Predictors of parenting stress among Malaysian mothers of children with Down syndrome

Journal of Intellectual Disability Research

Volumn 54, Issue 11, 2010, Pages 992-1003

  Norizan, A ^a   Shamsuddin, K ^a  

^a UNIVERSITI KEBANGSAAN MALAYSIA MEDICAL CENTER   (Malaysia)

Author keywords

Children; Down Syndrome; Mothers; Parenting stress; Predictors

Indexed keywords

ADULT; ANXIETY; ARTICLE; CHILD; CHILD BEHAVIOR; COPING BEHAVIOR; CROSS-SECTIONAL STUDY; DEMOGRAPHY; DEPRESSION; DEPRESSION, ANXIETY AND STRESS SCALE 21 ITEM; DOWN SYNDROME; EDUCATIONAL STATUS; HUMAN; MAJOR CLINICAL STUDY; MALAYSIA; MARRIED WOMAN; MOTHER; PAEDIATRIC SYMPTOM CHECKLIST; PARENTAL STRESS; PARENTAL STRESS SCALE; PREDICTOR VARIABLE; PRESCHOOL CHILD; PSYCHOLOGICAL WELL BEING; QUESTIONNAIRE; RATING SCALE; REGRESSION ANALYSIS; SCHOOL CHILD;

ADAPTATION, PSYCHOLOGICAL; ADULT; ANXIETY; ATTITUDE TO HEALTH; CHILD; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; DEPRESSION; DOWN SYNDROME; FEMALE; HUMANS; MALAYSIA; MALE; MIDDLE AGED; MOTHER-CHILD RELATIONS; MOTHERS; PERSONALITY INVENTORY; PREDICTIVE VALUE OF TESTS; PSYCHOLOGICAL TESTS; QUESTIONNAIRES; RISK FACTORS; STRESS, PSYCHOLOGICAL;

EID: 78649485486     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2010.01324.x     Document Type: Article

References (42)

1. Anderson D. L., Spratt E. G., Macias M. M., Jellinek M. S., Murphy J. M., Pagano M. et al. (1999) Use of Pediatric Symptom Checklist in the pediatric neurology population. Pediatric Neurology 20, 116-20.
2. Armitage P., Benny G. & Mattens J. N. S. (2001) Statistical Methods in Medical Research. Blackwell Publishing Ltd, Oxford, UK.
3. Berry J. O. & Jones W. H. (1995) The parental stress scale. Journal of Social and Personal Relationships 12, 463-5.
4. Bhatia M. S., Kabra M. & Sapra S. (2005) Behavioral problems in children with Down Syndrome. Indian Pediatrics 42, 675-80.
5. Boo N. Y., Hoe T. S., Lye M. S., Poon P. K. & Mahani M. C. (1989) Maternal age specific incidence of Down's Syndrome in Malaysia neonates. The Journal of the Singapore Paediatric Society 39, 138-42.
6. Boss P. (2002) Definitions. A guide to family stress theory. In: Family Stress Management. A Contextual Approach (ed. ke- 2), pp. 10-28. Sage Publication, Inc, California, USA.
7. Carver C. S., Scheier M. F. & Weintrub J. K. (1989) Assesing coping strategies: a theoritically based approach. Journal of Personality and Social Psychology 56, 267-83.
8. Coe D. A., Matson J. L., Russell D. W., Slifer K. J., Capone G. T., Baglio C. et al. (1999) Bahavior problems of children with Down Syndrome and life events. Journal of Autism and Developmental Disorders 29, 149-56.
9. Farah Dilla Ramli (2004) Socialization development of Down Syndrome children and its relationship with the parents and caregiver. A study in Kota Bharu, Kelantan. Master dissertation. Universiti Kebangsaan Malaysia.
10. Fidler D. J., Most D. E., Booth-LaForce C. & Kelly J. K. (2006) Temperement and behavior problems in young children with Down Syndrome at 12, 30, and 45 months. Down's Syndrome, Research and Practice 10, 23-9.
11. Gau S. S. F., Chiu Y. N., Soong W. T. & Lee M. B. (2008) Parental characteristics, parenting style, and behavioral problems among Chinese children with Down Syndrome, their siblings and controls in Taiwan. Journal of the Formosan Medical Association 107, 693-703.
12. Greenberg J. S., Krauss M. W., Chou R. J. A. & Hong J. (2004) The effect of quality of the relationship between mothers and adult children with Schizophrenia, Autisme or Down Syndrome on maternal wellbeing: the mediating role of optimism. American Journal of Orthopsychiatry 74, 14-25.
13. Hassall R., Rose J. & Mc Donald J. (2005) Parenting stress in mothers of children with an intellectual disability: the effects of parental cognition in relation to child characteristics and family support. Journal of Intellectual Disability Research 49, 405-18.
14. Health Technology Assessment Report M. H. M. (2000) Maternal Screening for foetal abnormality.
15. Hedov G., Anneren G. & Wikblad K. (2002) Swedish parents of children with Down's Syndrom. Parental stress and sense of coherence in relation to employment rate and time spent in child care. Scandinavian Journal of Caring Sciences 16, 424-30.
16. Jellinek M. S., Murphy J. M. & Burns B. J. (1986) Brief psychosocial screening in outpatient pediatric practice. Journal of Pediatric 109, 371-8.
17. Jellinek M. S., Murphy J. M., Little M., Pagano M. E., Corner D. M. & Kelleher K. J. (1999) Use of Pediatric Symptom Checklist to screen for psychosocial problems in pediatric primary care. A national feasibility study. Archives of Pediatrics & Adolescent Medicine 153, 254-60.
18. Johnston C., Hessl D., Blasey C., Eliez S., Erba H., Dyer-Friedman J. et al. (2003) Factors associated with parenting stress in mothers of children with Fragile X Syndrome. Journal of Developmental and Behavioral Pediatrics 24, 267-75.
19. Lam L. W. & Mackenzie A. E. (2002) Coping with a child with Down Syndrome: the experiences of mothers in Hong Kong. Qualitative Health Research 12, 223-37.
20. Lessenberry B. M. & Rehfeldt R. A. (2004) Evaluating stress levels of parents of children with disabilities. Exceptional Children 70, 231-44.
21. Lloyd T. & Hastings R. P. (2008) Psychological variables as correlates of adjustment in mothers of children with intellectual disabilities: cross sectional and longitudinal relationships. Journal of Intellectual Disability Research 52, 37-48.
22. Lovibond S. H. & Lovibond P. F. (1995) Manual for the Depression, Anxiety, Stress Scale, 2nd edn. Psychology Foundation, Sydney. Available at: (retrieved 25 September 2006).
23. Mobarak R., Khan N., Munir R. & Zaman S. S. (2000) Predictors of stress in mothers of children with Cerebral Palsy in Bangladesh. Journal of Pediatric Psychology 25, 427-33.
24. Mohamad Amin H. A. S. (1998) Child Development, 2nd edn. Dewan Bahasa dan Pustaka, Kuala Lumpur.
25. Moller A. T. & Van der Morwe J. D. (1997) Irrational beliefs, interpersonal perception and marital adjustment. Journal of Rational Emotion & Cognitive Behavior Therapy 15, 269-79.
26. Murphy J. M., Ichinose C., Hicks R. C. Kingdon D., Crist-Whitzel J., Jordan P., Feldman G. & Jellinek M. S. (1996) Utility of the Pediatric Symptom Checklist as a psychosocial screen to meet the Federal Early and Periodic Screening, Diagnosis, and Treatment (EPSDT) standards: a pilot study. The Journal of Pediatrics 129, 864-9.
27. Navon M., Nelson D., Pagano M. & Murphy M. (2001) Use of Pediatric Symptom Checklist in strategies to improve preventive behavioral helath care. Psychiatric Services 52, 800-4.
28. Olsson M. B. & Hwang C. P. (2001) Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research 45, 535-43.
29. Olsson M. B. & Hwang P. C. (2003) Influence of macrostructure of society on the life situation of families with a child with intellectual disability: Sweden as an example. J Intellect Disabil Res 47, 328-41.
30. Ong L. C., Afifah I., Sofiah A. & Lye M. S. (1998) Parenting stress among mothers of Malaysian children with cerebral Palsy: predictors of child and parent related stress. Annals of Tropical Paediatrics 18, 301-7.
31. st Century. Down Syndrome (eds W. I. Cohen, L. Nadel & M. E. Madnick ), pp. 215-9. Wiley-Liss Inc., New York.
32. Pueschel S. M. (2001) Exploring the causes of the Down Syndrome. In: A parent's guide to Down Syndrome: Towards a brighter future (2nd Ed), pp. 15-30. Baltimore: Paul H Brooks Publishing, Baltimore, MD.
33. Ramli M., Mohd Ariff F. & Zaini Z. (2007) Translation, validation and psychometric properties of Bahasa Malaysia version of the Depression Anxiety and Stress Scales (DASS). ASEAN Journal of Psychiatry 8, 82-9.
34. Reichman N. E., Corman H. & Noonan K. (2008) Impact of child disability on the family. Maternal and Child Health Journal 12, 679-83.
35. Ricci L. A. & Hodapp R. M. (2003) Fathers of children with Down's Syndrome versus other types of intellectual disability: perceptions, stress and involvement. Journal of Intellectual Disability Research 47, 273-84.
36. Roizen N. J. (2001) Down Syndrome. In: When Your Child Has A Disability (ed. M. L. Batshaw ), pp. 217-29. Paul H. Brookes Publishing, Baltimore, MD.
37. Sabih F. & Sajid W. B. (2008) There is significant stress among parents having children with autism. Journal of Pakistan Medical Association Rawalpindi-Islamabad 33, 160-3.
38. Saloviita T., Italinna M. & Leinonen E. (2003) Explaining the parental stress of fathers and mothers caring for child with intellectual disability: a double ABC-X model. Journal of Intellectual Disability Research 47, 300-12.
39. Sloper P., Knussen C., Turner S. & Cunningham C. (1991) Factors related to stress and satisfaction with life in families of children with Down's Syndrome. J Child Psychol Psychiatry 32, 655-76.
40. Sullivan A. (2002) Gender differences in coping strategies of parents of children with Down Syndrome. Down's Syndrome, Research and Practice 8, 67-73.
41. Taylor R. L., Richard S. B. & Brady M. P. (2005) Mental Retardation. Historical Perspectives Current Practices and Future Directions. Pearson/Allyn & Bacon, Boston MA.
42. Van Riper M. (2007) Families of children with Down Syndrome: Responding to 'a change in plans' with resilience. Journal of Pediatric Nursing 22, 116-28.