Barriers to hospice use and Palliative care services use by African American adults

American Journal of Hospice and Palliative Medicine

Volumn 27, Issue 4, 2010, Pages 248-253

  Yancu, Cecile N ^a   Farmer, Deborah F ^a   Leahman, Dee ^b  

^a WINSTON SALEM STATE UNIVERSITY   (United States)

^b Hospice and Palliative CareCenter ^*  (United States)

Author keywords

Cultural values; End of life care planning

Indexed keywords

ADOLESCENT; ADULT; AFRICAN AMERICAN; AGED; ARTICLE; ATTITUDE TO DEATH; CROSS-SECTIONAL STUDY; ETHNOLOGY; FEMALE; HOSPICE; HUMAN; LIVING WILL; MALE; MIDDLE AGED; PALLIATIVE THERAPY; PATIENT ATTITUDE; UNITED STATES; UTILIZATION REVIEW; UTILIZATION;

ADOLESCENT; ADULT; ADVANCE DIRECTIVES; AFRICAN AMERICANS; AGED; ATTITUDE TO DEATH; CROSS-SECTIONAL STUDIES; FEMALE; HOSPICES; HUMANS; MALE; MIDDLE AGED; NORTH CAROLINA; PALLIATIVE CARE; PATIENT ACCEPTANCE OF HEALTH CARE;

EID: 77953585279     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909109349942     Document Type: Article

References (25)

1. HFCA Home Page. What is hospice? Hospice Foundation of America Web site. www.hospicefoundation.org. Accessed May 1, 2009.
2. Jennings B., Ryndes T., D'Onofrio C., Baily MA Access to Hospice Care: Expanding Boundaries, Overcoming Barriers. Hastings Center Report, Special Supplement. Garrison, NY: The Hastings Center; 2003.
3. O'Mahoney S., McHenry J., Snow D., Cassin C., Schumacher D., Selwyn PA A review of barriers to utilization of the Medicare Hospice Benefits in urban populations and strategies for enhanced access. J Urban Health. 2008;85(2):281-290.
4. Connor SR Development of hospice and palliative care in the United States. Omega. 2007-2008;56(1):89-99.
5. Stein GI Improving our care at life's end: making a difference. Health Soc Work. 2004;29(1):77-79.
6. Casarett D., van Ness PH, O'Leary JR, Fried TR Are patient preferences for life-sustaining treatment really a barrier to hospice enrollment for older adults with serious illness? J Am Geriatric Soc. 2006;54(3):472-478.
7. Taxis JC Attitudes, values, and questions of African Americans regarding participation in hospice programs. J Hosp Palliat Nurs. 2006;8(2):77-85.
8. Crawley L., Payne R., Bolden J.,et al.Palliative and end-of-life care in the African American community. JAMA. 2000;284(19): 2518-2521.
9. Kagawa-Singer M., Blackhall LJ Negotiating cross-cultural issues at the end of life: "you got to go where he lives". JAMA. 2001;286(23):2993-3001.
10. Winston CA, Leshner P., Kramer J., Allen G. Overcoming barriers to access and utilization of hospice and palliative care services in African-American communities. Omega. 2005;50(2): 151-163.
11. Connor SR, Elwert F., Spence C., Christakis NA Geographic variations in hospice use in the United States. J Pain Symptom Manage. 2007;34(3):277-285.
12. Johnson KS, Kuchibhatla M., Tanis D., Tulsky JA Racial differences in hospice revocation to pursue aggressive care. Arch Intern Med. 2008;168(2):218-224.
13. Iwamoto RR Cultural influences on quality of life. Qual Life Nurs Chall. 1994;3(4):68-73.
14. Blake WM, Darling CA Quality of life: perceptions of African Americans. West J Black Stud. 2000;30(3):411-427.
15. Greiner KA, Perera S., Ahluwalia JS Hospice usage by minorities in the last year of life: results from the national mortality follow-back survey. J Am Geriatric Soc. 2003;51(7):970-978.
16. Jenkins C., Lapelle N., Zapka JG, Kurent JE End-of-life care and African Americans: voices from the community. J Palliat Med. 2005;8(3):585-592.
17. Searight HR, Gafford J. Cultural diversity at the end of life: issues and guidelines for family physicians. Am Fam Physician. 2005;71(3):515-522.
18. Teno JM, Gruneir A., Schwartz Z., Nanda A., Wetle T. Association between advanced directives and quality of end-of-life care: a national study. J Am Geriatr Soc. 2007;55(2):189-194.
19. Reese DJ, Ahern RE, Nair S., O'Faire JD, Warren C. Hospice access and use by African Americans: addressing cultural and institutional barriers through participatory action research. Soc Work. 1999;44(6):549-559.
20. Johnson CB, Slaninka SC Barriers to accessing hospice services before a late terminal stage. Death Stud. 1999;23(3):225-238.
21. Fishman J., O'Dwyer P., Lu HL, Henderson H., Asch DA, Casarett DJ Race, treatment preferences, and hospice enrollement: eligibility criteria may exclude patients with the greatest needs for care. Cancer. 2009;115(3):689-697.
22. Cooper-Patrick L., Gallo JJ, Gonzales J.,et al.Race, gender, and partnership in the patient-physician relationship. JAMA. 1999; 282(6):583-589.
23. Woolf S. Society's choice: the tradeoff between efficacy and equity and the lives at stake. Am J Prev Med. 2004;27(1):49-56.
24. Cherlin E., Fried T., Prigerson HG, Schulman-Green D., Johnson-Hurzeler R., Bradley EH Communication between physicians and family caregivers about care at the end of life: when do discussions occur and what is said? J Palliat Med. 2005;8(6):1176-1185.
25. SPSS for Windows, Rel. 15. Chicago, IL: SPSS Inc; 2006.