The P15 - a multinational assessment battery for collecting data on health indicators relevant to adults with intellectual disabilities

Journal of Intellectual Disability Research

Volumn 54, Issue 11, 2010, Pages 981-991

  Perry, J ^a   Linehan, C ^b   Kerr, M ^a   Salvador Carulla, L ^c   Zeilinger, E ^d   Weber, G ^d   Walsh, P ^b   Van Schrojenstein Lantman De Valk, H ^e   Haveman, M ^f   Azema, B ^g   Buono, S ^h   Câra, A Carmen ⁱ   Germanavicius, A ^j   Van Hove, G ^k   Maatta T ^l   Berger, D Moravec ^m   Tossebro, J ⁿ  

^a CARDIFF UNIVERSITY   (United Kingdom)

^b UNIVERSITY COLLEGE DUBLIN   (Ireland)

^c Grup Pere Mata   (Spain)

^d UNIVERSITY OF VIENNA   (Austria)

^e MAASTRICHT UNIVERSITY   (Netherlands)

^f TU DORTMUND UNIVERSITY   (Germany)

^g CREAI Languedoc Roussillon   (France)

^h OASI RESEARCH INSTITUTE IRCCS   (Italy)

ⁱ CREAI Languedoc Roussillon ^*  (Romania)

^j VILNIUS UNIVERSITY   (Lithuania)

^k GHENT UNIVERSITY   (Belgium)

^l Joint Authority for Kainuu   (Finland)

^m In titut za varovanje zdravja Republike Slovenije   (Slovenia)

ⁿ NORWEGIAN UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Norway)

more..

Author keywords

Health disparity; Health indicators; Health inequity; Health survey; Intellectual disabilities

Indexed keywords

ADULT; AGED; ARTICLE; BIVARIATE ANALYSIS; CLINICAL ASSESSMENT TOOL; DATA COLLECTION METHOD; FEASIBILITY STUDY; HEALTH DISPARITY; HUMAN; INTELLECTUAL IMPAIRMENT; INTERNAL CONSISTENCY; INTERRATER RELIABILITY; MAJOR CLINICAL STUDY; P15 MULTINATIONAL ASSESSMENT BATTERY; PSYCHOMETRY; RISK FACTOR;

ADULT; AGED; AGED, 80 AND OVER; FEASIBILITY STUDIES; FEMALE; HEALTH STATUS DISPARITIES; HEALTH SURVEYS; HUMANS; INTERNATIONALITY; MALE; MENTAL RETARDATION; MIDDLE AGED; PREVALENCE; REPRODUCIBILITY OF RESULTS; RISK FACTORS; YOUNG ADULT;

EID: 78649456685     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2010.01322.x     Document Type: Article

References (39)

1. Aman M. & Singh N. (1986) The Aberrant Behavior Checklist. Slosson Educational Publications, New York.
2. Baumeister A., Sevin J. & King B. (1998) Neuroleptics. In: Psychotropic Medication and Developmental Disabilities: The International Consensus Handbook (eds S. REISS & M. AMAN ), pp. 133-50. Ohio State University, Columbus, OH.
3. Beange H. & Bauman A. (1991) Health care for the developmentally disabled. Is it really necessary? In: Key Issues in Mental Retardation Research (ed. W. FRASER ), pp. 154-62. Routledge, London.
4. Beange H., Mcelduff A. & Baker W. (1995) Medical disorders of adults with mental retardation: a population study. American Journal of Mental Retardation 99, 595-604.
5. Bittles A. H., Petterson B. A., Sullivan S. G., Hussain R., Glasson E. J. & Montgomery P. D. (2002) The influence of intellectual disability on life expectancy. The Journals of Gerontology Series A-Biological Sciences & Medical Sciences 57, M470-2.
6. Brylewski J. & Duggan L. (1999) Antipsychotic medication for challenging behaviour in people with intellectual disability: a systematic review of randomized controlled trials. Journal of Intellectual Disability Research 43, 360-71.
7. Crombie I., Irvine L., Elliott L. & Wallace H. (2004) Closing The Health Inequalities Gap: An International Perspective. NHS Health Scotland and University of Dundee, Dundee.
8. Emerson E. (1995) Challenging Behaviour: Analysis and Intervention in People with Learning Difficulties. Cambridge University Press, Cambridge.
9. Emerson E. (2005) Underweight, obesity and exercise among adults with intellectual disabilities in supported accommodation in Northern England. Journal of Intellectual Disability Research 49, 134-43.
10. Emerson E. & Bromley J. (1995) The form and function of challenging behaviours. Journal of Intellectual Disability Research 39, 388-98.
11. Emerson E., Kiernan C., Alborz A., Reeves D., Mason H., Swarbrick R. et al. (2001) The prevalence of challenging behaviors: a total population study. Research in Developmental Disabilities 22, 77-93.
12. Emerson E., Malam S., Davies I. & Spencer K. (2005) Survey of Adults with Learning Difficulties in England 2003/4: Final and Summary Reports. The Stationary Office, London.
13. European Commission Health and Consumer Protection Directorate-General (2004) Building a European Health Survey System: Improving information on self-perceived morbidity and chronic conditions.
14. European Union (2007) Second Programme of Community Action. Official Journal of the European Union.
15. Goulden K., Shinnar S., Koller H., Katz M. & Richardson S. (1991) Epilepsy in children with mental retardation: a cohort study. Epilepsia 32, 690-7.
16. Howells G. (1986) Are the medical needs of mentally handicapped adults being met? Journal of the Royal College of General Practiotioners 36, 449-53.
17. Kapell D., Nightingale B., Rodriguez A., Lee J. H., Zigman W. B. & Schupf N. (1998) Prevalence of chronic medical conditions in adults with mental retardation: comparison with the general population. Mental Retardation 36, 269-79.
18. Kelly F. C. K., Maguire G. & Craig S. (2009) Annual Report of the National Intellectual Disability Database Committee 2008. Dublin, Health Research Board - HRB Statistics Series 6.
19. Landis J. & Koch G. (1977) The measurement of observer agreement for categorical data. Biometrics 33, 159-74.
20. Lennox N. G., Diggens J. N. & Ugoni A. M. (1997) The general practice care of people with intellectual disability: barriers and solutions. Journal of Intellectual Disability Research 41, 380-90.
21. Linehan C., Walsh P. N., Van Schrojenstein Lantman-de Valk H. M. J., Kerr M. P. & Dawson F. (2009) Are people with intellectual disabilities represented in European public health surveys? Journal of Applied Research in Intellectual Disabilities 22, 409-20.
22. Mcgrother C., Hauck A., Bhaumik S., Thorp C. & Tomb N. (1996) Community care for adults with learning disability and their carers: needs and outcomes from the Leicestershire register. Journal of Intellectual Disability Research 40, 183-90.
23. Minihan P. & Dean D. (1990) Meeting the needs for health services of persons with mental retardation living in the community. American Journal of Public Health 80, 1043-5.
24. Moss S., Prosser H., Costello H., Simpson N., Patel P., Rowe S. et al. (1998) Reliability and validity of the PAS-ADD Checklist for detecting psychiatric disorders in adults with intellectual disability. Journal of Intellectual Disability Research 42, 173-83.
25. Ouellette-Kuntz H. (2005) Understanding health disparities and inequities faced by individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 18, 113-21.
26. Perry J. & Felce D. (1995) Objective indicators of the quality of life: How much do they agree with each other? Journal of Community & Applied Social Psychology 5, 1-19.
27. Rimmer J. H., Braddock D. & Fujiura G. (1993) Prevalence of obesity in adults with mental retardation: implications for health promotion and disease prevention. Mental Retardation 31, 105-10.
28. Robertson J., Emerson E., Gregory N., Hatton C., Kessissoglou S. & Hallam A. (2000a) Receipt of psychotropic medication by people with intellectual disability in residential settings. Journal of Intellectual Disability Research 44, 666-76.
29. Robertson J., Emerson E., Gregory N., Hatton C., Turner S., Kessissoglou S. et al. (2000b) Lifestyle related risk factors for poor health in residential settings for people with intellectual disabilities. Research in Developmental Disabilities 21, 469-86.
30. Salvador-Carulla L. & Gonzalez-Caballero J. L. (2010) Assessment instruments in mental health: description and metric properties. In: Mental Health Outcome Measures (3rd Edition). (eds G. Thornicroft & M. Tansella ), pp. 28-62. The Royal College of Psychiatrists, London.
31. Van Schrojenstein Lantman-de Valk H., Linehan C., Kerr M. & Noonan-Walsh P. (2007) Developing health indicators for people with intellectual disabilities. The method of the Pomona project. Journal of Intellectual Disability Research 51, 427-34.
32. Van Schrojenstein Lantman-de Valk H. M. & Walsh P. N. (2008) Managing health problems in people with intellectual disabilities. BMJ 337, a2507.
33. Shepherd C. & Hoskins G. (1989) Epilepsy in school children with intellectual impairment in Sheffield: the size and nature of the problem and its implications in service provision. Journal of Mental Deficiency Research 33, 511-14.
34. Sullivan S. G., Glasson E. J., Hussain R., Petterson B. A., Slack-Smith L. M., Montgomery P. D. et al. (2003) Breast cancer and the uptake of mammography screening services by women with intellectual disabilities. Preventive Medicine 37, 507-12.
35. Sutherland G., Couch M. & Iacono T. (2002) Health issues for adults with developmental disability. Research in Developmental Disabilities 23, 422-45.
36. Turner S. & Moss S. (1996) The health needs of adults with learning disabilities and the Health of the Nation strategy. Journal of Intellectual Disability Research 40, 438-50.
37. Walsh P., Linehan C., Weber G., Van Hove G., Maatta T., Azema B. et al. (2008) Pomona 2: Health Indicators for people with intellectual disability: Using an indicator set.
38. Webb O. J. & Rogers L. (1999) Health screening for people with intellectual disability: the New Zealand experience. Journal of Intellectual Disability Research 43, 497-503.
39. Wilson D. & Haire A. (1990) Health care screening for people with mental handicap living in the community. British Medical Journal 301, 1379-81.