End-of-life experiences: Reaching out for compassion, communication, and connection-meaning of deathbed visions and coincidences

American Journal of Hospice and Palliative Medicine

Volumn 28, Issue 1, 2011, Pages 7-15

  Fenwick, Peter ^a,b   Brayne, Sue ^c  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^c Wychcroft   (United Kingdom)

Author keywords

deathbed coincidences; deathbed visions; end of life experiences; spiritual

Indexed keywords

ARTICLE; ATTITUDE TO DEATH; CAREGIVER; EMPATHY; HEALTH PERSONNEL ATTITUDE; HUMAN; HUMAN RELATION; LIFE EVENT; METHODOLOGY; PALLIATIVE THERAPY; PSYCHOLOGICAL ASPECT; RELIGION; TERMINALLY ILL PATIENT; UNITED STATES;

ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO DEATH; CAREGIVERS; EMPATHY; HUMANS; INTERPERSONAL RELATIONS; LIFE CHANGE EVENTS; PALLIATIVE CARE; RELIGION AND MEDICINE; SPIRITUALITY; TERMINALLY ILL; UNITED STATES;

EID: 78751491038     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909110374301     Document Type: Article

References (50)

1. Youngson R. Compassion in healthcare: The missing dimension of healthcare reform? The NHS Confederation; May 2008; London, England. http://www.debatepapers.org.uk/pdf/Futures-Debate-2.pdf. Accessed June 3, 2008.
2. YouGov for Dignity in Dying. Dying Alone: Dignity in Dying, April, 2008. http://www.dignityindying.org.uk/uploadedFiles/About_Us/Dying%20Alone.pdf. Accessed May 16, 2008.
3. Higginson I. Priorities for end-of-life care in England, Wales and Scotland National Council. Powerpoint presentation by Department of Health: What is the End-of-life Care Programme. www.endoflifecare.nhs.uk. 2003. Accessed June 12, 2008.
4. Mayor S, ed. Care of dying patients and safety dominate report by NHS complaints. BMJ News. 2008;334:278. http// bmj.bmjjournals. com/cgi/content/full/334/7588/278?ck=nck. Accessed June 3, 2008.
5. Curtis JR, Engelberg RA, Nielsen EL, Au DH, Patrick DL Patient-physician communication about end-of-life care for patients with severe COPD. Eur Respir J. 2004;24(2):200-205.
6. Rousseau P. Spirituality and the dying patient. J Clin Oncol. 2000;18(9):2000-2002.
7. Pulchalski C., Ferrel B., Virani R.,et al.Improving the quality of spiritual care as a dimension of palliative care: the report of the Consensus Conference. J Palliat Med. 2009;12(10): 885-904.
8. Dyson J., Cobb M., Forman D. The meaning of spirituality: a literature review. J Adv Nurs. 1997;26(6):1183-1188.
9. Tani A. Nursing theory and concept development or analysis: towards clarification of meaning of spirituality. J Adv Nurs. 2002; 39(5):500-509.
10. Stanworth R. Recognising Spiritual Needs in People who are Dying. New York, NY: Oxford University Press; 2004.
11. MacKindlay EB, Trivett C. Spiritual care and ageing in a secular society. Med J Aust. 2007;186(10 suppl):S74-S76.
12. Grant E., Murray SA, Kendall M., Body K., Tilley D., Ryan D. Spiritual issues and needs: perspective from patients with advanced cancer and non-malignant disease. A qualitative study. Palliat Support Care. 2004;2(4):371-378.
13. Molzahn AE, Shields L. Why is it so hard to talk about spirituality? Can Nurse. 2008;104(1):25-29.
14. Culliford L. Spiritual care and psychiatric treatment: an introduction. Adv Psychiatr Treat. 2002;8:249-258. http://apt.rcpsych.org/cgi/content/full/8/4/249. Accessed July 5, 2008.
15. Cobb M. The Dying Soul: Spiritual Care at the End-of-life. Buckinghamshire, England: Open University Press; 2001.
16. Walter T. Developments in spiritual care for the dying. Religion. 1996;26(4):353-363.
17. Kellehear A. Spirituality and palliative care, a model of needs. Palliat Med. 2000;14(2):149-155.
18. Eresk M. Palliative Care Nursing Education: opportunity for gerontological nurses. J Gerontol Nurs. 2005;13(71):45-51.
19. Help the Aged/Peer Education Project Group. Listening to Older People: Opening the door for older people to explore end-of-life issues. We Will: Help the Aged. 2006.
20. Brayne S., Lovelace H., Fenwick P. An Understanding of the occurence of deathbed phenomena and its effect on palliative care clinicians. Am J Hosp Palliat Med. 2006;23(1):17-24.
21. Brayne S., Lovelace H., Fenwick P. End-of-life experiences and the dying process in a Gloucestershire nursing home as reported by nurses and care assistants. Am J Hosp Palliat Care. 2008; 25(3):195-206.
22. Fenwick P., Lovelace H., Brayne S. Comfort for the dying: five year retrospective and one year prospective studies of end of life experiences [published online ahead of print Nov 12]. Arch Gerontol Geriatr. 2009.
23. Betty SL Are they Hallucinations or are they real? The spirituality of deathbed and near-death visions. Omega. 2006;53(1-2): 37-49.
24. Osis K., Haraldsson E. At The Hour of Death. New York, NY: Hastings House Book Publishers; 1997.
25. Fenwick P., Fenwick E. The Art of Dying. Continuum; 2008.
26. Penman D. The angels of death. Daily Mail. February 17, 2007.
27. Richard and Judy UK TV Channel 4 Chat show. February 2007.
28. Callalan M., Kelly P. Final Gifts. New York, NY: Bantam Books; 1998.
29. Bowlby J. The Making and Breaking of Affectional Bonds. New York, NY: Routledge; 1979:82-89.
30. O'Connor D. Palliative care nurses' experiences of paranormal phenonema and their influences on nursing practice. Inter-disciplinary conference on Making Sense of Dying and Death Inter-disciplinary; November 21-23, 2003; Paris, France.
31. Vaughan F. Shadows of the Sacred: seeing Through Spiritual Illusions. Wheaton, IL: Quest Books; 1995.
32. Chandler CK, Holden JM, Kolander CA Counselling for spiritual wellness. Theory and practice. J Counsel Dev. 1992;71(2):169-175.
33. Burkhardt MA Becoming and connection: elements of spirituality for women. Holistic Nurs Pract. 1994;8(4):12-21.
34. Brayne S., Fenwick, P. The care of training to deal with end-of-life experiences. Eu J Palliat Care. 2008;15(3):118-120.
35. Nuland S. How we die: reflections of life's final chapters. New York, NY: Knopf; 1994.
36. Barbato M., Bluden C., Reid K., Irwin H., Rodriquez P. Parapyschological phenomena near the time of death. J Palliat Care. 1999; 15(2):30.
37. Lo B., Ruston D., Kates LW,et al.Discussing religious and spiritual issues at the end-of-life. JAMA. 2002;287(6):749-754.
38. Townsend KC, McWhirter B. Connectedness: a review of literature with implications for counselling, assessment, and research. J Counsel Dev. 2005;83(21):191-201.
39. Lederberg MS, Fitchett G. Can you measure a sunbeam with a ruler? Psychooncology. 1999;8(5):375-377.
40. Pulchalski C., Romer L. Taking a spiritual history allows clinicians to understand patients more fully. J Palliat Med. 2000;3(1):129-137.
41. Cassel E. J. The Nature of Suffering and Goals of Medicine. New York, NY: Oxford University Press; 1991.
42. Lippa PA On deconstructing and reconstructing masculinityfemininity. J Res Pers. 2001;35(2):168-207.
43. Osis K., Haraldsson E. Deathbed observations by physicians and nurses: a cross cultural survey. J Am Soc Psychical Res. 1977; 71(3):237-259.
44. Lakhmir S., Chawla LS, Akst S., Junker C., Jacobs B., Seneff MG Surges of Electroencephalogram activity at the time of death: a case series. J Palliat Med. 2009;12(12):1095-1100.
45. The Times. Online June 8, 2004.
46. Chochinov HM Dying, dignity and new horizons in palliative end-of-life care. Cancer J Clin. 2006;56(2):84-103.
47. Brayne S. The D Word: Talking About Dying. Continuum; 2010.
48. MacConville U. Ways of Knowing: Accounts of a sense of presence experiences and deathbed visions 1969-1999 [master's thesis in Death & Society]. Reading, England: University of Reading; 2000.
49. Elias E. Through the looking glass: a reflection. Jung: The e-Journal of the Jungian Society for Scholarly Studies. 2006;2(8b). http://www.thejungiansociety.org/jung%20Society/e-journal/Volume-2/Elias-2006b.html. Accessed June 10, 2008.
50. Rees D. The hallucinations of widowhood. Br Med J. 1971; 4(5778):37-41.