Psychosocial impact of childhood face burns: A multicenter, prospective, longitudinal study of 390 children and adolescents

Burns

Volumn 37, Issue 3, 2011, Pages 387-394

  Stubbs, Teresa Kim ^a   James, Laura E ^a,b   Daugherty, Mary Beth ^a   Epperson, Kathryn ^c,d   Barajaz, Kymberly A ^d   Blakeney, Patricia ^c,d   Meyer III, Walter J ^c,d   Palmieri, Tina L ^e,f   Kagan, Richard J ^a,b  

^a SHRINERS HOSPITALS FOR CHILDREN   (United States)

^b UNIVERSITY OF CINCINNATI COLLEGE OF MEDICINE   (United States)

^c University of Texas Medical Branch School of Medicine   (United States)

^d SHRINERS HOSPITALS FOR CHILDREN   (United States)

^e UNIVERSITY OF CALIFORNIA   (United States)

^f SHRINERS HOSPITALS FOR CHILDREN NORTHERN CALIFORNIA   (United States)

Author keywords

Childhood face burns; Multicenter study; Pediatric burn outcomes

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CHILDHOOD INJURY; DISEASE SEVERITY; FACE BURN; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; PSYCHOSOCIAL DISORDER; QUALITY OF LIFE; SKIN GRAFT;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADOLESCENT BEHAVIOR; BURNS; CHILD; CHILD BEHAVIOR DISORDERS; CHILD, PRESCHOOL; FACIAL INJURIES; FEMALE; HEALTH STATUS; HUMANS; INFANT; LONGITUDINAL STUDIES; MALE; PARENTS; PROSPECTIVE STUDIES; QUALITY OF LIFE; QUESTIONNAIRES; SURVIVORS;

EID: 79952702850     PISSN: 03054179     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.burns.2010.12.013     Document Type: Article

References (38)

1. Little CT, Stein WA. Set in stone: the face in medieval sculpture. In: Heilbrunn timeline of art history. New York: The Metropolitan Museum of Art 2000; revs 2009. http://www.metmuseum.org/toah/hd/face/hd-face.htm [accessed 17.6.10].
2. Maddern LH, Cadogan JC, Emerson MP. "Outlook": a psychosocial service for children with a different appearance. Clin Child Psychol Psychiatry 2006;11(3):431-43.
3. Perry BD, Czyzewski DI, Lopez MA, Spiller LC, Treadwell- Deering D. Neuropsychologic impact of facial deformities in children. Neurodevelopmental role of the face in communication and bonding. Clin Plast Surg 1998;25:587-97.
4. Horwood J, Waylen A, Herrick D, Williams C, Wolke D. Avon longitudinal study of parents and children study team. Common visual defects and peer victimization in children. Invest Ophthalmol Vis Sci 2005;46(4):1177-81.
5. Schutte BC, Murray JC. The many faces and factors of orofacial clefts. Hum Mol Genet 1999;8(10):1853-9. (Pubitemid 29458662)
6. Strauss RP, Ramsey BL, Edwards TC, Topolski TD, Kapp-Simon, Thomas CR, et al. Stigma experiences in youth with facial differences: a multi-site study of adolescents and their mothers. Orthod Craniofacial Res 2007;10:96-103.
7. Abdullah A, Blakeney P, Hunt R, Broemeling L, Phillips L, Herndon DN, et al. Visible scars and self-esteem in pediatric patients with burns. J Burn Care Rehabil 1994;15:164-8. (Pubitemid 24093891)
8. Robert R, Meyer W, Bishop S, Rosenberg L, Murphy L, Blakeney P. Disfiguring burn scars and adolescent selfesteem. Burns 1999;25:581-5. (Pubitemid 29440901)
9. Druery M, Brown TL, Muller M. Long term functional outcomes and quality of life following severe burn injury. Burns 2005;31:692-5. (Pubitemid 41208219)
10. Pallua N, Künsebeck HW, Noah EM. Psychosocial adjustments 5 years after burn injury. Burns 2003;29:143-52. (Pubitemid 36279592)
11. Wiechman SA, Ptacek JT, Patterson DR, Gibran NS, Engrav LE, Heimbach DM. Rates, trends, and severity of depression after burn injuries. J Burn Care Rehabil 2001;22:417-24. (Pubitemid 33096669)
12. Dodd AR, Nelson-Mooney K, Greenhalgh DG, Beckett LA, Li Y, Palmieri TL. The effect of hand burns on quality of life in children. J Burn Care Res 2010;31:414-22.
13. Van Loey NEE, Van Son MJM. Psychopathology and psychological problems in patients with burn scars. Am J Clin Derm 2003;4(4):245-72. (Pubitemid 36506430)
14. Fauerbach JA, Heinberg LJ, Lawrence JW, Bryant AG, Richter L, Spence RJ. Coping with body image changes following a disfiguring burn injury. Health Psychol 2002;21(2):115-21. (Pubitemid 34258866)
15. Fauerbach JA, Lezotte D, Hills RA, Cromes GF, Kowalske K, de Lateur BJ, et al. Burden of burn: a norm-based inquiry into the influence of burn size and distress on recovery of physical and psychosocial function. J Burn Care Rehabil 2005;26:21-32. (Pubitemid 40105192)
16. Yoder LH, Nayback AM, Gaylord K. The evolution and utility of the burn specific health scale: a systematic review. Burns 2010;36:1143-56.
17. Daltroy LH, Liang MH, Phillips CB, Daugherty MB, Hinson M, Jenkins M, et al. American Burn Association/Shriners Hospitals for Children burn outcomes questionnaire: construction and psychometric properties. J Burn Care Rehabil 2000;21:29-39. (Pubitemid 30062879)
18. Kazis LE, Liang MH, Lee A, Ren XS, Phillips CB, Hinson M, et al. The development, validation, and testing of a health outcomes burn questionnaire for infants and children 5 years of age and younger: American Burn Association/Shriners Hospitals for Children. J Burn Care Rehabil 2002;23:196-207. (Pubitemid 34547760)
19. The MIXED procedure overview. SAS/STAT user's guide; 2010, http://www.sfu.ca/sasdoc/sashtml/stat/chap41/sect1.htm [accessed 10.6.10].
20. Varni JW, Limbers CA, Burwinkle TM. Impaired healthrelated quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales. Health Qual Life Outcomes 2007;5:43.
21. Klassen AF, Miller A, Fine S. Health-related quality of life in children and adolescents who have a diagnosis of attention-deficit/hyperactivity disorder. Pediatrics 2004;114:e541-7.
22. Meyer WJ, Blakeney P, Moore P, Murphy L, Robson M, Herndon D. Inconsistencies in psychological assessment of children post major burn. J Burn Care Rehabil 1995;9:559-68.
23. Mlakar JM. The impact of reconstructive surgery: on the road to restoration. In Burn support news. The Phoenix Society. http://www.phoenix- society.org/downloads/burn-support-newsletters/06springbsn.pdf; Spring 2006. p. 15-7.
24. Arceneaux LL, Meyer WJ. Treatments for common psychiatric conditions among children and adolescents during acute rehabilitation and reintegration phases of burn injury. Int Rev Psychiatr 2009;21:549-58.
25. Bessell A, Moss TP. Evaluating the effectiveness of psychosocial interventions for individuals with visible differences: a systematic review of the empirical literature. Body Image 2007;4(3):227-38.
26. Partridge J. About changing faces: promoting a good quality of life for people with visible disfigurements. Burns 1997;23(2):186-7. (Pubitemid 27233203)
27. Partridge J. Changing faces: taking up Macgregor's challenge. J Burn Care Rehabil 1998;19(2):174-80 [discussion 169].
28. Robinson E, Rumsey N, Partridge J. An evaluation of the impact of social interaction skills training for facially disfigured people. Br J Plast Surg 1996;49(5):281-9. (Pubitemid 26237557)
29. Blakeney P, Thomas C, Holzer C, Rose M, Berniger F, Meyer WJ. Efficacy of a short-term, intensive social skills training program for burned adolescents. J Burn Care Rehabil 2005;26(6):546-55. (Pubitemid 41689527)
30. Prior J, O'Dell L. 'Coping quite well with a few difficult bits': living with disfigurement in early adolescence. J Health Psychol 2009;14:731-40.
31. The Phoenix Society for Burn Survivors. http://www.phoenix-society.org/ programs/bestimageenchancement/ [accessed 20.8.09].
32. Blakeney P. School reintegration. J Burn Care Rehabil 1995;16(2 Pt 1):180.
33. Staley M, Anderson L, Greenhalgh D, Warden G. Return to school as an outcome measure after a burn injury. J Burn Care Rehabil 1998;20(1):91-4.
34. Blakeney P, Moore P, Meyer 3rd W, Bishop B, Murphy L, Robson M, et al. Efficacy of school reentry programs. J Burn Care Rehabil 1995;16(4):469-72 [discussion 466-8].
35. Rosenberg L, Rosenberg M, Bishop B, Amrhein C, Robert R, Chavirria A, et al. Assisting pediatric burn survivors from other countries returning to school. In: 37th annual meeting. Chicago, IL: American Burn Association; 2005.
36. Beebe TJ, Rey E, Ziegenfuss JY, Richard G, Locke III RG, Jenkins S, et al. Shortening a survey and using alternative forms of prenotification: impact on response rate and quality. BMC Med Res Methodol 2010;10:50. doi: 10.1186/1471-2288-10-50. http://www.biomedcentral.com/1471-2288/10/50 [accessed 7.8.10].
37. Ash DA, Jedrziewski MK, Christakis NA. Response rates to mail surveys published in medical journals. J Clin Epidemiol 1997;50(10):1129-36.
38. Blakeney P, Partridge J, Rumsey N. Community integration. J Burn Care Res 2007;28(4):598-601. (Pubitemid 47075696)