Methodological issues in the collection, analysis, and reporting of granular data in Asian American populations: Historical challenges and potential solutions

Journal of Health Care for the Poor and Underserved

Volumn 21, Issue 4, 2010, Pages 1354-1381

  Islam, Nadia Shilpi ^a   Khan, Suhaila ^b   Kwon, Simona ^a   Jang, Deeana ^d   Ro, Marguerite ^d   Trinh Shevrin, Chau ^c  

^a NEW YORK UNIVERSITY   (United States)

^b SHK Global Health   (United States)

^c NEW YORK UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d NYU Center for the Study of Asian American Health ^*

Author keywords

Asian American; Health disparities; Methodology; Minority health

Indexed keywords

ARTICLE; ASIAN AMERICAN; HUMAN; INFORMATION PROCESSING; METHODOLOGY; MINORITY HEALTH; STATISTICS; UNITED STATES;

ASIAN AMERICANS; DATA COLLECTION; HUMANS; MINORITY HEALTH; RESEARCH DESIGN; UNITED STATES;

EID: 78649598099     PISSN: 10492089     EISSN: 15486869     Source Type: Journal    
DOI: None     Document Type: Article

References (58)

1. U.S. Census Bureau. Profile of general demographic characteristics: 2000. Washington, DC: U.S. Census Bureau, 2000. Available at: http://factfinder. census.gov/servlet/QTTable?-bm5y&-geo-id5%200%201000US&-qr-name5DEC- 2000-SF1-U-DP1&-ds-name5DEC-2000-SF1-U&-redoLog5false.
2. Lin-Fu J. Asian and Pacific Islander Americans: an overview of demographics characteristics and health care issues. Asian Am Pac Isl J Health. 1993 Summer;1(1):20-36.
3. Ghosh C. Healthy People 2010 and Asian Americans/Pacific Islanders: defining a baseline of information. Am J Public Health. 2003 Dec;93(12):2093-2098.
4. Chen MS Jr, Hawks BL. A debunking of the myth of the health Asian Americans and Pacific Islanders. Am J Health Promot. 1995 Mar-Apr;9(4):261-268.
5. National Heart, Lung, and Blood Institute. Addressing cardiovascular health in Asian American and Pacific Islanders: a background report. Bethesda, MD: National Institutes of Health, 2000. Available at: http://www.nhlbi.nih.gov/ health/prof/heart/other/aapibkgd/aapibkgd.pdf.
6. Smedley BD, Stith AY, Nelson AR, eds. Unequal treatment: confronting racial and ethnic disparities in health. Washington, DC: The National Academies Press, 2003.
7. Panel on DHHS Collection of Race and Ethnic Data, Ver Ploeg M, Perrin E, eds. Eliminating health disparities: measurement and data needs. Washington, DC: The National Academies Press, 2004.
8. Ghosh C. Asian American health research: baseline data and funding. In: Trinh- Shevrin C, Islam NS, Rey MJ, eds. Asian American communities and health: context, research, policy and action. San Francisco, CA: Jossey Bass, 2009; 50-72.
9. U.S. Census Bureau. Current Population Survey: decennial census. Washington, DC: U.S. Census Bureau, 2009. Available at: http://www.census.gov/ population/www/socdemo/hh-fam.html#decennial.
10. National Center for Health Statistics. National Health Interview Survey public use data release. Hyattsville, MD: National Center for Health Statistics, 2008. Available at: http://www.cdc.gov/nchs/nhis.
11. National Center for Health Statistics. National Health and Nutrition Examination Survey. Atlanta, GA: Centers for Disease Control and Prevention, 2009. Available at: http://www.cdc.gov/nchs/nhanes.
12. National Center for Chronic Disease Prevention and Health Promotion. Behavioral Risk Factor Surveillance System (BRFSS) annual survey data. Atlanta, GA: Centers for Disease Control and Prevention, 2009. Available at: http://www.cdc.gov/BRFSS.
13. UCLA Center for Health Policy Research. California Health Interview Survey website. Los Angeles, CA: UCLA Center for Health Policy Research, 2008. Available at: http://www.chis.ucla.edu.
14. U.S. Census Bureau. 2006 American Community Survey. Washington, DC: U.S. Census Bureau, 2007.
15. Waksberg J, Levine D, Marker D. Assessment of major federal data sets for analyses of Hispanic and Asian or Pacific Islander subgroups and Native Americans: extending the utility of federal data bases. Washington, DC: U.S. Department of Health and Human Services, 2000. Available at: http://aspe.hhs.gov/hsp/minority-db00/task3/section2.htm.
16. Bajaj R. Recording voices: stories of Asian Pacific American youth as language brokers in New York City. New York, NY: Coalition for Asian American Children and Families, 2008. Available at: http://www.cacf.org/documents/ Recording%20Voices%20Policy%20Brief.pdf.
17. Islam NS, Trinh-Shevrin C, Rey MJ. Toward a contextual understanding of Asian American health. In: Trinh-Shevrin C, Islam NS, Rey MJ, eds. Asian American communities and health: context, research, policy and action. San Francisco, CA: Jossey Bass, 2009; 4-22.
18. Lucas J. Race and ethnicity data collection in federal surveys: the national health interview survey experience. Presented at: Office of Minority Health National Leadership Summit on Eliminating Racial and Ethnic Disparities in Health: A Blueprint for Change. National Harbor (MD), February 25-27, 2009.
19. Alegria M, Takeuchi D, Canino G, et al. Considering context, place, and culture: the National Latino and Asian American Study. Int J Methods Psychiatr Res. 2004; 13(4):208-20.
20. Freeman H, Kiecolt KJ, Nicholls WL 2nd, et al. Telephone sampling bias in surveying disability. Public Opin Q. 1982 Fall;46(3):392-407.
21. Weaver CN, Holmes SL, Glenn ND. Some characteristics of inaccessible respondents in a telephone survey. J Applied Psychology. 1975 Apr;60(2):260-262.
22. Marcus AC, Crane LA. Telephone surveys in public health research. Med Care. 1986 Feb;24(2):97-112.
23. Aquilino WS, LoSciuto LA. Effects of interview mode on self-reported drug use. Public Opin Q. 1990;54:362-395.
24. Groves RM, Kahn RL. Surveys by telephone: a national comparison with personal interviews. New York, NY: Academic Press, Inc., 1979; 79-120.
25. Kempf AM, Remington PL. New challenges for telephone survey research in the twenty-first century. Annu Rev Public Health. 2007;28:113-126.
26. Thornberry OT, Massey JT. Trends in United States telephone coverage across time and subgroups. In: Groves RM, Biemer PP, Lyberg LE, et al., eds. Telephone survey methodology. New York, NY: John Wiley and Sons, Inc., 1988; 25-49.
27. Blumberg SJ, Luke JV, Cynamon ML. Telephone coverage and health survey estimates: evaluating the need for concern about wireless substitution. Am J Public Health. 2006 May;96(5):926-931.
28. Massey JT, Botman SL. Weighting adjustments for random digit dialed surveys. In: Groves R, Biemer P, Lyberg L, et al., eds. Telephone survey methodology. New York, NY: John Wiley and Sons, Inc., 1988; 143-160.
29. Massey JT, O'Connor D, Krotki K. Response rates in random digit dialing (RDD) telephone surveys. In: 1997 proceedings of the Survey Research Methods Section, American Statistical Association. Arlington, VA: American Statistical Association, 1998; 707-712.
30. Maklan D, Waksberg J. Within-household coverage in RDD surveys. In: Groves R, Biemer P, Lyberg L, et al., eds. Telephone survey methodology. New York, NY: John Wiley and Sons, Inc., 1988; 51-69.
31. Massey JT. Estimating the response rate in a telephone survey with screening. Arlington, VA: American Statistical Association, 1996; 673-677.
32. Blumberg SJ, Luke JV. Wireless substitution: early release of estimates from the National Health Interview Survey, January-June 2007. Atlanta, GA: National Center for Health Statistics, 2007. Available at: http://www.cdc.gov/ nchs/data/nhis/earlyxsrelease/wireless200712.pdf.
33. Federal Communication Commission. Trends in telephone service. Washington, DC: Federal Communication Commission, 2005.
34. U.S. Department of Health and Human Services. Policy statement on inclusion of race and ethnicity in DHHS data collection activities. Washington, DC: U.S. Department of Health and Human Services, 1997. Available at: http://aspe.hhs.gov/datacncl/inclusn.htm.
35. Patient Protection and Affordable Care Act: PL-111-148, Section 3101, March 23, 2010.
36. McBean AM. Improving Medicare's data on race and ethnicity. Washington, DC: National Academy of Social Insurance, 2006.
37. Shanawani H, Dame L, Schwartz DA, et al. Non-reporting and inconsistent reporting of race and ethnicity in articles that claim associations among genotype, outcome, and race or ethnicity. J Med Ethics. 2006 Dec;32(12):724-728.
38. Hasnain-Wynia R, Baker DW. Obtaining data on patient race, ethnicity, and primary language in health care organizations: current challenges and proposed solutions. Health Serv Res. 2006 Aug;41(4p1):1501-1518.
39. Kressin NR, Chang BH, Hendricks A, et al. Agreement between administrative data and patients' self-reports of race/ethnicity. Am J Public Health. 2003 Oct;93(10): 1734-1739.
40. Boehmer U, Kressin NR, Berlowitz DR, et al. Self-reported vs. administrative race/ethnicity data and study results. Am J Public Health. 2002 Sep;92(9):1471-1473.
41. Barnes PM, Adams PF, Powell-Griner E. Health characteristics of the Asian adult population: United States, 2004-2006. Hyattsville, MD: National Center for Health Statistics, 2008.
42. Henry J. Kaiser Family Foundation. Health coverage and access to care among Asian Americans, Native Hawaiians, and Pacific Islanders. Washington, DC: Henry J. Kaiser Family Foundation, 2008. Available at: http://www.kff.org/ minorityhealth/upload/7745.pdf.
43. Institute of Medicine. Race, ethnicity, and language data: standardization for health care quality improvement. Washington, DC: The National Academies Press, 2009.
44. Elliott MN, Finch BK, Klein D, et al. Sample designs for measuring the health of small racial/ethnic subgroups. Stat Med. 2008 Sep 10;27(20):4016-4029.
45. Watters JK, Biernacki P. Targeted sampling: options for the study of hidden populations. Social Problems. 1989 Oct;36(4):416-430.
46. Heckathorn DD. Respondent-driven sampling: a new approach to the study of hidden populations. Social Problems. 1997 May;44(2):174-199.
47. O'Connell AA. Sampling for evaluation: issues and strategies for community-based HIV prevention programs. Eval Health Prof. 2000 Jun;23(2):212-234.
48. Muhib F, Lin LS, Stueve A, et al. A venue-based method for sampling hard-to-reach populations. Public Health Rep. 2001;116 Suppl 1:216-222.
49. Kalton G. Sampling considerations in research on HIV risk and illness. In: Ostrow DG, Kessler RC, eds. Methodological issues in AIDS behavioral research. New York, NY: Plenum Press, 1993; 53-74.
50. Heckathorn DD. Respondent-driven sampling: a new approach to the study of hidden populations. Social Problems. 1997 May;44(2):174-199.
51. Ngo-Metzger Q, Kaplan SH, Sorkin DH, et al. Surveying minorities with limited- English proficiency: does data collection method affect data quality among Asian Americans? Med Care. 2004 Sep;42(9):893-900.
52. Lee SK, Cheng YY. Reaching Asian Americans: sampling strategies and incentives. J Immigr Minor Health. 2006 Jul;8(3):245-250.
53. Santos R. Oversampling AAPI populations in federal health surveys. In: Proceedings of the Health Brain Trust on Data and Research Conference, Bethesda (MD), May 2007.
54. Elliott MN, McCaffrey D, Finch BK, et al. Using the Kalman Filter to improve disparity estimates for rare racial/ethnic groups. Washington, DC: U.S. Department of Health and Human Services, 2007.
55. Centers for Disease Control and Prevention (CDC). Screening for chronic hepatitis B among Asian/Pacific Islander populations-New York City, 2005. MMWR Morb Mortal Wkly Rep. 2006 May 12;55(18):505-509.
56. Ku L. Improving national health survey data about Asians and Pacific Islanders. In: Proceedings of the Health Brain Trust on Data and Research Conference, Bethesda (MD), May 2007.
57. Khan LK, Sobal J, Martorell R. Acculturation, socioeconomic status, and obesity in Mexican Americans, Cuban Americans, and Puerto Ricans. Int J Obes Relat Metab Disord. 1997 Feb;21(2):91-96.
58. Panapasa SV. Social, demographic, and cultural characteristics of U.S. Pacific Islanders. In: Trinh-Shevrin C, Islam NS, Rey MJ, eds. Asian American communities and health: context, research, policy and action. San Francisco, CA: Jossey Bass, 2009.