Primary immunodeficiency diseases in Latin America: Proceedings of the Second Latin American Society for Immunodeficiencies (LASID) Advisory Board

Allergologia et Immunopathologia

Volumn 39, Issue 2, 2011, Pages 106-110

  Leiva, L E ^a   Bezrodnik, L ^b   Oleastro, M ^c   Condino Neto, A ^d   Costa Carvalho, B T ^e   Sevciovic Grumach, A ^f   Espinosa Rosales, F J ^g   Luis Franco, J ^h   King, A ⁱ   Inostroza, J ^j   Quezada, A ^k   Porras, O ^l   Sorensen, R U ^a,j  

^a LOUISIANA STATE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b HOSPITAL DE NIÑOS RICARDO GUTIÉRREZ   (Argentina)

^c HOSPITAL DE PEDIATRÍA PROF DR JUAN P GARRAHAN   (Argentina)

^d UNIVERSITY OF SÃO PAULO   (Brazil)

^e FEDERAL UNIVERSITY OF SÃO PAULO   (Brazil)

^f FACULDADE DE MEDICINA DO ABC   (Brazil)

^g INSTITUTO NACIONAL DE PEDIATRÍA   (Mexico)

^h UNIVERSIDAD DE ANTIOQUIA   (Colombia)

ⁱ HOSPITAL LUIS CALVO MACKENNA   (Chile)

^j UNIVERSIDAD DE LA FRONTERA   (Chile)

^k Pediatra Reumatólogo Unidad Inmuno Reumatología Hospital Dr Exequiel González Cortés   (Chile)

^l HOSPITAL NACIONAL DE NIÑOS   (Costa Rica)

more..

Author keywords

Diagnosis; Education; Latin America; Primary immunodeficiency diseases; Registry; Treatment

Indexed keywords

IMMUNOGLOBULIN G;

ADVISORY COMMITTEE; ARTICLE; AWARENESS; CELL PROLIFERATION; EDUCATION PROGRAM; HEALTH PROGRAM; HUMAN; IMMUNE DEFICIENCY; LYMPHOCYTE; SOUTH AND CENTRAL AMERICA; TRAINING;

ADVISORY COMMITTEES; ALLERGY AND IMMUNOLOGY; FELLOWSHIPS AND SCHOLARSHIPS; HISPANIC AMERICANS; HUMANS; IMMUNOLOGIC DEFICIENCY SYNDROMES; IMMUNOLOGIC TESTS; LATIN AMERICA; PATIENT EDUCATION AS TOPIC; PRACTICE GUIDELINES AS TOPIC; REGISTRIES; UNITED STATES;

EID: 79954950140     PISSN: 03010546     EISSN: 15781267     Source Type: Journal    
DOI: 10.1016/j.aller.2010.10.007     Document Type: Article

References (23)

1. Immune Deficiency Foundation. Primary immune deficiency diseases in America: The second national survey of patients. 2002 [cited; 2010 19-July]; Available from: http://www.primaryimmune.org/publications/surveys/second_national_survey_of_patients_%25282002%2529.pdf.
2. Geha R.S., Notarangelo L.D., Casanova J.L., Chapel H., Conley M.E., Fischer A., et al. Primary immunodeficiency diseases: an update from the International Union of Immunological Societies Primary Immunodeficiency Diseases Classification Committee. J Allergy Clin Immunol. 2007, 120:776-794.
3. Immune Deficiency Foundation. About Primary Immunodeficiencies: What is a Primary Immunodeficiency Disease? [cited 2010 5-July]; Available from: http://www.primaryimmune.org/about_pi/about_pi.htm.
4. Cooper M.A., Pommering T.L., Korányi K. Primary immunodeficiencies. Am Fam Physician. 2003, 68:2001-2008.
5. Mayo Clinic. Primary immunodeficiency. 2009 [cited; 2010 19-July]; Available from: http://www.mayoclinic.com/health/primary-immunodeficiency/DS01006.
6. Gardulf A., Nicolay U., Math D., Asensio O., Bernatowska E., Böck A., et al. Children and adults with primary antibody deficiencies gain quality of life by subcutaneous IgG self-infusions at home. J Allergy Clin Immunol. 2004, 114:936-942.
7. Bonnet P, Li-McLeod J. Use of intravenous immunoglobulin in patients with Alzheimer's Disease. A retrospective claims database analysis. International Conference on Alzheimer's Disease (ICAD). Chicago, IL; 2008.
8. Mahadevia P.J. The pocketbook: Pharmacoeconomic issues related to intravenous immunoglobulin therapy. Pharmacotherapy. 2005, 25:94S-100S.
9. Boyle J.M., Buckley R.H. Population prevalence of diagnosed primary immunodeficiency diseases in the United States. J Clin Immunol. 2007, 27:497-502.
10. O'Mahony B. Rare diseases treated by plasma proteins. Pharmaceuticals Policy and Law. 2009, 11:245-257.
11. Banks M. Deficient diagnosis. The Parliament. 2010 3 May:24-5.
12. Eades-Perner A.M., Gathmann B., Knerr V., Guzman D., Veit D., Kindle G., et al. The European internet-based patient and research database for primary immunodeficiencies: results 2004-06. Clin Exp Immunol. 2007, 147:306-312.
13. Ghazi B.M.S., Asghar Aghamohammadi A., Kouhi A., Farhoudi A., Moin M., Rezaei N., et al. Mortality in primary immunodeficient patients registered in Iranian primary immunodeficiency registry. Iran J Allergy Asthma Immunol. 2004, 3:31-35.
14. Quinti I., Soresina A., Spadaro G., Martino S., Donnanno S., Agostini C., et al. Long-term follow-up and outcome of a large cohort of patients with common variable immunodeficiency. J Clin Immunol. 2007, 27:308-316.
15. Seymour B., Miles J., Haeney M. Primary antibody deficiency and diagnostic delay. J Clin Pathol. 2005, 58:546-547.
16. Espanol T. Primary immunodeficiencies. Pharmaceuticals Policy and Law. 2009, 11:277-283.
17. Yarmohammadi H., Estrella L., Doucette J., Cunningham-Rundles C. Recognizing primary immune deficiency in clinical practice. Clin Vaccine Immunol. 2006, 13:329-332.
18. Maródi L., Casanova J.L. Primary immunodeficiency diseases: the J Project. Lancet. 2009, 373:2179-2181.
19. Pickett D., Modell V., Leighton I., Modell F. Impact of a physician education and patient awareness campaign on the diagnosis and management of primary immunodeficiencies. Immunol Res. 2008, 40:93-94.
20. Modell V. The impact of physician education and public awareness on early diagnosis of primary immunodeficiencies: Robert A. Good Immunology Symposium. Immunol Res. 2007, 38:43-47.
21. Leiva L.E., Zelazco M., Oleastro M., Carneiro-Sampaio M., Condino-Neto A., Costa-Carvalho B.T., et al. Primary immunodeficiency diseases in Latin America: the second report of the LAGID registry. J Clin Immunol. 2007, 27:101-108.
22. Zelazko M., Carneiro-Sampaio M., Cornejo de Luigi M., Garcia de Olarte D., Porras Madrigal O., Berrón Perez R., et al. Primary Immunodeficiency Diseases in Latin America: First Report from Eight Countries Participating in the LAGID. J Clin Immunol. 1998, 18:161-166.
23. The Jeffrey Modell Foundation. 4 stages of testing for primary immunodeficiency. [cited 2010 06-July]; Available from: http://www.info4pi.org/aboutPI/index.cfm%3Fsection=aboutPI%26content=algorithm%26CFID=38797384%26CFTOKEN=35369597.