An information aid for newly diagnosed multiple sclerosis patients improves disease knowledge and satisfaction with care

Multiple Sclerosis

Volumn 16, Issue 11, 2010, Pages 1393-1405

  Solari, A ^a   Martinelli, V ^b   Trojano, M ^c   Lugaresi, A ^d   Granella, F ^e   Giordano, A ^a   Messmer Uccelli, M ^f   D'Alessandro, R ^g   Pucci, E ^h   Confalonieri, P ^a   Borreani, C ⁱ  

^a DEPARTMENT OF NEUROSURGERY   (Italy)

^b SAN RAFFAELE HOSPITAL   (Italy)

^c UNIVERSITY OF BARI   (Italy)

^d UNIVERSITY OF CHIETI   (Italy)

^e UNIVERSITY OF PARMA   (Italy)

^f Italian MS Society   (Italy)

^g UNIVERSITY OF BOLOGNA   (Italy)

^h MACERATA HOSPITAL   (Italy)

ⁱ NATIONAL CANCER INSTITUTE   (Italy)

Author keywords

complex health intervention; health knowledge; information aid; multiple sclerosis; patient satisfaction; randomized controlled trial

Indexed keywords

ADULT; ARTICLE; CLINICAL TRIAL; COMPACT DISK; CONSULTATION; CONTROL PREFERENCE SCALE; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DEPRESSION; FEMALE; HOME; HOSPITAL ANXIETY AND DEPRESSION SCALE; HUMAN; INTERVIEW; KNOWLEDGE; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; MEDICAL PRACTICE; MENTAL CAPACITY; MULTIPLE SCLEROSIS; OUTCOME ASSESSMENT; PATIENT CARE; PATIENT SAFETY; PATIENT SATISFACTION; PHYSICIAN; PSYCHOLOGIC TEST; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL; SCORING SYSTEM; STATISTICAL SIGNIFICANCE;

ADULT; DISCLOSURE; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; PATIENT EDUCATION AS TOPIC; PATIENT SATISFACTION; YOUNG ADULT;

EID: 78449313585     PISSN: 13524585     EISSN: None     Source Type: Journal    
DOI: 10.1177/1352458510380417     Document Type: Article

References (18)

1. National Collaborating Centre for Chronic Conditions. Multiple sclerosis: national clinical guideline for diagnosis and management in primary and secondary care. (NICE Clinical Guideline 8). London, GB: Royal College of Physicians, 2004.
2. Kopke S., Kasper J., Mühlhauser I., Nübling M. and Heesen C. Patient education program to enhance decision autonomy in multiple sclerosis relapse management: a randomized-controlled trial. Mult Scler 2009 ; 15: 96-104.
3. Kasper J., Köpke S., Mühlhauser I., Nübling M. and Heesen C. Informed shared decision making about immunotherapy for patients with multiple sclerosis (ISDIMS): a randomized controlled trial. Eur J Neurol 2008 ; 15: 1345-1352.
4. Prunty MC, Sharpe L., Butow P. and Fulcher G. The motherhood choice: A decision aid for women with multiple sclerosis. Patient Educ Couns 2008 ; 71: 108-115.
5. Polman CH, Reingold SC, Edan G., Filippi M., Hartung HP, Kappos L., et al. Diagnostic criteria for multiple sclerosis: 2005 revisions to the 'McDonald' criteria. Ann Neurol 2005 ; 58: 840-846.
6. Zigmond AS and Snaith RP The Hospital Anxiety and Depression Scale. Acta Psychiatr Scand 1983 ; 67: 361-370.
7. Costantini M., Musso P., Viterbori F., Bonci L., Del Mastro O, Garrone, et al. Detecting psychological distress in cancer patients: validity of the Italian version of the Hospital Anxiety and Depression Scale. Support Care Cancer 1999 ; 7: 121-127.
8. Degner LF, Sloan JA and Venkatesh P. The control preference scale. Can J Nurs Res 1997 ; 29: 21-43.
9. Giordano A., Mattarozzi K., Pucci E., Leone M., Casini F., Colimedaglia L., et al. Participation in medical decision-making: Attitudes of Italians with multiple sclerosis. J Neurol Sci 2008 ; 275: 86-91.
10. Kurtzke JF Rating neurologic impairment in multiple sclerosis: an expanded disability status scale. Neurology 1983 ; 33: 1444-1452.
11. Solari A., Acquarone N., Pucci E., Martinelli V., Marrosu MG, Trojano M., et al. Communicating the diagnosis of multiple sclerosis-a qualitative study. Mult Scler 2007 ; 13: 763-769.
12. Elwyn G., O'Connor A., Stacey D., Volk R., Edwards A., Coulter A., et al. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. Br Med J 2006 ; 333: 417.
13. Giordano A., Messmer Uccelli M., Pucci E., Martinelli V., Borreani C., Lugaresi A., et al. The Multiple Sclerosis Knowledge Questionnaire: a self-administered instrument for recently diagnosed patients. Mult Scler 2010 ; 16: 100-111.
14. Solari A., Mattarozzi K., Vignatelli L., Giordano A., Russo PM, Messmer Uccelli M., et al. on behalf of the SIMS-Trial group and of the GERONIMUS group. Development and validation of a patient self-assessed questionnaire on satisfaction with communication of the multiple sclerosis diagnosis. Mult Scler 2010 ; 16: 1237-1247.
15. Lewin S., Glenton C. and Oxman AD Use of qualitative methods alongside randomised controlled trials of complex healthcare interventions: methodological study. Br Med J 2009 ; 339: b 3496.
16. Tariman JD, Berry DL, Cochrane B., Doorenbos A. and Schepp K. Preferred and actual participation roles during health care decision making in persons with cancer: a systematic review. Ann Oncol 2010 ; 21: 1145-1151.
17. Thorpe KE, Zwarenstein M., Oxman AD, Treweek S., Furberg CD, Altman DG, et al. A pragmatic-explanatory continuum indicator summary (PRECIS): a tool to help trial designers. J Clin Epidemiol 2009 ; 62: 464-475.
18. McCaffery KJ, Smith SK and Wolf M. The challenge of shared decision making among patients with lower literacy: a framework for research and development. Med Decis Making 2010 ; 30: 35-44.