Coping with a cleft II: Factors associated with psychosocial adjustment of adolescents with a cleft lip and palate and their parents

Cleft Palate-Craniofacial Journal

Volumn 48, Issue 1, 2011, Pages 82-90

  Berger, Zoe E ^a   Dalton, Louise J ^b  

^a UNIVERSITY COLLEGE HOSPITAL   (United Kingdom)

^b JOHN RADCLIFFE HOSPITAL   (United Kingdom)

Author keywords

Adolescents; Cleft; Parents; Psychological adjustment

Indexed keywords

ARTICLE; CLEFT LIP; CLEFT PALATE; COPING BEHAVIOR; HUMAN; LIFE STRESS; MENTAL HEALTH; PRIORITY JOURNAL; SELF CONCEPT; SOCIAL ADAPTATION; SOCIAL PSYCHOLOGY;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADOLESCENT PSYCHOLOGY; CHILD; CLEFT LIP; CLEFT PALATE; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; LIFE CHANGE EVENTS; MALE; MOTHERS; PATIENT SATISFACTION; QUESTIONNAIRES;

EID: 79551529146     PISSN: 10556656     EISSN: 15451569     Source Type: Journal    
DOI: 10.1597/08-094     Document Type: Article

References (49)

1. Abidin R. Parenting Stress Index. Lutz, FL: Psychological Assessment Resources, Inc.; 1995.
2. Berger ZE, Dalton LJ. Coping with a cleft: psychosocial adjustment of adolescents with a cleft lip and palate and their parents. Cleft Palate Craniofac J. 2009;46:435-443.
3. Bradbury E, Hewison J. Early parental adjustment to visible congenital disfigurement. Child Care Health Dev. 1994;20:251-266.
4. Broder HL, Strauss RP. Psychological problems and referrals among oralfacial team patients. J Rehabil. 1991;57:31-36.
5. Carver CS, Scheier MF, Weintraub JK. Assessing coping strategies: a theoretically-based approach. J Pers Soc Psychol. 1989;56:267-283.
6. Dillman D. The design and administration of mail surveys. Annu Rev Sociol. 1991;17:225-249.
7. Dunst CJ, Jenkins V, Trivette CM. The Family Support Scale: reliability and validity. J Individ Fam Community Wellness. 1984;1:45-52.
8. Dupuy HJ. GWB index. In: Wenger NK, Mattson ME, Furberg CC, Elinson J, eds. Assessment of Quality of Life in Clinical Trials of Cardiovascular Therapies. New York: Le Jacq; 1984.
9. Emery RE, O'Leary KD. Marital discord and child behaviour problems in a nonclinical sample. J Abnorm Child Psychol. 1984;12:411-420.
10. Endriga M, Kapp-Simon K. Psychological issues in craniofacial care: state of the art. Cleft Palate Craniofac J. 1999;36:3-11. (Pubitemid 29031583)
11. Endriga MC, Jordan JR, Speltz ML. Emotion self-regulation in preschool aged children with and without orofacial clefts. J Dev Behav Paediatr. 2003;24:336-344.
12. Fields L, Prinz R. Coping and adjustment during childhood and adolescence. Clin Psychol Rev. 1997;17:937-976.
13. Goodman R. The Strengths and Difficulties Questionnaire. J Child Psychol Psychiatry. 1997;38:581-586.
14. Hearst D, Shearer J, Ranger M. Monitoring satisfaction with appearance: an important contribution to intervention and outcome? Presented at 10th International Congress of Cleft Palate and Related Craniofacial Anomalies; September 4-8, 2005; Durban, South Africa.
15. Hunt O, Burden D, Hepper P, Stevenson M, Johnson C. Parent reports of the psychosocial functioning of children with cleft lip and/or palate. Cleft Palate Craniofac J. 2007;44:304-311.
16. Kapp-Simon K, Simon D, Kristovich S. Self-perception, social skills, adjustment and inhibition in young adolescents with craniofacial anomalies. Cleft Palate Craniofac J. 1992;29:352-356.
17. Kapp-Simon K. Psychological interventions for the adolescent with cleft lip and palate. Cleft Palate Craniofac J. 1995;32:104-108.
18. Kapp-Simon KA, Dawson P. (1998). Behaviour adjustment and competence of children with craniofacial conditions. Presented at the Annual Meeting of the American Cleft Palate-Craniofacial Association; April 20-25, 1998 Baltimore.
19. Kapp-Simon KA, McGuire D, Long B, Simon D. Addressing quality of life issues in adolescence: social skills interventions. Cleft Palate Craniofac J. 2005;42:45-50.
20. King C, Kennedy P. Coping effectiveness training for people with spinal cord injury: preliminary results of a controlled trail. Br J Clin Psychol. 1999;38:5-14.
21. Langlois JH. The origins and functions of appearance based stereotypes: theoretical and applied applications. In: Eder RA, ed. Developmental Perspectives on Craniofacial Problems. New York: Springer-Verlag; 1995:22-47.
22. Lansdown R, Lloyd J, Hunter J. Facial deformity in childhood: severity and psychological adjustment. Child Care Health Dev. 1991;17:165-171.
23. Lazarus R, Folkman S. Stress, Appraisal and Coping. New York: Springer; 1984.
24. MacGregor SC. Facial disfigurement: problems and management of social interactions and implications for mental health. Aesthet Plast Surg. 1990;13:1-8.
25. McWilliams BJ, Musgrave RH. Psychological implications of articulation disorders in cleft palate children. Cleft Palate J. 1972;9:294-303.
26. Moss T. Individual differences in adjusting to visible differences. In: Lansdown R, Rumsey N, Bradbury E, Carr T, Partridge J, eds. Visibly Different: Coping With Disfigurement. Oxford: Butterworth-Heinemann; 1997.
27. Moss T. The relationships between objective and subjective ratings of disfigurement severity and psychological adjustment. Body Image. 2005;2:151-159.
28. Pakenham KI. Adjustment to multiple sclerosis: application of stress and coping model. Health Psychol. 2001;18:383-392.
29. Pertschuck MJ, Whitaker LA. Social and psychological effects of craniofacial malformations in childhood. Clin Plast Surg. 1982;9:297-306.
30. Phares V, Lopez E, Fields S, Kamboukos D, Duhig A. Are fathers involved in paediatric psychology research and treatment? J Paediatr Psychol. 2005;30:631-643.
31. Pillemer F, Cook K. The psychosocial adjustment of paediatric craniofacial patients after surgery. Cleft Palate J. 1989;26:201-208.
32. Pope A, Ward J. Self-perceived facial appearance and psychosocial adjustment in preadolescents with craniofacial anomalies. Cleft Palate Craniofac J. 1997;34:396-401.
33. Richman LC. Self-reported social, speech and facial concerns and personality adjustment of adolescents with cleft lip and palate. Cleft Palate J. 1983;20:108-112.
34. Richman LC, Eliason MJ. Development in children with cleft lip and/or palate: intellectual, personality and parental factors. Semin Speech Lang. 1986;7:225-239.
35. Roberts M. Handbook of Paediatric Psychology. 3rd ed. New York: Guilford Press; 2003.
36. Robinson E, Rumsey N, Partridge J. An evaluation of the impact of social interaction skills training for facially disfigured people. Br J Plast Surg. 1986;49:281-289.
37. Root S, Kent G, Alabadie M. The relationship between disease severity, disability and psychological distress in patients undergoing PUVA treatment for psoriasis. Dermatology. 1994;189:234-237.
38. Rumsey N, Harcourt D. Visible differences amongst children and adolescents: issues and interventions. Dev Neurorehabil. 2007;10:113-123.
39. Rutter M, Rutter M. Developing Minds: Challenge and Continuity Across the Life Span. London: Penguin; 1992.
40. Sank J, Berk N, Cooper M,Marazita M. Perceived social support of mothers of children with clefts. Cleft Palate Craniofac J. 2003;40:165-171.
41. Spirito A, Stark LJ, Williams C. Development of a brief coping checklist for use with paediatric populations. J Paediatr Psychol. 1988;13:555-574.
42. Stallard P, Velleman R, Langsford J, Baldwin S. Coping and psychological distress in children involved in road traffic accidents. Br J Clin Psychol. 2001;40:197-208.
43. Starr P. Psychical attractiveness and self-esteem ratings of young adults with cleft lip and/or palate. Psychol Rep. 1982;50:467-470.
44. Thompson AR, Kent G. Adjusting to disfigurement: processes involved in dealing with being visibly different. Clin Psychol Rev. 2001;21:663-682.
45. Timko C, Stovel K, Moos R. Functioning among mothers and father of children with juvenile rheumatic disease: a longitudinal study. J Paediatr Psychol. 1992;17:705-724.
46. Tobiasen JM, Hiebert JM. Clefting and psychosocial adjustment. Clin Plast Surg. 1993;20:623-631.
47. Turner SR, Rumsey N, Sandy J. Psychological aspects of cleft lip and palate. Eur J Orthod. 1998;20:407-415.
48. Turner SR, Thomas W, Dowell T, Rumsey N. Psychological outcomes amongst cleft patients and their families. Br J Plast Surg. 1997;50:1-9. (Pubitemid 27042309)
49. Werner E, Smith R. Vulnerable but Invincible: A Longitudinal Study of Resilient Children and Youth. New York: McGraw-Hill; 1982.