Why do families relinquish care? An investigation of the factors that lead to relinquishment into out-of-home respite care

Journal of Intellectual Disability Research

Volumn 55, Issue 4, 2011, Pages 422-433

  Nankervis, K ^a   Rosewarne, A ^b   Vassos, M ^a,b  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b RMIT UNIVERSITY   (Australia)

Author keywords

Families; Intellectual disability; Quality of life; Relinquishment; Respite

Indexed keywords

ADULT; ARTICLE; FAMILY COUNSELING; FEMALE; HOME CARE; HUMAN; INTELLECTUAL IMPAIRMENT; INTELLIGENCE; INTERVIEW; MAJOR CLINICAL STUDY; MALE; MOURNING; PATIENT CARE; QUALITY OF LIFE; RESPITE CARE; THEMATIC ANALYSIS;

ADOLESCENT; ADULT; CAREGIVERS; CHILD; CHILD, UNWANTED; DECISION MAKING; DEVELOPMENTAL DISABILITIES; DISABLED CHILDREN; FAMILY HEALTH; FEMALE; HUMANS; INSTITUTIONALIZATION; MALE; MENTAL RETARDATION; PARENT-CHILD RELATIONS; PARENTS; QUALITY OF LIFE; RESIDENTIAL FACILITIES; RESPITE CARE; RETROSPECTIVE STUDIES; RISK FACTORS; SEVERITY OF ILLNESS INDEX; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS; YOUNG ADULT;

EID: 79952608817     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2011.01389.x     Document Type: Article

References (29)

1. Australian Institute of Health and Welfare (AIHW) (2008a) Disability in Australia: Trends in Prevalence, Education, Employment and Community Living. Bulletin No. 61. AIHW, Canberra.
2. Australian Institute of Health and Welfare (AIHW) (2008b) Disability in Australia: Intellectual Disability. Bulletin No. 67. AIHW, Canberra.
3. Benedict R. E. (2006) Disparities in use of and unmet need for therapeutic and supportive services among school-age children with functional limitations: a comparison across settings. Health Services Research 41, 103-24.
4. Braun V. & Clarke V. (2006) Using thematic analysis in psychology. Qualitative Research in Psychology 3, 77-101.
5. Bromley J., Hare D., Davison K. & Emerson E. (2004) Mothers supporting children with autistic spectrum disorders: social support, mental health status and satisfaction services. Autism 8, 409-23.
6. Burton-Smith R., McVilly K. R., Yazbeck M., Parmenter T. R. & Tsutsui T. (2009) Quality of life of Australian family carers: implications for research, policy and practice. Journal of Policy and Practice in Intellectual Disabilities 6, 189-98.
7. Carr A. & O'Reilly M. (1996) Service needs of carers for people with intellectual disabilities: profiles of high-need and low-need groups. The Irish Journal of Psychology 17, 48-59.
8. Chan J. (2007) Carers' perspective on respite for person with acquired brain injury. International Journal of Rehabilitation Research 30, 137-46.
9. Chan J. (2008) What do people with acquired brain injury think about respite care and other support services? International Journal of Rehabilitation Research 31, 3-11.
10. Chan J. & Sigafoos J. (2001a) Adults with intellectual disability in long-term respite care: a qualitative study. Journal of Intellectual & Developmental Disability 26, 339-44.
11. Chan J. & Sigafoos J. (2001b) Does respite care reduce parental stress in families with developmentally disabled children? Child and Youth Care Forum 30, 253-63.
12. Chou Y., Tzou P., Pu C., Kroger T. & Lee W. (2008) Respite care as a community care service: factors associated with the effects of family carers of adults with intellectual disability in Taiwan. Journal of Intellectual and Developmental Disability 33, 12-21.
13. Clark P. & MacArthur J. (2008) Children with physical disability: gaps in service provision, problems joining in. Journal of Paediatrics and Child Health 44, 455-58.
14. Cotterill L., Hayes L., Flynn M. & Sloper P. (1997) Reviewing respite services: some lessons from the literature. Disability & Society 12, 775-88.
15. Cowley M. & Orbell S. (1999) Towards a psychology of service use in informal care: social and psychological variables associated with service need and uptake amongst carers of learning disabled adults. Psychology & Health 14, 217-39.
16. Cummins R. A. (2001) The subjective well-being of people caring for a family member with a severe disability at home: a review. Journal of Intellectual and Developmental Disability 26, 83-100.
17. Damiani G., Rosenbaum P., Swinton M. & Russell D. (2004) Frequency and determinants of formal respite service use among caregivers of children with cerebral palsy in Ontario. Child: Care, Health and Development 30, 77-86.
18. Freedman R., Griffiths D., Krauss M. & Seltzer M. (1999) Patterns of respite use by aging mothers of adults with mental retardation. Mental Retardation 37, 93-103.
19. Grant G., Ramcharan P., McGrath M., Nolan M. & Keady J. (1998) Rewards and gratifications among family caregivers: towards a refined model of caring and coping. Journal of Intellectual Disability Research 42, 58-71.
20. Hare D. J., Pratt C., Burton M., Bromley J. & Emerson E. (2004) The health and social care needs of family carers supporting adults with autistic spectrum disorder. Autism 8, 425-44.
21. Hastings R. P. (2002) Parental stress and behaviour problems of children with developmental disability. Journal of Intellectual and Developmental Disability 27, 149-60.
22. McClean B., Grey I. & McCracken M. (2007) An evaluation of positive behavioral support for people with very severe challenging behaviors in community-based settings. Journal of Intellectual Disabilities 11, 281-301.
23. McConkey R. (2005) Fair shares? Supporting families caring for adult persons with intellectual disabilities. Journal of Intellectual Disability Research 49, 600-12.
24. McConkey R., Truesdale M. & Conliffe C. (2004) The features of short-break residential services valued by families who have children with multiple disabilities. Journal of Social Work 4, 61-75.
25. MacDonald H. & Callery P. (2004) Different meanings of respite: a study of parents, nurses and social workers caring for children with complex needs. Child: Care, Heath and Development 30, 279-88.
26. MacDonald H. & Callery P. (2008) Parenting children requiring complex care: a journey through time. Child: Care, Heath and Development 34, 207-13.
27. McNally S., Ben-Shlomo Y. & Newman S. (1999) The effects of respite care on informal carers' well-being: a systematic review. Disability and Rehabilitation 21, 1-14.
28. Power A. (2008) 'It's the system working for the system': carers' experiences of learning disability services in Ireland. Health & Social Care in the Community 17, 92-8.
29. Salisbury C. (1990) Characteristics of users and nonusers of respite care. Mental Retardation 28, 291-7.