Similarities and differences in caring burden of home dwellers with partners suffering from chronic obstructive pulmonary disease or dementia

Home Health Care Management and Practice

Volumn 23, Issue 2, 2011, Pages 93-101

  Nordtug, Bente ^a,b   Holen, Are ^a  

^a NORWEGIAN UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Norway)

^b NORD UNIVERSITY   (Norway)

Author keywords

Alzheimer; gender; health services; respiratory diseases; spouses

Indexed keywords

EID: 79952943109     PISSN: 10848223     EISSN: None     Source Type: Journal    
DOI: 10.1177/1084822310368633     Document Type: Article

References (57)

1. Almvik, R., Woods, P., & Rasmussen, K. (2007). Assessing risk for imminent violence in the elderly: The Broset Violence Check-list. International Journal of Geriatric Psychiatry, 22, 862-867.
2. Bédard, M., Kuzik, R., Chambers, L., Molloy, D.W., Dubois, S., & Lever, J. (2005). Understanding burden differences between men and women caregivers: The contribution of care-recipient problem behaviours. International Psychogeriatrics, 17, 99-118.
3. Bédard, M., Pedlar, D., Martin, N.J., Malott, O., & Stones, M.J. (2000). Burden in caregivers of cognitively impaired older adults living in the community: Methodological issues and determinants. International Psychogeriatrics, 12, 307-332.
4. Bergs, D. (2002). "The hidden client"-Women caring for husbands with COPD: Their experience of quality of life. Journal of Clinical Nursing, 11, 613-621.
5. Black, W., & Almeida, O.P. (2004). A systematic review of the association between the behavioral and psychological symptoms of dementia and burden of care. International Psychogeriatrics, 16, 295-315.
6. Brewin, A. (2004). The quality of life of carers of patients with severe lung disease. British Journal of Nursing, 13, 906-912.
7. Brodaty, H., Thomson, C., Thompson, C., & Fine, M. (2005). Why caregivers of people with dementia and memory loss don't use services. International Journal of Geriatric Psychiatry, 20, 537-546.
8. Calasanti, T., & King, N. (2007). Taking "woman's work" "like a man": Husbands' experiences of care work. The Gerontologist, 47, 516-527.
9. Cannon, C.A., & Cavanaugh, J.C. (1998). Chronic illness in the context of marriage: A systems perspective of stress and coping in chronic obstructive pulmonary disease. Families, Systems, & Health, 16, 401-418.
10. Caress, A.L., Luker, K.A., Chalmers, K.I., & Salmon, M. (2009). A review of the information and support needs of family carers of patients with chronic obstructive pulmonary disease. Journal of Clinical Nursing, 18, 479-491.
11. Carpenter, G.I. (2005). Aging in the United Kingdom and Europe: A snapshot of the future? Journal of the American Geriatrics Society, 53, 310-313.
12. Clyburn, L.D., Stones, M.J., Hadjistavropoulos, T., & Tuokko, H. (2000). Predicting caregiver burden and depression in Alzheimer's disease. Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 55, S2-S13.
13. Corcoran, M.A. (1992). Gender differences in dementia management plans of spousal caregivers: Implications for occupational therapy. American Journal of Occupational Therapy, 46, 1006-1012.
14. Drentea, P., Clay, O.J., Roth, D.L., & Mittelman, M.S. (2006). Predictors of improvement in social support: Five-year effects of a structured intervention for caregivers of spouses with Alzheimer's disease. Social Science & Medicine, 63, 957-967.
15. Ellis, G., & Langhorne, P. (2004). Comprehensive geriatric assessment for older hospital patients. British Medical Bulletin, 71, 45-59.
16. Fearon, M., Donaldson, C., Burns, A., & Tarrier, N. (1998). Intimacy as a determinant of expressed emotion in carers of people with Alzheimer's disease. Psychological Medicine, 28, 1085-1090.
17. Fitting, M., Rabins, P., Lucas, M.J., & Eastham, J. (1986). Caregivers for dementia patients: A comparison of husbands and wives. The Gerontologist, 26, 248-252.
18. Frank, J.B. (2008). Evidence for grief as the major barrier faced by Alzheimer caregivers: A qualitative analysis. American Journal of Alzheimer's Disease and Other Dementias, 22, 516-527.
19. Freidson, E. (1988). Profession of medicine: A study of the sociology of applied knowledge. Chicago, IL: University of Chicago Press.
20. Gallicchio, L., Siddiqi, N., Langenberg, P., & Baumgarten, M. (2002). Gender differences in burden and depression among informal caregivers of demented elders in the community. International Journal of Geriatric Psychiatry, 17, 154-163.
21. George, L.K., & Gwyther, L.P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26, 253-259.
22. Georges, J., Jansen, S., Jackson, J., & Meyrieux, A. (2008). Alzheimer disease in real life: The dementia carer's survey. International Journal of Geriatric Psychiatry, 23, 564-551.
23. Giddens, A. (1994). Sociology. Oxford, England: Blackwell.
24. Goffman, E. (1963). Stigma. Hammondsworth, England: Penguin.
25. Greene, J.G., Smith, R., Gardiner, M., & Timbury, G.C. (1982). Measuring behavioural disturbance of elderly demented patients in the community and its effects on relatives: A factor analytic study. Age & Ageing, 11, 121-126.
26. Hagedoorn, M., Sanderman, R., Ranchor, A.V., Brilman, E.I., Kempen, G.I.J., & Ormel, J. (2001). Chronic disease in elderly couples: Are women more responsive to their spouses' health condition than men? Journal of Psychosomatic Research, 51, 693-696.
27. Heijnders, M., & Van Der Meij, S. (2006). The fight against stigma: An overview of stigma-reduction strategies and interventions. Psychology Health & Medicine, 11, 353-363.
28. Hoffman, C., Rice, D., & Sung, H.-Y. (1996). Persons with chronic conditions: Their prevalence and costs. Journal of the American Medical Association, 276, 1473-1479.
29. Hooker, K., Manoogian-O'Dell, M., Monahan, D.J., Frazier, L.D., & Shifren, K. (2000). Does type of disease matter? Gender differences among Alzheimer's and Parkinson's disease spouse caregivers. The Gerontologist, 40, 568-573.
30. Hughes, C.P., Berg, L., Danziger, W.L., Coben, L.A., & Martin, R.L. (1982). A new clinical scale for the staging of dementia. British Journal of Psychiatry, 140, 566-572.
31. Kanervisto, M., Kaistila, T., & Paavilainen, E. (2007). Severe chronic obstructive pulmonary disease in a family's everyday life in Finland: Perceptions of people with chronic obstructive pulmonary disease and their spouses. Nursing & Health Sciences, 9(1), 40-47.
32. Kanervisto, M., Paavilainen, E., & Heikkila, J. (2007). Family dynamics in families of severe COPD patients. Journal of Clinical Nursing, 16, 1498-1505.
33. Kara, M., & Mirici, A. (2004). Loneliness, depression, and social support of Turkish patient with chronic obstructive pulmonary disease and their spouses. Journal of Nursing Scholarship, 34, 331-336.
34. Korporaal, M., van Groenou, B., & van Tilburg, T.G. (2008). Effects of own and spousal disability on loneliness among older adults. Journal of Aging and Health, 20, 306-325.
35. Lyketsos, C.G., Steele, C., Galik, E., Rosenblatt, A., Steinberg, M., Warren, A., & Sheppard, J.M. (1999). Physical aggression in dementia patients and its relationship to depression. American Journal of Psychiatry, 156, 66-71.
36. Martin, Y., Gilbert, P., McEwan, K., & Irons, C. (2006). The relation of entrapment, shame and guilt to depression, in carers of people with dementia. Aging & Mental Health, 10, 101-106.
37. Meuser, T.M., & Marwit, S.J. (2001). A comprehensive, stage-sensitive model of grief in dementia caregiving. The Gerontologist, 41, 658-670.
38. Monahan, D.J., & Hooker, K. (1997). Caregiving and social support in two illness groups. Social Work, 42, 278-287.
39. Morris, J.C. (1993). The Clinical Dementia Rating (CDR): Current version and scoring rules. Neurology, 43, 2412-2414.
40. Morris, L.W., Morris, R.G., & Britton, P.G. (1988). The relationship between marital intimacy, perceived strain and depression in spouse caregivers of dementia sufferers. British Journal of Medical Psychology, 61, 231-236.
41. Morris, R.G., Woods, R.T., Davies, K.S., & Morris, L.W. (1991). Gender differences in carers of dementia sufferers. British Journal of Psychiatry Supplement, 158(10), 69-74.
42. Norwegian Ministry of Health and Care Services. (2006). Long term care: Future challenges. Oslo: Norwegian Ministry of Health and Care Services.
43. Özge, C., Özge, A., & Unal, O. (2006). Cognitive and functional deterioration in patients with severe COPD. Behavioural Neurology, 17, 121-130.
44. Parks, S.H., & Pilisuk, M. (1991). Caregiver burden: Gender and the psychological costs of caregiving. American Journal of Orthopsychiatry, 61, 501-509.
45. Penninx, B.W.J.H., van Tilburg, T., Kriegsman, D.M.W., Boeke, A.J.P., Deeg, D.J.H., & Van Eijk, J.T.M. (1999). Social network, social support, and loneliness in older persons with different chronic diseases. Journal of Aging and Health, 11, 151-168.
46. Perry, J. (2002). Wives giving care to husbands with Alzheimer's disease: A process of interpretive caring. Research in Nursing & Health, 25, 307-316.
47. Pinquart, M., & Sörensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18, 250-267.
48. Rapp, R.S., Shumaker, S., Schmidt, S., Naughton, M., & Anderson, R. (1998). Social resourcefulness: Its relationship to social support and wellbeing among caregivers of dementia victims. Aging & Mental Health, 2, 40-48.
49. Roelands, M., Van Oost, P., & Depoorter, A. (2008). Service use in family caregivers of persons with dementia in Belgium: Psychological and social factors. Health & Social Care in the Community, 16(1), 42-53.
50. Schneider, J., Murray, J., Banerjee, S., & Mann, A. (1999). Eurocare: A cross-national study of co-resident spouse carers for people with Alzheimer's disease: I-Factors associated with carer burden. International Journal of Geriatric Psychiatry, 14, 651-661.
51. Seamark, D.A., Blake, S.D., Seamark, C.J., & Halpin, D.M. (2004). Living with severe chronic obstructive pulmonary disease (COPD): Perceptions of patients and their carers. An interpretative phenomenological analysis. Palliative Medicine, 18, 619-625.
52. Selbaek, G., Kirkevold, O., & Engedal, K. (2007). The prevalence of psychiatric symptoms and behavioural disturbances and the use of psychotropic drugs in Norwegian nursing homes. International Journal of Geriatric Psychiatry, 22, 843-849.
53. Sherbourne, C.D., & Stewart, A.L. (1991). The MOS social support survey. Social Science & Medicine, 32, 705-714.
54. Stevens N. & Westerhof G. (2006) Marriage, Social Integration, and Loneliness in the Second Half of Life: A Comparison of Dutch and German Men and Women. Research on Aging 28, 716-729.
55. Torti, F.M., Gwyther, L.P., Reed, S.D., Friedman, J., & Schulman, K.A. (2004). A multinational review of recent trends and reports in dementia caregiver burden. Alzheimer Disease and Associated Disorders, 18, 99-109.
56. Ulstein, I., Wyller, T.B., & Engedal, K. (2007a). High score on the Relative Stress Scale: A marker of possible psychiatric disorder in family carers of patients with dementia. International Journal of Geriatric Psychiatry, 22, 195-202.
57. Ulstein, I., Wyller, T.B., & Engedal, K. (2007b). The Relative Stress Scale: A useful instrument to identify various aspects of carer burden in dementia? International Journal of Geriatric Psychiatry, 22, 61-67.