Studying psychosocial adaptation to end-stage renal disease: The proximal-distal model of health-related outcomes as a base model

Journal of Psychosomatic Research

Volumn 70, Issue 5, 2011, Pages 455-464

  Chan, Ramony ^a,b   Brooks, Robert ^a,b   Erlich, Jonathan ^b,c   Gallagher, Martin ^d   Snelling, Paul ^e   Chow, Josephine ^a,f,g   Suranyi, Michael ^a,b  

^a LIVERPOOL HOSPITAL   (Australia)

^b UNIVERSITY OF NEW SOUTH WALES   (Australia)

^c PRINCE OF WALES HOSPITAL   (Australia)

^d Concord Repatriation and General Hospital ^*  (Australia)

^e ROYAL PRINCE ALFRED HOSPITAL   (Australia)

^f UNIVERSITY OF SYDNEY   (Australia)

^g UNIVERSITY OF TASMANIA   (Australia)

Author keywords

Biopsychosocial model; Dialysis; End stage renal disease; Proximal distal model; Psychosocial adaptation; Quality of Life

Indexed keywords

HEMOGLOBIN;

ADULT; AGED; ARTICLE; CATARACT EXTRACTION; COMORBIDITY; DEPRESSION; DISEASE SEVERITY; FEMALE; HEMODIALYSIS PATIENT; HUMAN; KIDNEY DISEASE; MAJOR CLINICAL STUDY; MALE; OBSERVATIONAL STUDY; PSYCHOMETRY; QUALITY OF LIFE; SELF CONCEPT; SOCIAL ADAPTATION; SOCIAL PSYCHOLOGY; SOCIAL SUPPORT; STATISTICAL ANALYSIS;

ADAPTATION, PSYCHOLOGICAL; ADULT; AFFECT; AGED; AGED, 80 AND OVER; CROSS-SECTIONAL STUDIES; DEPRESSION; FEMALE; HUMANS; KIDNEY FAILURE, CHRONIC; MALE; MIDDLE AGED; MODELS, PSYCHOLOGICAL; QUALITY OF LIFE; RENAL DIALYSIS; SELF EFFICACY; SOCIAL SUPPORT;

EID: 79954682696     PISSN: 00223999     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpsychores.2010.11.005     Document Type: Article

References (81)

1. Vazquez I, Valderrabano F, Fort J, Jofre R, Lopez-Gomez JM, Moreno F, et al. Psychosocial factors and health-related quality of life in hemodialysis patients. Qual Life Res 2005, 14:179-190.
2. Kaptein AA, van Dijk S, Broadbent E, Falzon L, Thong M, Dekker FW Behavioural research in patients with end-stage renal disease: a review and research agenda. Patient Educ Couns 2010, 81:23-29.
3. Thong MSY, Kaptein AA, Benyamini Y, Krediet RT, Boeschoten EW, Dekker FW Association between a self-rated health question and mortality in young and old dialysis patients: a cohort study. Am J Kidney Dis 2008, 52:111-117.
4. Cukor D, Cohen SD, Peterson RA, Kimmel PL Psychosocial aspects of chronic disease: ESRD as a paradigmatic illness. J Am Soc Nephrol 2007, 18:3042-3055.
5. Livneh H, Antonak RF Psychosocial adaptation to chronic illness and disability 1997, Aspen Publishers, Giathersburg.
6. Wright S, Kirby A Deconstructing conceptualizations of 'Adjustment' to chronic illness: a proposed integrative framework. J Health Psychol 1999, 4:259-272.
7. Kimmel PL Towards a developmental view of end-stage renal disease. Am J Kidney Dis 1990, 15:191-193.
8. Thong MSY, Kaptein AA, Krediet RT, Boeschoten EW, Dekker FW Social support predicts survival in dialysis patients. Nephrol Dial Transplant 2007, 22:845-850.
9. Patel SS, Shah VS, Peterson RA, Kimmel PL Psychosocial variables, quality of life, and religious beliefs in ESRD patients treated with hemodialysis. Am J Kidney Dis 2002, 40:1013-1022.
10. Tovbin D, Gidron Y, Jean T, Granovsky R, Schnieder A Relative importance and interrelations between psychosocial factors and individualized quality of life of hemodialysis patients. Qual Life Res 2003, 12:709-717.
11. Kao T-W, Lai M-S, Tsai T-J, Jan C-F, Chie W-C, Chen W-Y Economic, social, and psychological factors associated with health-related quality of life of chronic hemodialysis patients in northern Taiwan: a multicenter study. Artif Organs 2009, 33:61-68.
12. Symister P, Friend R The influence of social support and problematic support on optimism and depression in chronic illness: a prospective study evaluating self-esteem as a mediator. Health Psychol 2003, 22:123-129.
13. Timmers L, Thong M, Dekker FW, Boeschoten EW, Heijmans M, Rijken M, et al. Illness perceptions in dialysis patients and their association with quality of life. Psychol Health 2008, 23:679-690.
14. Kimmel PL, Emont SL, Newmann JM, Danko H, Moss AH ESRD patient quality of life: symptoms, spiritual beliefs, psychosocial factors, and ethnicity. Am J Kidney Dis 2003, 42:713-721.
15. Kaplan SH, Kravitz RL, Greenfield S A critique of current uses of health status for the assessment of treatment effectiveness and quality of care. Medical Care 2000, 38(9 Suppl):184-191.
16. Bishop M Quality of life and psychosocial adaptation to chronic illness and acquired disability: a conceptual and theoretical synthesis. The psychological and social impact of illness and disability 2007, 230-248. Springer Publishing Co, New York. 5th ed. A.E. Dell Orto, P.W. Power (Eds.).
17. Engel GL From biomedical to biopsychosocial. Being scientific in the human domain. Psychosomatics 1997, 38:521-528.
18. Engel GL The need for a new medical model: a challenge for biomedicine. Science 1977, 196:129-136.
19. Leventhal H, Brissette I, Leventhal EA The common-sense model of self-regulation of health and illness. The self-regulation of health and illness behaviour 2003, 42-65. Routledge, NY, US. L.D. Cameron, H. Leventhal (Eds.).
20. Taylor SE Adjustment to threatening events: a theory of cognitive adaptation. Am Psychol 1983, 38:1161-1173.
21. Folkman S Positive psychological states and coping with severe stress. Soc Sci Med 1997, 45:1207-1221.
22. Lazarus RS, Folkman S Transactional theory and research on emotions and coping. Eur J Pers 1987, 1(3, Spec Issue):141-169.
23. Brenner MH, Curbow B, Legro MW The proximal-distal continuum of multiple health outcome measures: the case of cataract surgery. Med Care 1995, 33(4 Suppl):AS236-44.
24. Wilson IB, Cleary PD Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA 1995, 273:59-65.
25. Sousa KH, Kwok OM Putting wilson and cleary to the test: Analysis of a HRQOL conceptual model using structural equation modeling. Qual Life Res 2006, 15:725-737.
26. Sullivan MD, Kempen GIJM, Sonderen EV, Ormel J Models of Health-Related Quality of Life in a Population of Community-Dwelling Dutch Elderly. Qual Life Res 2000, 9:801-810.
27. Hofer S, Benzer W, Alber H, Ruttmann E, Kopp M, Schussler G, et al. Determinants of health-related quality of life in coronary artery disease patients: a prospective study generating a structural equation model. Psychosomatics 2005, 46:212.
28. Baker SR, Pankhurst CL, Robinson PG Testing relationships between clinical and non-clinical variables in xerostomia: a structural equation model of oral health-related quality of life. Qual Life Res 2007, 16:297-308.
29. Baker SR, Pearson NK, Robinson PG Testing the applicability of a conceptual model of oral health in housebound edentulous older people. Community Dent Oral Epidemiol 2008, 36:237-248.
30. Chan R, Brooks R, Erlich J, Chow J, Suranyi M The effects of kidney-disease-related loss on long-term dialysis patients' depression and quality of life: positive affect as a mediator. Clin J Am Soc Nephrol. 2009, 4:160-167.
31. Riis J, Loewenstein G, Baron J, Jepson C, Fagerlin A, Ubel Ignorance of hedonic adaptation to hemodialysis: a study using ecological momentary assessment. J Exp Psychol 2005, 134:3-9.
32. Folkman S The case for positive emotions in the stress process. Anxiety Stress Coping 2008, 21:3-14.
33. Folkman S, Moskowitz JT Positive affect and the other side of coping. Am Psychol 2000, 55:647-654.
34. Brooks R. Health related quality of life of intensive care patients: development of the Sydney quality of life questionnaire 1999, Sydney, UNSW.
35. Fredrickson BL, Mancuso RA, Branigan C, Tugade MM The undoing effect of positive emotions. Motiv Emotion 2000, 24:237-258.
36. Fredrickson BL The broaden-and-build theory of positive emotions. The science of well-being 2005, 217-238. Oxford University Press, New York, US. F.A. Huppert, N. Baylis, B. Keverne (Eds.).
37. Spiegel BM, Melmed G, Robbins S, Esrailian E, Spiegel BMR, Melmed G, et al. Biomarkers and health-related quality of life in end-stage renal disease: a systematic review. Clin J Am Soc Nephrol 2008, 3:1759-1768.
38. Curtin RB, Walters BAJ, Schatell D, Pennell P, Wise M, Klicko K Self-efficacy and self-management behaviors in patients with chronic kidney disease. Adv Chronic Kidney Dis 2008, 15:191-205.
39. Marks R, Allegrante JP, Lorig K A review and synthesis of research evidence for self-efficacy-enhancing interventions for reducing chronic disability: implications for health education practice (part I). Health Promot Pract 2005, 6:37-43.
40. Kimmel PL, Cukor D, Cohen SD, Peterson RA Depression in end-stage renal disease patients: a critical review. Adv Chronic Kidney Dis 2007, 14:328-334.
41. O'Boyle CA, McGee HM, Hickey A, Joyce CRB, Browne J, O'Malley K, et al. The Schedule for the Evaluation of Individual Quality of Life (SEIQoL): a Direct Weighting procedure for Quality of Life Domains (SEIQoL-DW) Administration Manual 1993, Department of Psychology, Royal College of Surgeons in Ireland, Dublin.
42. Hickey AM, Bury G, O'Boyle CA, Bradley F, O'Kelly FD, Shannon W A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS. Br Med J 1996, 313:29-33.
43. Joyce CRB, Hickey A, McGee HM, O'Boyle CA A theory-based method for the evaluation of individual quality of life: the SEIQoL. Qual Life Res 2003, 12:275-280.
44. Kimmel PL, Peterson RA Depression in end-stage renal disease patients treated with hemodialysis: tools, correlates, outcomes, and needs. Semin Dial 2005, 18:91-97.
45. Lovibond PF, Lovibond SH The structure of negative emotional states: comparison of the Depression Anxiety Stress Scales (DASS) with the Beck Depression and Anxiety Inventories. Behav Res Ther 1995, 33:335-343.
46. Antony MM, Bieling PJ, Cox BJ, Enns MW, Swinson RP Psychometric properties of the 42-item and 21-item versions of the Depression Anxiety Stress Scales in clinical groups and a community sample. Psychol Assess 1998, 10:176-181.
47. Clara IP, Cox BJ, Enns MW Confirmatory factor analysis of the depression-Anxiety-Stress Scales in depressed and anxious patients. J Psychopathol Behav Assess 2001, 23:61-67.
48. Henry JD, Crawford JR The short-form version of the Depression Anxiety Stress Scales (DASS-21): construct validity and normative data in a large non-clinical sample. Br J Clin Psychol 2005, 44:227-239.
49. Ng F, Trauer T, Dodd S, Callaly T, Campbell S, Berk M The validity of the 21-item version of the Depression Anxiety Stress Scales as a routine clinical outcome measure. Acta Neuropsychiatr 2007, 19:304.
50. Friedman EA Diabetic nephropathy. Thearpy of Renal Diseases and Related Disorders 1991, 533-542. Kluwer Academic Publishers, Boston. 2nd ed. W.N. Suki, S.G. Massry (Eds.).
51. Charlson ME, Pompei P, Ales KL, MacKenzie CR A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis 1987, 40:373-383.
52. Hays RD, Kallich JD, Mapes DL, Coons SJ, Amin N, Carter WB, et al. Kidney Disease Quality of Life Short Form (KDQOL-SF), Version 1.3: A manual for use and scoring 1997, RAND, Santa Monica (Calif), P-7928.
53. Ware JE, Kosinski M, Turner-Bowker DM, Gandek B How to score version 2 of the SF-12@ Health Survey (with a supplement documenting version 1) 2002, QualityMetric Incorporated, Lincoln (R.I).
54. Chan R, Brooks R, Gallagher M, Erlich J, Snelling P, Chow J, et al. Measuring kidney-disease-related loss in the samples of pre-dialysis and dialysis patients: validating the kidney disease loss scale. Clin J Am Soc Nephrol 2010, 5:1249-1254.
55. Schwarzer R, Jerusalem M Generalized self-efficacy scale. Measures in health psychology: A user's portfolio Causal and control beliefs 1995, NFER-NELSON, Windsor, UK. J. Weinman, S. Wright, M. Johnston (Eds.).
56. Scholz U, Dona BG, Sud S, Schwarzer R Is general self-efficacy a universal construct? Psychometric findings from 25 countries. Eur J Psychol Assess 2002, 18:242-251.
57. Cohen S, Mermelstein R, Kamarck T, Hoberman HM. Measuring the functional components of social support. In: Sarason IG, Sarason BR, editors. Social support: Theory, research and applications. Boston: M. Nihjoff ; Hingham, MA: Distributors for the U.S. and Canada, Kluwer Boston; 1985. p. 73-94.
58. Cohen S Basic Psychometrics for the ISEL 12 item scale [cited Retrieved January 2010]; Available from: Carnegie Mellon University at. http://www.psy.cmu.edu/.
59. Jöreskog KG, Sorbom D LISREL 8.72: User's reference guide 2004, Scientific Software International, Chicago.
60. Landis RS, Beal DJ, Tesluk PE A comparison of approaches to forming composite measures in structural equation models. Organ Res Methods 2000, 3:186-206.
61. Grace JB, Bollen KA Representing general theoretical concepts in structural equation models: the role of composite variables. Environ Ecol Stat 2008, 15:191-213.
62. Bollen KA Structural equations with latent variables 1989, Wiley, New York.
63. Stephenson MT, Holbert RL A Monte Carlo simulation of observable versus latent variable structural equation modeling techniques. Communic Res 2003, 30:332-354.
64. Anderson JC, Gerbing DW Structural equation modeling in practice: a review and recommended two-step approach. Psychol Bull 1988, 103:411-423.
65. Hoyle RH, Smith GT Formulating clinical research hypotheses as structural equation models: a conceptual overview. J Consult Clin Psychol 1994, 62:429-440.
66. Kline RB Principles and practice of structural equation modeling 2005, The Guilford Press, New York. 2nd ed.
67. McDonald RP Haldane's lungs: a case study in path analysis. Multivariate Behav Res 1997, 32:1-38.
68. MacKinnon D Introduction to statistical mediation analysis 2008, Routledge Academic, NY.
69. SPSS for Windows. SPSS for Windows 17 2008, SPSS Inc, Chicago.
70. Dempster A, Laird N, Rubin D Maximum likelihood from incomplete data via the EM algorithm. J R Stat Soc Ser B Stat Methodol 1977, 39:1-38.
71. Chou C-P, Bentler PM Estimates and tests in structural equation modeling. Structural equation modeling: Concepts, issues, and applications 1995, 37-55. Sage Publications, Inc., Thousand Oaks (Calif). R.H. Hoyle (Ed.).
72. Chou C-P, Bentler PM, Satorra A Scaled test statistics and robust standard errors for non-normal data in covariance structure analysis: a Monte Carlo study. Br J Math Stat Psychol 1991, 44:347-357.
73. Satorra A, Bentler PM Corrections to test statistics and standard errors in covariance structure analysis. Latent variable analysis: Applications for developmental research 1994, 399-419. Sage, Thousand Oaks (Calif). A. von Eye, C.C. Clogg (Eds.).
74. Fukuhara S, Yamazaki S, Marumo F, Akiba T, Akizawa T, Fujimi S, et al. Health-related quality of life of predialysis patients with chronic renal failure. Nephron 2007, 105:1-8.
75. Kimmel PL Psychosocial factors in adult end-stage renal disease patients treated with hemodialysis: correlates and outcomes. Am J Kidney Dis 2000, 35(4 Suppl 1):S132-140.
76. Rabkin JG, McElhiney M, Moran P, Acree M, Folkman S Depression, distress and positive mood in late-stage cancer: a longitudinal study. Psycho-Oncology 2009, 18:79-86.
77. Moskowitz JT, Folkman S, Acree M Do positive psychological states shed light on recovery from bereavement? Findings from a 3-year longitudinal study. Death Stud 2003, 27:471-500.
78. Fredrickson BL Unpacking positive emotions: investigating the seeds of human flourishing. J Posit Psychol 2006, 1:57-59.
79. Fredrickson BL What good are positive emotions?. Rev Gen Psychol 1998, 2:300-319.
80. Pearl J Causality: models, reasoning, and inference 2000, Cambridge University Press, Cambridge.
81. Lei PW, Wu Q Introduction to structural equation modeling: issues and practical considerations. Educ Meas: Issues Pract 2007, 26:33-43.