Fathers of children with Down's syndrome versus other types of intellectual disability: Perceptions, stress and involvement

Journal of Intellectual Disability Research

Volumn 47, Issue 4-5, 2003, Pages 273-284

  Ricci, L A ^a   Hodapp, Robert M ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; BEHAVIOR DISORDER; CHILD; CHILD REARING; CLINICAL ARTICLE; CONTROLLED STUDY; DOWN SYNDROME; EDUCATION; FATHER CHILD RELATION; FEMALE; GENDER; HUMAN; INTELLECTUAL IMPAIRMENT; MALADJUSTMENT; MALE; MOTHER CHILD RELATION; PERSONALITY DISORDER; QUESTIONNAIRE; STRESS;

CHILD; DISABLED CHILDREN; DOWN SYNDROME; FATHERS; FEMALE; HUMANS; MALE; MENTAL RETARDATION; QUESTIONNAIRES; SOCIAL PERCEPTION; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 0038166535     PISSN: 09642633     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2788.2003.00489.x     Document Type: Article

References (43)

1. Abidin R. (1995) Parenting Stress Index: Manual. Pediatric Psychology Press, Charlottesville, VA.
2. Achenbach T. M. (1991) Manual for the Child Behavior Checklist/4-18 and 1991 Profile. University of Vermont, Department of Psychiatry, Burlington, VT.
3. Barnett R. C. & Baruch G. B. (1987) Determinants of fathers' participation in family work. Journal of Marriage and the Family 49, 29-40.
4. Brayfield A. (1995) Juggling jobs and kids: the impact of employment schedules on fathers' caring for children. Journal of Marriage and the Family 57, 321-32.
5. Bristol M. M., Gallagher J. J. & Schopler E. (1988) Mothers and fathers of developmentally disabled and nondisabled boys: adaptation and spousal support. Developmental Psychology 24, 441-51.
6. Collacot R. A., Cooper S. A. & McGrother C. (1992) Differential rates of psychiatric disorders in adults with Down's Syndrome compared to other mentally handicapped adults. British Journal of Psychiatry 161, 671-4.
7. Cummings S. T. (1976) The impact of the child's deficiency on the father: a study of fathers of mentally retarded and chronically ill children. American Journal of Orthopsychiatry 46, 246-55.
8. Deb S. (2001) Epidemiology of psychiatric illness in adults who have intellectual disability. In: Health Evidence Bulletins - Learning Disability (Intellectual Disability) (eds L. Hamilton-Kirkwood, Z. Ahmed, D. Allen, S. Deb, W. Fraser, W. Lindsay, K. McKenzie, L. Penny & J. Scotland), pp. 14-17. National Health Service, Cardiff.
9. DeLuccie M. F. & Davis A. J. (1991) Father-child relationships from the preschool years through mid-adolescence. Journal of Genetic Psychology 152, 225-38.
10. Dykens E. M. (1996) DNA meets DSM: the growing importance of genetic syndromes in dual diagnosis. Mental Retardation 34, 125-7.
11. Dykens E. M. & Kasari C. (1997) Maladaptive behavior in children with Prader-Willi syndrome, Down syndrome, and nonspecific mental retardation. American Journal on Mental Retardation 102, 228-37.
12. Dykens E. M., Shah B., Sagun J., Beck T. & King B. Y. (2002) Maladaptive behavior and psychiatric disorders in persons with Down syndrome: community and clinic samples. Journal of Intellectual Disability Research 46, 484-92.
13. Frey K. S., Greenberg M. T. & Fewell R. R. (1999) Stress and coping among parents of handicapped children: a multidimensional approach. American Journal on Mental Retardation 94, 240-9.
14. Gath A. & Gumley D. (1986) Behaviour problems in retarded children with special reference to Down's syndrome. British Journal of Psychiatry 149, 156-61.
15. Gibbs M. V. & Thorpe J. G. (1983) Personality stereotype of noninstitutionalized Down syndrome children. American Journal of Mental Deficiency 87, 601-5.
16. Gunn P. & Cuskelly M. (1991) Down syndrome temperament: the stereotype of middle childhood and adolescence. International Journal of Disability, Development and Education 38, 59-70.
17. Harris K. H. & Morgan S. P. (1991) Fathers, sons, and daughters: differential paternal involvement in parenting. Journal of Marriage and the Family 53, 531-44.
18. Hauser-Cram P., Warfield M. E., Shonkoff J. & Krauss M. (2001) Children with disabilities. Monographs of the Society for Research in Child Development 66(3), Serial No. 266.
19. Hodapp R. M. (1997) Direct and indirect behavioral effects of different genetic disorders of mental retardation. American Journal on Mental Retardation 102, 67-79.
20. Hodapp R. M. & Dykens E. M. (2001) Strengthening behavioral research on genetic mental retardation disorders. American Journal on Mental Retardation 106, 4-15.
21. Hodapp R. M., Dykens E. M. & Masino L. L. (1997) Families of children with Prader-Willi syndrome: stress, support, and relations to child characteristics. Journal of Autism and Developmental Disorders 27, 11-24.
22. Hodapp R. M., Evans D. W. & Gray F. L. (1999) Intellectual development in children with Down syndrome. In: Down Syndrome: A Review of Current Knowledge (eds J. Rondal, J. Perera & L. Nadel), pp. 124-32. Whurr, London.
23. Hodapp R. M., Fidler D. J. & Smith A. C. M. (1998) Stress and coping in families of children with Smith Magenis syndrome. Journal of Intellectual Disability Research 42, 331-40.
24. Hodapp R. M., Ricci L. A., Ly T. M. & Fidler D. J. (2003) The effects of the child with Down syndrome on maternal stress. British Journal of Developmental Psychology 22, 137-51.
25. Holroyd J. & McArthur D. (1976) Mental retardation and stress on the parents: a contrast between Down's syndrome and childhood autism. American Journal of Mental Deficiency 80, 431-6.
26. Hornby G. (1995) Fathers' views of the effects on their families of children with Down syndrome. Journal of Child and Family Studies 4, 103-17.
27. Jain A., Belsky J. & Crnic K. (1996) Beyond fathering behaviors: types of dads. Journal of Family Psychology 10, 431-42.
28. Kasari C. & Sigman M. (1997) Linking parental perceptions to interactions in young children with autism. Journal of Autism and Developmental Disorders 27, 39-57.
29. Krauss M. W. (1993) Child-related and parenting stress. Similarities and differences between mothers and fathers of children with disabilities. American Journal on Mental Retardation 97, 393-404.
30. Lamb M. E. (1997) Fathers and child development: an introductory overview and guide. In: The Role of the Father in Child Development, 3rd edn (ed. M. E. Lamb), pp. 1-18. Wiley, New York, NY.
31. Lamb M. E., Pleck J. H., Charnov E. L. & Levine J. A. (1985) Paternal behavior in humans. American Zoologist 25, 883-94.
32. Ly T. M. & Hodapp R. M. (2002) Maternal attributions of child noncompliance in children with mental retardation: Down syndrome versus other etiologies. Journal of Developmental and Behavioral Pediatrics 23, 322-9.
33. Noh S., Dumas J. E., Wolf L. C. & Fisman S. N. (1989) Delineating sources of stress in parents of exceptional children. Family Relations 38, 456-61.
34. Pary R. J., Loschen E. L. & Tomkowiak S. B. (1996) Mood disorders and Down syndrome. Seminars in Clinical Neuropsychiatry 1, 148-53.
35. Pueschel S. M. & Myers B. A. (1994) Environmental and temperamental assessments of children with Down's syndrome. Journal of Intellectual Disability Research 38, 195-202.
36. Radin N. (1982) Paternal Involvement in Childcare Index. University of Michigan, School of Social Work, Ann Arbor, MI.
37. Sirignano S. W. & Lachman M. E. (1985) Personality change during the transition to parenthood: the role of perceived temperament. Developmental Psychology 21, 1174-81.
38. Sparrow S. S., Balla D. A. & Cicchetti D. V. (1984) Vineland Adaptive Behavior Scales: Interview Edition. American Guidance Service, Circle Pines, MN.
39. Stores R., Stores G., Fellows B. & Buckley S. (1998) Day-time behaviour problems and maternal stress in children with Down's syndrome, their siblings, and non-intellectually disabled and other intellectually disabled peers. Journal of Intellectual Disability Research 42, 228-37.
40. Tamis-LeMonda C. S. & Cabrera N. (1999) Perspectives on father involvement. Research and policy. Social Policy Report: Society for Research in Child Development 13, 1-26.
41. Volling B. L. & Belsky J. (1991) Multiple determinants of father involvement during infancy in dual-earner and single-earner families. Journal of Marriage and the Family 53, 461-74.
42. Wishart J. G. & Johnston F. H. (1990) The effects of experience on attribution of a stereotyped personality to children with Down's syndrome. Journal of Mental Deficiency Research 34, 409-20.
43. Young D. M. & Roopnarine J. L. (1994) Fathers' childcare involvement with children with and without disabilities. Topics in Early Childhood Special Education 14, 488-502.