Profile of life participation after stroke and aphasia

Topics in Stroke Rehabilitation

Volumn 17, Issue 6, 2010, Pages 432-450

  Wallace, Gloriajean ^a  

^a UNIVERSITY OF CINCINNATI   (United States)

Author keywords

aphasia; assessment; life participation; stroke

Indexed keywords

ADULT; APHASIA; ARTICLE; CLINICAL ARTICLE; CLINICAL ASSESSMENT; FEMALE; FOLLOW UP; GEOGRAPHY; HUMAN; MALE; MEDICAL INFORMATION; PATIENT SATISFACTION; SELF REPORT; STROKE;

ACTIVITIES OF DAILY LIVING; AGED; APHASIA; COMMUNICATION; FEMALE; HEALTH STATUS; HUMANS; INTERVIEW, PSYCHOLOGICAL; MALE; MIDDLE AGED; MOTOR SKILLS; QUALITY OF LIFE; STATISTICS AS TOPIC; STATISTICS, NONPARAMETRIC; STROKE;

EID: 78751499894     PISSN: 10749357     EISSN: None     Source Type: Journal    
DOI: 10.1310/tsr1706-432     Document Type: Article

References (116)

1. Lloyd-Jones D, Adams RJ, Brown TM, et al. Heart disease and stroke statistics 2010 update: a report from the American Heart Association. Circulation. 2010;121:948-954. . Accessed January 26, 2010.
2. Centers for Disease Control and Prevention. Prevention of disabilities and associated health conditions among adults: United States, 1999. MMWR Morb Mortal Wkly Rep. 2001;50:120-125.
3. Kelly-Hayes M, Beiser A, Kase CS, Scaramucci A, D'Agostino RB, Wolf PA. The infl uence of gender and age on disability following ischemic stroke: the Framingham study. J Stroke Cerebrovasc Dis. 2003;12:119-126.
4. Rosenbek JC, LaPointe LL, Wertz RT. Aphasia: A Clinical Approach. Boston, MA: College Hill Press; 1989.
5. Aphasia Institute. About aphasia. . aphasia.ca/. Updated November 5, 2010. Accessed January 27, 2010.
6. National Aphasia Association. What is aphasia? http://www.aphasia.org. Updated November 5, 2010. Accessed January 10, 2010.
7. National Aphasia Association. About aphasia. http://www.aphasia.org. Updated November 5, 2010. Accessed January 10, 2010.
8. Simmons-Mackie N, Code C, Armstrong E, Stiegler L, Elman RJ. What is aphasia? results of an international survey. Aphasiology. 2002;16(8):837-848.
9. Sarno MT. The Silent Minority: The Patient With Aphasia [Fifth Annual James C. Hemphill Lecture booklet]. Chicago, IL: Chicago Institute of Chicago; September 24, 1986.
10. Burns M. Can-do therapy: a positive approach for maximizing recovery during rehabilitation. In: Wallace GL, ed. Adult Aphasia Rehabilitation Boston, MA: Butterworth-Heinemann; 1996: 121-135.
11. Bonta Z, Weber D. Discharge in chronic aphasia: a multidisciplinary approach. Aphasiology. 1998;12(3):218-222.
12. Hecht JS, Paulsen WA, Wallace GL. Medical and rehabilitation management. In: Wallace GL, ed. Adult Aphasia Rehabilitation. Boston, MA: Butterworth-Heinemann; 1996:1-20.
13. US Department of Health and Human Services, Centers for Medicare and Medical Services. Medicare coverage: general information. http://www.hhs.gov. Accessed January 26, 2010.
14. US Department of Health and Human Services. Medicare benefit policy manual. http://www.cms.hhs.gov/Manuals/downloads/bp102c15.pdf. Accessed January 26, 2010.
15. American Speech-Language-Hearing Association, Therapy Cap Advocacy Center. Latest developments. cap. Accessed January 27, 2010.
16. Cherney LR, Patterson JP, Raymer A, Frymark T, Schooling T. Evidence-based systematic review: effects of intensity of treatment and constraintinduced language therapy for individuals with stroke-induced aphasia. J Speech Hearing Res. 2008;51(5):282-288.
17. Harnish SM, Neils-Strunjas J, Eliassen JC. Use of fMRI in the study of chronic aphasia recovery after therapy: a case study. Top Stroke Rehabil. 2008;15(5):468-483.
18. Bhogal SK, Teasell R, Speechley M. Intensity of aphasia therapy. Stroke. 2003;34(4):987-993.
19. DeRuyter F, Fromm D, Holland A, Stein M. Treatment efficacy summary: aphasia resulting from left hemisphere stroke. Rockville, MD: American Speech-Language-Hearing Association. www.asha.org/updoadedFiles/ public/TreatmentEfficacySummaries2008. pdf#search=%22treatment%22. Accessed January 27, 2010.
20. American Speech-Language-Hearing Association. Medical necessity for speech-language pathology and audiology services. 2004. www.asha.org/ uploadedfiles/slp/healthcare/mednecfifinal3.pdf. Accessed January 27, 2010.
21. Aphasia Institute Web site, .
22. Aphasia Center of California Web site. . aphasiacenter.org.
23. Adler Center Web site. center.org.
24. Connect: The Community Disability Network. UK Connect Web site. .
25. Naeser MA, Martin PI, Lundgren K, et al. Improved language in a chronic nonfl uent aphasia patient after treatment with CPAP and TMS. Cogn Behav Neurol. 2010;23(1):29-38.
26. Katz RC. Computers in the treatment of chronic aphasia. Semin Speech Lang. 2010;31(1):34-41.
27. Code C, Torney A, Gildea-Howardine E, Willmes K. Outcome of a one-month therapy intensive for chronic aphasia: variable individual responses. Semin Speech Lang. 2010;31(1):21-33.
28. Lazar RM, Berman MF, Festa JR, Geller AE, Matejovsky TG, Marshall RS. GABAergic but not anti-cholinergic agents re-induce clinical defi cits after stroke. J Neurol Sci. 2010;292(1-2):72-76.
29. Hamilton RH, Sanders L, Benson J, et al. Stimulating conversation: enhancement of elicited propositional speech in a patient with chronic non-fl uent aphasia following transcranial magnetic stimulation. Brain Lang. 2010;113(1):45-50.
30. Martin PI, Naeser MA, Ho M, et al. Research with transcranial magnetic stimulation in the treatment of aphasia. Curr Neurol Neurosci Rep. 2009;9(6):451-458.
31. Small SL, Llano DA. Biological approaches to aphasia treatment. Curr Neurol Neurosci Rep. 2009;9(6):443-450.
32. Crosson B, Moore AB, McGregor KM, et al. Regional changes in word-production laterality after a naming treatment designed to produce a rightward shift in frontal activity. Brain Lang. 2009;111(2):73-85.
33. Norton A, Zipse L, Marchina S, Schlaug G. Melodic intonation therapy: shared insights on how it is done and why it might help. Ann NY. 2009;1169:431-436.
34. Manheim LM, Halper AS, Cherney L. Patientreported changes in communication after computer-based script training for aphasia. Arch Phys Med Rehabil. 2009;90(4):623-637.
35. Fridriksson J, Baker JM, Whiteside J, et al. Treating visual speech production perception to improve speech production in nonfl uent aphasia. Stroke. 2009;40(3):853-858.
36. Goral M, Kempler D. Training verb production in communicative context: evidence from a person with chronic non-fluent aphasia. Aphasiology. 2009;23(12):1383-1397.
37. Kim M, Tomaino CM. Protocol evaluation for effective music therapy for persons with nonfl uent aphasia. Top Stroke Rehabil. 2008;15(6): 555-569.
38. Cherney LR, Halper AS. Novel technology for treating individuals with aphasia and concomitant cognitive defi cits. Top Stroke Rehabil. 2008;15(6):542-554.
39. Johnson RK, Hough MS, King KA, Vos P, Jeffs T. Functional communication in individuals with chronic severe aphasia using augmentative communication. Augment Altern Commun. 2008;24(4):269-280.
40. Cherney LR, Patterson JP, Raymer A, Frymark T, Schooling T. Language therapy for individuals with stroke-induced aphasia. J Speech Lang Hear Res. 2008;51(5):1282-1299.
41. Simmons-Mackie N, Damico JS. Exposed and embedded corrections in aphasia therapy: issues of voice and identity. Int J Lang Commun Dis. 2008;43(suppl 1):5-17.
42. Szaflarski JP, Ball A, Grether S, et al. Constraintinduce therapy aphasia therapy stimulates language recovery in patients with chronic aphasia after ischemic stroke. Med Sci Monit. 2008;14(5):CR243-CR250.
43. Raymer AM, Beeson P, Holland A, et al. Translational research in aphasia: from neuroscience to neurorehabilitation. J Speech Lang Hear Res. 2008;51(1):S259-S275.
44. Ramsberger G, Marie B. Self-administered cued naming therapy: a single-participant investigation of a computer-based therapy program replicated in four cases. Am J Speech Lang Pathol. 2007;16(4):343-358.
45. Breier JI, Maher LM, Schmadeke S, Hasan KM, Papanicolaou AC. Changes in languagespecifi c brain activation after therapy for aphasia using magnetoencephalography: a case study. Neurocase. 2007;13(3):169-177.
46. Barrett AM, Eslinger PJ. Amantadine for adynamic speech: possible benefi t for aphasia? Am J Phys Med Rehabil. 2007;86(8):605-612.
47. Crossen B, Fabrizio KS, Singletary F, et al. Treatment of naming in nonfl uent aphasia through manipulation of intention and attention: a phase 1 comparison of two novel treatments. J Int Neuropsychol Soc. 2007;13(4):582-594.
48. Hillis AE. Pharmacological, surgical, and neurovascular interventions to augment acute aphasia recovery. Am J Phys Med Rehabil. 2007;86(6):426-434.
49. Pinhasi-Vittorio L. The role of written language in the rehabilitation process of brain injury and aphasia: the memory of the movement in the reacquisition of language. Top Stroke Rehabil. 2007;14(1):115-122.
50. Levin T, Scott BM, Borders B, Hart K, Lee J, Decanini A. Aphasia talks: photography as a means of communication, self-expression, and empowerment in persons with aphasia. Top Stroke Rehabil. 2007;14(1):72-84.
51. Raymer AM, Singletary F, Rodriguez A, Ciampitti M, Heilman KM, Rothi LJ. Effects of gesture + verbal treatment for noun and verb retrieval in aphasia. J Int Neuropsychol Soc. 2006;12(6), 867-882.
52. Maher LM, Kendall D, Swearengin JA, et al. A pilot study of use-dependent learning in the context of constraint induced language therapy. J Int Neuropsychol Soc. 2006;12(6):843-852.
53. Beeson PM, Egnor H. Combining treatment of writing and spoken naming. J Int Neuropsychol Soc. 2006;12(6):816-827.
54. Macauley BL. Animal-assisted therapy for persons with aphasia: a pilot study. J Rehabil Res Dev. 2006;43(3):357-366.
55. Kendall DL, Nadeau SE, Conway T, Fuller RH, Riestra A, Gonzolez Rothi LJ. Treatability of different components of aphasia insights from a case study. J Rehabil Res Dev. 2006;43(3):323-336.
56. Marshall RC, Freed DB. The personalized cueing method: from the laboratory to the clinic. Am J Speech Lang Pathol. 2006;15(2):103-111.
57. Kagan A. Supported conversation for adults with aphasia: methods and resources for training conversation partners. Aphasiology. 1998;12(9):816-830.
58. Kagan A, Black SE, Duchan JF, Simmons-Mackie N, Square P. Training volunteers as conversation partners using supported conversation for adults with aphasia (SCA): a controlled trial. J Speech Lang Hear Res. 2001;4:624-638.
59. Elman RJ. Practicing outside the box. ASHA. 1999;41(6):38-42.
60. Elman RJ, Bernstein-Ellis E. The efficacy of group communication treatment in adults with chronic aphasia. J Speech Lang Hear Res. 1999;42(2):411-419.
61. The National Aphasia Association. Aphasia community groups. http://www.aphasia.org/aphasia-community/aphasia-community-groups.html.
62. LPAA Project Group. Life participation approach to aphasia: a statement of values for the future. ASHA Leader. 2000;5(3):4-6.
63. Chapey R, Duchan JF, Elman RJ, et al. Life participation approach to aphasia: a statement of values for the future. In: Chapey R, ed. Language Itervention Strategies in Aphasia and Related Neurogenic Communication Disorders. 4th ed. Philadelphia, PA: Lippincott, Williams, and Wilkins; 2001:235-245.
64. Simmons-Mackie NN. Social approaches to the management of aphasia. In: Worrall LE, Frattali CM, eds. Neurogenic Communication Disorders: A Functional Approach. New York, NY: Thieme Publishers; 2000:162-185.
65. Ross KB, Wertz RT. Quality of life with and without aphasia. Aphasiology. 2003;17(4):355-364.
66. World Health Organization. International Classifi cation of Functioning, Disability and Health (ICF). Geneva: Author; 2001.
67. Threats T. Towards an international framework for communication disorders: use of the ICF. J Commun Dis. 2006;39:251-265.
68. Simmons-Mackie N, Kagan A. Application of the ICF in aphasia. Sem Speech Lang. 2007;28(4):244-253.
69. Simmons-Mackie N. Using the ICF framework to defi ne outcomes. Perspect Neurophysiol Neurogenic Speech Lang Dis. 2004;14(1):9-11.
70. Kagan A, Simmons-Mackie N, Rowland A, et al. Counting what counts: a framework for capturing real-life outcomes of aphasia intervention. Aphasiology. 2008;22(3):258-280.
71. American Speech-Language-Hearing Association. Scope of Practice in Speech-Language Pathology. Rockville, MD: Author; 2001.
72. Frattali CM. Measuring modality-specifi c behaviors, functional abilities, and quality of life. In: Frattali CM, ed. Measuring Outcomes in Speech-Language Pathology. New York: Thieme; 1998:55-88.
73. Holland AL, Thompson CK. Outcomes measurement in aphasia. In: Frattali CM, ed. Measuring Outcomes in Speech-Language Pathology. New York: Thieme,1998:245-266.
74. Eadie TL, Yorkston KM, Klasner ER, et al. Measuring communication participation: a review of selfreport instruments in speech-language pathology. Am J Speech Lang Pathol. 2006;15:307-320.
75. Simmons-Mackie N, Threats TT, Kagan A. Outcome assessment in aphasia: a survey. J Commun Dis. 2004;38:1-27.
76. Worrall L, McCooey R, Davidson B, Larkins B, Hickson L. The validity of functional assessments of communication and the activity/participation components of the ICIDH-2: do they reflect what really happens in real-life? J Commun Dis. 2002;35:107-137.
77. Wallace GJ. Comparative Performance of Severe Aphasics in the Comprehension, Repetition, Naming, and Reading of Personally-Relevant Language Versus Extrapersonal Language [dissertation]. Evanston, IL: Northwestern University; 1981.
78. Wallace GJ, Canter GJ. Effects of personally relevant language materials on the performance of severely aphasic individuals. J Speech Hear Dis. 1985;50:385-390.
79. Natterlund BS. A new life with aphasia: everyday activities and social support. Scand J Occup Ther. 2009;16:1-13.
80. Ross KB, Wertz RT. Relationships between language-based disability and quality of life in chronically aphasic adults. Aphasiology. 2002;16(8):791-800.
81. Kertesz A. Western Aphasia Battery. New York: Grune & Stratton; 1982.
82. Kertesz A, Poole E. The aphasia quotient: the taxonomic approach to measurement of aphasia disability. Can J Neurol Sci. 2004;31:175-184.
83. Frattali CM, Thompson CM, Holland AL, Wohl CB, Ferketic MM. ASHA Functional Assessment of Communication Skills for Adults (FACS). Rockville, MD: American Speech-Language-Hearing Association; 1995.
84. Wallace G. Wallace Motor Screening Scale (WMSS). Unpublished assessment. Cincinnati, OH: University of Cincinnati; 1995.
85. Wallace G. The Profi le of Functional Activities and Life Participation (PFALP). Unpublished assessment of functional activities and participation. Knoxville, TN: University of Tennessee; 1995.
86. Wallace G. Examining participation and restrictions of people with and without aphasia using the Profi le of Functional Activities and Life Participation (PFALP). Manuscript in preparation.
87. Wallace G. The Reliable Assessment of Neuro- Behavioral Organization. Unpublished assessment system for people with acquired brain injury. Knoxville, TN: University of Tennessee; 1995.
88. Wallace G. Assessment of individuals from diverse backgrounds. In: Wallace G, ed. Multicultural Neurogenics: A Resource for Speech-Language Pathologists. San Antonio, TX: Psychological Corp; 1997:57-113.
89. Wallace G. The Reliable Assessment Inventory of Neuro-Behavioral Organization (RAINBO): an inclusion approach to the assessment of adults with aphasia. Paper presented at: 8th International Aphasiology Conference; 1998; Kwa Maritane Pilanesburg, South Africa.
90. Wallace G. The Reliable Assessment Inventory of Neuro-Behavioral Organization (RAINBO). Invited presentation at: World Health Organization (WHO) Collaborating Center for the Classifi cation of Disease for North America 6th Annual NACC Meeting on ICIDH; 1999; Vancouver, British Columbia, Canada.
91. Wallace G. The Reliable Assessment Inventory of Neuro-Behavioral Organization (RAINBO) and the RAINBO-BAPS (Body, Activities, and Participation Screening): practical applications of the ICIDH-2. Invited expert witness testimony presented to: World Health Organization; 2000; Washington, DC.
92. Wallace G, Threats T. Functional outcomes using the WHOs participation model. Paper presented at: National Black Speech-Language and Hearing Association (NBALSH) Annual Convention; 2000; Jackson, MI.
93. Wallace G. Enhancing aphasia profi ling using the ICF-based Reliable Assessment Inventory of Neuro- Behavioral Organization (RAINBO) System. Invited paper presented at: 10th International Aphasia Conference, 2002; Brisbane, Australia.
94. Cameron AC, Trivedi PK. Regression Analysis of Count Data. Cambridge, England: Cambridge University Press; 1998.
95. Patton MQ. Qualitative Research and Evaluation Methods. 3rd ed. Thousand Oaks, CA: Sage Publications.
96. Haley K, Jenkins K, Hadden C, Womack J, Hall J, Schweiker C. Sorting pictures to assess participation life activities. Perspectives. 2005;15(4):11-15.
97. Dalemans R, de Witte LP, Lemmens J, van den Heuvel WJ, Wade DT. Measures for rating social participation in people with aphasia: a systematic review. Clin Rehabil. 2008;22:542-555.
98. Perenboom RJM, Chorus AMJ. Measuring participation according to the International Classifi cation of Functioning, Disability and Health (ICF). Disabil Rehabil. 2003;25(11-12):577-587.
99. Hammel J, Magasi S, Heinemann A, Whiteneck G, Bogner J, Rodriguez E. What does participation mean? an insider perspective from people with disabilities. Disabil Rehabil. 2008;30(19): 1445-1460.
100. Lyon J. Coping With Aphasia. San Diego, CA: Singular Publishing Group; 1998.
101. Williams O. Stroke Diaries: A Guide for Survivors and Their Families. New York: Oxford University Press; 2010.
102. Dalemans RJP, de Witte L, Wade D, van den Heuvel W. Social participation through the eyes of people with aphasia [published online ahead of print October 20, 2009]. Int J Lang Commun Dis.
103. Howe TJ, Worrall LE, Hickson LMH. Interviews with people with aphasia: environmental factors that influence their community participation. Aphasiology. 2008;22(10):1092-1120.
104. Moss A, Nicholas M. Language rehabilitation in chronic aphasia and time postonset: a review of single-subject data. Stroke. 2006;37:3043-3051.
105. Burns MS, Canter CJ. Phonemic behavior of aphasic patients with posterior cerebral lesions. Brain Lang. 1977;4:492-507.
106. Williams SE, Canter GJ. The infl uence of situational context on naming performance in aphasic syndromes. Brain Lang. 1982;17:92-106.
107. Gallaher AJ, Canter GJ. Reading and listening comprehension in Brocas aphasia: lexical versus syntactical errors. Brain Lang. 1982;17:183-192.
108. Langmore SE, Canter GJ. Written spelling defi cit of Brocas aphasics. Brain Lang. 1983;18:293-314.
109. Canter GJ, Trost JE, Burns MS. Contrasting speech patterns in apraxia of speech and phonemic paraphasia. Brain Lang. 1985;24:204-222.
110. Wallace GL, Canter GJ. Comprehension of neutral, melodically intoned, and affectively toned sentences by adults with aphasia. J Commun Dis. 1985;18:321-327.
111. Boyle M, Canter GJ. Neuropsychological analysis of a typewriting disturbance following cerebral damage. Brain Lang. 1987;30:147-164.
112. Williams SE, Canter GJ. Action-naming performance in four syndromes of aphasia. Brain Lang. 1987;32:124-136.
113. Venus CA, Canter GJ. The effect of redundant cues on comprehension of spoken messages by aphasic adults. J Commun Dis. 1987;20:477-491.
114. Li EC, Canter GJ. An investigation of Lurias hypothesis on prompting in aphasic naming disturbances. J Commun Dis. 1987;20:469-475.
115. Peach RK, Canter GJ, Gallaher AJ. Comprehension of sentence structure in anomia and conduction aphasia. Brain Lang. 1988;35:119-137.
116. Cherney LR, Canter GJ. Informational content in the discourse of patients with probable Alzheimers disease and patients with right brain damage. Clin Aphasiol. 1992;22:123-134.