A commentary on the president's council on bioethics report: The changing moral focus of newborn screening

Genetics in Medicine

Volumn 11, Issue 7, 2009, Pages 507-509

  Fleischman, Alan R ^a,b   Lin, Bruce K ^a   Howse, Jennifer L ^a  

^a March of Dimes Birth Defects Foundation   (United States)

^b ALBERT EINSTEIN COLLEGE OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AWARENESS; BIOETHICS; ENDOCRINE DISEASE; ETHICAL THEORY; EVALUATION RESEARCH; FUNCTIONAL DISEASE; GENETIC IDENTIFICATION; HUMAN; MANDATORY PROGRAM; METABOLIC DISORDER; MORALITY; NEWBORN; NEWBORN SCREENING; NOTE; PHENYLKETONURIA; UNITED STATES; VOLUNTARY PROGRAM;

ADVISORY COMMITTEES; BIOETHICS; GENETIC DISEASES, INBORN; GENETIC SCREENING; HUMANS; INFANT, NEWBORN; UNITED STATES;

EID: 68749117770     PISSN: 10983600     EISSN: None     Source Type: Journal    
DOI: 10.1097/GIM.0b013e3181a9d66c     Document Type: Note

References (15)

1. Newborn screening: toward a uniform screening panel and system. Genet Med 2006;8(suppl 1):1S-252S.
2. March of Dimes Foundation, 2009. Available at: http://www.marchofdimes. com/aboutus/22684-51920.asp. Accessed March 23, 2009.
3. The President's Council on Bioethics, 2008. Available at: http://www.bioethics.gov/reports/newborn-screening/index.html. Accessed February 18, 2009.
4. Howse JL, Weiss M, Green NS. Critical role of the March of Dimes in the expansion of newborn screening. Ment Retard Dev Disabil Res Rev 2006;12:280-287.
5. Wadsworth Center-New York State Department of Health, 2005. Available at: http://www.wadsworth.org/newborn/babhealth.htm#listing. Accessed February 16, 2009.
6. Illes J, Kirschen MP, Edwards E, et al. Ethics: incidental findings in brain imaging research. Science 2006;311:783-784.
7. Skinner D, Sparkman KL, Bailey DB Jr. Screening for Fragile X syndrome: parent attitudes and perspectives. Genet Med 2003;5:378-384.
8. Centers for Disease Control and Prevention, 2004. Available at: http://www.cdc.gov/ncbddd/Duchenne/documents/NBS-Lay-Report.pdf. Accessed February 18, 2009.
9. Alexander D, Van Dyck PC. Neonatal screening: old dogma or sound principle? (in reply) Pediatrics 2007;119:407.
10. Centers for Disease Control and Prevention (CDC). Impact of expanded newborn screening - United States, 2006. MMWR Morb Mortal Wkly Rep 2008;57:1012-1015.
11. National Center for Hearing Assessment & Management, Early Hearing Detection and Intervention, 2008. Available at: http://www.infanthearing.org/ resources/fact.pdf. Accessed March 23, 2009.
12. Collins FS, Green ED, Guttmacher AE, Guyer MS. A vision for the future of genomics research. Nature 2003;422:835-847.
13. Discretionary Grant Information System, Consumer Initiatives for Genetics Resources and Services. Rockville, US Department of Health and Human Services, Maternal Child Health Bureau, 2004. Available at: https://perfdata.hrsa.gov/ mchb/DGISReports/default.aspx. Accessed February 16, 2009.
14. Hudson KL, Holohan MK, Collins FS. Keeping pace with the times - the Genetic Information Nondiscrimination Act of 2008. N Engl J Med 2008;358:2661-2663.
15. Thomas database - Newborn Screening Saves Lives Act. Washington DC: Library of Congress, 1995. Available at: http://thomas.loc.gov/. Accessed February 16, 2009.