메뉴 건너뛰기




Volumn , Issue , 2007, Pages 427-434

Genetic Counselling

Author keywords

Clinical genetics and population genetic screening programmes; Ethos, goals and outcomes; Genetic counselling activity and profession; Genetic services privacy, confidentiality, disclosure; Predictive genetic testing

Indexed keywords


EID: 79751504462     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1002/9780470510544.ch58     Document Type: Chapter
Times cited : (5)

References (33)
  • 1
    • 0031761214 scopus 로고    scopus 로고
    • Revealed identity: a study of the process of genetic counselling
    • Armstrong D, Michie S, Marteau TM. Revealed identity: a study of the process of genetic counselling. Soc Sci Med 1998; 47: 1653-1658.
    • (1998) Soc Sci Med , vol.47 , pp. 1653-1658
    • Armstrong, D.1    Michie, S.2    Marteau, T.M.3
  • 2
    • 0032706588 scopus 로고    scopus 로고
    • Prenatal diagnosis and selective abortion: a challenge to practice and policy
    • Asch A. Prenatal diagnosis and selective abortion: a challenge to practice and policy. Am J Public Health 1999; 89: 1649-1657.
    • (1999) Am J Public Health , vol.89 , pp. 1649-1657
    • Asch, A.1
  • 4
    • 0001359943 scopus 로고    scopus 로고
    • The process of genetic counselling: beyond nondirectiveness
    • In: Harper P, Clarke AJ, eds., Oxford: Bios Scientific Publishers, Chapter 13
    • Clarke A. The process of genetic counselling: beyond nondirectiveness. In: Harper P, Clarke AJ, eds. Genetics, Society and Clinical Practice. Oxford: Bios Scientific Publishers, 1997a; pp. 179-200 (Chapter 13).
    • (1997) Genetics, Society and Clinical Practice , pp. 179-200
    • Clarke, A.1
  • 5
    • 0004785579 scopus 로고    scopus 로고
    • Prenatal genetic screening: paradigms and perspectives
    • In: Harper P, Clarke AJ, eds., Oxford: Bios Scientific Publishers, Chapter 9
    • Clarke A. Prenatal genetic screening: paradigms and perspectives. In: Harper P, Clarke AJ, eds. Genetics, Society and Clinical Practice. Oxford: Bios Scientific Publishers, 1997b; pp. 119-140 (Chapter 9).
    • (1997) Genetics, Society and Clinical Practice , pp. 119-140
    • Clarke, A.1
  • 6
    • 0027945216 scopus 로고
    • Report on the genetic testing of children
    • Clinical Genetics Society Working Party, and BSHG and CGS websites
    • Clinical Genetics Society Working Party. Report on the genetic testing of children. J Med Genet 1994; 31: 785-797 (and BSHG and CGS websites).
    • (1994) J Med Genet , vol.31 , pp. 785-797
  • 7
    • 0004147587 scopus 로고
    • Backdoor to Eugenics
    • London: Routledge, Chapman and Hall
    • Duster T. Backdoor to Eugenics. London: Routledge, Chapman and Hall, 1990.
    • (1990)
    • Duster, T.1
  • 8
    • 0034012563 scopus 로고    scopus 로고
    • Shared decision making and non-directiveness in genetic counselling
    • Elwyn G, Gray J, Clarke A. Shared decision making and non-directiveness in genetic counselling. J Med Genet 2000; 37: 135-138.
    • (2000) J Med Genet , vol.37 , pp. 135-138
    • Elwyn, G.1    Gray, J.2    Clarke, A.3
  • 9
    • 0034666815 scopus 로고    scopus 로고
    • The psychological complexity of predictive testing for late onset neurogenetic diseases and hereditary cancers:implications for multidisciplinary counselling and genetic education
    • Evers-Kiebooms G, Welkenhuysen M, Claes E, Decruyenaere M, Denayer L. The psychological complexity of predictive testing for late onset neurogenetic diseases and hereditary cancers:implications for multidisciplinary counselling and genetic education. Soc Sci Med 2000; 51: 831-841.
    • (2000) Soc Sci Med , vol.51 , pp. 831-841
    • Evers-Kiebooms, G.1    Welkenhuysen, M.2    Claes, E.3    Decruyenaere, M.4    Denayer, L.5
  • 10
    • 33846915711 scopus 로고    scopus 로고
    • Risky relations. Family and Kinship in the Era of New Genetics
    • Oxford:Berg Publishers
    • Featherstone K, Bharadwaj A, Clarke A, Atkinson P. Risky relations. Family and Kinship in the Era of New Genetics. Oxford:Berg Publishers, 2006.
    • (2006)
    • Featherstone, K.1    Bharadwaj, A.2    Clarke, A.3    Atkinson, P.4
  • 13
    • 0016105523 scopus 로고
    • Genetic counselling
    • Fraser FC. Genetic counselling. Am J Hum Genet 1974; 26: 636-659.
    • (1974) Am J Hum Genet , vol.26 , pp. 636-659
    • Fraser, F.C.1
  • 14
    • 0037398070 scopus 로고    scopus 로고
    • Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information
    • Hallowell N, Foster C, Eeles R, Ardern-Jones A, Murday V, Watson M. Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information. J Med Ethics 2003; 29: 74-83.
    • (2003) J Med Ethics , vol.29 , pp. 74-83
    • Hallowell, N.1    Foster, C.2    Eeles, R.3    Ardern-Jones, A.4    Murday, V.5    Watson, M.6
  • 15
    • 0029803683 scopus 로고    scopus 로고
    • Naming of syndromes and unethical activities: the case of Hallervordern and Spatz
    • Harper P, Clarke AJ. Genetics, Society and Clinical Practice. Oxford: Bios Scientific Publishers, 1997; pp. 221-5
    • Harper PS. Naming of syndromes and unethical activities: the case of Hallervordern and Spatz. Lancet 1996; 348: 1224-1225. (See also Harper P, Clarke AJ. Genetics, Society and Clinical Practice. Oxford: Bios Scientific Publishers, 1997; pp. 221-5).
    • (1996) Lancet , vol.348 , pp. 1224-1225
    • Harper, P.S.1
  • 16
    • 0035500612 scopus 로고    scopus 로고
    • Ethical, legal and practical concerns about recontacting patients to inform them of new information: the case in medical genetics
    • Hunter A, et al. Ethical, legal and practical concerns about recontacting patients to inform them of new information: the case in medical genetics. Am J Med Genet 2001; 103: 265-276.
    • (2001) Am J Med Genet , vol.103 , pp. 265-276
    • Hunter, A.1
  • 17
    • 2442725198 scopus 로고    scopus 로고
    • Carrier testing of children for two X-linked diseases in a family based setting: a retrospective long term psychosocial evaluation
    • Jarvinen O, Aalto A-M, Lehesjoki A-E, Lindlof M, Soderling I, Uutela A, Kaariainen H. Carrier testing of children for two X-linked diseases in a family based setting: a retrospective long term psychosocial evaluation. J Med Genet 1999; 36: 615-620.
    • (1999) J Med Genet , vol.36 , pp. 615-620
    • Jarvinen, O.1    Aalto, A.-M.2    Lehesjoki, A.-E.3    Lindlof, M.4    Soderling, I.5    Uutela, A.6    Kaariainen, H.7
  • 18
    • 0035695066 scopus 로고    scopus 로고
    • To test or not to test: an ethical conflict with presymptomatic testing of individuals at 25% risk for Huntington's disorder
    • Lindblad AN. To test or not to test: an ethical conflict with presymptomatic testing of individuals at 25% risk for Huntington's disorder. Clin Genet 2001; 60: 442-446.
    • (2001) Clin Genet , vol.60 , pp. 442-446
    • Lindblad, A.N.1
  • 19
    • 0036723160 scopus 로고    scopus 로고
    • Predictive genetic testing and beyond: a theory of engagement
    • McAllister M. Predictive genetic testing and beyond: a theory of engagement. J Health Psychol 2002; 7: 491-508.
    • (2002) J Health Psychol , vol.7 , pp. 491-508
    • McAllister, M.1
  • 20
    • 3543146182 scopus 로고    scopus 로고
    • 'Family matters': a conceptual framework for genetic testing in children
    • McConkie-Rosell A, Spiridigliozzi GA. 'Family matters': a conceptual framework for genetic testing in children. J Genet Counsel 2004; 13: 9-29.
    • (2004) J Genet Counsel , vol.13 , pp. 9-29
    • McConkie-Rosell, A.1    Spiridigliozzi, G.A.2
  • 21
    • 0042322502 scopus 로고    scopus 로고
    • Understanding why negative genetic test results sometimes fail to reassure
    • Michie S, Smith JA, Senior V, Mareau TM. Understanding why negative genetic test results sometimes fail to reassure. Am J Med Genet 2003; 119A: 340-347.
    • (2003) Am J Med Genet , vol.119 A. , pp. 340-347
    • Michie, S.1    Smith, J.A.2    Senior, V.3    Mareau, T.M.4
  • 22
    • 0003858107 scopus 로고
    • Murderous Science
    • Oxford: Oxford University Press
    • Müller-Hill B. Murderous Science. Oxford: Oxford University Press, 1988.
    • (1988)
    • Müller-Hill, B.1
  • 23
    • 0037398595 scopus 로고    scopus 로고
    • Concern for families and individuals in clinical genetics
    • Parker M, Lucassen A. Concern for families and individuals in clinical genetics. J Med Ethics 2003; 29: 70-73.
    • (2003) J Med Ethics , vol.29 , pp. 70-73
    • Parker, M.1    Lucassen, A.2
  • 24
    • 3242732814 scopus 로고    scopus 로고
    • Genetic information: a joint account?
    • Parker M, Lucassen A. Genetic information: a joint account? Brit Med J 2004; 329: 165-173.
    • (2004) Brit Med J , vol.329 , pp. 165-173
    • Parker, M.1    Lucassen, A.2
  • 25
    • 0033755360 scopus 로고    scopus 로고
    • Feasibility of a change in service delivery: the case of optional newborn screening for Duchenne muscular dystrophy
    • Parsons EP, Clarke AJ, Hood K, Bradley DM, Feasibility of a change in service delivery: the case of optional newborn screening for Duchenne muscular dystrophy. Community Genet 2000; 3(1): 17-23.
    • (2000) Community Genet , vol.3 , Issue.1 , pp. 17-23
    • Parsons, E.P.1    Clarke, A.J.2    Hood, K.3    Bradley, D.M.4
  • 26
    • 0028953428 scopus 로고
    • Nonabandonment: a central obligation for physicians
    • Quill TE, Cassel CK. Nonabandonment: a central obligation for physicians. Ann Int Med 1995; 122: 368-374.
    • (1995) Ann Int Med , vol.122 , pp. 368-374
    • Quill, T.E.1    Cassel, C.K.2
  • 27
    • 17444378941 scopus 로고    scopus 로고
    • (Mis)alignments in counselling for Huntington's disease predictive testing: clients' responses to reflective frames
    • Sarangi S, Bennert K, Howell L, Clarke A, Harper P, Gray J. (Mis)alignments in counselling for Huntington's disease predictive testing: clients' responses to reflective frames. J Genet Counsel 2005; 14: 29-42.
    • (2005) J Genet Counsel , vol.14 , pp. 29-42
    • Sarangi, S.1    Bennert, K.2    Howell, L.3    Clarke, A.4    Harper, P.5    Gray, J.6
  • 29
    • 0033989352 scopus 로고    scopus 로고
    • Impact of genetic testing for Huntington disease on the family system
    • Sobel S, Cowan DB. Impact of genetic testing for Huntington disease on the family system. Am J Med Genet 2000; 90: 49-59.
    • (2000) Am J Med Genet , vol.90 , pp. 49-59
    • Sobel, S.1    Cowan, D.B.2
  • 30
    • 0032898318 scopus 로고    scopus 로고
    • Genetic privacy: orthodoxy or oxymoron?
    • Somerville A, English V. Genetic privacy: orthodoxy or oxymoron? J Med Ethics 1999; 25: 144-150.
    • (1999) J Med Ethics , vol.25 , pp. 144-150
    • Somerville, A.1    English, V.2
  • 31
    • 0346310718 scopus 로고    scopus 로고
    • Psychosocial genetic counselling in the post-nondirective era: a point of view
    • Weil J. Psychosocial genetic counselling in the post-nondirective era: a point of view. J Genet Counsel 2003; 12: 199-211.
    • (2003) J Genet Counsel , vol.12 , pp. 199-211
    • Weil, J.1
  • 32
    • 0036136966 scopus 로고    scopus 로고
    • Is non-directiveness possible within the context of antenatal screening and testing?
    • Williams C, Alderson P, Farsides B. Is non-directiveness possible within the context of antenatal screening and testing? Soc Sci Med 2002; 54: 339-347.
    • (2002) Soc Sci Med , vol.54 , pp. 339-347
    • Williams, C.1    Alderson, P.2    Farsides, B.3
  • 33
    • 0029257738 scopus 로고
    • Nondirectiveness and genetic counseling
    • Wolff G, Jung C. Nondirectiveness and genetic counseling. J Genet Counsel 1995; 4: 3-25.
    • (1995) J Genet Counsel , vol.4 , pp. 3-25
    • Wolff, G.1    Jung, C.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.