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Volumn 36, Issue 2, 2011, Pages 188-195

Feeling of burden, psychological distress, and anxiety among primary caregivers of children with home enteral nutrition

Author keywords

anxiety; children; developmental disabilities; parent stress; psychological testing

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; ANXIETY; ARTICLE; CAREGIVER; CHILD; EMOTION; ENTERIC FEEDING; FEMALE; HUMAN; INFANT; MALE; MENTAL STRESS; MIDDLE AGED; PRESCHOOL CHILD; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL RATING SCALE; QUALITY OF LIFE; QUESTIONNAIRE;

EID: 79952295033     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jsq069     Document Type: Article
Times cited : (42)

References (48)
  • 2
    • 33845243938 scopus 로고    scopus 로고
    • Percutaneous endoscopic gastrostomy in children: A safe technique with major symptom relief and high parental satisfaction
    • PII 0000517620061100000014
    • Avitsland, T. L., Kristensen, C., Emblem, R., Veenstra, M., Mala, T., & Bjørnland, K. (2006). Percutaneous endoscopic gastrostomy in children: A safe technique with major symptom relief and high parental satisfaction. Journal of Pediatric Gastroenterology and Nutrition, 43, 624-628. (Pubitemid 44863689)
    • (2006) Journal of Pediatric Gastroenterology and Nutrition , vol.43 , Issue.5 , pp. 624-628
    • Avitsland, T.L.1    Kristensen, C.2    Emblem, R.3    Veenstra, M.4    Mala, T.5    Bjornland, K.6
  • 3
    • 0023020183 scopus 로고
    • The moderator-mediator variable distinction in social psychological research: Conceptual, strategic and statistical considerations
    • Baron, R. M., & Kenny, D. A. (1986). The moderator-mediator variable distinction in social psychological research: Conceptual, strategic and statistical considerations. Journal of Personality and Social Psychology, 51, 1173-1182.
    • (1986) Journal of Personality and Social Psychology , vol.51 , pp. 1173-1182
    • Baron, R.M.1    Kenny, D.A.2
  • 4
    • 59649099785 scopus 로고    scopus 로고
    • Life course theory as a framework to examine becoming a mother of a medically fragile preterm infant
    • Black, B. P., Holditch-Davis, D., & Miles, M. S. (2009). Life course theory as a framework to examine becoming a mother of a medically fragile preterm infant. Research in Nursing & Health, 32, 38-49.
    • (2009) Research in Nursing & Health , vol.32 , pp. 38-49
    • Black, B.P.1    Holditch-Davis, D.2    Miles, M.S.3
  • 5
    • 33749255333 scopus 로고    scopus 로고
    • Factors relating to carer burden for families of persons with muscular dystrophy
    • DOI 10.1080/16501970600731578, PII J468J80U28J76073
    • Boyer, F., Drame, M., Morrone, I., & Novella, J. L. (2006). Factors relating to carer burden for families of persons with muscular dystrophy. Journal of Rehabilitation Medicine, 38, 309-315. (Pubitemid 44478639)
    • (2006) Journal of Rehabilitation Medicine , vol.38 , Issue.5 , pp. 309-315
    • Boyer, F.1    Drame, M.2    Morrone, I.3    Novella, J.-L.4
  • 7
    • 16544379495 scopus 로고    scopus 로고
    • The health of primary caregivers of children with cerebral palsy: How does it compare with that of other Canadian caregivers?
    • Brehaut, J. C., Kohen, D. E., Raina, P., Walter, S. D., Russell, D. J., Swinton, M., . . . Rosenbaum, P. (2004). The health of primary caregivers of children with cerebral palsy: How does it compare with that of other Canadian caregivers? Pediatrics, 114, e182-e191.
    • (2004) Pediatrics , vol.114
    • Brehaut, J.C.1    Kohen, D.E.2    Raina, P.3    Walter, S.D.4    Russell, D.J.5    Swinton, M.6    Rosenbaum, P.7
  • 8
    • 0029829775 scopus 로고    scopus 로고
    • Factors predicting distress among caregivers to children with chronic medical conditions
    • DOI 10.1093/jpepsy/21.5.735
    • Canning, R. D., Harris, E. S., & Kelleher, K. J. (1996). Factors predicting distress among caregivers to children with chronic medical conditions. Journal of Pediatric Psychology, 21, 735-749. (Pubitemid 26361906)
    • (1996) Journal of Pediatric Psychology , vol.21 , Issue.5 , pp. 735-749
    • Canning, R.D.1    Harris, E.S.2    Kelleher, K.J.3
  • 9
    • 73949127494 scopus 로고    scopus 로고
    • The impact of caring for a child with cerebral palsy: Quality of life for mothers and fathers
    • Davis, E., Shelly, A., Waters, E., Boyd, R., Cook, K., & Davern, M. (2010). The impact of caring for a child with cerebral palsy: Quality of life for mothers and fathers. Child Care Health Dev, 36, 63-73.
    • (2010) Child Care Health Dev , vol.36 , pp. 63-73
    • Davis, E.1    Shelly, A.2    Waters, E.3    Boyd, R.4    Cook, K.5    Davern, M.6
  • 11
    • 54349088524 scopus 로고    scopus 로고
    • Chronic illness and its impact: Considerations for psychologists
    • Dobbie, M., & Mellor, D. (2008). Chronic illness and its impact: Considerations for psychologists. Psychology, Health & Medicine, 13, 583-590.
    • (2008) Psychology, Health & Medicine , vol.13 , pp. 583-590
    • Dobbie, M.1    Mellor, D.2
  • 12
    • 33645736005 scopus 로고    scopus 로고
    • Medical and psychosocial experiences of family caregivers with children fed enterally at home
    • Enrione, E. B., Thomlison, B., & Rubin, A. (2005). Medical and psychosocial experiences of family caregivers with children fed enterally at home. Journal of Parenteral and Enteral Nutrition, 29, 413-419. (Pubitemid 44296682)
    • (2005) Journal of Parenteral and Enteral Nutrition , vol.29 , Issue.6 , pp. 413-419
    • Enrione, E.B.1    Thomlison, B.2    Rubin, A.3
  • 14
    • 0142094618 scopus 로고    scopus 로고
    • Parents' perspectives on feeding medically compromised children: Implications for occupational therapy
    • DOI 10.1046/j.1440-1630.2003.00375.x
    • Franklin, L., & Rodger, S. (2003). Parents' perspectives on feeding medically compromised children: Implications for occupational therapy. Australian Occupational Therapy Journal, 50, 137-147. (Pubitemid 37265035)
    • (2003) Australian Occupational Therapy Journal , vol.50 , Issue.3 , pp. 137-147
    • Franklin, L.1    Rodger, S.2
  • 15
    • 67649259135 scopus 로고    scopus 로고
    • Determinants, correlates and mediators of psychological distress: A longitudinal study
    • Gadalla, T. M. (2009). Determinants, correlates and mediators of psychological distress: A longitudinal study. Social Science & Medicine, 68, 2199-2205.
    • (2009) Social Science & Medicine , vol.68 , pp. 2199-2205
    • Gadalla, T.M.1
  • 16
    • 0031811545 scopus 로고    scopus 로고
    • Distress, depressive symptoms, and depressive disorder among caregivers of patients with brain injury
    • Gillen, R., Tennen, H., Affleck, G., & Steinpreis, R. (1998). Distress, depressive symptoms, and depressive disorder among caregivers of patients with brain injury. Journal of Head Trauma Rehabilitation, 13, 31-43. (Pubitemid 28301590)
    • (1998) Journal of Head Trauma Rehabilitation , vol.13 , Issue.3 , pp. 31-43
    • Gillen, R.1    Tennen, H.2    Affleck, G.3    Steinpreis, R.4
  • 18
    • 65449146288 scopus 로고    scopus 로고
    • Paediatric illness! Family matters
    • Grootenhuis, M. A., & Bronner, M. B. (2009). Paediatric illness! Family matters. Acta Paediatrica, 98, 940-941.
    • (2009) Acta Paediatrica , vol.98 , pp. 940-941
    • Grootenhuis, M.A.1    Bronner, M.B.2
  • 19
    • 45149115348 scopus 로고    scopus 로고
    • Burden and coping strategies in mothers of patients with schizophrenia in Japan
    • DOI 10.1111/j.1440-1819.2008.01791.x
    • Hanzawa, S., Tanaka, G., Inadomi, H., Urata, M., & Ohta, Y. (2008). Burden and coping strategies in mothers of patients with schizophrenia in Japan. Psychiatry and Clinical Neurosciences, 62, 256-263. (Pubitemid 351832299)
    • (2008) Psychiatry and Clinical Neurosciences , vol.62 , Issue.3 , pp. 256-263
    • Hanzawa, S.1    Tanaka, G.2    Inadomi, H.3    Urata, M.4    Ohta, Y.5
  • 20
    • 5144232008 scopus 로고    scopus 로고
    • Economic and psychologic costs for maternal caregivers of gastrostomy-dependent children
    • DOI 10.1016/j.jpeds.2004.06.023, PII S0022347604005232
    • Heyman, M. B., Harmatz, P., Acree, M., Wilson, L., Moskowitz, J. T., & Ferrando, S. (2004). Economic and psychologic costs for maternal caregivers of gastrostomy-dependent children. Journal of Pediatrics, 145, 511-516. (Pubitemid 39345989)
    • (2004) Journal of Pediatrics , vol.145 , Issue.4 , pp. 511-516
    • Heyman, M.B.1    Harmatz, P.2    Acree, M.3    Wilson, L.4    Moskowitz, J.T.5    Ferrando, S.6    Folkman, S.7
  • 21
    • 0003405088 scopus 로고
    • Unpublished manuscript. Department of Sociology, Yale University. New Haven, CT
    • Hollingshead, A. B. (1975). Four factor index of social status. Unpublished manuscript. Department of Sociology, Yale University. New Haven, CT.
    • (1975) Four Factor Index of Social Status
    • Hollingshead, A.B.1
  • 22
    • 0030822925 scopus 로고    scopus 로고
    • Toward terminological, conceptual, and statistical clarity in the study of mediators and moderators: Examples from the child-clinical and pediatric psychology literature
    • Holmbeck, G. N. (1997). Toward terminological, conceptual, and statistical clarity in the study of mediators and moderators: Examples from the child-clinical and pediatric psychology literature. Journal of Consulting and Clinical Psychological, 65, 599-610.
    • (1997) Journal of Consulting and Clinical Psychological , vol.65 , pp. 599-610
    • Holmbeck, G.N.1
  • 23
    • 0036136094 scopus 로고    scopus 로고
    • Post-hoc probing of significant moderational and mediational effects in studies of pediatric populations
    • Holmbeck, G. N. (2002). Post-hoc probing of significant moderational and mediational effects in studies of pediatric populations. Journal of Pediatric Psychology, 27, 87-96.
    • (2002) Journal of Pediatric Psychology , vol.27 , pp. 87-96
    • Holmbeck, G.N.1
  • 24
    • 69249221385 scopus 로고    scopus 로고
    • Brief report: Problem solving and maternal distress at the time of a child's diagnosis of cancer in two-parent versus lone-parent households
    • Iobst, E. A., Alderfer, M. A., Sahler, O. J., Askins, M. A., Fairclough, D. L., Katz, E. R., . . . Noll, R. B. (2009). Brief report: Problem solving and maternal distress at the time of a child's diagnosis of cancer in two-parent versus lone-parent households. Journal of Pediatric Psychology, 34, 817-821.
    • (2009) Journal of Pediatric Psychology , vol.34 , pp. 817-821
    • Iobst, E.A.1    Alderfer, M.A.2    Sahler, O.J.3    Askins, M.A.4    Fairclough, D.L.5    Katz, E.R.6    Noll, R.B.7
  • 25
    • 0001639661 scopus 로고    scopus 로고
    • Data analysis in social psychology
    • D. Gilbert, S. T. Fiske, & G. Lindzey (Eds.), 4th ed., New York: McGraw-Hill
    • Kenny, D. A., Kashy, D. A., & Bolger, N. (1998). Data analysis in social psychology. In D. Gilbert, S. T. Fiske, & G. Lindzey (Eds.), Handbook of social psychology (4th ed., Vol,1. pp. 233-265). New York: McGraw-Hill.
    • (1998) Handbook of Social Psychology , vol.1 , pp. 233-265
    • Kenny, D.A.1    Kashy, D.A.2    Bolger, N.3
  • 26
    • 34548562549 scopus 로고    scopus 로고
    • Developing a literature base to understand the caregiving experience of parents of children with cancer: A systematic review of factors related to parental health and well-being
    • DOI 10.1007/s00520-007-0243-x
    • Klassen, A., Raina, P., Reineking, S., Dix, D., Pritchard, S., & O'Donnell, M. (2007). Developing a literature base to understand the caregiving experience of parents of children with cancer: A systematic review of factors related to parental health and well-being. Support Care Cancer, 15, 807-818. (Pubitemid 47387512)
    • (2007) Supportive Care in Cancer , vol.15 , Issue.7 , pp. 807-818
    • Klassen, A.1    Raina, P.2    Reineking, S.3    Dix, D.4    Pritchard, S.5    O'Donnell, M.6
  • 27
    • 3042811867 scopus 로고    scopus 로고
    • Confidence limits for the indirect effect: Distribution of the product and resampling methods
    • MacKinnon, D. P., Lockwood, C. M., & Williams, J. (2004). Confidence limits for the indirect effect: Distribution of the product and resampling methods. Multivariate Behavioural Research, 39, 99-128. (Pubitemid 38882481)
    • (2004) Multivariate Behavioral Research , vol.39 , Issue.1 , pp. 99-128
    • MacKinnon, D.P.1    Lockwood, C.M.2    Williams, J.3
  • 28
    • 34347207995 scopus 로고    scopus 로고
    • Testing the theoretical framework of the COPE program for mothers of critically ill children: An integrative model of young children's post-hospital adjustment behaviors
    • DOI 10.1093/jpepsy/jsl033
    • Melnyk, B. M., Crean, H. F., Feinstein, N. F., Fairbanks, E., & Alpert-Gillis, L. J. (2007). Testing the theoretical framework of the COPE Program for mothers of critically ill children: An integrative model of young children's post-hospital adjustment behaviors. Journal of Pediatric Psychology, 32, 463-474. (Pubitemid 47355681)
    • (2007) Journal of Pediatric Psychology , vol.32 , Issue.4 , pp. 463-474
    • Melnyk, B.M.1    Crean, H.F.2    Feinstein, N.F.3    Fairbanks, E.4    Alpert-Gillis, L.J.5
  • 29
    • 4344672597 scopus 로고    scopus 로고
    • Creating opportunities for parent empowerment: Program effects on the mental health/coping outcomes of critically ill young children and their mothers
    • Melnyk, B. M., Alpert-Gillis, L., Feinstein, N. F., Crean, H. F., Johnson, J., Fairbanks, E., . . . Corbo-Richert, B. (2004). Creating opportunities for parent empowerment: Program effects on the mental health/coping outcomes of critically ill young children and their mothers. Pediatrics, 113, 587-607.
    • (2004) Pediatrics , vol.113 , pp. 587-607
    • Melnyk, B.M.1    Alpert-Gillis, L.2    Feinstein, N.F.3    Crean, H.F.4    Johnson, J.5    Fairbanks, E.6    Corbo-Richert, B.7
  • 31
    • 38849138656 scopus 로고    scopus 로고
    • Different priorities: A comparison of parents' and health professionals' perceptions of quality of life in quadriplegic cerebral palsy
    • DOI 10.1136/adc.2006.115055
    • Morow, A. M., Quinz, S., Loughlin, E. V. O., & Craig, J. C. (2008). Different priorities: A comparison of parents' and health professionals' perceptions of quality of life in quadriplegic cerebral palsy. Archives of Disease Childhood, 93, 119-125. (Pubitemid 351204751)
    • (2008) Archives of Disease in Childhood , vol.93 , Issue.2 , pp. 119-125
    • Morrow, A.M.1    Quine, S.2    Loughlin, E.V.O.3    Craig, J.C.4
  • 32
    • 33846875890 scopus 로고    scopus 로고
    • The health of caregivers for children with disabilities: Caregiver perspectives
    • DOI 10.1111/j.1365-2214.2006.00644.x
    • Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2007). The health of caregivers for children with disabilities: Caregiver perspectives. Child Care Health and Development, 33, 180-187. (Pubitemid 46218442)
    • (2007) Child: Care, Health and Development , vol.33 , Issue.2 , pp. 180-187
    • Murphy, N.A.1    Christian, B.2    Caplin, D.A.3    Young, P.C.4
  • 33
    • 4544246953 scopus 로고    scopus 로고
    • Stress levels experienced by the parents of enterally fed children
    • DOI 10.1111/j.1365-2214.2004.00437.x
    • Pedersen, S. D., Parson, H. G., & Dewey, D. (2004). Stress levels experienced by the parents of enterally fed children. Child Care Health and Development, 30, 507-513. (Pubitemid 39255783)
    • (2004) Child: Care, Health and Development , vol.30 , Issue.5 , pp. 507-513
    • Pedersen, S.D.1    Parsons, H.G.2    Dewey, D.3
  • 34
    • 44949168308 scopus 로고    scopus 로고
    • Asymptotic and resampling strategies for assessing and comparing indirect effects in multiple mediator models
    • Preacher, K. J., & Hayes, A. (2008). Asymptotic and resampling strategies for assessing and comparing indirect effects in multiple mediator models. Behaviour Research Methods, 40, 879-891.
    • (2008) Behaviour Research Methods , vol.40 , pp. 879-891
    • Preacher, K.J.1    Hayes, A.2
  • 37
    • 84875514169 scopus 로고    scopus 로고
    • Mediation in experimental and nonexperimental studies: New procedures and recommendations
    • Shrout, P. E., & Bolger, N. (2002). Mediation in experimental and nonexperimental studies: New procedures and recommendations. Psychological Methods, 7, 422-445.
    • (2002) Psychological Methods , vol.7 , pp. 422-445
    • Shrout, P.E.1    Bolger, N.2
  • 40
    • 33645104247 scopus 로고    scopus 로고
    • Perceived stress, perceived social support, and wellbeing among mothers of school-aged children with cerebral palsy
    • Skok, A., Harvey, D., & Reddihough, D. (2006). Perceived stress, perceived social support, and wellbeing among mothers of school-aged children with cerebral palsy. Journal of Intellectual & Developmental Disability, 31, 53-57.
    • (2006) Journal of Intellectual & Developmental Disability , vol.31 , pp. 53-57
    • Skok, A.1    Harvey, D.2    Reddihough, D.3
  • 41
    • 65249139351 scopus 로고    scopus 로고
    • Predictors of a health-promoting lifestyle and behaviours among low-income African American mothers and white mothers of chronically ill children
    • Tucker, C. M., Butler, A. M., Loyuk, I. S., Desmond, F. F., & Surrency, S. L. (2009). Predictors of a health-promoting lifestyle and behaviours among low-income African American mothers and white mothers of chronically ill children. Journal of the National Medical Association, 101, 103-110.
    • (2009) Journal of the National Medical Association , vol.101 , pp. 103-110
    • Tucker, C.M.1    Butler, A.M.2    Loyuk, I.S.3    Desmond, F.F.4    Surrency, S.L.5
  • 42
    • 0344738937 scopus 로고    scopus 로고
    • Overview of considerations for the pediatric patient receiving home parenteral and enteral nutrition
    • Vanderhoof, J. A., & Young, R. J. (2008). Overview of considerations for the pediatric patient receiving home parenteral and enteral nutrition. Nutrition in Clinical Practice, 18, 221-226.
    • (2008) Nutrition in Clinical Practice , vol.18 , pp. 221-226
    • Vanderhoof, J.A.1    Young, R.J.2
  • 43
    • 0032444053 scopus 로고    scopus 로고
    • Stress doping and perceptions of child behaviour in parents of preschoolers with cerebral palsy
    • Wanamaker, C. E., & Glenwick, D. S. (1998). Stress doping and perceptions of child behaviour in parents of preschoolers with cerebral palsy. Rehabilitation Psychology, 43, 207-213.
    • (1998) Rehabilitation Psychology , vol.43 , pp. 207-213
    • Wanamaker, C.E.1    Glenwick, D.S.2
  • 44
    • 0346339773 scopus 로고    scopus 로고
    • Technology-dependent children and their families: A review
    • Wang, K. W., & Barnard, A. (2004). Technology-dependent children and their families: A review. Journal of Advanced Nursing, 45, 36-46.
    • (2004) Journal of Advanced Nursing , vol.45 , pp. 36-46
    • Wang, K.W.1    Barnard, A.2
  • 45
    • 41049098989 scopus 로고    scopus 로고
    • Caregivers' experiences at home with a ventilator-dependent child
    • Wang, K. W., & Barnard, A. (2008). Caregivers' experiences at home with a ventilator-dependent child. Qualitative Health Research, 18, 501-518.
    • (2008) Qualitative Health Research , vol.18 , pp. 501-518
    • Wang, K.W.1    Barnard, A.2
  • 46
    • 14944386381 scopus 로고    scopus 로고
    • Development of a condition-specific measure of quality of life for children with cerebral palsy: Empirical thematic data reported by parents and children
    • DOI 10.1111/j.1365-2214.2004.00476.x
    • Waters, E., Maher, E., Salmon, L., Reddinhought, D., & Boyd, R. (2004). Development of a condition-specific measure of quality of life for children with cerebral palsy: Empirical thematic data reported by parents and children. Child Care Health and Development, 31, 127-135. (Pubitemid 40361040)
    • (2005) Child: Care, Health and Development , vol.31 , Issue.2 , pp. 127-135
    • Waters, E.1    Maher, E.2    Salmon, L.3    Reddihough, D.4    Boyd, R.5


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