A Swedish child-friendly pilot version of the EQ-5D instrument - The development process

European Journal of Public Health

Volumn 21, Issue 2, 2011, Pages 171-177

  Burström, Kristina ^a   Egmar, Ann Charlotte ^a,b   Lugnér, Anna ^c   Eriksson, Margareta ^d   Svartengren, Magnus ^a  

^a KAROLINSKA INSTITUTE   (Sweden)

^b Red Cross University College   (Sweden)

^c NATIONAL INSTITUTE FOR PUBLIC HEALTH AND THE ENVIRONMENT   (Netherlands)

^d SACHS CHILDREN S HOSPITAL   (Sweden)

Author keywords

child health; EQ 5D; health related quality of life; interview; Sweden

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; DISABILITY; FEMALE; HEALTH STATUS; HUMAN; LANGUAGE; MALE; PILOT STUDY; QUALITY OF LIFE; QUESTIONNAIRE; SICKNESS IMPACT PROFILE; SWEDEN; VALIDATION STUDY;

ADOLESCENT; ADULT; CHILD; DISABILITY EVALUATION; FEMALE; HEALTH STATUS; HUMANS; LANGUAGE; MALE; PILOT PROJECTS; QUALITY OF LIFE; QUESTIONNAIRES; SICKNESS IMPACT PROFILE; SWEDEN;

EID: 79951725162     PISSN: 11011262     EISSN: 1464360X     Source Type: Journal    
DOI: 10.1093/eurpub/ckq037     Document Type: Article

References (24)

1. Rosenbaum PJ, Saigal S. Measuring health-related quality of life in pediatric populations: conceptual issues. In: Spilker B, editor. Quality of life and pharmacoeconomics in clinical trials. 2nd edn. Philadelphia: Lippincott-Raven Publishers, 1996: 785-91.
2. Landgraf JM, Abetz LN. Measuring health outcomes in pediatric populations: issues of psychometrics and application. In: Spilker B, editor. Quality of life and pharmacoeconomics in clinical trials. 2nd edn. Philadelphia: Lippincott-Raven Publishers, 1996: 793-802.
3. Theunissen NC, Vogels TG, Koopman HM, et al. The proxy problem: child report versus parent report in health-related quality of life research. Qual Life Res 1998;7:387-97. (Pubitemid 28343448)
4. Eiser C, Morse R. Can parents rate their child's health-related quality of life? Results from a systematic review. Qual Life Res 2001;10:347-57. (Pubitemid 33079013)
5. Pickard AS, Knight SJ. Proxy evaluation of health-related quality of life. A conceptual framework for understanding multiple proxy perspectives. Med Care 2005;43:493-9. (Pubitemid 40694611)
6. Olson LM, Radecki L, Frintner M, et al. At what age can children report dependably on their Asthma Health status? Pediatrics 2007;119:93-102.
7. Koot HM, Wallander JL, editors. Quality of life in child and adolescent illness: concepts, methods, and findings. Hove: Brunner-Routledge, 2001.
8. Petrou S. Methodological issues raised by preference-based approaches to measuring the health status of children. Health Econ 2003;12:697-702. (Pubitemid 37045311)
9. Matza LS, Swensen AR, Flood EM, et al. Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value Health 2004;7:79-92. (Pubitemid 38186287)
10. Matza LS, Secnik K, Rentz AM, et al. Assessment of health state utilities for attention-decifit/hyperactivity disorder in children using parent proxy report. Qual Life Res 2005;14:735-47. (Pubitemid 40576859)
11. Secnik K, Matza LS, Cottrell S, et al. Health state utilities for childhood attention decifit/hyperactivity disorder based on parent preferences in the United Kingdom. Med Decis Making 2005;25:56-70. (Pubitemid 40139884)
12. Rabin R, de Charro F. EQ-5D: a measure of health status from the EuroQol Group. Ann Med 2001;33:337-43. (Pubitemid 32675374)
13. Roset M, Badia X, Benavides A, Herdman M. The validity of the EQ-5D in children with asthma. In: Badia X, editor. Proceedings of the 16th Plenary Meeting of the EuroQol Group; 1999 Sept. Barcelona: Catalan Institute of Public Health, 2000. http://www.euroqol.org (date last accessed, 2 June 2009).
14. Stolk EA, Busschbach J, Vogels T. Performance of the EuroQol in children with imperforate anus. Qual Life Res 2000;9:29-38. (Pubitemid 30670647)
15. Hennessy S, Kind P. Measuring health status in children: developing and testing a child-friendly version of EQ-5D. In: Kind P, Macran S, editors. Proceedings of the 19th Plenary Meeting of the EuroQol Group; 2002 Sept 13-14. York: University of York, Centre for Health Economics, 2003: 291-310.
16. Epps H, Ginelly L, Utley M, et al. Is hydrotherapy cost-effective? A randomised controlled trial of combined hydrotherapy programmes compared with physiotherapy land techniques in children with juvenile idiopathic arthritis. Health Technol Assess 2005;9, iii-iv, ix-x, 1-59.
17. Matza LS, Secnik K, Mannix S, Sallee RF. Parent-proxy EQ-5D ratings of children with attention-decifit hyperactivity disorders in the US and the UK. Pharmacoeconomics 2005;23:777-90. (Pubitemid 41420425)
18. Burström K, Johannesson M, Rehnberg C. Deteriorating health status in Stockholm 1998-2002: results from repeated population surveys using the EQ-5D. Qual Life Res 2007;16:1547-53. (Pubitemid 47561724)
19. Egmar A-C, Burström K, Svartengren M. Hälsorelaterad livskvalitet. I: Miljöhälsorapport 2005. (Health-related quality of life. In: Environmental Health Report 2005). Stockholm: National Board of Health and Welfare, Sweden, 2005: http://www.socialstyrelsen.se/Publicerat/2005/8651/ 2005-111-1.htm. (In Swedish) Extended summary: http://www.socialstyrelsen.se/ publikationer2005/2005-111-3.htm. (In English) (date last accessed, 2 June 2009).
20. Burström K, Svartengren M, Egmar A-C. Testing a Swedish child-friendly pilot version of the EQ-5D instrumentintial results. Eur J Public Health 2010, DOI 10.1093/eurpub/ckq042 (accepted for publication).
21. EuroQol Group. Translation guidelines, 2003. Rotterdam: EuroQol Group. http://www.euroqol.org. (date last accessed, 12 December 2007).
22. Krueger RA. Developing questions for focus groups. Focus groups Kit 3. California: Sage Publications, Thousands Oaks, 1998.
23. Wille N, Badia X, Bonsel G, et al. Development of the EQ-5D-Y: a childfriendly version of the EQ-5D. Qual Life Res 2010, DOI 10.1007/s11136-010- 9648-y (accepted for publication).
24. Ravens-Sieberer U, Wille N, Badia X, et al. Feasability, reliability, and validity of the EQ-5D-Y: results from multinational study. Qual Life Res 2010, DOI 10.1007/s11136-010-9649-x (accepted for publication).