Did you seek assistance for writing your advance directive? A qualitative study

Wiener Klinische Wochenschrift

Volumn 122, Issue 21-22, 2010, Pages 620-625

  Becker, Matthias ^a,b   Jaspers, Birgit ^a,b   King, Claudius ^a   Radbruch, Lukas ^b   Voltz, Raymond ^c   Nauck, Friedemann ^a  

^a UNIVERSITY MEDICAL CENTER GÖTTINGEN   (Germany)

^b UNIVERSITY OF BONN   (Germany)

^c UNIVERSITY HOSPITAL OF COLOGNE   (Germany)

Author keywords

Advance directive; Advice; Autonomy; Family physician; Trust

Indexed keywords

ADULT; AGED; ARTICLE; AWARENESS; CHRONIC PATIENT; CLINICAL ARTICLE; CONTROLLED STUDY; FEMALE; HUMAN; INFORMATION SEEKING; LIVING WILL; MALE; PALLIATIVE THERAPY; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; TERMINAL CARE; WRITING;

ADVANCE DIRECTIVES; AGED; FEMALE; GERMANY; HUMANS; MALE; MIDDLE AGED; PALLIATIVE CARE; PATIENTS; PHYSICIAN-PATIENT RELATIONS; REFERRAL AND CONSULTATION; TERMINAL CARE; WRITING;

EID: 78651394439     PISSN: 00435325     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00508-010-1470-6     Document Type: Article

References (29)

1. LL Emanuel 2008 Advance directives Annu Rev Med 59 187 198 1:CAS:528:DC%2BD1cXis12ntbg%3D 10.1146/annurev.med.58.072905.062804 17716024
2. HS Perkins 2007 Controlling death: the false promise of advance directives Ann Intern Med 147 51 57 17606961
3. AW Bauer 2009 Chances and limitations of patients' advance decisions at the end of life Wien Med Wochenschr 159 431 438 10.1007/s10354-009-0701-9 19823789 [Article in German]
4. MK Crane M Wittink DJ Doukas 2005 Respecting end-of-life treatment preferences Am Fam Physician 72 1263 1268 16225029
5. S Waibel P Novak S Roller 1999 Patientenverfügungen: Der Arzt als Gesprächspartner Dtsch Arztebl 96 836 837
6. D Birnbacher P Dabrock J Taupitz J Vollmann 2007 Wie sollten Ärzte mit Patientenverfügungen umgehen? Ein Vorschlag aus interdisziplinärer Sicht Ethik Med 19 139 147 10.1007/s00481-007-0501-y
7. G Bravo MF Dubois B Wagneur 2008 Assessing the effectiveness of interventions to promote advance directives among older adults: a systematic review and multi-level analysis Soc Sci Med 67 1122 1132 10.1016/j.socscimed. 2008.06.006 18644667
8. H Heiman DW Bates D Fairchild S Shaykevich LS Lehman 2004 Improving completion of advance directives in the primary care setting: a randomized controlled trial Am J Med 117 318 324 10.1016/j.amjmed.2004.03.027 15336581
9. RL Sudore CS Landefeld DE Barnes K Lindquist BA Williams R Brody, et al. 2007 An advance directive redesigned to meet the literacy level of most adults: a randomized trial Patient Educ Couns 68 165 195 10.1016/j.pec.2007.08.015
10. Tamayo-Velázquez MI, Simón-Lorda P, Villegas-Portero R, Higueras-Callejón C, García-Gutiérrez JF, Martínez-Pecino F, et al. Interventions to promote the use of advance directives: an overview of systematic reviews. Patient Educ Couns 2009;Oct 28 [Epub ahead of print]
11. AT May S Niewohner J Bickhardt H Kre S Rothärmel 2005 Standards für die Beratungen zu Patientenverfügungen Ethik Med 17 332 336 10.1007/s00481-005-0403-9
12. MF Folstein SE Folstein PR McHugh 1975 Mini-mental state. A practical method for grading the cognitive state of patients for the clinician J Psychiatr Res 12 189 198 1:STN:280:DyaE28%2FntFKjtw%3D%3D 10.1016/0022-3956(75)90026-6 1202204
13. AS Zigmond RP Snaith 1983 The hospital anxiety and depression scale Acta Psychiatr Scand 67 361 370 1:STN:280:DyaL3s3nvFWjug%3D%3D 10.1111/j.1600-0447. 1983.tb09716.x 6880820
14. N Holtom J Barraclough 2000 Is the Hospital Anxiety and Depression Scale (HADS) useful in assessing depression in palliative care? Palliat Med 14 219 220 1:STN:280:DC%2BD3czhs1Kgtw%3D%3D 10.1191/026921600675483740 10858831
15. L Radbruch R Sabatowski G Loick I Jonen-Thielemann F Elsner E Hörmann 2000 MIDOS-validation of a minimal documentation system for palliative medicine Schmerz 14 231 239 1:STN:280:DC%2BD3s3ntlenug%3D%3D 10.1007/s004820070028 12800029 [Article in German]
16. Mayring P. Qualitative Inhaltsanalyse. Grundlagen und Techniken, 10., neu ausgestattete Auflage. Weinheim, Basel: Beltz; 2008
17. Kuckartz U. Einführung in die computergestützte Analyse qualitativer Daten, 3., aktualisierte Auflage. Wiesbaden: Vs-Verlag für Sozialwissenschaften; 2010
18. E Chaitin R Stiller S Jacobs J Hershl T Grogen J Weinberg 2003 Physician-patient relationship in the intensive are unit: erosion of the sacred trust? Crit Care Med 31 S367 S372 10.1097/01.CCM.0000066452.48589.F4 12771585
19. Cassell E. The healer's art. New York: Lippincott; 1976. pp. 44-6
20. Starr P. The social transformation of American medicine. New York: Basic Books; 1949
21. N Hallowell 2008 Encounters with medical professionals: a crisis of trust or matter of respect? Med Health Care Philos 11 427 437 10.1007/s11019-008- 9156-9 18665455
22. B van Oorschot A Simon 2006 Importance of the advance directive and the beginning of the dying process from the point of view of German doctors and judges dealing with guardianship matters: results of an empirical survey J Med Ethics 32 623 626 1:STN:280:DC%2BD28njvFWrtg%3D%3D 10.1136/jme.2005.015032 17074817
23. EM Ozanne A Partridge B Moy KJ Ellis KR Sepucha 2009 Doctor-patient communication about advance directives in metastatic breast cancer J Palliat Med 12 547 553 10.1089/jpm.2008.0254 19508141
24. C Schäfer K Putnik B Dietl O Kölbl 2006 Medical decision-making of the patient in the context of the family: results of a survey Support Care Cancer 14 952 959 10.1007/s00520-006-0025-x 16465526
25. EB Lamont M Siegler 2000 Paradoxes in cancer patients' advance care planning J Palliat Med 3 27 35 1:STN:280:DC%2BD2M3isFymsQ%3D%3D 10.1089/jpm.2000.3.27 15859719
26. C Hackler 2004 Communication through advance directives Wien Klin Wochenschr 116 427 430 10.1007/BF03040930 15344341
27. G Loewenstein 2005 Projection bias in medical decision making Med Decis Making 25 96 105 10.1177/0272989X04273799 15673587
28. N Thorevska L Tilluckdharry S Tickoo A Havasi Y Amoateng-Adjepong CA Manthous 2005 Patients' understanding of advance directives and cardiopulmonary resuscitation J Crit Care 20 26 34 10.1016/j.jcrc.2004.11.002 16015514
29. ML Rurup BD Onwuteaka-Philipsen A van der Heide G van der Wal DJ Deeg 2006 Frequency and determinants of advance directives concerning end-of-life care in The Netherlands Soc Sci Med 62 1552 1563 10.1016/j.socscimed.2005.08.010 16162380