Estimating and comparing incidence and prevalence of chronic diseases by combining GP registry data: The role of uncertainty

BMC Public Health

Volumn 11, Issue , 2011, Pages

  Van Baal, Pieter H ^a,b   Engelfriet, Peter M ^a   Hoogenveen, Rudolf T ^a   Poos, Marinus J ^a   Van Den Dungen, Catharina ^a   Boshuizen, Hendriek C ^a  

^a NATIONAL INSTITUTE FOR PUBLIC HEALTH AND THE ENVIRONMENT   (Netherlands)

^b ERASMUS UNIVERSITY ROTTERDAM   (Netherlands)

Author keywords

incidence; Monte Carlo simulation; prevalence; uncertainty

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CHILD; CHRONIC DISEASE; FEMALE; GENERAL PRACTICE; HUMAN; INCIDENCE; INFANT; INFORMATION SYSTEM; MALE; METHODOLOGY; MIDDLE AGED; NETHERLANDS; NEWBORN; PRESCHOOL CHILD; PREVALENCE; REGISTER; STATISTICAL MODEL; STATISTICS; UNCERTAINTY;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CHILD; CHILD, PRESCHOOL; CHRONIC DISEASE; FEMALE; GENERAL PRACTICE; HUMANS; INCIDENCE; INFANT; INFANT, NEWBORN; INFORMATION MANAGEMENT; LINEAR MODELS; MALE; MIDDLE AGED; NETHERLANDS; PREVALENCE; REGISTRIES; UNCERTAINTY; YOUNG ADULT;

EID: 79952564168     PISSN: None     EISSN: 14712458     Source Type: Journal    
DOI: 10.1186/1471-2458-11-163     Document Type: Article

References (33)

1. Burden of disease - implications for future research. CM Michaud CJ Murray BR Bloom, JAMA 2001 285 535 9 10.1001/jama.285.5.535 11176854 (Pubitemid 32656319)
2. Global and regional burden of disease and risk factors, 2001: systematic analysis of population health data. AD Lopez CD Mathers M Ezzati DT Jamison CJ Murray, Lancet 2006 367 1747 57 10.1016/S0140-6736(06)68770-9 16731270 (Pubitemid 43767064)
3. The burden of disease and injury in Australia. CD Mathers ET Vos CE Stevenson SJ Begg, Bull World Health Organ 2001 79 1076 84 11731817 (Pubitemid 33078679)
4. A national burden of disease calculation: Dutch disability-adjusted life-years. Dutch Burden of Disease Group. JM Melse ML Essink-Bot PG Kramers N Hoeymans, Am J Public Health 2000 90 1241 7 10.2105/AJPH.90.8.1241 10937004 (Pubitemid 30497377)
5. Chronic disease projections in heterogeneous ageing populations: approximating multi-state models of joint distributions by modelling marginal distributions. RT Hoogenveen PH van Baal HC Boshuizen, Math Med Biol 2009 27 1 1 19 10.1093/imammb/dqp014 19516046
6. The health care costs of smoking. JJ Barendregt L Bonneux PJ van der Maas, N Engl J Med 1997 337 1052 7 10.1056/NEJM199710093371506 9321534 (Pubitemid 27430524)
7. POHEM - a framework for understanding and modelling the health of human populations. MC Wolfson, World Health Stat Q 1994 47 157 76 7740830
8. The impact of aging and smoking on the future burden of chronic obstructive pulmonary disease: a model analysis in the Netherlands. TL Feenstra ML van Genugten RT Hoogenveen EF Wouters MP Rutten-van Molken, Am J Respir Crit Care Med 2001 164 590 6 11520721 (Pubitemid 32801662)
9. Estimating population-based incidence and prevalence of major coronary events. S Giampaoli L Palmieri R Capocaccia L Pilotto D Vanuzzo, Int J Epidemiol 2001 30 Suppl 1 5 10 11759852
10. Incidence and prevalence of ischemic heart disease in Italy: estimates from the MIAMOD method. S Giampaoli L Palmieri L Pilotto D Vanuzzo, Ital Heart J 2001 2 349 55 11392638 (Pubitemid 32536885)
11. MIAMOD: a computer package to estimate chronic disease morbidity using mortality and survival data. G De Angelis R De Angelis L Frova A Verdecchia, Comput Methods Programs Biomed 1994 44 99 107 10.1016/0169-2607(94)90091-4 7988122 (Pubitemid 24281294)
12. Estimating the prevalence of breast cancer using a disease model: data problems and trends. ME Kruijshaar JJ Barendregt LV Van De Poll-Franse, Popul Health Metr 2003 1 5 10.1186/1478-7954-1-5 12773211
13. The use of models in the estimation of disease epidemiology. ME Kruijshaar JJ Barendregt N Hoeymans, Bull World Health Organ 2002 80 622 8 12219152
14. Methods for estimating HIV prevalence: A comparison of extrapolation from surveys on infection rate and risk behaviour with back-calculation for the Netherlands. H Houweling SH Heisterkamp LG Wiessing RA Coutinho JK van Wijngaarden HJ Jager, Eur J Epidemiol 1998 14 645 52 10.1023/A:1007495607520 9849824 (Pubitemid 28539390)
15. The role of family practice in different health care systems: a comparison of reasons for encounter, diagnoses, and interventions in primary care populations in the Netherlands, Japan, Poland, and the United States. IM Okkes GO Polderman GE Fryer T Yamada M Bujak SK Oskam LA Green H Lamberts, J Fam Pract 2002 51 72 3 11927068
16. Validating long term morbidity recording. C Van Weel, J Epidemiol Community Health 1995 49 Suppl 1 29 32 10.1136/jech.49.Suppl-1.29 7561667
17. Monitoring health inequalities through general practice: the Second Dutch National Survey of General Practice. GP Westert FG Schellevis DH de Bakker PP Groenewegen JM Bensing J van der Zee, Eur J Public Health 2005 15 59 65 10.1093/eurpub/cki116 15788805
18. Unlocking patients' records in general practice for research, medical education and quality assurance: the Registration Network Family Practices. JF Metsemakers JA Knottnerus GJ van Schendel RJ Kocken CB Limonard, Int J Biomed Comput 1996 42 43 50 10.1016/0020-7101(96)01180-4 8880268 (Pubitemid 26297279)
19. Probabilistic sensitivity analysis for NICE technology assessment: not an optional extra. K Claxton M Sculpher C McCabe A Briggs R Akehurst M Buxton J Brazier T O'Hagan, Health Econ 2005 14 339 47 10.1002/hec.985 15736142 (Pubitemid 40514748)
20. Stochastic league tables: communicating cost-effectiveness results to decision-makers. RC Hutubessy RM Baltussen DB Evans JJ Barendregt CJ Murray, Health Econ 2001 10 473 7 10.1002/hec.614 11466807 (Pubitemid 32755275)
21. AE de Hollander N Hoeymans JM Melse JAM van Oers JJ Polder AE de Hollander N Hoeymans JM Melse JAM van Oers JJ Polder, Care for Health. The 2006 Dutch Public Health Status and Forecasts Report Bilthoven: Rijksinstituut voor Volksgezondheid en Milieu 2007
22. What factors explain the differences in morbidity estimations among general practice registration networks in the Netherlands? A first analysis. C van den Dungen N Hoeymans R Gijsen M van den Akker J Boesten H Brouwer H Smeets WJ van der Veen R Verheij M de Waal F Schellevis G Westert, Eur J Gen Pract 2008 14 Suppl 1 53 62 10.1080/13814780802436218 18949646
23. A Gelman J Hill, Data Analysis Using Regression and Multilevel/ Hierarchical Models Cambridge University Press 2006
24. Estimating the dimension of a model. G Schwarz, Annals of Statistics 1978 6 461 464 10.1214/aos/1176344136
25. Probabilistic Sensitivity Analysis: Be a Bayesian. HC Boshuizen PH van Baal, Value Health 2009 12 8 1210 4 10.1111/j.1524-4733.2009.00590.x 19695002
26. Using multiple data features improved the validity of osteoporosis case ascertainment from administrative databases. LM Lix MS Yogendran WD Leslie SY Shaw R Baumgartner C Bowman C Metge A Gumel J Hux RC James, J Clin Epidemiol 2008 61 1250 60 10.1016/j.jclinepi.2008.02.002 18619800
27. Importance of accurately identifying disease in studies using electronic health records. DG Manuel LC Rosella TA Stukel, BMJ 2010 341 4226 10.1136/bmj.c4226 20724404
28. Population-based data sources for chronic disease surveillance. LM Lix MS Yogendran SY Shaw C Burchill C Metge R Bond, Chronic Dis Can 2008 29 31 8 19036221
29. Fixed effects, random effects and GEE: what are the differences? JC Gardiner Z Luo LA Roman, Stat Med 2009 28 221 39 10.1002/sim.3478 19012297
30. The importance of longitudinal studies in family medicine: experiences of two practice-based research networks. C van Weel E van Weel-Baumgarten J Mold, J Am Board Fam Med 2006 19 69 74 10.3122/jabfm.19.1.69 16492008 (Pubitemid 44046996)
31. Longitudinal research and data collection in primary care. C van Weel, Ann Fam Med 2005 3 Suppl 1 46 51 10.1370/afm.300 15928218
32. The prevalence of known diabetes in eight European countries. DM Fleming FG Schellevis V Van Casteren, Eur J Public Health 2004 14 10 4 10.1093/eurpub/14.1.10 15080383 (Pubitemid 38523653)
33. Estimating the completeness of prevalence based on cancer registry data. R Capocaccia R De Angelis, Stat Med 1997 16 425 40 10.1002/(SICI)1097- 0258(19970228)16:4<425::AID-SIM4143.0.CO;2-Z 9044530 (Pubitemid 27073011)