The time is now for a new approach to primary ovarian insufficiency

Fertility and Sterility

Volumn 95, Issue 6, 2011, Pages 1890-1897

  Cooper, Amber R ^a   Baker, Valerie L ^b   Sterling, Evelina W ^c   Ryan, Mary E ^d   Woodruff, Teresa K ^e   Nelson, Lawrence M ^f  

^a WASHINGTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b STANFORD UNIVERSITY MEDICAL CENTER   (United States)

^c Rachel's Well   (United States)

^d NATIONAL INSTITUTES OF HEALTH   (United States)

^e NORTHWESTERN UNIVERSITY   (United States)

^f EUNICE KENNEDY SHRIVER NATIONAL INSTITUTE OF CHILD HEALTH AND HUMAN DEVELOPMENT   (United States)

Author keywords

diminished ovarian reserve; infertility; integrative medicine; menstrual cycle; participatory research; patient registry; premature menopause; premature ovarian failure (POF); Primary ovarian insufficiency (POI); research consortia; sex steroid deficiency

Indexed keywords

ANAMNESIS; ARTICLE; DISEASE REGISTRY; EARLY MENOPAUSE; FEMALE; HEALTH CARE ORGANIZATION; HUMAN; PARTICIPATORY RESEARCH; PREMATURE OVARIAN FAILURE; PRIORITY JOURNAL; SOCIAL PSYCHOLOGY;

ADOLESCENT; COMMUNITY-BASED PARTICIPATORY RESEARCH; CONSENSUS; FEMALE; GYNECOLOGY; HUMANS; PREGNANCY; PRIMARY OVARIAN INSUFFICIENCY; REGISTRIES; TIME FACTORS;

EID: 79955015724     PISSN: 00150282     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.fertnstert.2010.01.016     Document Type: Article

References (42)

1. R.W. Rebar Premature ovarian failure Obstet Gynecol 113 2009 1355 1363
2. L.M. Nelson Primary ovarian insufficiency N Engl J Med 360 2009 606 614
3. C.K. Welt Primary ovarian insufficiency: a more accurate term for premature ovarian failure Clin Endocrinol 68 2008 499 509 (Pubitemid 351388699)
4. F. Albright, P.H. Smith, and R. Fraser A syndrome characterized by primary ovarian insufficiency and decreased stature Am J Med Sci 204 1942 625 648
5. W. Chemaitilly, A.C. Mertens, P. Mitby, J. Whitton, M. Stovall, and Y. Yasui Acute ovarian failure in the childhood cancer survivor study J Clin Endocrinol Metab 91 2006 1723 1728
6. C.A. Sklar, A.C. Mertens, P. Mitby, J. Whitton, M. Stovall, and C. Kasper Premature menopause in survivors of childhood cancer: a report from the childhood cancer survivor study J Natl Cancer Inst 98 2006 890 896 (Pubitemid 44018918)
7. C.L. Nieman, K.E. Kinahan, S.E. Yount, S.K. Rosenbloom, K.J. Yost, and E.A. Hahn Fertility preservation and adolescent cancer patients: lessons from adult survivors of childhood cancer and their parents Cancer Treat Res 138 2007 201 217
8. T.K. Woodruff The emergence of a new interdiscipline: oncofertility Cancer Treat Res 138 2007 3 11
9. L.R. Schover Premature ovarian failure and its consequences: vasomotor symptoms, sexuality, and fertility J Clin Oncol 26 2008 753 758 (Pubitemid 351264388)
10. C.A. Bondy Care of girls and women with Turner syndrome: a guideline of the Turner Syndrome Study Group J Clin Endocrinol Metab 92 2007 10 25 (Pubitemid 46067503)
11. V.P. Sybert, and E. McCauley Turner's syndrome N Engl J Med 351 2004 1227 1238
12. M.D. Wittenberger, R.J. Hagerman, S.L. Sherman, A. Conkie-Rosell, C.K. Welt, and R.W. Rebar The FMR1 premutation and reproduction Fertil Steril 87 2007 456 465 (Pubitemid 46394554)
13. C.K. Welt, A. Falorni, A.E. Taylor, K.A. Martin, and J.E. Hall Selective theca cell dysfunction in autoimmune oophoritis results in multifollicular development, decreased estradiol, and elevated inhibin B levels J Clin Endocrinol Metab 90 2005 3069 3076 (Pubitemid 40686366)
14. V.K. Bakalov, J.N. Anasti, K.A. Calis, V.H. Vanderhoof, A. Premkumar, and S. Chen Autoimmune oophoritis as a mechanism of follicular dysfunction in women with 46, XX spontaneous premature ovarian failure Fertil Steril 84 2005 958 965 (Pubitemid 41414587)
15. N.H. Alzubaidi, H.L. Chapin, V.H. Vanderhoof, K.A. Calis, and L.M. Nelson Meeting the needs of young women with secondary amenorrhea and spontaneous premature ovarian failure Obstet Gynecol 99 2002 720 725 (Pubitemid 34442446)
16. V.B. Popat, K.A. Calis, V.H. Vanderhoof, G. Cizza, J.C. Reynolds, and N. Sebring Bone mineral density in estrogen-deficient young women J Clin Endocrinol Metab 94 2009 2277 2283
17. A.A. Groff, S.N. Covington, L.R. Halverson, O.R. Fitzgerald, V. Vanderhoof, and K. Calis Assessing the emotional needs of women with spontaneous premature ovarian failure Fertil Steril 83 2005 1734 1741 (Pubitemid 40824807)
18. Davis M, Ventura JL, Wieners M, Covington SN, Vanderhoof VH, Ryan ME, et al. The psychosocial transition associated with spontaneous 46, XX primary ovarian insufficiency: illness uncertainty, stigma, goal flexibility, and purpose in life as factors in emotional health. Fertil Steril. doi: 10.1016/j.fertnstert.2008.12.122.
19. E.S. Fisher, D.M. Berwick, and K. Davis Achieving health care reform - how physicians can help N Engl J Med 360 2009 2495 2497
20. Osler W, Bean RB. Sir William Osler: aphorisms from his bedside teachings and writings. Springfield, IL: C.C. Thomas, 1961.
21. L.C. Li, J.M. Grimshaw, C. Nielsen, M. Judd, P.C. Coyte, and I.D. Graham Evolution of Wenger's concept of community of practice Implement Sci 4 2009 11
22. R.L. Ackoff Transformational leadership Strategy & Leadership 27 1999 20 26
23. V. Allee The knowledge evolution expanding organizational intelligence 1997 Butterworth-Heinemann Boston
24. Webster's ninth new collegiate dictionary 1990 Merriam-Webster Springfield, MA
25. R.E. Gliklich, and N.A. Dreyer Registries for evaluating patient outcomes: a user's guide 2007 U.S. Department of Health and Human Services, Public Health Service, Agency for Healthcare Research and Quality Rockville, MD
26. K. Hijane, C. Heyman, M. Bell, and M.B. Busby From fire in the belly to a boiling heart: fuel for participatory research Ann N Y Acad Sci 1135 2008 1 9 (Pubitemid 351862147)
27. C.G. Jung, H.E. Read, M. Fordham, and G. Adler The collected works of C.G. Jung 1953 Pantheon Books New York
28. A. Guggenbuhl-Craig Power in the helping professions 1971 Spring Publications Dallas, TX
29. S. Daneault The wounded healer: can this idea be of use to family physicians? Can Fam Physician 54 2008 1218-5
30. M. Viswanathan United States Agency for Healthcare Research and Quality Research Triangle Institute-University of North Carolina Evidence-based Practice Center Community-based participatory research assessing the evidence 2004 Agency for Healthcare Research and Quality Rockville, MD
31. C.R. Horowitz, M. Robinson, and S. Seifer Community-based participatory research from the margin to the mainstream: are researchers prepared? Circulation 119 2009 2633 2642
32. P. Nyden Academic incentives for faculty participation in community-based participatory research J Gen Intern Med 18 2003 576 585 (Pubitemid 36921025)
33. National Institutes of Health Office of Rare Diseases Research. Available at: http://rarediseases.info.nih.gov/. Accessed November 19, 2009.
34. Osteogenesis Imperfecta Foundation, 2007. Available at: http://www.oif.org/site/PageServer?pagename=AB-AboutOIF. Accessed November 19, 2009.
35. International Foundation for Functional Gastrointestinal Disorders. Available at: http://www.iffgd.org/site/about-iffgd/research/. Accessed November 19, 2009.
36. National Down Syndrome Society. 2009. Available at: http://www.ndss.org/ index.php?option=com-content&view=article&id=45&Itemid=56. Accessed November 19, 2009.
37. Cystic Fibrosis Foundation. Available at: http://www.cff.org/. Accessed November 19, 2009.
38. National Institutes of Health, U.S. Department of Health and Human Services. Available at: http://www.nih.gov/. Accessed June 25, 2009.
39. Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services, 2009. Available at: http://www.ahrq.gov/. Accessed June 25, 2009.
40. Biomedical Translational Research Information System, National Institutes of Health, U.S. Department of Health and Human Services. Available at: http://btris.nih.gov/. Accessed June 26, 2009.
41. S. Oster, S. Langella, S. Hastings, D. Ervin, R. Madduri, and J. Phillips caGrid 1.0: an enterprise grid infrastructure for biomedical research J Am Med Inform Assoc 15 2008 138 149 (Pubitemid 351288546)
42. Summit on Integrative Medicine and the Health of the Public. Institute of Medicine. Accessed May 29, 2009.