Barriers and facilitators that affect public engagement with eHealth services

Studies in Health Technology and Informatics

Volumn 160, Issue PART 1, 2010, Pages 13-17

  Hardiker, Nicholas R ^a,b   Grant, Maria J ^a  

^a UNIVERSITY OF SALFORD   (United Kingdom)

^b ROYAL COLLEGE OF NURSING   (United Kingdom)

Author keywords

Consumer health information; Informatics; Internet

Indexed keywords

INTERNET; MEDICAL COMPUTING; SOCIAL ASPECTS;

APPROPRIATE DESIGNS; CONSUMER HEALTH INFORMATION; E-HEALTH SERVICES; HEALTH INFORMATIONS; INFORMATICS; ONLINE HEALTH INFORMATION; PUBLIC ENGAGEMENT; SOCIAL COMPUTING;

EHEALTH;

EID: 78649511456     PISSN: 09269630     EISSN: 18798365     Source Type: Conference Proceeding    
DOI: 10.3233/978-1-60750-588-4-13     Document Type: Conference Paper

References (56)

1. Eysenbach G. What is e-health? J Med Internet Res l2001;3.
2. Oh H, Rizo C, Enkin M, Jadad A. What Is eHealth (3): a systematic review of published definitions. Journal of Medical Internet Research l2005;7.
3. Cline RJ, Haynes KM. Consumer health information seeking on the Internet: the state of the art. Health Education Research l2001;16:671-92.
4. Fogel J, Ribisl KM, Morgan PD, Humphreys K, Lyons EJ. The Underrepresentation of African Americans in Online Cancer Support Groups. Journal of the National Medical Association l2008;100:705-712.
5. Im E-O, Chee W. The use of Internet cancer support groups by ethnic minorities. Journal of Transcultural Nursing l2008;19:74-82.
6. Fogel J. Internet Use for Cancer Information Among Racial/Ethnic Populations and Low Literacy Groups. Cancer Control (Cancer, Culture and Literacy Supplement) l2003;10:45-51.
7. Botsis T, Hartvigsen G. Current status and future perspectives in telecare for elderly people suffering from chronic diseases. Journal of Telemedicine & Telecare l2008;14:195-203.
8. Brenner B. Is the provision of laboratory results via the Internet acceptable to patients? A survey of private patients in a large, specialist gynaecology practice. New Zealand Medical Journal l2003;116.
9. Mancini J, Nogues C, Adenis C, Berthet P, Bonadona V, Chompret A, Coupier I, Eisinger F, Fricker JP, Gauthier-Villars M, Lasset C, Lortholary A, N'Guyen TD, Vennin P, Sobol H, Stoppa-Lyonnet D, Julian-Reynier C. Patients' characteristics and rate of Internet use to obtain cancer information. Journal of Public Health l2006;28:235-237.
10. Fogel J, Albert SM, Schnabel F, Ditkoff BA, Neugut AI. Use of the Internet by women with breast cancer. Journal of Medical Internet Research l2002;4: E9.
11. Peterson MW, Fretz PC. Patient use of the Internet for information in a lung cancer clinic. CHEST l2003;123:452-457.
12. Flynn KE, Smith MA, Freese J. When do older adults turn to the internet for health information? Findings from the Wisconsin Longitudinal Study. Journal of General Internal Medicine l2006;21:1295-301.
13. James N, Daniels H, Rahman R, McConkey C, Derry J, Young A. A study of information seeking by cancer patients and their carers. Clinical Oncology l2007;19:356-62.
14. Dickerson S, Reinhart AM, Feeley TH, Bidani R, Rich E, Garg VK, Hershey CO. Patient Internet use for health information at three urban primary care clinics. Journal of the American Medical Informatics Association l2004;11:499-504.
15. Houston TK, Allison JJ. Users of internet health information: Differences by health status. Journal of Medical Internet Research l2002;4:10-24.
16. Bowen D. Predictors of women's Internet access and Internet health seeking. Health Care for Women International l2003;24:940-51.
17. Greenhalgh T, Wood GW, Bratan T, Stramer K, Hinder S. Patients' attitudes to the summary care record and HealthSpace: qualitative study. BMJ: British Medical Journal l2008;336:1290-1295.
18. Anhoj J, Nielsen L. Quantitative and qualitative usage data of an internet-based asthma monitoring tool. Journal of Medical Internet Research l2004;6.
19. Birru MS, Monaco VM, Charles L, Drew H, Njie V, Bierria T, Detlefsen E, Steinman RA. Internet usage by low-literacy adults seeking health information: an observational analysis. Journal of Medical Internet Research l2004;6: e25.
20. Gustafson DH, Hawkins RP, Boberg EW, McTavish F, Owens B, Wise M, Berhe H, Pingree S. CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. International Journal of Medical Informatics l2002;65:169-77.
21. Gray NJ, Klein JD, Noyce PR, Sesselberg TS, Cantrill JA. The Internet: a window on adolescent health literacy. Journal of Adolescent Health l2005;37:243.
22. Williams P, Nicholas D, Huntington P. Non use of health information kiosks examined in an information needs context. Health Information & Libraries Journal l2003;20:95-103.
23. Helft PR, Eckles RE, Johnson-Calley CS, Daugherty CK. Use of the Internet to obtain cancer information among cancer patients at an urban county hospital. Journal of Clinical Oncology l2005;23:4954-4962.
24. Rogers A, Mead N. More than technology and access: primary care patients' views on the use and non-use of health information in the Internet age. Health & Social Care in the Community l2004;12:102-110.
25. Skinner H, Biscope S, Poland B. Quality of internet access: barrier behind internet use statistics. Social Science & Medicine l2003;57:875-880.
26. Blackburn C, Read J. Using the Internet? The experiences of parents of disabled children. Child: Care, Health & Development l2005;31:507-515.
27. Ibrahim EM, Boulos MNK. Access to online information by adult Saudi cancer patients. Internet Journal of Health l2006;5:11p.
28. Eminovic N, Wyatt JC, Tarpey AM, Murray G, Ingrams GJ. First evaluation of the NHS direct online clinical enquiry service: a nurse-led web chat triage service for the public. Journal of Medical Internet Research l2004;6: e17.
29. Dart J. The internet as a source of health information in three disparate communities. Australian Health Review l2008;32:559-569.
30. Markman M, Markman MR, Belland A, Petersen J. Profile of ovarian cancer patients seeking information from a web-based decision support program. Journal of Women's Health (15409996) l2006;15:312-318.
31. Dickerson SS. Technology-patient interactions: Internet use for gaining a healthy context for living with an implantable cardioverter defibrillator. Heart & Lung l2005;34:157-168.
32. Khechine H, Pascot D, Premont P. Use of health-related information from the Internet by English-speaking patients. Health Informatics Journal l2008;14:17-28.
33. Glenton C, Nilsen ES, Carlsen B. Lay perceptions of evidence-based information-a qualitative evaluation of a website for back pain sufferers. BMC Health Services Research l2006;6:34.
34. Khoo K, Bolt P, Babl FE, Jury S, Goldman RD. Health information seeking by parents in the Internet age. Journal of Paediatrics & Child Health l2008;44:419-423.
35. Chung DS, Kim S. Blogging activity among cancer patients and their companions: uses, gratifications, and predictors of outcomes. Journal of the American Society for Information Science & Technology l2008;59:297-306.
36. Pennbridge J, Moya R, Rodrigues L. Questionnaire survey of California consumers' use and rating of sources of health care information including the Internet. Western Journal of Medicine l1999;171:302-5.
37. Andreassen HK, Bujnowska-Fedak MM, Chronaki CE, Dumitru RC, Pudule I, Santana S, Voss H, Wynn R. European citizens' use of E-health services: a study of seven countries. BMC Public Health l2007;7:53.
38. Bruwer BR, Stein DJ. A survey of participants in two internet support groups for people with hair-pulling. BMC Psychiatry l2005;5:37.
39. Esquivel A, Meric-Bernstam F, Bernstam EV. Accuracy and self correction of information received from an internet breast cancer list: content analysis.[see comment]. BMJ l2006;332:939-42.
40. Boukhors Y, Rabasa-Lhoret R, Langelier H, Soultan M, Lacroix A, Chiasson JL. The use of information technology for the management of intensive insulin therapy in type 1 diabetes mellitus. Diabetes & Metabolism l2003;29:619-27.
41. Gough MD, Gilliam AD, Stoddard CJ, Ackroyd R. Barrett's esophagus: patient information and the Internet. The patient's perspective. Diseases of the Esophagus l2003;16:57-9.
42. Sim NZ, Kitteringham L, Spitz L, Pierro A, Kiely E, Drake D, Curry J. Information on the World Wide Web-how useful is it for parents? Journal of Pediatric Surgery l2007;42:305-12.
43. Allen M, Iezzoni LI, Huang A, Huang L, Leveille SG. Improving patient-clinician communication about chronic conditions: description of an Internet-based nurse E-coach intervention. Nursing Research l2008;57:107-112.
44. Bernhardt JM, Felter EM. Online pediatric information seeking among mothers of young children: results from a qualitative study using focus groups. Journal of Medical Internet Research l2004;6: e7.
45. Diefenbach MA, Butz BP. A multimedia interactive education system for prostate cancer patients: Development and preliminary evaluation. Journal of Medical Internet Research l2004;6:25-31.
46. Buchanan H, Coulson NS. Accessing dental anxiety online support groups: an exploratory qualitative study of motives and experiences. Patient Education & Counseling l2007;66:263-269.
47. Hoybye MT, Johansen C, Tjornhoj-Thomsen T. Online interaction. Effects of storytelling in an internet breast cancer support group. Psycho-Oncology l2005;14:211-220.
48. Hardyman R, Hardy P, Brodie J, Stephens R. It's good to talk: comparison of a telephone helpline and website for cancer information. Patient Education & Counseling l2005;57:315-20.
49. Bonniface L, Green L. Finding a new kind of knowledge on the HeartNET website. Health Information & Libraries Journal l2007;24 Suppl 1:67-76.
50. Harrison R, MacFarlane A, Murray E, Wallace P. Patients' perceptions of joint teleconsultations: A qualitative evaluation. Health Expectations l2006;9:81-90.
51. van der Meer V, van Stel HF, Detmar SB, Otten W, Sterk PJ, Sont JK. Internet-based self-management offers an opportunity to achieve better asthma control in adolescents. Chest l2007;132:112-9.
52. Frost JH, Massagli MP. Social uses of personal health information within PatientsLikeMe, an online patient community: what can happen when patients have access to one another's data. Journal of Medical Internet Research l2008;10: e15.
53. Gordon MM, Capell HA, Madhok R. The use of the Internet as a resource for health information among patients attending a rheumatology clinic. Rheumatology l2002;41:1402-5.
54. Edgar L, Greenberg A, Remmer J. Providing Internet lessons to oncology patients and family members: a shared project. Psycho-Oncology l2002;11:439-446.
55. Hansen DL, Derry HA, Resnick PJ, Richardson CR. Adolescents searching for health information on the Internet: an observational study. Journal of Medical Internet Research l2003;5: e25.
56. McMullan M. Patients using the Internet to obtain health information: how this affects the patient-health professional relationship. Patient Education & Counseling l2006;63:24-8.