-
1
-
-
0031761214
-
Revealed identity: a study of the process of genetic counselling
-
Armstrong D, Michie S, Marteau TM. Revealed identity: a study of the process of genetic counselling. Soc Sci Med 1998; 47: 1653-1658.
-
(1998)
Soc Sci Med
, vol.47
, pp. 1653-1658
-
-
Armstrong, D.1
Michie, S.2
Marteau, T.M.3
-
2
-
-
0032706588
-
Prenatal diagnosis and selective abortion: a challenge to practice and policy
-
Asch A. Prenatal diagnosis and selective abortion: a challenge to practice and policy. Am J Public Health 1999; 89: 1649-1657.
-
(1999)
Am J Public Health
, vol.89
, pp. 1649-1657
-
-
Asch, A.1
-
3
-
-
0034776464
-
Does indirect speech promote nondirective genetic counselling?
-
Benkendorf JL, Prince MB, Rose MA, de Fina A, Hamilton HE. Does indirect speech promote nondirective genetic counselling? Am J Med Genet 2001; 106: 199-207.
-
(2001)
Am J Med Genet
, vol.106
, pp. 199-207
-
-
Benkendorf, J.L.1
Prince, M.B.2
Rose, M.A.3
de Fina, A.4
Hamilton, H.E.5
-
4
-
-
0001359943
-
The process of genetic counselling: beyond nondirectiveness
-
In: Harper P, Clarke AJ, eds., Oxford: Bios Scientific Publishers, Chapter 13
-
Clarke A. The process of genetic counselling: beyond nondirectiveness. In: Harper P, Clarke AJ, eds. Genetics, Society and Clinical Practice. Oxford: Bios Scientific Publishers, 1997a; pp. 179-200 (Chapter 13).
-
(1997)
Genetics, Society and Clinical Practice
, pp. 179-200
-
-
Clarke, A.1
-
5
-
-
0004785579
-
Prenatal genetic screening: paradigms and perspectives
-
In: Harper P, Clarke AJ, eds., Oxford: Bios Scientific Publishers, Chapter 9
-
Clarke A. Prenatal genetic screening: paradigms and perspectives. In: Harper P, Clarke AJ, eds. Genetics, Society and Clinical Practice. Oxford: Bios Scientific Publishers, 1997b; pp. 119-140 (Chapter 9).
-
(1997)
Genetics, Society and Clinical Practice
, pp. 119-140
-
-
Clarke, A.1
-
6
-
-
0027945216
-
Report on the genetic testing of children
-
Clinical Genetics Society Working Party, and BSHG and CGS websites
-
Clinical Genetics Society Working Party. Report on the genetic testing of children. J Med Genet 1994; 31: 785-797 (and BSHG and CGS websites).
-
(1994)
J Med Genet
, vol.31
, pp. 785-797
-
-
-
7
-
-
0004147587
-
Backdoor to Eugenics
-
London: Routledge, Chapman and Hall
-
Duster T. Backdoor to Eugenics. London: Routledge, Chapman and Hall, 1990.
-
(1990)
-
-
Duster, T.1
-
8
-
-
0034012563
-
Shared decision making and non-directiveness in genetic counselling
-
Elwyn G, Gray J, Clarke A. Shared decision making and non-directiveness in genetic counselling. J Med Genet 2000; 37: 135-138.
-
(2000)
J Med Genet
, vol.37
, pp. 135-138
-
-
Elwyn, G.1
Gray, J.2
Clarke, A.3
-
9
-
-
0034666815
-
The psychological complexity of predictive testing for late onset neurogenetic diseases and hereditary cancers:implications for multidisciplinary counselling and genetic education
-
Evers-Kiebooms G, Welkenhuysen M, Claes E, Decruyenaere M, Denayer L. The psychological complexity of predictive testing for late onset neurogenetic diseases and hereditary cancers:implications for multidisciplinary counselling and genetic education. Soc Sci Med 2000; 51: 831-841.
-
(2000)
Soc Sci Med
, vol.51
, pp. 831-841
-
-
Evers-Kiebooms, G.1
Welkenhuysen, M.2
Claes, E.3
Decruyenaere, M.4
Denayer, L.5
-
10
-
-
33846915711
-
Risky relations. Family and Kinship in the Era of New Genetics
-
Oxford:Berg Publishers
-
Featherstone K, Bharadwaj A, Clarke A, Atkinson P. Risky relations. Family and Kinship in the Era of New Genetics. Oxford:Berg Publishers, 2006.
-
(2006)
-
-
Featherstone, K.1
Bharadwaj, A.2
Clarke, A.3
Atkinson, P.4
-
11
-
-
0141921347
-
To tell or not to tell: barriers and facilitators in family communication about genetic risk
-
Forrest K, Simpson SA, Wilson BJ, van Teijlingen ER, McKee L, Haites N, Matthews E. To tell or not to tell: barriers and facilitators in family communication about genetic risk. Clin Genet 2003; 64: 317-326.
-
(2003)
Clin Genet
, vol.64
, pp. 317-326
-
-
Forrest, K.1
Simpson, S.A.2
Wilson, B.J.3
van Teijlingen, E.R.4
McKee, L.5
Haites, N.6
Matthews, E.7
-
12
-
-
0032728475
-
Genetic testing considerations in breast cancer patients
-
France E, Gray J, Elwyn G, Tischkowitz M, Brain K, Sampson J, Anglim C, Clarke A, Parsons E, Sweetland H, Mansel R, Barrett-Lee P, Harper PS. Genetic testing considerations in breast cancer patients. J Genet Counsel 1999; 8: 289-299.
-
(1999)
J Genet Counsel
, vol.8
, pp. 289-299
-
-
France, E.1
Gray, J.2
Elwyn, G.3
Tischkowitz, M.4
Brain, K.5
Sampson, J.6
Anglim, C.7
Clarke, A.8
Parsons, E.9
Sweetland, H.10
Mansel, R.11
Barrett-Lee, P.12
Harper, P.S.13
-
13
-
-
0016105523
-
Genetic counselling
-
Fraser FC. Genetic counselling. Am J Hum Genet 1974; 26: 636-659.
-
(1974)
Am J Hum Genet
, vol.26
, pp. 636-659
-
-
Fraser, F.C.1
-
14
-
-
0037398070
-
Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information
-
Hallowell N, Foster C, Eeles R, Ardern-Jones A, Murday V, Watson M. Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information. J Med Ethics 2003; 29: 74-83.
-
(2003)
J Med Ethics
, vol.29
, pp. 74-83
-
-
Hallowell, N.1
Foster, C.2
Eeles, R.3
Ardern-Jones, A.4
Murday, V.5
Watson, M.6
-
15
-
-
0029803683
-
Naming of syndromes and unethical activities: the case of Hallervordern and Spatz
-
Harper P, Clarke AJ. Genetics, Society and Clinical Practice. Oxford: Bios Scientific Publishers, 1997; pp. 221-5
-
Harper PS. Naming of syndromes and unethical activities: the case of Hallervordern and Spatz. Lancet 1996; 348: 1224-1225. (See also Harper P, Clarke AJ. Genetics, Society and Clinical Practice. Oxford: Bios Scientific Publishers, 1997; pp. 221-5).
-
(1996)
Lancet
, vol.348
, pp. 1224-1225
-
-
Harper, P.S.1
-
16
-
-
0035500612
-
Ethical, legal and practical concerns about recontacting patients to inform them of new information: the case in medical genetics
-
Hunter A, et al. Ethical, legal and practical concerns about recontacting patients to inform them of new information: the case in medical genetics. Am J Med Genet 2001; 103: 265-276.
-
(2001)
Am J Med Genet
, vol.103
, pp. 265-276
-
-
Hunter, A.1
-
17
-
-
2442725198
-
Carrier testing of children for two X-linked diseases in a family based setting: a retrospective long term psychosocial evaluation
-
Jarvinen O, Aalto A-M, Lehesjoki A-E, Lindlof M, Soderling I, Uutela A, Kaariainen H. Carrier testing of children for two X-linked diseases in a family based setting: a retrospective long term psychosocial evaluation. J Med Genet 1999; 36: 615-620.
-
(1999)
J Med Genet
, vol.36
, pp. 615-620
-
-
Jarvinen, O.1
Aalto, A.-M.2
Lehesjoki, A.-E.3
Lindlof, M.4
Soderling, I.5
Uutela, A.6
Kaariainen, H.7
-
18
-
-
0035695066
-
To test or not to test: an ethical conflict with presymptomatic testing of individuals at 25% risk for Huntington's disorder
-
Lindblad AN. To test or not to test: an ethical conflict with presymptomatic testing of individuals at 25% risk for Huntington's disorder. Clin Genet 2001; 60: 442-446.
-
(2001)
Clin Genet
, vol.60
, pp. 442-446
-
-
Lindblad, A.N.1
-
19
-
-
0036723160
-
Predictive genetic testing and beyond: a theory of engagement
-
McAllister M. Predictive genetic testing and beyond: a theory of engagement. J Health Psychol 2002; 7: 491-508.
-
(2002)
J Health Psychol
, vol.7
, pp. 491-508
-
-
McAllister, M.1
-
20
-
-
3543146182
-
'Family matters': a conceptual framework for genetic testing in children
-
McConkie-Rosell A, Spiridigliozzi GA. 'Family matters': a conceptual framework for genetic testing in children. J Genet Counsel 2004; 13: 9-29.
-
(2004)
J Genet Counsel
, vol.13
, pp. 9-29
-
-
McConkie-Rosell, A.1
Spiridigliozzi, G.A.2
-
21
-
-
0042322502
-
Understanding why negative genetic test results sometimes fail to reassure
-
Michie S, Smith JA, Senior V, Mareau TM. Understanding why negative genetic test results sometimes fail to reassure. Am J Med Genet 2003; 119A: 340-347.
-
(2003)
Am J Med Genet
, vol.119 A.
, pp. 340-347
-
-
Michie, S.1
Smith, J.A.2
Senior, V.3
Mareau, T.M.4
-
22
-
-
0003858107
-
Murderous Science
-
Oxford: Oxford University Press
-
Müller-Hill B. Murderous Science. Oxford: Oxford University Press, 1988.
-
(1988)
-
-
Müller-Hill, B.1
-
23
-
-
0037398595
-
Concern for families and individuals in clinical genetics
-
Parker M, Lucassen A. Concern for families and individuals in clinical genetics. J Med Ethics 2003; 29: 70-73.
-
(2003)
J Med Ethics
, vol.29
, pp. 70-73
-
-
Parker, M.1
Lucassen, A.2
-
24
-
-
3242732814
-
Genetic information: a joint account?
-
Parker M, Lucassen A. Genetic information: a joint account? Brit Med J 2004; 329: 165-173.
-
(2004)
Brit Med J
, vol.329
, pp. 165-173
-
-
Parker, M.1
Lucassen, A.2
-
25
-
-
0033755360
-
Feasibility of a change in service delivery: the case of optional newborn screening for Duchenne muscular dystrophy
-
Parsons EP, Clarke AJ, Hood K, Bradley DM, Feasibility of a change in service delivery: the case of optional newborn screening for Duchenne muscular dystrophy. Community Genet 2000; 3(1): 17-23.
-
(2000)
Community Genet
, vol.3
, Issue.1
, pp. 17-23
-
-
Parsons, E.P.1
Clarke, A.J.2
Hood, K.3
Bradley, D.M.4
-
26
-
-
0028953428
-
Nonabandonment: a central obligation for physicians
-
Quill TE, Cassel CK. Nonabandonment: a central obligation for physicians. Ann Int Med 1995; 122: 368-374.
-
(1995)
Ann Int Med
, vol.122
, pp. 368-374
-
-
Quill, T.E.1
Cassel, C.K.2
-
27
-
-
17444378941
-
(Mis)alignments in counselling for Huntington's disease predictive testing: clients' responses to reflective frames
-
Sarangi S, Bennert K, Howell L, Clarke A, Harper P, Gray J. (Mis)alignments in counselling for Huntington's disease predictive testing: clients' responses to reflective frames. J Genet Counsel 2005; 14: 29-42.
-
(2005)
J Genet Counsel
, vol.14
, pp. 29-42
-
-
Sarangi, S.1
Bennert, K.2
Howell, L.3
Clarke, A.4
Harper, P.5
Gray, J.6
-
29
-
-
0033989352
-
Impact of genetic testing for Huntington disease on the family system
-
Sobel S, Cowan DB. Impact of genetic testing for Huntington disease on the family system. Am J Med Genet 2000; 90: 49-59.
-
(2000)
Am J Med Genet
, vol.90
, pp. 49-59
-
-
Sobel, S.1
Cowan, D.B.2
-
30
-
-
0032898318
-
Genetic privacy: orthodoxy or oxymoron?
-
Somerville A, English V. Genetic privacy: orthodoxy or oxymoron? J Med Ethics 1999; 25: 144-150.
-
(1999)
J Med Ethics
, vol.25
, pp. 144-150
-
-
Somerville, A.1
English, V.2
-
31
-
-
0346310718
-
Psychosocial genetic counselling in the post-nondirective era: a point of view
-
Weil J. Psychosocial genetic counselling in the post-nondirective era: a point of view. J Genet Counsel 2003; 12: 199-211.
-
(2003)
J Genet Counsel
, vol.12
, pp. 199-211
-
-
Weil, J.1
-
32
-
-
0036136966
-
Is non-directiveness possible within the context of antenatal screening and testing?
-
Williams C, Alderson P, Farsides B. Is non-directiveness possible within the context of antenatal screening and testing? Soc Sci Med 2002; 54: 339-347.
-
(2002)
Soc Sci Med
, vol.54
, pp. 339-347
-
-
Williams, C.1
Alderson, P.2
Farsides, B.3
-
33
-
-
0029257738
-
Nondirectiveness and genetic counseling
-
Wolff G, Jung C. Nondirectiveness and genetic counseling. J Genet Counsel 1995; 4: 3-25.
-
(1995)
J Genet Counsel
, vol.4
, pp. 3-25
-
-
Wolff, G.1
Jung, C.2
|