Secretary's Advisory Committee on Heritable Disorders in Newborns and Children response to the President's Council on Bioethics report: The changing moral focus of newborn screening

Genetics in Medicine

Volumn 13, Issue 4, 2011, Pages 301-304

  Trotter, Tracy L ^a   Fleischman, Alan R ^b   Howell, R Rodney ^c   Lloyd Puryear, Michele ^d  

^a San Ramon Valley Primary Care   (United States)

^b March of Dimes Birth Defects Foundation   (United States)

^c UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE   (United States)

^d HEALTH RESOURCES AND SERVICES ADMINISTRATION   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BIOETHICS; BIOMEDICINE; GENETIC DISORDER; GENETIC SCREENING; HEALTH PROGRAM; HUMAN; LABORATORY TEST; MEDICAL PRACTICE; MEDICAL SOCIETY; NEWBORN SCREENING; NOTE;

ADVISORY COMMITTEES; BIOETHICAL ISSUES; GENETIC DISEASES, INBORN; GENETIC TESTING; HUMANS; INFANT, NEWBORN; NEONATAL SCREENING; UNITED STATES;

EID: 79954993710     PISSN: 10983600     EISSN: None     Source Type: Journal    
DOI: 10.1097/GIM.0b013e318210655d     Document Type: Note

References (7)

1. The President's Council on Bioethics, 2008. Available at: http://www.bioethics. gov/reports/newborn-screening/index.html. Accessed November 19, 2010.
2. Fleischman AR, Lin BK, Howse JL. A commentary on the President's Council on Bioethics report: the changing moral focus of newborn screening. Genet Med 2009;11:507-509.
3. Wilson JMG, Jungner G. Principles and practice of screening for disease. Geneva: World Health Organization, 1968. Available at: http://www.who.int/ bulletin/volumes/86/4/07-050112BP.pdf. Accessed July 4, 2009.
4. Genetic screening: programs, principles and research. National Research Council, Committee for the Study of Inborn Errors of Metabolism. Washington, DC: National Academy of Sciences, 1975.
5. Newborn screening: toward a uniform screening panel and system. Genet Med 2006;8(suppl 1):1S-252S.
6. Green NS, Rinaldo P, Brower A, et al. Committee report: advancing the current recommended panel of conditions for newborn screening. Genet Med 2007;9:792-796. (Pubitemid 350129414)
7. Calonge N, Green NS, Rinaldo P, et al. Committee report: method for evaluating conditions nominated for population-based screening of newborns and children. Genet Med 2010;12:153-159.