The underrepresentation of African Americans in online cancer support groups

Journal of the National Medical Association

Volumn 100, Issue 6, 2008, Pages 705-712

  Fogel, Joshua ^a   Ribisl, Kurt M ^b,c   Morgan, Phyllis D ^d   Humphreys, Keith ^e,f   Lyons, Elizabeth J ^b,c  

^a CITY UNIVERSITY OF NEW YORK   (United States)

^b IL   (United States)

^c UNIVERSITY OF NORTH CAROLINA   (United States)

^d FAYETTEVILLE STATE UNIVERSITY   (United States)

^e STANFORD UNIVERSITY MEDICAL CENTER   (United States)

^f VA PALO ALTO HEALTH CARE SYSTEM   (United States)

Author keywords

African Americans; Cancer; Race ethnicity

Indexed keywords

AFRICAN AMERICAN; BREAST CANCER; CANCER PATIENT; CANCER SURVIVAL; CANCER SURVIVOR; EMOTION; HEALTH CARE; HUMAN; PRACTICE GUIDELINE; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; REVIEW; SOCIAL SUPPORT; SUPPORT GROUP; TRUST; UTILIZATION REVIEW;

EID: 45749105040     PISSN: 00279684     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0027-9684(15)31346-8     Document Type: Article

References (77)

1. Eysenbach G. The impact of the Internet on cancer outcomes. CA Cancer J Clin. 2003;53(6):356-371.
2. Fogel J, Albert SM, Schnabel F, et al. Use of the Internet by women with breast cancer. J Med Internet Res. 2002;4:e9. www.jmir.org/2002/2/e9/. Accessed 04/08/07.
3. Monnier J, Laken M, Carter CL. Patient and caregiver interest in internet-based cancer services. Cancer Pract. 2002;10(6):305-310.
4. Smith RP, Devine P, Jones H, et al. Internet use by patients with prostate cancer undergoing radiotherapy. Urology. 2003;62(2):273-277.
5. Fogel J. Internet use and advanced practice oncology nursing. Topics in Advanced Practice Nursing eJournal. 2002;2(4). www.medscape.com/ viewarticle/442738_1. Accessed 04/08/07.
6. Fogel J. Internet breast health information use and coping among women with breast cancer. Cyberpsychol Behav. 2004;7(1):59-63.
7. Im EO, Chee W, Tsai HM, et al. Internet cancer support groups: a feminist analysis. Cancer Nurs. 2005;28(1):1-7.
8. Fogel J. Internet use for cancer information among racial/ethnic populations and low literacy groups. Cancer Control. 2003;10(5 suppl):45-51.
9. Fogel J. The impact of the Internet for those with cancer and from racial/ethnic groups and/or low literacy populations. In: Sorenson RV, ed. Progress in Cancer Research. Hauppauge, NY: Nova Science; 2007:119-134.
10. Henderson PD, Fogel J. Support networks used by African American breast cancer support group participants. ABNF J. 2003;14(5):95-98.
11. Rimer BK, Lyons EJ, Ribisl KM, et al. How new subscribers use cancer-related online mailing lists. J Med Internet Res. 2005;7(3):e32. www.jmir.org/2005/3/e32/. Accessed 04/08/07.
12. Krieger N. Defining and investigating social disparities in cancer: critical issues. Cancer Causes Control. 2005;16(1):5-14.
13. Basu J, Clancy C. Racial disparity, primary care, and specialty referral. Health Serv Res. 2001;36(6 Pt 2):64-77.
14. Cook BL. Effect of Medicaid Managed Care on racial disparities in health care access. Health Serv Res. 2007;42(1 Pt 1):124-145.
15. Fogel J, Morgan PD, Davis BL. Consumers of Internet health information and self-rated health status: Breast care disparities issues. J Multicult Nurs Health. 2005;11:35-40.
16. U.S. Department of Commerce. A Nation Online: How Americans are Expanding Their Use of the Internet. 2002; www.webcitation.org/5NwyzTcs8. Accessed 04/08/07.
17. Fox S. Digital Divisions. 2005; www.webcitation.org/5NwyQ4ut6. Accessed 04/08/07.
18. U.S. Department of Commerce. A Nation Online: Entering the Broadband Age. 2004; www.webcitation.org/5Nwz2pZZZ. Accessed 04/08/07.
19. Simms M. Measuring the divide: African Americans' Access to the Online Universe. 2006; www.webcitation.org/5NwyWlyAQ. Accessed 04/08/07.
20. Spooner T, Rainie L. African Americans and the Internet. 2000; www.webcitation.org/5NwyZGhSV. Accessed 04/08/07.
21. Pew Internet and American Life Project. Latest trends. Charts and Excel data files of a selection of the Pew Internet Project's latest trend findings. www.webcitation.org/5NwxxFmJY. Accessed 04/08/07.
22. Wilson KR, Wallin JS, Resier C. Social stratification and the digital divide. Soc Sci Comput Rev. 2003;21(2):133-143.
23. Fairlie RW. Are We Really a Nation Online? Ethnic and Racial Disparities in Access to Technology and Their Consequences. Report for the Leadership Conference on Civil Rights Education Fund. 2005; www.webcitation.org/5NwyFg7vO. Accessed 04/08/07.
24. Kretchmer SB, Carveth R. The color of the net: African Americans, race, and cyberspace. Comput Society. 2001;31(3):9-14.
25. Current population survey. Other supplements. www.webcitation.org/ 5Nwy4kijH. Accessed 04/08/07.
26. Mossberger K, Tolbert C, Gilbert M. Race, place, and information technology. Urban Aff Rev. 2006;41(5):583-620.
27. Goolsbee A, Klenow PJ. Evidence on learning and network externalities in the diffusion of home computers. J Law Econ. 2002;45(2):317-344.
28. Hawkins S. Beyond the digital divide: issues of access and economics. Can J Inf Libr Sci. 2005;29(2):171-189.
29. Kvasny L, Keil M. The challenges of redressing the digital divide: a tale of two US cities. Inf Syst J. 2006;16:23-53.
30. DiMaggio P, Hargittai E. From the 'digital divide' to 'digital inequality:' studying Internet use as penetration increases. Princeton University Center for Arts and Cultural Policy Studies, Working Paper Series number 15, 2001; www.webcitation.org/5Nwy95r09. Accessed 04/08/07.
31. Hesse BW, Nelson DE, Kreps GL, et al. Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey. Arch Intern Med. 2005;165(22):2618-2624.
32. Rutten LJ, Squiers L, Hesse B. Cancer-related information seeking: hints from the 2003 Health Information National Trends Survey (HINTS). J Health Commun. 2006;11(suppl 1):147-156.
33. Hargittai E. Second-level digital divide: differences in people's online skills. First Monday. 2002;7(4). www.webcitation.org/5Ow4svVTi. Accessed 04/08/07.
34. Wyatt S, Henwood F, Hart A, et al. The digital divide, health information and everyday life. New Media Soc. 2005;7(2):199-218.
35. Kreps GL. Communication and racial inequities in health care. Am Behav Sci. 2006;49(6):760-774.
36. Lieberman MA, Golant M, Giese-Davis J, et al. Electronic support groups for breast carcinoma: a clinical trial of effectiveness. Cancer. 2003;97(4):920-925.
37. Eysenbach G, Powell J, Englesakis M, et al. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ. 2004;328(7449):1166.
38. McTavish FM, Pingree S, Hawkins R, et al. Cultural differences in use of an electronic discussion group. J Health Psychol. 2003;8:105-117.
39. Gustafson DH, McTavish FM, Stengle W, et al. Use and impact of eHealth system by low-income women with breast cancer. J Health Commun. 2005;10(Suppl 1):195-218.
40. Fogel J, Albert SM, Schnabel F, et al. Racial/ethnic differences and potential psychological benefits in use of the internet by women with breast cancer. Psychooncology. 2003;12(2):107-117.
41. Fogel J. Use of the Internet for health information and communication. JAMA. 2003;290(17):2256.
42. Rutten LJ, Squiers L, Treiman K. Requests for information by family and friends of cancer patients calling the National Cancer Institute's Cancer Information Service. Psychooncology. 2006;15(8):664-672.
43. Henderson PD, Fogel J, Edwards QT. Coping strategies among African American women with breast cancer. South Online J Nurs Res. 2003;3(4):1-20. www.snrs.org/publications/SOJNR_articles/iss03vol04.pdf. Accessed 10/19/07.
44. Levin JS, Taylor RJ, Chatters LM. Race and gender differences in religiosity among older adults: Findings from four national surveys. J Gerontol Soc Sci. 1994;49:S137-S145.
45. Krause N. Exploring race and sex differences in church involvement during late life. Int J Psychol Relig. 2006;16(2):127-144.
46. ACOR. Rule #6: respect religious and political diversity. www.acor.org/faqs/lists/listrules.html. Accessed 10/18/07.
47. Hamilton JB, Sandelowski M. Types of social support in African Americans with cancer. Oncol Nurs Forum. 2004;31(4):792-800.
48. Murran E. Intergenerational family support among blacks and whites: Response to culture of socioeconomic differences. J Gerontol Soc Sci. 1985;40:382-389.
49. Stoll M. Race, neighborhood poverty and participation in voluntary associations. Sociol Forum. 2004;16:529-557.
50. Kessler RC, Mickelson KD, Zhao S. Patterns and correlates of self-help group membership in the United States. Social Policy. 1997;27:27-46.
51. Humphreys K, Woods M. Researching mutual help group affiliation in a segregated society. J Appl Behav Sci. 1993;29:181-201.
52. Banks-Wallace J. Talk that talk: storytelling and analysis rooted in African American oral tradition. Qual Health Res. 2002;12(3):410-426.
53. Fogel J, Sardella N. E-Commerce and Internet dating websites: Differences in match options between African-Americans and whites. J Internet Bank Commer. 2005;10(3). www.arraydev.com/commerce/JIBC/2006-02/Fogel.asp. Accessed 04/08/07.
54. Shaw B, Gustafson DH, Hawkins R, et al. How underserved breast cancer patients use and benefit from ehealth programs. Am Behav Sci. 2006;49:823-834.
55. Gamble VN. Under the shadow of Tuskegee: African Americans and health care. In: LaVeist TA, ed. Race, ethnicity, and health. San Francisco: Jossey-Bass; 2002:34-46.
56. Halbert CH, Armstrong K, Gandy OH, Jr., et al. Racial differences in trust in health care providers. Arch Intern Med. 2006;166(8):896-901.
57. O'Malley AS, Sheppard VB, Schwartz M, et al. The role of trust in use of preventive services among low-income African-American women. Prev Med. 2004;38(6)777-785.
58. Helft PR, Eckles RE, Jchnson-Calley CS, et al. Use of the internet to obtain cancer information among cancer patients at an urban county hospital. J Clin Oncol. 2005;23(22):4954-4962.
59. Busch S. Elderly African American women's knowledge and belief about colorectal cancer. ABNF J. 2003;14(5):99-103.
60. Ford ME, Vernon SW, Havstad SL, et al. Factors influencing behavioral intention regarding prostate cancer screening among older African-American men. J Natl Med Assoc. 2006;98(4):505-514.
61. Wolff M, Bates T, Beck B, et al. Cancer prevention in underserved African American communities: barriers and effective strategies - a review of the literature. WMJ. 2003;102(5):36-40.
62. Blanchard K, Proverbs-Singh T, Katner A, et al. Knowledge, attitudes and beliefs of women about the importance of prostate cancer screening. J Natl Med Assoc. 2005;97(10):1378-1385.
63. Phillips JM, Cohen MZ, Moses G. Breast cancer screening and African American women: fear, fatalism, and silence. Oncol Nurs Forum. 1999;26(3):561-571.
64. Spurlock WR, Cullins LS. Cancer fatalism and breast cancer screening in African American women. ABNF J. 2006;17(1):38-43.
65. Webb CR, Kronheim L, Williams JE Jr, et al. An evaluation of the knowledge, attitudes, and beliefs of African-American men and their female significant others regarding prostate cancer screening. Ethn Dis. 2006;16(1):234-238.
66. Williams-Brown S, Baldwin DM, Bakos A. Storytelling as a method to teach African American women breast health information. J Cancer Educ. 2002;17(4):227-230.
67. Forrester-Anderson IT. Prostate cancer screening perceptions, knowledge and behaviors among African American men: focus group findings. J Health Care Poor Underserved. 2005;16(4 suppl A):22-30.
68. Powe BD, Ntekop E, Barron M. An intervention study to increase colorectal cancer knowledge and screening among community elders. Public Health Nurs. 2004;21(5):435-442.
69. Barg FK, Gullatte MM. Cancer support groups: meeting the needs of African Americans with cancer. Semin Oncol Nurs. 2001;17(3):171-178.
70. Henderson PD, Gore SV, Davis BL et al. African-American women coping with breast cancer: a qualitative analysis. Oncol Nurs Forum. 2003;30:641-647.
71. Morgan PD, Fogel J, Rose L, et al. African American couples merging strengths to successfully cope with breast cancer. Oncol Nurs Forum. 2005;32(5):979-987.
72. Gray RE, Carroll JC, Fitch M, et al. Cancer self-help groups and family physicians. Cancer Pract. 1999;7(1):10-15.
73. Benkert R, Peters RM, Clark R, et al. Effects of perceived racism, cultural mistrust and trust in providers on satisfaction with care. J Natl Med Assoc. 2006;98(9):1532-1540.
74. LaVeist TA, Nickerson KJ, Bowie JV. Attitudes about racism, medical mistrust, and satisfaction with care among African American and white cardiac patients. Med Care Res Rev. 2000;57(suppl 1):146-161.
75. Nicholson RA, Rooney M, Vo K, O'Laughlin E, Gordon M. Migraine care among different ethnicities: do disparities exist? Headache. 2006;46(5):754-765.
76. Whetten K, Leserman J, Whetten R, et al. Exploring lack of trust in care providers and the government as a barrier to health service use. Am J Public Health. 2006;96(4):716-721.
77. Coward DD. Lessons learned in developing a support intervention for African American women with breast cancer. Oncol Nurs Forum. 2005;32(2):261-266.