYork Presbyterian Hospital   (United States)

^c Och Spine at New York Presbyterian Hospitals   (United States)

Author keywords

Child Health Questionnaire; health related quality of life; parent proxy; Pediatric Orthopaedic Data Collection Instrument

Indexed keywords

ADOLESCENT; ADULT; AGE DISTRIBUTION; CHILD; CHILD HEALTH QUESTIONNAIRE; CHILDHOOD DISEASE; CLINICAL ASSESSMENT TOOL; DEMOGRAPHY; FEMALE; GENERAL HEALTH; HEALTH; HUMAN; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; MUSCULOSKELETAL DISEASE; PARENT; PEDIATRIC ORTHOPEDIC DATA COLLECTION INSTRUMENT; PHYSICAL CAPACITY; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; REVIEW; SCHOOL CHILD; SCOLIOSIS; SENSITIVITY ANALYSIS; TREATMENT OUTCOME;

ADOLESCENT; ADULT; BONE DISEASES; CHILD; DIAGNOSTIC SELF EVALUATION; FEMALE; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; PARENTS; PROXY; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SCOLIOSIS; SEVERITY OF ILLNESS INDEX; SICKNESS IMPACT PROFILE; TREATMENT OUTCOME;

EID: 79955092568     PISSN: 1060152X     EISSN: 14735865     Source Type: Journal    
DOI: 10.1097/BPB.0b013e328343184c     Document Type: Review

References (18)

1. Ware JE Jr. Conceptualizing disease impact and treatment outcomes. Cancer 1984; 15 (Suppl):2316-2323.
2. Levwe RB, Drotar D. Health-related quality of life in childhood cancer: discrepancy in parent-child reports. Int J Cancer 1999; 12 (Suppl): 58-64.
3. Hays RD, Vickrey BG, Hermann BP, Perrine K, Cramer J, Meador K, et al. Agreement between self-reports and proxy reports of quality of life in epilepsy patients. Qual Life Res 1995; 4:159-168.
4. Tyler DC, Ahn T, Douthit J, Chapman CR. Toward validation of pain measurement tools for children: a pilot study. Pain 1993; 52:301-309. (Pubitemid 23080548)
5. Harter D. The perceived competence scale for children. Child Dev 1982; 53:87-97.
6. Theunissen NCM, Vogels TGC, Koopman HM, Verrips GH, Zwinderman KA, Verloove-Vanhorick SP, Wit JM. The proxy problem: child report versus parent report in health-related quality of life research. Qual Life Res 1998; 7:387-397. (Pubitemid 28343448)
7. Vogels T, Verrips GH, Verloove-Vanhorick SP, Fekkes M, Kamphuis RP, Koopman HM, et al. Health-related quality of life in children: the development of the TACQOL parent form. Qual Life Res 1998; 7:457-465. (Pubitemid 28343454)
8. Brunner HI, Klein-Gitelman MS, Miller MJ, Trombley M, Baldwin N, Kress A, et al. Health of children with chronic arthritis: relationship of different measures and the quality of parent proxy reporting. Arthritis Rheum 2004; 5:763-773. (Pubitemid 39372035)
9. Yeh CH, Chang CW, Chang PC. Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports. Nurs Res 2005; 54:354-362.
10. Chang PC, Yeh CH. Agreement between child self-report and parent proxyreport to evaluate quality of life in children with cancer. Psychooncology 2005; 14:125-134.
11. Canning EH, Hanser SB, Shade KA, Boyce WT. Mental disorders in chronically ill children: parent-child discrepancy and physician identification. Pediatrics 1992; 90:692-696. (Pubitemid 23008186)
12. Canning EH. Mental disorders in chronically ill children: case identification and parent-child discrepancy. Psychosom Med 1994; 56:104-108. (Pubitemid 24106673)
13. Cunningham MJ, Chiu EJ, Landgraf JM, Gliklich RE. The health impact of chronic recurrent rhinosinusitis in children. Arch Otolaryngol Head Neck Surg 2000; 126:1363-1368.
14. Russell KM, Hudson M, Long A, Phipps S. Assessment of health-related quality of life in children with cancer: consistency and agreement between parent and child reports. Cancer 2006; 106:2267-2274. (Pubitemid 43673250)
15. Landgraf JM, Abetz L, Ware JE. The CHQ user's manual. 1st ed. Boston: The Health Institute, New England Medical Center; 1996.
16. American Academy of Orthopaedic Surgeons. Pediatric outcomes data collection instrument version 2.0, 1997.
17. Daltroy LH, Liang MH, Fossel AH, Goldberg MJ. The POSNA Pediatric Musculoskeletal Functional Health Questionnaire: report on reliability, validity, and sensitivity to change. J Pediatr Orthop 1998; 18:561-571. (Pubitemid 28446801)
18. Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale, NJ: Lawrence Earlbaum Associates; 1988.