메뉴 건너뛰기




Volumn 18, Issue 4, 2008, Pages 501-508

Caregivers' experiences at home with a ventilator-dependent child

Author keywords

Carers; Nurse; Pediatric home ventilation; Phenomenography; Qualitative research; Technology

Indexed keywords

ADOLESCENT; ARTICLE; ARTIFICIAL VENTILATION; CAREGIVER; CHILD; CHILD CARE; CLINICAL ARTICLE; CLINICAL PRACTICE; CONTROLLED STUDY; EXPERIENCE; HEALTH CARE COST; HEALTH CARE DELIVERY; HEALTH EDUCATION; HOME CARE; HOSPITALIZATION; HUMAN; INTERVIEW; OUTCOME ASSESSMENT; PERSONAL EXPERIENCE; POLICY; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; QUALITY OF LIFE; SOCIAL SUPPORT; TECHNOLOGY; VENTILATOR;

EID: 41049098989     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732307306185     Document Type: Article
Times cited : (58)

References (49)
  • 1
    • 84878136522 scopus 로고    scopus 로고
    • Principles and practice in phenomenographic research
    • (November). In Centre for Educational Development and Academic Methods, The Australian National University, Canberra. Retrieved June 27, 2007, from
    • Åkerlind, G.S. (2002, November). Principles and practice in phenomenographic research. In Proceedings of the International Symposium on Current Issues in Phenomenography, Centre for Educational Development and Academic Methods, The Australian National University, Canberra. Retrieved June 27, 2007, from http://www.anu.edu.au/cedam/ilearn/ symposium/Akerlind%202%20.doc
    • (2002) Proceedings of the International Symposium on Current Issues in Phenomenography
    • Åkerlind, G.S.1
  • 4
    • 0033088985 scopus 로고    scopus 로고
    • Phenomenography: A qualitative research approach for exploring understanding in health care
    • Barnard, A., McCosker, H., & Gerber, R. (1999). Phenomenography: A qualitative research approach for exploring understanding in health care. Qualitative Health Research, 9, 212-226.
    • (1999) Qualitative Health Research , vol.9 , pp. 212-226
    • Barnard, A.1    McCosker, H.2    Gerber, R.3
  • 6
    • 0036729375 scopus 로고    scopus 로고
    • Respite care for technology-dependent children and their families
    • Beale, H. (2002). Respite care for technology-dependent children and their families. Pediatric Nursing, 14, 18-19.
    • (2002) Pediatric Nursing , vol.14 , pp. 18-19
    • Beale, H.1
  • 7
    • 0033643311 scopus 로고    scopus 로고
    • Implications of decreasing surgical lengths of stay
    • Board, N., & Caplan, G. (2000). Implications of decreasing surgical lengths of stay. Australian Health Review, 23, 62-76.
    • (2000) Australian Health Review , vol.23 , pp. 62-76
    • Board, N.1    Caplan, G.2
  • 8
    • 0033660388 scopus 로고    scopus 로고
    • Casemix and rehabilitation: Evaluation of an early discharge scheme
    • Brandis, S. (2000). Casemix and rehabilitation: Evaluation of an early discharge scheme. Australian Health Review, 23, 154-161.
    • (2000) Australian Health Review , vol.23 , pp. 154-161
    • Brandis, S.1
  • 9
    • 41049099248 scopus 로고    scopus 로고
    • Maintaining a childhood: A phenomenologic study of family experiences providing home care for chronically ill, technology-dependent children
    • Unpublished doctoral dissertation, University of Washington, Seattle, Washington
    • Cavanagh, E.E. (1999). Maintaining a childhood: A phenomenologic study of family experiences providing home care for chronically ill, technology-dependent children. Unpublished doctoral dissertation, University of Washington, Seattle, Washington.
    • (1999)
    • Cavanagh, E.E.1
  • 10
    • 0039837258 scopus 로고
    • Crossing lines: Parents experiences with paediatric nurses in the home
    • Coffman, S. (1995). Crossing lines: Parents experiences with paediatric nurses in the home. Rehabilitation Nursing Research, 4, 136-143.
    • (1995) Rehabilitation Nursing Research , vol.4 , pp. 136-143
    • Coffman, S.1
  • 11
    • 0031065098 scopus 로고    scopus 로고
    • Home-care nurses as strangers in the family
    • Coffman, S. (1997). Home-care nurses as strangers in the family. Western Journal of Nursing Research, 19, 82-96.
    • (1997) Western Journal of Nursing Research , vol.19 , pp. 82-96
    • Coffman, S.1
  • 12
    • 0029201778 scopus 로고
    • Ethical issues in discharge planning for vulnerable infants and children
    • Cohen, M. (1995). Ethical issues in discharge planning for vulnerable infants and children. Ethics and Behavior, 5, 1-13.
    • (1995) Ethics and Behavior , vol.5 , pp. 1-13
    • Cohen, M.1
  • 13
    • 0033194365 scopus 로고    scopus 로고
    • The technology-dependent child and the socially marginalized family: A provisional framework
    • Cohen, M.H. (1999). The technology-dependent child and the socially marginalized family: A provisional framework. Qualitative Health Research, 9, 654-668.
    • (1999) Qualitative Health Research , vol.9 , pp. 654-668
    • Cohen, M.H.1
  • 14
    • 0032106241 scopus 로고    scopus 로고
    • Recreating life: Toward a theory of relationship development in acute home care
    • Conger, C.O., & Marshall, E.S. (1998). Recreating life: Toward a theory of relationship development in acute home care. Qualitative Health Research, 8, 526-546.
    • (1998) Qualitative Health Research , vol.8 , pp. 526-546
    • Conger, C.O.1    Marshall, E.S.2
  • 15
    • 41049100371 scopus 로고    scopus 로고
    • Using the analytical framework of a structure of awareness to establish validity and reliability in phenomenographic research
    • (November). In Centre for Educational Development and Academic Methods, The Australian National University, Canberra. Retrieved June 27, 2007, from
    • Cope, C. (2002, November). Using the analytical framework of a structure of awareness to establish validity and reliability in phenomenographic research. In Proceedings of the International Symposium on Current Issues in Phenomenography, Centre for Educational Development and Academic Methods, The Australian National University, Canberra. Retrieved June 27, 2007, from http://www.anu.edu.au/cedam/ilearn/ symposium/Cope.pdf
    • (2002) Proceedings of the International Symposium on Current Issues in Phenomenography
    • Cope, C.1
  • 19
    • 0028477891 scopus 로고
    • Impact on the family of children who are technology dependent and cared for in the home
    • Fleming, J., Challela, M., Eland, J., Hornick, R., Johnson, P., Martinson, I., et al. (1994). Impact on the family of children who are technology dependent and cared for in the home. Pediatric Nursing, 20, 379-388.
    • (1994) Pediatric Nursing , vol.20 , pp. 379-388
    • Fleming, J.1    Challela, M.2    Eland, J.3    Hornick, R.4    Johnson, P.5    Martinson, I.6
  • 20
    • 0028508743 scopus 로고
    • Home care: An emerging solution to the healthcare crisis
    • Fusco, R. (1994). Home care: An emerging solution to the healthcare crisis. Hospital Topics, 72, 32-36.
    • (1994) Hospital Topics , vol.72 , pp. 32-36
    • Fusco, R.1
  • 21
    • 0347054310 scopus 로고    scopus 로고
    • High-tech care: High skilled parents
    • Glendinning, C., & Kirk, S. (2000). High-tech care: High skilled parents. Paediatric Nursing, 12, 25-27.
    • (2000) Paediatric Nursing , vol.12 , pp. 25-27
    • Glendinning, C.1    Kirk, S.2
  • 22
    • 0347054307 scopus 로고
    • Pediatric home care: The labor contribution of informal system caregivers who forego earnings to care for ventilator-dependent children
    • Unpublished doctoral dissertation, University of Pennsylvania, Ann Arbor, Michigan
    • House, J.L. (1995). Pediatric home care: The labor contribution of informal system caregivers who forego earnings to care for ventilator-dependent children. Unpublished doctoral dissertation, University of Pennsylvania, Ann Arbor, Michigan.
    • (1995)
    • House, J.L.1
  • 23
    • 33645108742 scopus 로고    scopus 로고
    • Technological dependency- The experience of using home ventilator and long-term oxygen therapy: Patients and families perspective
    • Ingadóttir, S.T., & Jonsdottir, H. (2006). Technological dependency- The experience of using home ventilator and long-term oxygen therapy: Patients and families perspective. Scandinavian Journal of Caring Science, 20, 18-25.
    • (2006) Scandinavian Journal of Caring Science , vol.20 , pp. 18-25
    • Ingadóttir, S.T.1    Jonsdottir, H.2
  • 24
    • 0032012571 scopus 로고    scopus 로고
    • Families experiences of caring at home for a technology-dependent child: A review of the literature
    • Kirk, S. (1998). Families experiences of caring at home for a technology-dependent child: A review of the literature. Child: Care, Health and Development, 24, 101-114.
    • (1998) Child: Care, Health and Development , vol.24 , pp. 101-114
    • Kirk, S.1
  • 25
    • 0033409469 scopus 로고    scopus 로고
    • Caring for children with specialized health care needs in the community: The challenges for primary care
    • Kirk, S. (1999a). Caring for children with specialized health care needs in the community: The challenges for primary care. Health and Social Care in the Community, 7, 350-357.
    • (1999) Health and Social Care in the Community , vol.7 , pp. 350-357
    • Kirk, S.1
  • 26
    • 0041950054 scopus 로고    scopus 로고
    • Focus on childrens nursing. Caring for technology-dependent children at home
    • 390
    • Kirk, S. (1999b). Focus on childrens nursing. Caring for technology-dependent children at home. British Journal of Community Nursing, 4, 390, 392-394.
    • (1999) British Journal of Community Nursing , vol.4 , pp. 392-394
    • Kirk, S.1
  • 27
    • 2642547219 scopus 로고    scopus 로고
    • Developing services to support parents caring for a technology-dependent child at home
    • Kirk, S., & Glendinning, C. (2004). Developing services to support parents caring for a technology-dependent child at home. Child: Care, Health and Development, 30, 209-219.
    • (2004) Child: Care, Health and Development , vol.30 , pp. 209-219
    • Kirk, S.1    Glendinning, C.2
  • 28
    • 0027637921 scopus 로고
    • Clarifying roles and expectations in home care
    • Klug, R.M. (1993). Clarifying roles and expectations in home care. Pediatric Nursing, 19, 374-376.
    • (1993) Pediatric Nursing , vol.19 , pp. 374-376
    • Klug, R.M.1
  • 29
    • 0026524246 scopus 로고
    • Ethical aspects of pediatric home care
    • Lantos, J.D., & Kohrman, A.F. (1992). Ethical aspects of pediatric home care. Pediatrics, 89, 920-924.
    • (1992) Pediatrics , vol.89 , pp. 920-924
    • Lantos, J.D.1    Kohrman, A.F.2
  • 30
    • 0031880926 scopus 로고    scopus 로고
    • Hospital discharge of the high-risk neonate-Proposed guidelines: American Academy of Pediatrics, Committee on Fetus and Newborn
    • Lemons, J.A., Blackmon, L.R., Fanaroff, A.A., & MacDonald, H.M. (1998). Hospital discharge of the high-risk neonate-Proposed guidelines: American Academy of Pediatrics, Committee on Fetus and Newborn. Pediatrics, 102, 411-417.
    • (1998) Pediatrics , vol.102 , pp. 411-417
    • Lemons, J.A.1    Blackmon, L.R.2    Fanaroff, A.A.3    MacDonald, H.M.4
  • 31
    • 0000915112 scopus 로고
    • Phenomenography: Describing conceptions of the world around us
    • Marton, F. (1981). Phenomenography: Describing conceptions of the world around us. Instructional Science, 10, 177-200.
    • (1981) Instructional Science , vol.10 , pp. 177-200
    • Marton, F.1
  • 32
    • 84936526822 scopus 로고
    • Phenomenography: A research approach to investigating different understandings of reality
    • Marton, F. (1986). Phenomenography: A research approach to investigating different understandings of reality. Journal of Thought, 21, 28-49.
    • (1986) Journal of Thought , vol.21 , pp. 28-49
    • Marton, F.1
  • 33
    • 0002643745 scopus 로고
    • Phenomenography: Exploring different conceptions of reality
    • In D. Fetterman (Ed.) New York: Praeger
    • Marton, F. (1988). Phenomenography: Exploring different conceptions of reality. In D. Fetterman (Ed.), Qualitative approaches to evaluation in education: The silent revolution (pp. 176-205). New York: Praeger.
    • (1988) Qualitative Approaches to Evaluation in Education: The Silent Revolution , pp. 176-205
    • Marton, F.1
  • 36
    • 41049093519 scopus 로고    scopus 로고
    • Caring for medically fragile children at home: An analysis of parents experiences and an evaluation of the Family Choice Program
    • Unpublished masters thesis, University of Melbourne, Victoria, Australia
    • McDonald, T. (2002). Caring for medically fragile children at home: An analysis of parents experiences and an evaluation of the Family Choice Program Unpublished masters thesis, University of Melbourne, Victoria, Australia.
    • (2002)
    • McDonald, T.1
  • 37
    • 0034585521 scopus 로고    scopus 로고
    • Mothers and their disabled children: Refining the concept of normalization
    • Morse, J.M., Wilson, S., & Penrod, J. (2000). Mothers and their disabled children: Refining the concept of normalization. Health Care for Women International, 21, 659-676.
    • (2000) Health Care for Women International , vol.21 , pp. 659-676
    • Morse, J.M.1    Wilson, S.2    Penrod, J.3
  • 38
    • 0033155288 scopus 로고    scopus 로고
    • The experiences and views of parents who care for ventilator-dependent children
    • Noyes, J., Hartmann, H., Samuels, M., & Southall, D. (1999). The experiences and views of parents who care for ventilator-dependent children. Journal of Clinical Nursing, 8, 440-450.
    • (1999) Journal of Clinical Nursing , vol.8 , pp. 440-450
    • Noyes, J.1    Hartmann, H.2    Samuels, M.3    Southall, D.4
  • 39
    • 0036365689 scopus 로고    scopus 로고
    • Rearing the child who is technology dependent: Perceptions of parents and home care nurses
    • O Brien, M.E., & Wegner, C.B. (2002). Rearing the child who is technology dependent: Perceptions of parents and home care nurses. Journal for Specialists in Pediatric Nursing, 7, 7-15.
    • (2002) Journal for Specialists in Pediatric Nursing , vol.7 , pp. 7-15
    • O'Brien, M.E.1    Wegner, C.B.2
  • 40
    • 0035379551 scopus 로고    scopus 로고
    • Dilemmas in the provision of own-home respite support for parents of young children with complex health care needs: Evidence from an evaluation
    • Oslen, R., & Maslin-Prothero, P. (2001). Dilemmas in the provision of own-home respite support for parents of young children with complex health care needs: Evidence from an evaluation. Issues and Innovations in Nursing Practice, 34, 603-610.
    • (2001) Issues and Innovations in Nursing Practice , vol.34 , pp. 603-610
    • Oslen, R.1    Maslin-Prothero, P.2
  • 41
    • 0035115593 scopus 로고    scopus 로고
    • Supporting children with serious health care needs: Analyzing the costs and benefits
    • Roberts, G. (2001). Supporting children with serious health care needs: Analyzing the costs and benefits. Evaluation and the Health Professions, 24, 72-83.
    • (2001) Evaluation and the Health Professions , vol.24 , pp. 72-83
    • Roberts, G.1
  • 43
    • 41049096448 scopus 로고    scopus 로고
    • Are phenomenographic results reliable?
    • In G. DallAlba & B. Hasselgren (Eds.) Goteborg, Sweden: Acta Universitatis Gothoburgensis
    • Sandberg, J. (1996). Are phenomenographic results reliable? In G. DallAlba & B. Hasselgren (Eds.), Reflections on phenomenography: Toward a methodology? (pp. 129-140). Goteborg, Sweden: Acta Universitatis Gothoburgensis.
    • (1996) Reflections on Phenomenography: Toward a Methodology? , pp. 129-140
    • Sandberg, J.1
  • 45
    • 0033002156 scopus 로고    scopus 로고
    • Employment, child care, and mental health of mothers caring for children assisted by technology
    • Thyen, U., Kuhlthau, K., & Perrin, J.M. (1999). Employment, child care, and mental health of mothers caring for children assisted by technology. Pediatrics, 103, 1235-1242.
    • (1999) Pediatrics , vol.103 , pp. 1235-1242
    • Thyen, U.1    Kuhlthau, K.2    Perrin, J.M.3
  • 46
    • 0033410614 scopus 로고    scopus 로고
    • More than just a health issue: A review of current issues in the care of enterally-fed children living in the community
    • Townsley, R., & Robinson, C. (1999). More than just a health issue: A review of current issues in the care of enterally-fed children living in the community. Health and Social Care in the Community, 7, 216-224.
    • (1999) Health and Social Care in the Community , vol.7 , pp. 216-224
    • Townsley, R.1    Robinson, C.2
  • 48
    • 0346339773 scopus 로고    scopus 로고
    • Technology-dependent children and their families: A review
    • Wang, K.W.K., & Barnard, A. (2004). Technology-dependent children and their families: A review. Journal of Advanced Nursing, 45, 36-46.
    • (2004) Journal of Advanced Nursing , vol.45 , pp. 36-46
    • Wang, K.W.K.1    Barnard, A.2
  • 49
    • 33749216831 scopus 로고    scopus 로고
    • How mothering is accomplished under the unusual circumstance of caring for a technology-dependent infant at home
    • Unpublished doctoral dissertation, University of California, San Francisco, Ann Arbor, Michigan
    • Woody-Wood, L.J. (1996). How mothering is accomplished under the unusual circumstance of caring for a technology-dependent infant at home. Unpublished doctoral dissertation, University of California, San Francisco, Ann Arbor, Michigan.
    • (1996)
    • Woody-Wood, L.J.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.