Striving to respond to palliative care patients' pain at home: A puzzle for family caregivers

Oncology Nursing Forum

Volumn 38, Issue 1, 2011, Pages

  Mehta, Anita ^a   Cohen, S Robin ^b   Ezer, Helene ^c   Carnevale, Franco A ^c   Ducharme, Francine ^d  

^a MONTREAL GENERAL HOSPITAL   (Canada)

^b MCGILL UNIVERSITY   (Canada)

^c MCGILL UNIVERSITY   (Canada)

^d CENTRE DE RECHERCHE   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; ARTICLE; CAREGIVER; FAMILY NURSING; FEMALE; HOME CARE; HUMAN; MALE; METHODOLOGY; NEOPLASM; NURSE PATIENT RELATIONSHIP; NURSING; NURSING METHODOLOGY RESEARCH; ONCOLOGY NURSING; PAIN; PALLIATIVE THERAPY; PSYCHOLOGICAL ASPECT;

AGED; CAREGIVERS; FAMILY NURSING; FEMALE; HOME CARE SERVICES; HUMANS; MALE; NEOPLASMS; NURSE-PATIENT RELATIONS; NURSING METHODOLOGY RESEARCH; ONCOLOGIC NURSING; PAIN; PALLIATIVE CARE;

EID: 79953120323     PISSN: 0190535X     EISSN: 15380688     Source Type: Journal    
DOI: 10.1188/11.ONF.E37-E45     Document Type: Article

References (47)

1. Aranda, S.K., & Hayman-White, K. (2001). Home caregivers of the person with advanced cancer: An Australian perspective. Cancer Nursing, 24, 300-307. doi: 10.1097/00002820-200108000-00011 (Pubitemid 32730168)
2. Ardery, G., Herr, K.A., Titler, M.G., Sorofman, B.A., & Schmitt, M.B. (2003). Assessing and managing acute pain in older adults. A research base to guide practice. Medsurg Nursing, 12, 7-18.
3. Aubin, M., Vézina, L., Fillion, L., Allard, P., Parent, R., Bergeron, R., . . . Giguere, A. (2006). Impact of an educational program on pain management in patients with cancer living at home. Oncology Nursing Forum, 33, 1183-1188. doi: 10.1188/06.ONF.1183-1188
4. Binhas, M., Krakowski, I., & Marty, J. (2007). Nociceptive cancer pain in adult patients: Statement about guidelines related to the use of antinociceptive medicine. Annales Fran çaises D'anesthèsie et de R èanimation, 26, 502-515. doi: 10.1016/j.annfar.2007.03.029 (Pubitemid 46938625)
5. Cahana, A., Arigoni, F., & Robert, L. (2007). Attitudes and beliefs regarding the role of interventional pain management at the end of life among caregivers. A four-year perspective. Pain Practice, 7, 103-109. doi: 10.1111/j.1533-2500.2007.00117.x (Pubitemid 46901546)
6. Chang, V.T., Janjan, N., Jain, S., & Chi Chau, C. (2006). Update in cancer pain syndromes. Journal of Palliative Medicine, 9, 1414-1434. doi: 10.1089/jpm.2006.9.1414 (Pubitemid 46055187)
7. Christo, P.J., & Mazloomdoost, D. (2008). Cancer pain and analgesia. Annals of the New York Academy of Sciences, 1138, 278-298. doi: 10.1196/annals.1414.033
8. Coyle, N. (2006). Assessing cancer pain in the adult patient. Oncology, 20(10, Suppl.), 41-49.
9. Coyle, N., Adelhardt, J., Foley, K.M., & Portenoy, R.K. (1990). Character of terminal illness in the advanced cancer patient, pain and other symptoms during the last four weeks of life. Journal of Pain and Symptom Management, 5, 83-93. doi: 10.1016/S0885-3924(05)80021-1 (Pubitemid 20241600)
10. Davis, M.P., & Srivastava, M. (2003). Demographics, assessment, and management of pain in the elderly. Drugs and Aging, 20, 23-57. doi: 10.2165/00002512-200320010-00003 (Pubitemid 36127032)
11. Davis, M.P., & Walsh, D. (2004). Palliative oncology update. Epidemiology of cancer pain and factors influencing poor pain control. American Journal of Hospice and Palliative Care, 21, 137-142. doi: 10.1177/ 104990910402100213 (Pubitemid 38560953)
12. Dobratz, M.C. (2001). Patterns of advanced cancer pain in home hospice patients. Cancer Nursing, 24, 294-299. doi: 10.1097/00002820-200108000-00009 (Pubitemid 32730167)
13. Firth, P. (2006). Patients and their families. Recent Results in Cancer Research, 168, 61-71. doi: 10.1007/3-540-30758-3-6
14. Gagnon, B., Almahrezi, A., & Schreier, G. (2003). Methadone in the treatment of neuropathic pain. Pain Research and Management, 8, 149-154. (Pubitemid 37461198)
15. Gilron, I., Bailey, J.M., Tu, D., Holden, R.R., Weaver, D.F., & Houlden, R.L. (2005). Morphine, gabapentin, or their combination for neuropathic pain. New England Journal of Medicine, 352, 1324-1334. doi: 10.1056/NEJMoa042580 (Pubitemid 40411499)
16. Given, B.A., Given, C.W., & Kozachik, S. (2001). Family support in advanced cancer. CA: A Cancer Journal for Clinicians, 51, 213-231. doi: 10.3322/canjclin.51.4.213 (Pubitemid 32677456)
17. Godfrey, H. (2005). Understanding pain: Part 2. Pain management. British Journal of Nursing, 14, 904-909.
18. Kenner, D.J. (1994). Pain forum: Part 1. Nociceptive cancer pain. Australian Family Physician, 23, 1272-1277.
19. Lema, M.J. (2001). Invasive analgesia techniques for advanced cancer pain. Surgical Oncology Clinics of North America, 10, 127-136. (Pubitemid 32102190)
20. Lobchuk, M.M., & Vorauer, J.D. (2003). Family caregiver perspective-taking and accuracy in estimating cancer patient experiences. Social Science and Medicine, 57, 2370-2384. doi: 10.1016/S0277-9536 (03)00132-1
21. Mazanec, P., & Bartel, J. (2002). Family perspectives. Family caregiver perspectives of pain management. Cancer Practice: A Multidisciplinary Journal of Cancer Care, 10(Suppl. 1), S66-S69. (Pubitemid 34438451)
22. McCaffery, M. (1990). Nursing approaches to nonpharmacological pain control. International Journal of Nursing Studies, 27(1), 1-5. doi: 10.1016/0020-7489(90)90018-E
23. McCallin, A. (2003). Designing a grounded theory study: Some practicalities. Nursing in Critical Care, 8, 203-208. doi: 10.1046/j.1362-1017. 2003.00033.x
24. McMillan, S.C., & Small, B.J. (2007). Using the COPE intervention for family caregivers to improve symptoms of hospice homecare patients: A clinical trial. Oncology Nursing Forum, 34, 313-321. doi: 10.1188/07.ONF.313-321
25. Mehta, A., Cohen, R., Carnevale, F.A., Ezer, H., & Ducharme, F. (2010). Family caregivers of palliative cancer patients at home: The Puzzle of Pain Management. Journal of Palliative Care, 26, 78-87.
26. Mercadante, S., Casuccio, A., Pumo, S., & Fulfaro, F. (2000). Opioid responsiveness-Primary diagnosis relationship in advanced cancer patients followed at home. Journal of Pain and Symptom Management, 20, 27-34. doi: 10.1016/S0885-3924(00)00145-7 (Pubitemid 30628579)
27. Mercadante, S., Villari, P., Ferrera, P., & Casuccio, A. (2006). Opioid-induced or pain relief-reduced symptoms in advanced cancer patients? European Journal of Pain, 10, 153-159. doi: 10.1016/j.ejpain .2005.02.006 (Pubitemid 41727765)
28. Mishra, S., Bhatnagar, S., Gupta, D., Nirwani Goyal, G., Jain, R., & Chauhan, H. (2008). Management of neuropathic cancer pain following WHO analgesic ladder: A prospective study. American Journal of Hospice and Palliative Medicine, 25, 447-451. doi: 10.1177/1049909108322288
29. Mobily, P. (1994). Nonpharmacologic interventions for the management of chronic pain in older women. Journal of Women and Aging, 6(4), 89-109.
30. Mobily, P.R., Herr, K.A., & Kelley, L.S. (1993). Cognitive- behavioural techniques to reduce pain. A validation study. International Journal of Nursing Studies, 30, 537-548. doi: 10.1300/J074v06n04-07
31. Nicholson, A.B. (2004). Methadone for cancer pain. Cochrane Database of Systematic Reviews, 2, CD003971. doi: 10.1002/14651858.CD003971.pub2
32. Polit, D.F., & Beck, C.T. (2004). Nursing research, principles and methods (7th ed.). Philadelphia, PA: Lippincott Williams and Wilkins.
33. Portenoy, R.K. (1989). Cancer pain, epidemiology and syndromes. Cancer, 63, 2298-2307. doi: 10.1002/1097-0142(19890601)63:113.0.CO;2-A
34. Redinbaugh, E.M., Baum, A., DeMoss, C., Fello, M., & Arnold, R. (2002). Factors associated with the accuracy of family caregiver estimates of patient pain. Journal of Pain and Symptom Management, 23, 31-38. doi: 10.1016/S0885-3924(01)00372-4 (Pubitemid 34093878)
35. Schumacher, K.L., Koresawa, S., West, C., Hawkins, C., Johnson, C., Wais, E., . . . Miaskowski, C. (2002). Putting cancer pain management regimens into practice at home. Journal of Pain and Symptom Management, 23, 369-382. doi: 10.1016/S0885-3924(02)00 385-8 (Pubitemid 34463006)
36. Seaman, D.R., & Cleveland, C. (1999). Spinal pain syndromes, nociceptive, neuropathic, and psychological mechanisms. Journal of Manipulative and Physiological Therapeutics, 22, 458-472. doi: 10.1016/S0161-4754(99)70035-7 (Pubitemid 29474873)
37. Smith, P.A. (2004). Neuropathic pain, drug targets for current and future interventions. Drug News Perspective, 17, 5-17. doi: 10.1358/dnp.2004.17.1. 829021 (Pubitemid 38419367)
38. Snyder, M., & Wieland, J. (2003). Complementary and alternative therapies: What is their place in the management of chronic pain? Nursing Clinics of North America, 38, 495-508. doi: 10.1016/S0029-6465(02)00098-1 (Pubitemid 38609547)
39. Strauss, A., & Corbin, J. (1994). Grounded theory methodology: An overview. In N.K. Denzin & Y.S. Lincoln (Eds.), Handbook of qualitative research (pp. 273-285). Thousand Oaks, CA: Sage.
40. Turk, D.C., Monarch, E.S., & Williams, A.D. (2002). Cancer patients in pain, considerations for assessing the whole person. Hematology Oncology Clinics of North America, 16, 511-525. doi: 10.1016/S0889-8588(02)00015-1 (Pubitemid 34827365)
41. Twycross, R.G., & Fairfield, S. (1982). Pain in far advanced cancer. Pain, 14, 303-310. doi: 10.1016/S0885-3924(96)00149-2
42. Twycross, R.G., Harcourt, J., & Bergl, S. (1996). A survey of pain in patients with advanced cancer. Journal of Pain and Symptom Management, 12, 273-282. (Pubitemid 26362301)
43. Vallerand, A.H., Collins-Bohler, D., Templin, T., & Hasenau, S.M. (2007). Knowledge of and barriers to pain management in caregivers of cancer patients receiving home care. Cancer Nursing, 30, 31-37. doi: 10.1097/00002820-200701000-00006 (Pubitemid 46145450)
44. Whitecar, P.S., Jonas, A.P., & Clasen, M.E. (2000). Managing pain in the dying patient. American Family Physician, 61, 755-764. (Pubitemid 30111397)
45. World Health Organization. (2007). WHO definition of palliative care. Retrieved from http://www.who.int/cancer/palliative/definition/en
46. Yates, P., Aranda, S., Edwards, H., Nash, R., Skerman, H., & McCarthy, A. (2004). Family caregivers' experiences and involvement with cancer pain management. Journal of Palliative Care, 20, 287-296. (Pubitemid 40137572)
47. Zareba, G. (2005). Pregabalin: A new agent for the treatment of neuropathic pain. Drugs of Today, 41, 509-516. doi: 10.1358/dot.2005 .41.8.910482 (Pubitemid 41503805)