Commentary

Journal of Cystic Fibrosis

Volumn 9, Issue SUPPL. 2, 2010, Pages

  Fahy, Nick ^a  

^a EUROPEAN COMMISSION   (Belgium)

Author keywords

Cystic fibrosis; Demographics; EuroCareCF; Europe; Rare disease; Registry

Indexed keywords

CYSTIC FIBROSIS; EUROPEAN UNION; HEALTH CARE DELIVERY; HEALTH CARE PLANNING; HUMAN; NOTE; RARE DISEASE;

CYSTIC FIBROSIS; EUROPE; HUMANS; RARE DISEASES; REGISTRIES;

EID: 78649907417     PISSN: 15691993     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jcf.2010.10.001     Document Type: Note

References (12)

1. Treaty on the Functioning of the European Union, Article 168. Off J Eur Union C 2008, 9.5. 115/47.
2. Mehta G., Macek M., Mehta A. European Registry Working Group. Cystic fibrosis across Europe: EuroCareCF analysis of demographic data from 35 countries. J Cyst Fibros 2010, 9:S5-S21. (this issue).
3. Council Conclusions on Common values and principles in European Union Health Systems, OJ 2006/C 146/01 of 22.6.2006.
4. Communication from the Commission to the European Parliament, the Council, the European Economic and Social Committee and the Committee of the Regions on Rare Diseases: Europe's challenges. COM 2008, 679. of 11 November 2008.
5. See http://ec.europa.eu/research/health/medical-research/rare-diseases/index_en.html.
6. Regulation (EC) No 141/2000 of the European Parliament and of the Council of 16 December 1999 on orphan medicinal products, OJ L 18/1 of 22.1.2000.
7. Council Recommendation of 8 June 2009 on an action in the field of rare diseases, 2009/ C151/02, 3.7.2009.
8. See http://www.orpha.net/consor/cgi-bin/index.php.
9. European Centres of Reference Network for Cystic Fibrosis ECORN-CF (see ), funded from the EU Health Programme (Decision No 1350/2007/EC of the European Parliament and of the Council of 23 October 2007 establishing a second programme of Community action in the field of health (2008-13), OJ L 301/3 of 20.11.2007). http://ecorn-cf.eu/.
10. McCormick J., Mehta G., Olesen H.V., Viviani L., Macek M., Mehta A. European Registry Working Group. Comparative demographics of the European cystic fibrosis population: a cross-sectional database analysis. Lancet 2010, 375:1007-1013.
11. Bulgaria, Cyprus, the Czech Republic, Estonia, Hungary, Latvia, Lithuania, Romania, Slovakia and Slovenia.
12. "Health and Structural Funds in 2007-2013: Country and regional assessment", by Jonathan Watson; available from http://www.euregio3.eu/pages/publications/.