Use of role model stories to overcome barriers to hospice among African Americans

Journal of Palliative Medicine

Volumn 14, Issue 2, 2011, Pages 161-168

  Enguidanos, Susan ^a,b   Kogan, Alexis Coulourides ^a   Lorenz, Karl ^c   Taylor, George ^b  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^b Partners in Care Foundation   (United States)

^c VA GREATER LOS ANGELES HEALTHCARE SYSTEM   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AFRICAN AMERICAN; AGED; ARTICLE; ATTITUDE TO HEALTH; FEMALE; HOSPICE; HOSPICE CARE; HOSPICE PATIENT; HUMAN; MALE; SELF CONCEPT;

AFRICAN AMERICANS; AGED; AGED, 80 AND OVER; DATA COLLECTION; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SERVICES ACCESSIBILITY; HOSPICE CARE; HUMANS; LOS ANGELES; MALE; MIDDLE AGED; MODELS, THEORETICAL; PAMPHLETS;

EID: 79951685099     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2010.0380     Document Type: Article

References (36)

1. National Hospice and Palliative Care Organization: NHPCO Facts and Figures: Hospice Care in America. 2009:1-15. www.nhpco.org/files/public/ Statistics-Research/NHPCO- facts-and-figures.pdf (Last accessed December 21, 2010).
2. Enguidanos SM, Yip J, Wilber K: Ethnic variation in site of death among Medicaid/Medicare dually eligible older adults. J Am Geriatr Soc 2005;53:1411-1416. (Pubitemid 41602490)
3. Givens JL, Tjia J, Zhou C, Emanuel E, Ash AS: Racial and ethnic differences in hospice use among patients with heart failure. Arch Intern Med 2010;170:427-432.
4. Kwak J, Haley WE, Chiriboga DA: Racial differences in hospice use and in-hospital death among Medicare and Medicaid dual-eligible nursing home residents. Gerontologist 2008;48:32-41. (Pubitemid 351503232)
5. Lackan NA, Eschbach K, Stimpson JP, Freeman JL, Goodwin JS: Ethnic differences in in-hospital place of death among older adults in California: Effects of individual and contextual characteristics and medical resource supply. Med Care 2009;47:138-145.
6. Born W, Greiner KA, Sylvia E, Butler J, Ahluwalia JS: Knowledge, attitudes and beliefs about end-of-life care among inner-city African Americans and Latino/Hispanic Americans. J Palliat Med 2004;7:247-256. (Pubitemid 38525764)
7. Chung K, Essex EL, Samson L: Does Caregiver knowledge matter for hospice enrollment and beyond? Pilot study of minority hospice patients. Am J Hosp Palliat Med 2009;26: 165-171.
8. Washington KT, Bickel-Swenson D, Stephens N: Barriers to hospice use among African Americans: A systematic review. Health Soc Work 2008;33:267-274.
9. McKinley ED, Garrett JM, Evans AT, Danis M. Differences in end-of-life decision making among black and white ambulatory cancer patients. J Gen Intern Med 1996;11:651-656. (Pubitemid 26425481)
10. Bullock K, McGraw SA, Blank K, Bradley EH. What matters to older African Americans facing end-of-life decisions? A focus group study. Journal of Social Work in End-of-Life and Palliative Care. 2005;1(3):3-19.
11. Jenkins C, Lapelle N, Zapka JG, Kurent JE. End-of-Life care and African Americans: Voices from the community. J Palliat Med 2005;8:585-592. (Pubitemid 40917852)
12. Lorenz KA, Ettner SL, Rosenfeld KE, Carlisle D, Liu H, Asch SM: accommodating ethnic diversity: A study of California hospice programs. Med Care 2004;42:871-874. (Pubitemid 39456918)
13. Yancu CN, Farmer DF, Leahman D: Barriers to hospice use and palliative care services use by African American adults. Am J Hosp Palliat Med 2010;27:248-253.
14. Johnson KS, Kuchibhatla M, Tulsky JA: Racial Differences in self-reported exposure to information about hospice care. J Palliat Med 2009;10:921-927.
15. Rhodes RL, Teno JM, Welch LC: Access to hospice for African Americans: Are they informed about the option of hospice? J Palliat Med 2006;9:268-272.
16. Berkley-Patton J, Goggin K, Liston R, Bradley-Ewing A, Neville S: Adapting effective narrative-based HIV-prevention interventins to increase minorities' engagement in HIV/ AIDS services. Health Commun 2009;24:199-09.
17. Corby NH, Enguidanos SM, Kay LS: Development and use of role-model stories in a community-level risk-reduction intervention. Public Health Rep 1996;111(Suppl 1):54-58. (Pubitemid 26330539)
18. King W, Nu'Man J, Fuller TR, Brown M, Smith S, Howell AV, Little S, Patrick P, Glover L: The diffusion of a community-level HIV intervention for women: lessons learned and best practices. J Womens Health (Larchmt) 2008;17:1055-1066.
19. Terry MA, Liebman J, Person B, Bond L, Dillard-Smith C, Tunstall C: The Woman and Infants Demonstration Project: An integrated approach to AIDS prevention and research. AIDS Educ Prev 1999;11:107-121. (Pubitemid 29184980)
20. Hou SI, Fernandez ME, Parcel GS: Development of a cervical cancer educational program for Chinese women using intervention mapping. Health Promot Pract 2004;5:80-87.
21. Whittaker R, Maddison R, McRobbie H, Bullen C, Denny S, Dorey E, Ellis-Pegler M, van Rooyen J, Rodgers A: A multimedia mobile phone-based youth smoking cessation intervention: findings from content development and piloting studies. J Med Internet Res 2008;10:e49.
22. Reininger BM, Barroso CS, Mitchell-Bennett L, Cantu E, Fernandez ME, Gonzalez DA, Chavez M, Freeberg D, McAlister A: Process evaluation and participatory methods in an obesity-prevention media campaign for Mexican Americans. Health Promot Pract Health Promot Pract 2010;11:347-357.
23. Corby NH, Wolitski RJ: Condom use with main and other sex partners among high-risk women: Intervention outcomes and correlates of reduced risk. Drug Soc (New York) 1996;9:75-96. (Pubitemid 26424033)
24. Suarez L, Nichols DC, Brady CA: Use of peer role models to increase Pap smear and mammogram screening in Mexican- American and black women. Am J Prev Med 1993;9:290-296. (Pubitemid 23320068)
25. Bandura A: Self-efficacy: Toward a unifying theory of behavioral change. Psychol Rev 1977;84:191-215.
26. Ajzen I, Fishbein M: Understanding Attitudes and Predicting Social Behavior. Englewood Cliffs, NJ: Prentice-Hall International Inc., 1980.
27. Ogle KS, Mavis B, Wyatt GK: Physicians and hospice care: Attitudes, knowledge, and referrals. J PalliatMed 2002;5:85-92. (Pubitemid 34111579)
28. Ludke RL, Smucker DR: Racial Differences in the willingness to use hospice services. J Palliat Med 2007;10:1329-1337. (Pubitemid 350308637)
29. Brickner L, Scannell K, Marguet S, Ackerson L: Barriers to hopice care and referrals: Survey of physicians' knowledge, attitudes, and perceptions in a health maintenance organization. J Palliat Med 2004;7:411-418. (Pubitemid 38980576)
30. McGorty EK, Bornstein BH: Barriers to physicians' decisions to discuss hospice: Insights gained from the United States hospice model. J Eval Clin Pract 2003;9:363-372. (Pubitemid 36999142)
31. Huskamp HA, Keating NL, Malin JL, Zaslavsky AM, Weeks JC, Earle CC, Teno JM, Virnig BA, Kahn KL, He Y, Ayanian JZ: Discussions with physicians about hospice among patients with metastatic lung cancer. Arch Intern Med 2009;169:954-962.
32. Browning A: Empowering family members in end-of-life care decision making in the intensive care unit. Dimens Crit Care Nurs 2008;28:18-23.
33. Wright AA, Zhang B, Ray A, Mack JW, Trice E, Balboni T, Mitchell SL, Jackson VA, Block SD, Maciejewski PK, Prigerson HG: Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 2008;300:1665-1673.
34. Zhang B, Wright AA, Huskamp HA, Nilsson ME, Maciejewski ML, Earle CC, Block SD, Maciejewski PK, Prigerson HG: Health care costs in the last week of life: Associations with end-of-life conversations. Arch Intern Med 2009;169: 480-488.
35. Connor SR, Pyenson B, Fitch K, Iwasaki K: Comparing hospice and nonhospice patient survival among patients who die within a three-year window. J Pain Symptom Manage 2007;33:238-246. (Pubitemid 46349540)
36. Teno JM, Shu JE, Casarrett D, Spence C, Rhodes R, Connor S: Timing of referral to hospice and quality of care: Length of stay and bereaved family members' perceptions of the timing of hospice referral. J Pain Symptom Manage 2007;34:120-125. (Pubitemid 47096785)