Ongoing coverage for ongoing care: Access, utilization, and out-of-pocket spending among uninsured working-aged adults with chronic health care needs

American Journal of Public Health

Volumn 101, Issue 2, 2011, Pages 368-375

  Gulley, Stephen P ^a,b   Rasch, Elizabeth K ^a   Chan, Leighton ^a  

^a NATIONAL INSTITUTES OF HEALTH   (United States)

^b BRANDEIS UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHRONIC DISEASE; ECONOMICS; FEMALE; FINANCIAL MANAGEMENT; HEALTH CARE DELIVERY; HEALTH CARE DISPARITY; HEALTH DISPARITY; HEALTH INSURANCE; HEALTH SERVICE; HUMAN; INSURANCE; MALE; MIDDLE AGED; PATIENT; STATISTICS; UTILIZATION REVIEW;

ADOLESCENT; ADULT; CHRONIC DISEASE; FEMALE; FINANCING, PERSONAL; HEALTH SERVICES; HEALTH SERVICES ACCESSIBILITY; HEALTH STATUS DISPARITIES; HEALTHCARE DISPARITIES; HUMANS; INSURANCE COVERAGE; INSURANCE, HEALTH; MALE; MEDICALLY UNINSURED; MIDDLE AGED; YOUNG ADULT;

EID: 78751522508     PISSN: 00900036     EISSN: 15410048     Source Type: Journal    
DOI: 10.2105/AJPH.2010.191569     Document Type: Article

References (43)

1. State Health Access Data Assistance Center. At the Brink: Trends in America's Uninsured. Princeton, NJ: Robert Wood Johnson Foundation; 2009. Available at: http://covertheuninsured.org/files/u15/State-by-State-Analysis- 2009.pdf. Accessed June 20, 2009.
2. Congressional Budget Office. How Many People Lack Health Insurance and for How Long? Washington, DC: Congressional Budget Office; 2003. Available at: http://www.cbo.gov/ftpdocs/42xx/doc4210/05-12-Uninsured.pdf. Accessed June 20, 2009.
3. Klein K, Glied S, Ferry D. Entrances and Exits: Health Insurance Churning, 1998-2000. New York, NY: Commonwealth Fund; 2005. Available at: http://www.commonwealthfund.org/Content/Publications/Issue-Briefs/2005/Sep/ Entrances-and-Exits-Health-Insurance-Churning-1998-2000.aspx. Accessed July 1, 2009.
4. Short PF, Graefe DR. Battery-powered health insurance? Stability in coverage of the uninsured. Health Aff (Millwood). 2003;22(6):244-255.
5. Short PF, Weaver FM. Transitioning to Medicare before age sixty-five. Health Aff (Millwood). 2008;27(3): w175-w184.
6. Sommers BD. Loss of health insurance among nonelderly adults in Medicaid. J Gen Intern Med. 2009;24(1): 1-7.
7. Hanson KW, Neuman P, Dutwin D, Kasper JD. Uncovering the health challenges facing people with disabilities: the role of health insurance. Health Aff (Millwood). 2003;suppl:w3-552-;w3-565.
8. Meyer JA, Zeller PJ. Profiles of disability: employment and health coverage. Washington, DC: Kaiser Commission on Medicaid and the Uninsured; 1999. Available at: http://www.kff.org/medicaid/loader.cfm?url=/commonspot/security/ getfile.cfm&PageID=13325. Accessed June 3, 2009.
9. Reed MC, Tu HT. Triple jeopardy: low income, chronically ill and uninsured in America. Washington, DC: Center for Studying Health System Change; 2002. Available at: http://www.hschange.com/CONTENT/411/411.pdf. Accessed June 20, 2009.
10. Hafner-Eaton C. Physician utilization disparities between the uninsured and insured: comparisons of the chronically ill, acutely ill, and well nonelderly populations. JAMA. 1993;269(6):787-792.
11. Ferrer RL. Pursuing equity: contact with primary care and specialist clinicians by demographics, insurance, and health status. Ann Fam Med. 2007;5(6):492-502.
12. Hoffman C, Schwartz K. Eroding access among nonelderly US adults with chronic conditions: ten years of change. Health Aff (Millwood). 2008;27(5):w340-w348.
13. Hadley J. Insurance coverage, medical care use, and short-term health changes following an unintentional injury or the onset of a chronic condition. JAMA. 2007;297(10):1073-1084.
14. Shin J, Moon S. Quality of care and role of health insurance among non-elderly women with disabilities. Womens Health Issues. 2008;18(4):238-248.
15. Perry M, Dulio A, Hanson K. The role of health coverage for people with disabilities. Washington, DC: Kaiser Family Foundation; 2003. Available at: http://www.kff.org/medicare/upload/The-Role-of-Health-Coverage-for-People-with- Disabilities-Findings-from-12-Focus-Groups-with-People-with-Disabilities.pdf. Accessed March 5, 2009.
16. Gulley SP, Altman BM. Disability in two health care systems: access, quality, satisfaction, and physician contacts among working-age Canadians and Americans with disabilities. Disabil Health J. 2008;1(4):196-208.
17. Bodenheimer T, Berry-Millett R. Follow the money-controlling expenditures by improving care for patients needing costly services. N Engl J Med. 2009; 361(16):1521-1523.
18. Anderson GF, Knickman JR. Changing the chronic care system to meet people's needs. Health Aff (Millwood). 2001;20(6):146-160.
19. Machlin S, Cohen J, Beauregard K. Health care expenses for adults with chronic conditions, 2005. Rockville, MD: Agency for Health Care Quality and Research; 2008. Available at: http://www.meps.ahrq.gov/mepsweb/data-files/ publications/st203/stat203.pdf. Accessed June 4, 2009.
20. Norris SL, High K, Gill TM, et al. Health care for older Americans with multiple chronic conditions: a research agenda. J Am Geriatr Soc. 2008;56(1):149-159.
21. Anderson G, Horvath J. The growing burden of chronic disease in America. Public Health Rep. 2004; 119(3):263-270.
22. Anderson GF, Herbert R, Zeffiro T, Johnson N. Chronic conditions: making the case for ongoing care. Baltimore, MD: Partnership for Solutions; 2004. Available at: http://www.partnershipforsolutions.org/DMS/files/chronicbook2004. pdf.
23. Bodenheimer T. Coordinating care - a perilous journey through the health care system. N Engl J Med. 2008;358(10):1064-1071.
24. Jha A, Patrick DL, Maclehose RF, Doctor JN, Chan L. Dissatisfaction with medical services among Medicar beneficiaries with disabilities. Arch Phys Med Rehabil. 2002;83(10):1335-1341.
25. Dejong G, Palsbo SE, Beatty PW, Jones GC, Knoll T, Neri MT. The organization and financing of health services for persons with disabilities. Milbank Q. 2002; 80(2):261-301.
26. Chan L, Beaver S, Maclehose RF, Jha A, Maciejewski M, Doctor JN. Disability and health care costs in the Medicare population. Arch Phys Med Rehabil. 2002; 83(9):1196-1201.
27. Hwang W, Weller W, Ireys H, Anderson GF. Out-ofpocket medical spending for care of chronic conditions. Health Aff. 2001;20(6):267-278.
28. Agency for Health Care Research and Quality. Medical Expenditure Panel Survey Web site. Rockville, MD: Agency for Health Care Research and Quality; 2009. Available at: http://www.meps.ahrq.gov/mepsweb. Accessed June 5, 2009.
29. Agency for Health Care Research and Quality. Medical Expenditure Panel Survey Household Component statistical estimation issues. Rockville, MD: Agency for Health Care Research and Quality; 2009. Available at: http://www.meps.ahrq. gov/mepsweb/about-meps/workbook/WB-Weight-Estimat.pdf. Accessed June 5, 2009.
30. Stein RE, Westbrook LE, Bauman LJ. The questionnaire for identifying children with chronic conditions: a measure based on a noncategorical approach. Pediatrics. 1997;99(4):513-521.
31. Banthin JS, Bernard DM. Changes in financial burdens for health care: national estimates for the population younger than 65 years, 1996 to 2003. JAMA. 2006;296(22):2712-2719.
32. Benjamini Y, Hochberg Y. Controlling the false discovery rate: a practical and powerful approach to multiple testing. J Royal Stat Soc B. 1995;57(1):289-300.
33. Tu HT, Cohen GR. Financial and health burdens of chronic conditions grow. Tracking report 24. Washington, DC: Center for Studying Health System Change; 2009. Available at: http://www.hschange.com/CONTENT/1049/#ib8. Accessed April 21, 2010.
34. BraultMW.Americans with disabilities:2005.Current Population Reports P70-117.Washington, DC: US Census Bureau; 2008. Available at: http://www.census.gov/prod/2008pubs/p70-117.pdf. Accessed April 21, 2010.
35. Anderson GF. Physician, public, and policymaker perspectives on chronic conditions. Arch Intern Med. 2003;163(4):437-442.
36. Rimmer JH. Health promotion for people with disabilities: the emerging paradigm shift from disability prevention to prevention of secondary conditions. Phys Ther. 1999;79(5):495-502.
37. Chan L, Doctor JN, MacLehose RF, et al. Do Medicare patients with disabilities receive preventive services? A population-based study. Arch Phys Med Rehabil. 1999;80(6):642-646.
38. Stroupe KT, Kinney ED, Kniesner TJ. Chronic illness and health insurance-related job lock. Working Paper 19. Syracuse, NY: Center for Policy Research, Syracuse University; 2000. Available at: http://www-cpr.maxwell.syr. edu/cprwps/pdf/wp19.pdf. Accessed November 18, 2010.
39. StapletonD, Liu S.Will health care reformincrease the employment of people with disabilities? Washington, DC: Mathematica Policy Research; 2009. Available at: http://www.mathematica-mpr.com/publications/pdfs/disability/ healthcarereform.pdf. Accessed April 21, 2010.
40. Neuhauser L, Rothschild B, Graham C, Ivey SL, Konishi S. Participatory design of mass health communication in three languages for seniors and people with disabilities on Medicaid. Am J Public Health. 2009; 99(12):2188-2194.
41. Machlin S, Cohen J, Beauregard K, Steiner C. Sensitivity of household reported medical conditions in the medical expenditure panel survey. Med Care. 2009;47(6):618-625.
42. Altman BM, Gulley SP. Convergence and divergence: differences in disability prevalence estimates in the United States and Canada based on four health survey instruments. Soc Sci Med. 2009;69(4):543-552.
43. US Census Bureau. American Community Survey. Percent of people 21 to 64 years old with a disability: 2006. Table R1802, generated using American Fact-Finder. Available at: http://factfinder.census.gov. Accessed April 21, 2010.