Parent report and direct observation of injection-related coping behaviors in youth with type 1 diabetes

Journal of Pediatric Psychology

Volumn 36, Issue 3, 2011, Pages 318-328

  Antal, Holly ^a   Wysocki, Tim ^a   Canas, J Atilio ^a   Taylor, Alexandra ^a   Edney White, Allison ^a  

^a NEMOURS CHILDREN S CLINIC   (United States)

Author keywords

children; coping; injections; type 1 diabetes

Indexed keywords

INSULIN;

ADAPTIVE BEHAVIOR; ARTICLE; CHILD; CHILD PARENT RELATION; FEMALE; HEALTH BEHAVIOR; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; MALE; MENTAL STRESS; PARENT; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; VIDEORECORDING;

ADAPTATION, PSYCHOLOGICAL; CHILD; CHILD, PRESCHOOL; DIABETES MELLITUS, TYPE 1; FEMALE; HEALTH BEHAVIOR; HUMANS; INSULIN; MALE; PARENT-CHILD RELATIONS; PARENTS; STRESS, PSYCHOLOGICAL; VIDEO RECORDING;

EID: 79953215647     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jsq082     Document Type: Article

References (39)

1. Berlin, I., Bisserbe, J. C., Eiber, R., Balssa, N., Sachon, C., Bosquet, F., & Grimaldi, A. (1997). Phobic symptoms, particularly the fear of blood and injury, are associated with poor glycemic control in type 1 diabetic adults. Diabetes Care, 20(2), 176-178. (Pubitemid 27051557)
2. Blount, R. L., Cohen, L. L., Frank, N. C., Bachanas, P. J., Smith, A. J., Manimala, M. R., & Pate, J. T. (1997). The Child-Adult Medical Procedure Interaction Scale-Revised: An assessment of validity. Journal of Pediatric Psychology, 22, 73-88. (Pubitemid 27053283)
3. Blount, R. L., Corbin, S. M., Sturges, J. W., Wolfe, V. V., Prater, J. M., & James, L. D. (1989). The relationship between adults' behavior and child coping and distress during BMA/LP procedures: A sequential analysis. Behavior Therapy, 20, 585-601. (Pubitemid 20021108)
4. Blount, R. L., Simons, L. E., Devine, K. A., Jaaniste, T., Cohen, L. L., Chambers, C. T., & Hayutin, L. G. (2008). Evidence-based assessment of coping and stress in pediatric psychology. Journal of Pediatric Psychology, 33, 1021-1045.
5. Blount, R. L., Sturges, J. W., & Powers, S. W. (1990). Analysis of child and adult behavioral variations by phase of medical procedure. Behavior Therapy, 21, 33-48. (Pubitemid 20111220)
6. Boland, E. A., & Grey, M. (1996). Coping strategies of school-age children with diabetes mellitus. Diabetes Educator, 22(6), 592-597.
7. Brown, J. M., Okeefe, J., Sanders, S. H., & Baker, B. (1986). Developmental changes in children's cognition to stressful and painful situations. Journal of Pediatric Psychology, 11(3), 343-357. (Pubitemid 16004966)
8. Cappelleri, J. C., Gerber, R. A., Quattrin, T., Deutschmann, R., Luo, X., Arbuckle, R., & Abetz, L. (2008). Development and validation of the well-being and satisfaction of caregivers of children with diabetes questionnaire (WE-CARE). Health Care and Qualify of Life Outcomes, 6, 5.
9. Cohen, L. L., Bernard, R. S., Greco, L. A., & McClellan, C. B. (2002). A child-focused intervention for coping with procedural pain: Are parent and nurse coaches necessary? Journal of Pediatric Psychology, 27, 749-757. (Pubitemid 35387239)
10. Cutshall, C., & Watson, D. (2004). The phobic stimuli response scales: A new self-report measure of fear. Behaviour, Research and Therapy, 42, 1193-1201. (Pubitemid 39179912)
11. Dahlquist, L. M., Busby, S. M., Slifer, K. L., Tucker, C. L., Eischen, S., Hilley, L., & Sulc, W. (2002). Distraction for children of different ages who undergo repeated needle sticks. Journal of Pediatric Oncology Nursing, 9, 22-34.
12. Dahlquist, L. M., & Switkin, M. C. (2003). Chronic and recurrent pain. In M. C. Roberts (Ed.), Handbook of Pediatric Psychology. (pp. 198-215). New York: Guilford.
13. Fradet, C., McGrath, P. J., Kay, J., Adams, S., & Luke, B. (1990). A prospective survey of reactions to blood tests by children and adolescents. Pain, 40, 53-60. (Pubitemid 20038536)
14. Gilbert, B. O., Johnson, S. B., Spillar, R., McCallum, M., Silverstein, J. H., & Rosenbloom, A. (1982). The effects of a peer modeling film on children learning to self-inject insulin. Behavior Therapy, 13, 186-193. (Pubitemid 12149727)
15. Hanas, R. (2004). Reducing injection pain in children and adolescents with diabetes: A review of indwelling catheters. Pediatic Diabetes, 5, 102-111. (Pubitemid 38923638)
16. Hanas, R., Adolfson, P., Elfvin-Akesson, K., Hammarén, L., Ilvered, R., Jansson, I., ...Aman, J. (2002). Indwelling catheters used from the onset of diabetes decrease injection pain and pre-injection anxiety. Journal of Pediatrics, 140(3), 315-320. (Pubitemid 34289708)
17. Hanas, R., & Ludvigsson, J. (1990). Side effects and indwelling times of subcutaneous catheters for insulin injections: A new device for injecting insulin with a minimum of pain in the treatment of insulin-dependent diabetes mellitus. Diabetes Research and Clinical Practice, 10, 73-83. (Pubitemid 20281519)
18. Hanas, R., & Ludvigsson, J. (1997). Experience of pain from insulin injections and needle phobia in young patients with IDDM. Practical Diabetes International, 14, 95-99. (Pubitemid 27359267)
19. Horn, M. I., & McCarthy, A. M. (1999). Children's responses to sequential versus simultaneous immunization injections. Journal of Pediatric Health Care, 13, 18-23.
20. Hubert, N. C., Jay, S. M., Soltoun, M., & Hayes, M. (1988). Approach-avoidance and distress in children undergoing preparation for painful medical procedures. Journal of Clinical Child Psychology, 17, 194-202.
21. Jay, S. M., Ozolins, M., Elliott, C. H., & Caldwell, S. (1983). Assessment of children's distress during painful medical procedures. Health Psychology, 2, 133-147.
22. Kankkunen, P., Vehvilainen-Julkunen, K., Pietila, A. M., & Halonen, P. (2003). Parents' use of nonpharmacological methods to alleviate children's postoperative pain at home. Journal of Advanced Nursing, 41, 367-375. (Pubitemid 37255968)
23. Kovacs, M., Brent, D., Steinberg, T. F., Paulauskas, S., & Reid, J. (1986). Children's self-reports of psychologic adjustment and coping strategies during first year of insulin-dependent diabetes mellitus. Diabetes Care, 9, 472-479. (Pubitemid 16008976)
24. Laffel, L. M. B., Connell, A., Vangsness, L., Goebel-Fabbri, A., Mansfield, A., & Anderson, B. J. (2003). General Quality of Life in Youth With Type 1 Diabetes: Relationship to patient management and diabetes-specific family conflict. Diabetes Care, 26, 3067-3073. (Pubitemid 37339500)
25. McCarthy, K., & Kleiber, C. (2006). Conceptual model of factors influencing children's responses to a painful procedure when parents are distraction coaches. Journal of Pediatric Nursing, 21, 88-98. (Pubitemid 43396515)
26. Metsch, J., Tilill, H., Koebberling, J., & Sartory, G. (1995). On the relations among psychological distress, diabetes-related health behaviour and level of glycosylated hemoglobin in type 1 diabetes. International Journal of Behavioral Medicine, 2, 104-117.
27. Mollema, E. D., Snoek, F. J., Ader, H. J., Heine, R. J., & van der Ploeg, H. M. (2001). Insulin-treated diabetes patients with fear of self-injecting or fear of self-testing: Psychological comorbidity and general well-being. Journal of Psychosomatic Research, 51, 665-672. (Pubitemid 34007445)
28. Moore, K. E., Geffken, G. R., & Royal, G. P. (1995). Behavioral intervention to reduce child distress during self-injection. Clinical Pediatrics, 34, 530-534.
29. Oliver, N. S., & Page, A. C. (2003). Fear reduction during in vivo exposure to blood-injection stimuli: Distraction vs. attentional focus. British Journal of Clinical Psychology, 42, 13-25. (Pubitemid 36394853)
30. Page, A. C., Bennett, K. S., Carter, O., Smith, J., & Woodmore, K. (1997). The blood-injection symptom scale (BISS): Assessing a structure of phobic symptoms elicited by blood and injections. Behaviour, Research and Therapy, 35, 457-464. (Pubitemid 27197095)
31. Petrak, F., Stridde, E., Leverkus, F., Crispin, A. A., Forst, T., & Pfützner, A. (2007). Development and validation of a new measure to evaluate psychological resistance to insulin treatment. Diabetes Care, 30(9), 2199-2204. (Pubitemid 47359014)
32. Rudolph, K. D., Dennig, M. D., & Weisz, J. R. (1995). Determinants and consequences of children's coping in the medical setting: Conceptualization, review, and critique. Psychological Bulletin, 118, 328-357.
33. Simmons, J. H., Follansbee, D., McFann, K. K., Temple-Trujillo, R. E., Brown, A. C., & Klingensmith, G. J. (2007). Reliability of the diabetes fear of injecting and self-testing questionnaire in pediatric patients with type 1 diabetes. Diabetes care, 30(4), 987-988. (Pubitemid 46556597)
34. Slifer, K. J., DeMore, M., & Cona-Messersmith, N. (2009). Comparison of two brief parent-training interventions for child distress during parent-administered needle procedures. Children's Health Care, 38, 23-48.
35. Turner, A. P., Williams, J. M., Sloan, A. P., & Haselkorn, J. K. (2009). Injection anxiety remains a long-term barrier to medication adherence in multiple sclerosis. Rehabilitation Psychology, 54, 116-121.
36. Uman, L. S., Chambers, C. T., McGrath, P. J., & Kisely, S. (2008). A systematic review of randomized controlled trials examining psychological interventions for needle-related procedural pain and distress in children and adolescents: An abbreviated Cochrane review. Journal of Pediatric Psychology, 33(8), 842-854.
37. Weissberg-Benchell, J., Nansel, T., Holmbeck, G., Chen, R., Anderson, B., Wysocki, T., & Laffel, L. (2009). Steering Committee of the Family Management of Diabetes Study. Generic and diabetes-specific parent-child behaviors and quality of life among youth with type 1 diabetes. Journal of Pediatric Psychology, 34, 977-988.
38. Whittemore, R., Urban, A. D., Tamborlane, W. V., & Grey, M. (2003). Quality of life in school-aged children with type 1 diabetes on intensive treatment and their parents. The Diabetes Educator, 29, 847-854. (Pubitemid 38328380)
39. Zambanini, A., & Feher, M. D. (1997). Needle phobia in type 1 diabetes mellitus. Diabetes Medicine, 14, 321-323. (Pubitemid 27181967)