Development of an evidence-based patient information medium: Empowering newly diagnosed patients with primary biliary cirrhosis

Journal of Visual Communication in Medicine

Volumn 34, Issue 1, 2011, Pages 4-13

  Pearce, Ruth M ^a,b   Jones, David E ^a,b   Newton, Julia L ^a,b  

^a NEWCASTLE UNIVERSITY   (United Kingdom)

^b NEWCASTLE UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BILIARY CIRRHOSIS; EVIDENCE BASED MEDICINE; HUMAN; METHODOLOGY; PATIENT EDUCATION; PATIENT SATISFACTION; PROGRAM DEVELOPMENT; VIDEORECORDING;

EVIDENCE-BASED MEDICINE; HUMANS; LIVER CIRRHOSIS, BILIARY; PATIENT EDUCATION AS TOPIC; PATIENT SATISFACTION; PROGRAM DEVELOPMENT; VIDEODISC RECORDING;

EID: 79952521534     PISSN: 17453054     EISSN: 17453062     Source Type: Journal    
DOI: 10.3109/17453054.2011.548794     Document Type: Article

References (19)

1. Kaplan MM. Primary biliary cirrhosis. New England Journal of Medicine 1996;335:1570-1580. (Pubitemid 126785816)
2. Heathcote EJ. Management of primary biliary cirrhosis: the American Association for the Study of Liver Diseases practice guidelines. Hepatology 2000;31:1005-1013.
3. James OFW, Bhopal R, Howel D, Gray J, Burt AD, Metcalf JV. Primary biliary cirrhosis once rare, now common in the United Kingdom? Hepatology 1999;30:390-394. (Pubitemid 29357502)
4. Metcalf JV, Bhopal RS, Gray J, Howel D, James OFW. Incidence and prevalence of primary biliary cirrhosis in the City of Newcastle upon Tyne, England. International Journal of Epidemiology 1997;26:830-836. (Pubitemid 27367860)
5. Prince MI, & Jones DEJ. Primary biliary cirrhosis: new perspectives on diagnosis and treatment. Postgraduate Medical Journal 2000;76:199-206. (Pubitemid 30192772)
6. Fahey S. The experience of women with primary biliary cirrhosis: a literature review. Journal of Advanced Nursing 1999;30:506-512.
7. Huet PM, Deslauriers J, Tran A, Faucher C, Charbonneau J. Impact of fatigue on the quality of life of patients with primary biliary cirrhosis. American Journal of Gastroenterology 2000;95:760-767. (Pubitemid 30123916)
8. Prince MI, James O, & Jones DEJ. Fatigue in patients with primary biliary cirrhosis; validation of fatigue severity score as a clinical and research tool. Hepatology 1998;28:542.
9. Cauch-Dudek K, Abbey S, Stewart DE, & Heathcote EJ. Fatigue in primary biliary cirrhosis. Gut 1998;43:705-710. (Pubitemid 28520108)
10. Blackburn P, Freeston M, Baker CR, Jones DEJ, & Newton JL. The role of psychological factors in the fatigue of primary biliary cirrhosis, Liver International 2007;27:654-61. (Pubitemid 47097316)
11. Clarke M, Becker M, Janz M, Lorig K, Rakowski W, Anderson L. Self-management of chronic disease by older adults. Journal of Aging and Health 1991;3(1):3-27
12. Pager C. Randomised controlled trial of preoperative information to improve satisfaction with cataract surgery. British Journal of Opthalmology 2005;89:10-13 (Pubitemid 40040229)
13. Freeman Wang T, Walker P, Linehan J, Coffey C, Glasser B, Sherr L. Anxiety levels in women attending colposcopy clinics for treatment for cervical intraepithelial neoplasia: a randomised trial of written and video information. British Journal of Obstetrics and Gynaecology 2001;108:482-484 (Pubitemid 32607312)
14. Luck A, Pearson S, Maddern G, Hewett, P. Effects of video information on precolonoscopy anxiety and knowledge: a randomised trial. The Lancet 1999;354:2032-2035
15. Schofield P, Jefford M, Carey M, Thomson K, Evans M, Baravelli C, Aranda S. Preparing patients for threatening medical treatments: effects of a chemotherapy educational DVD on anxiety, unmet needs and self efficacy. Support Cancer Care. 2008;16:37-45. (Pubitemid 350243758)
16. Krouse HJ. Video modelling to educate patients. Journal of Advanced Nursing. 2001;33(6):748-757. (Pubitemid 33603218)
17. Gagliano ME. A literature review on the efficacy of video in patient education. Journal of Medical Education. 1998;63:785-792.
18. Braun V, Clarke V, Using thematic analysis in psychology. Qualitative Research in Psychology. 2006;3:77-101.
19. Newton JL, Hollingsworth KG, Taylor R, El-Sharkawy AM, Khan ZU, Pearce R, Sutcliffe K, Okonkwo O, Davidson A, Burt J, Blamire AM, Jones D. Cognitive impairment in primary biliary cirrhosis: symptom impact and potential etiology. Hepatology 2008;48:541-549.