Quality of life of children with spina bifida in Kenya is not related to the degree of the spinal defects

Tropical Medicine and International Health

Volumn 16, Issue 1, 2011, Pages 30-36

  Cornegé Blokland, Esther ^a   Jansen, H E ^a   De Jong De Vos Van Steenwijk, C C E ^b   Poenaru, Dan ^c  

^a UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

^b UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

^c AIC KIJABE HOSPITAL   (Kenya)

Author keywords

Africa; Disability; Quality of life; Spina bifida

Indexed keywords

CHILD HEALTH; DISABILITY; HOSPITAL SECTOR; NERVOUS SYSTEM DISORDER; QUALITY OF LIFE; SYMPTOM;

ADOLESCENT; ARTICLE; BRAIN VENTRICLE PERITONEUM SHUNT; CHILD; CHILD CARE; CHILD DEVELOPMENT; CLINICAL ASSESSMENT; CONTROLLED STUDY; FEMALE; HUMAN; HYDROCEPHALUS; INFANT; INTERMITTENT CATHETERIZATION; KENYA; LIPOMENINGOCELE; MAJOR CLINICAL STUDY; MALE; MENINGOCELE; MENINGOMYELOCELE; PRESCHOOL CHILD; QUALITY OF LIFE; SCHOOL CHILD; SCORING SYSTEM; SPINA BIFIDA; SPINAL CORD DISEASE; SYMPTOM; URINE INCONTINENCE; VISUAL ANALOG SCALE;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; DISABILITY EVALUATION; EPIDEMIOLOGIC METHODS; FEMALE; HUMANS; INFANT; INFANT, NEWBORN; KENYA; MALE; PSYCHOMETRICS; QUALITY OF LIFE; SPINAL DYSRAPHISM; URINARY INCONTINENCE;

KENYA;

EID: 78650200128     PISSN: 13602276     EISSN: 13653156     Source Type: Journal    
DOI: 10.1111/j.1365-3156.2010.02680.x     Document Type: Article

References (25)

1. Alatise OI, Adeolu AA, Komolafe EO, Adejuyigbe O & Sowande OA (2006) Pattern and factors affecting management outcome of spina bifida cystica in Ile-Ife, Nigeria. Pediatric Neurosurgery 42, 277-283.
2. Barf HA, Post MW, Verhoef M, Jennekens-Schinkel A, Gooskens RH & Prevo AJ (2007) Life satisfaction of young adults with spina bifida. Developmental Medicine and Child Neurology 49, 458-463.
3. Bier JA, Prince A, Tremont M & Msall M (2005) Medical, functional, and social determinants of health-related quality of life in individuals with myelomeningocele. Developmental Medicine and Child Neurology 47, 609-612.
4. Bowman RM, McLone DG, Grant JA, Tomita T & Ito JA (2001) Spina bifida outcome: a 25-year prospective. Pediatric Neurosurgery 34, 114-120.
5. Bowman RM, Boshnjaku V & McLone DG (2009) The changing incidence of myelomeningocele and its impact on pediatric neurosurgery: a review from the Children's Memorial Hospital. Child's Nervous System: ChNS: Official Journal of the International Society for Pediatric Neurosurgery 25, 801-806.
6. Cate IM, Kennedy C & Stevenson J (2002) Disability and quality of life in spina bifida and hydrocephalus. Developmental Medicine and Child Neurology 44, 317-322.
7. Charney EB, Melchionni JB & Antonucci DL (1991) Ventriculitis in newborns with myelomeningocele. American Journal of Diseases of Children (1960) 145, 287-290.
8. Davis BE, Daley CM, Shurtleff DB et al. (2005) Long-term survival of individuals with myelomeningocele. Pediatric Neurosurgery 41, 186-191.
9. Joyce CR, Hickey A, McGee HM & O'Boyle CA (2003) A theory-based method for the evaluation of individual quality of life: the SEIQoL. Quality of Life Research: an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation 12, 275-280.
10. Kaufman BA (2004) Neural tube defects. Pediatric Clinics of North America 51, 389-419.
11. Kirpalani HM, Parkin PC, Willan AR et al. (2000) Quality of life in spina bifida: importance of parental hope. Archives of Disease in Childhood 83, 293-297.
12. Kumar R & Singhal N (2007) Outcome of meningomyelocele/lipomeningomyelocele in children of northern India. Pediatric Neurosurgery 43, 7-14.
13. Lemelle JL, Guillemin F, Aubert D et al. (2006) Quality of life and continence in patients with spina bifida. Quality of Life Research: an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation 15, 1481-1492.
14. McLone DG & Dias MS (2003) The Chiari II malformation: cause and impact. Child's Nervous System: ChNS: Official Journal of the International Society for Pediatric Neurosurgery 19, 540-550.
15. Moons P, Marquet K, Budts W & De Geest S (2004) Validity, reliability and responsiveness of the "Schedule for the Evaluation of Individual Quality of Life-Direct Weighting" (SEIQoL-DW) in congenital heart disease. Health and Quality of Life Outcomes 2, 27.
16. Muller-Godeffroy E, Michael T, Poster M, Seidel U, Schwarke D & Thyen U (2008) Self-reported health-related quality of life in children and adolescents with myelomeningocele. Developmental Medicine and Child Neurology 50, 456-461.
17. O'Boyle C, Browne J, Hickey A, McGee H & Joyce C (1993) Schedule for the evaluation of individual quality of life (SEIQoL): a direct weighting procedure for quality of life domains (SEIQoL-DW). Administration Manual Dublin: Department of Psychology, Royal College of Surgeons in Ireland
18. Olsson I, Dahl M, Mattsson S, Wendelius M, Astrom E & Westbom L (2007) Medical problems in adolescents with myelomeningocele (MMC): an inventory of the Swedish MMC population born during 1986-1989. Acta Paediatrica (Oslo, Norway: 1992) 96, 446-449.
19. Padua L, Rendeli C, Rabini A, Girardi E, Tonali P & Salvaggio E (2002) Health-related quality of life and disability in young patients with spina bifida. Archives of Physical Medicine and Rehabilitation 83, 1384-1388.
20. Parkin PC, Kirpalani HM, Rosenbaum PL et al. (1997) Development of a health-related quality of life instrument for use in children with spina bifida. Quality of Life Research: an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation 6, 123-132.
21. Pearcy R, Waldron D, O'Boyle C & MacDonagh R (2008) Proxy assessment of quality of life in patients with prostate cancer: how accurate are partners and urologists? Journal of the Royal Society of Medicine 101, 133-138.
22. Rasmussen F, Lie HR, Hagelsteen JH et al. (1993) Nordic children with myelomeningocele. Parents' assessments of the handicap and physicians' classifications of the disabilities. Acta Paediatrica (Oslo, Norway: 1992) 82, 276-280.
23. Shurtleff DB (2000) 44 years experience with management of myelomeningocele: presidential address, Society for Research into Hydrocephalus and Spina Bifida. European Journal of Pediatric Surgery 10(Suppl. 1), 5-8.
24. Stein SC & Schut L (1979) Hydrocephalus in myelomeningocele. Child's Brain 5, 413-419.
25. Talamonti G, D'Aliberti G & Collice M (2007) Myelomeningocele: long-term neurosurgical treatment and follow-up in 202 patients. Journal of Neurosurgery 107(Suppl.), 368-386.