Children receiving treatment for cancer and their caregivers: A mixed methods study of their sleep characteristics

Pediatric Blood and Cancer

Volumn 56, Issue 4, 2011, Pages 638-645

  Wright, Marilyn ^a  

^a MCMASTER CHILDREN S HOSPITAL   (Canada)

Author keywords

Cancer; Caregivers; Child; Sleep

Indexed keywords

STEROID;

ACUTE LYMPHOBLASTIC LEUKEMIA; ARTICLE; CANCER THERAPY; CAREGIVER; CENTRAL NERVOUS SYSTEM TUMOR; CHILD; CLINICAL ARTICLE; CONTROLLED STUDY; FEMALE; HUMAN; MALE; NIGHTMARE; PAIN; PRESCHOOL CHILD; PRIORITY JOURNAL; QUESTIONNAIRE; SARCOMA; SCHOOL CHILD; SLEEP DISORDER;

ADOLESCENT; CAREGIVERS; CHILD; FEMALE; HUMANS; MALE; NEOPLASMS; PARENTS; QUESTIONNAIRES; SLEEP DISORDERS;

EID: 79551619773     PISSN: 15455009     EISSN: 15455017     Source Type: Journal    
DOI: 10.1002/pbc.22732     Document Type: Article

References (41)

1. Owens JA. Epidemiology of sleep disorders during childhood. In: Sheldon SH, Ferber R, Kryger MH, editors. Principles and practices of pediatric sleep medicine. Philadelphia PA: Elsevier Saunders; 2005. pp. 27-33.
2. Lewin DS, Dahl RE. Importance of sleep in the management of pediatric pain. J Dev Behav Pediatr 1999;20:244-252.
3. Fallone G, Owens JA, Deane J. Sleepiness in children and adolescents: Clinical implications. Sleep Med Rev 2002;6:287-306.
4. Smaldone A, Honig JC, Byrne MW. Sleepless in America: Inadequate sleep and relationships to health and well-being of our nation's children. Pediatrics 2007;119:1S29-1S37.
5. Palmero TM, Owens J. Sleep in pediatric medical populations. J Pediatr Psychol 2008;33:227-231.
6. Meltzer LJ, Moore M. Sleep disruptions in parents of children and adolescents with chronic illness: Prevalence, causes, and consequences. J Pediatr Psychol 2008;33:279-291.
7. Wright M, Tancredi A, Yundt B, et al. Sleep issues in children with physical disabilities and their families. Phys Occup Ther Pediatr 2006;26:55-72.
8. Gedaly-Duff V, Lee KA, Nail LM, et al. Pain, sleep disturbance, and fatigue in children with leukemia and their parents: A pilot study. Oncol Nurs Forum 2006;33:641-646.
9. Sandford SD, Okuma JO, Pan J, et al. Gender differences in sleep, fatigue, and daytime activity in a pediatric oncology sample receiving dexamethasone. J Pediatr Psychol 2008;33:298-306.
10. Hinds PS, Hockenberry M, Rai SN, et al. Nocturnal awakenings, sleep environment interruptions, and fatigue in hospitalized children with cancer. Oncol Nurs Forum 2007;34:393-402.
11. Jacob E, Hesselgrave J, Sambuco G, et al. Variations in pain, sleep, and activity during hospitalization in children with cancer. J Pediatr Oncol Nurs 2007;24:208-219.
12. Hinds PS, Hockenberry MJ, Gattuso JS, et al. Dexamethasone alters sleep and fatigue in pediatric patients with acute lymphoblastic leukemia. Cancer 2007;110:2321-2330.
13. Rosen GM. Sleep in children who have cancer. Sleep Med Clin 2007;2:491-500.
14. Berger AM, Parker KP, Young-McCaughan S, et al. Sleep/wake disturbances in people with cancer and their caregivers: State of the science. Oncol Nurs Forum 2005;32:E98-E126.
15. Berger AM. Update on the state of the science: Sleep-wake disturbances in adult patients with cancer. Oncol Nurs Forum 2009;36:E165-E177.
16. Vena C, Parker K, Cunningham M, et al. Sleep-wake disturbances in people with cancer part I: An overview of sleep, sleep regulation, and effects of disease and treatment. Oncol Nurs Forum 2004;31:735-746.
17. Otte JL, Carpenter JS. Theories, models, and frameworks related to sleep-wake disturbances in the context of cancer. Cancer Nurs 2009;32:90-104.
18. Clark J, Cunningham M, McMillan S, et al. Sleep-wake disturbances in people with cancer part II: Evaluating the evidence for clinical decision making. Oncol Nurs Forum 2004;31:747-771.
19. Collins JJ, Byrnes ME, Dunkel IJ, et al. The measurement of symptoms in children with cancer. J Pain Symptom Manage 2000;19:363-377.
20. Hockenberry MJ, Hinds PS, Barrera P, et al. Three instruments to assess fatigue in children with cancer: The child, parent and staff perspectives. J Pain Symptom Manage 2003;25:319-328.
21. Davies B, Whitsett SF, Bruce A, et al. A typology of fatigue in children with cancer. J Pediatr Oncol Nurs 2002;19:12-21.
22. Hinds PS, Hockenberry-Eaton M, Quargnenti A, et al. Fatigue in 7- to 12-year-old patients with cancer from the staff perspective: An exploratory study. Oncol Nurs Forum 1999;26:37-45.
23. Hinds PS, Hockenberry-Eaton M, Gilger E, et al. Comparing patient, parent, and staff descriptions of fatigue in pediatric oncology patients. Cancer Nurs 1999;22:277-288.
24. Hockenberry M, Hooke MC. Symptom clusters in children with cancer. Semin Oncol Nurs 2007;23:152-157.
25. Hinds PS, Hockenberry M, Rai SN, et al. Clinical field testing of an enhanced-activity intervention in hospitalized children with cancer. J Pain Symptom Manage 2007;33:686-697.
26. Rosen GM, Bendel AE, Neglia JP, et al. Sleep in children with neoplasms of the central nervous system: Case reviewing of 14 children. Pediatrics 2003;112:e46-e54.
27. Kazak AE. Comprehensive care for children with cancer and their families: A social ecological framework guiding research, practice, and policy. Child Serv Soc Policy Res Pract 2001;4:217-233.
28. Boman K, Lindahl A, Bjork O. Disease-related distress in parents of children with cancer at various stages after the time of diagnosis. Acta Oncol 2003;42:137-146.
29. Klassen AF, Klassen R, Dix D, et al. Impact of caring for a child with cancer on parent's health-related quality of life. J Clin Oncol 2008;26:5844-5849.
30. Burke Johnson R, Onwuegbuzie AJ, Turner LA. Toward a definition of mixed methods research. J Mixed Method Res 2007;1:112-133.
31. Wilkins K, Woodgate R. Designing a mixed methods study in pediatric oncology nursing research. J Pediatr Oncol Nurs 2008;25:24-33.
32. Beck SL, Schwartz AL, Towsley G, et al. Psychometric evaluation of the Pittsburgh sleep quality index in cancer patients. J Pain Symp Manage 2004;27:140-148.
33. Hsieh H, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res 2005;15:1277-1288.
34. World Health Organization. International Classification of Functioning, Disability and Health. (accessed on 19/11/2009).
35. Erzberger C, Kelle U. Making inferences in mixed methods: The rules of integration. In: Tashakkori A, Teddlie C, editors. Handbook of mixed methods in social and behavioral research. Thousand Oaks, CA: Sage Publications; 2003. pp. 457-488.
36. Sadeh A, Raviv A, Gruber R. Sleep patterns and sleep disruptions in school-aged children. Dev Psychol 2000;36:291-301.
37. Ohayon MM, Carskadon MA, Guilleminault C, et al. Meta-analysis of quantitative sleep parameters from childhood to old age in healthy individuals: Developing normative sleep values across the human lifespan. Sleep 2004;27:1255-1273.
38. Levin R, Nielsen TA. Disturbed dreaming, posttraumatic stress disorder, and affect distress: A review and neurocognitive model. Psychol Bull 2007;133:482-528.
39. Palmero TM, Fonareva I, Janosy NR. Sleep quality and efficiency in adolescents with chronic pain: Relationship with activity limitations and health-related quality of life. Behav Sleep Med 2008;6:234-250.
40. Spinetta JJ, Jankovic M, Masera G, et al. Optimal care for the child with cancer: A summary statement from the SIOP working committee on psychosocial issues in pediatric oncology. Pediatr Blood Cancer 2009;52:904-907.
41. Woodgate RL, Degner LF. Expectations and beliefs about children's cancer symptoms: Perspective of children with and their families. Oncol Nurs Forum 2003;30:479-491.