White Paper on improving support for family carers in palliative care: Part 2

European Journal of Palliative Care

Volumn 17, Issue 6, 2010, Pages 286-290

  Payne, Sheila ^a  

^a LANCASTER UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 78349275770     PISSN: 13522779     EISSN: 14790793     Source Type: Journal    
DOI: None     Document Type: Article

References (27)

1. Harding R, Higginson IJ. What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliat Med 2003; 17: 63-74.
2. O'Mara AM, St Germain D, Ferrell B et al. Challenges to and lessons learned from conducting palliative care research. J Pain Symptom Manage 2009; 37: 387-394.
3. Lorenz KA, Lynn J, Dy SM et al. Evidence for improving palliative care at the end of life: a systematic review. Ann Intern Med 2008; 148: 147-159.
4. Heatley R. Carers' services guide: Setting up support services for carers of the terminally ill. London: Help the Hospices, 2006.
5. Grande G, Stajduhar K, Aoun S et al. Supporting lay carers in end of life care: current gaps and future priorities. Palliat Med 2009; 23: 339-344.
6. Payne S, Hudson P. EAPC Task Force on Family Carers: aims and objectives. European Journal of Palliative Care 2009; 16: 77-81.
7. Payne S, Hudson P. Assessing the family and caregivers. In: Walsh D, Caraceni AT, Fainsinger R et al (eds). Palliative medicine: expert consult, 1st edn. New York: Elsevier, 2008.
8. Help the Hospices. Identifying carers' needs in the palliative setting. Guidance for professionals. London: Help the Hospices, 2009. www.helpthehospices.org.uk/our-services/developingpractice/ carers/publications/ identifying-carers-needs/ (last accessed 13/06/2010)
9. Hudson P, Thomas T, Quinn K et al. Teaching family carers about home-based palliative care: final results from a group education program. J Pain Symptom Manage 2009; 38: 299-308.
10. Parsons S, Anderson C. The meaning of Friday afternoon tea for informal caregivers on a palliative care unit. Int J Palliat Nurs 2009; 15: 74-78.
11. Maruyama NC, Atencio CV. Evaluating a bereavement support group. Palliat Support Care 2008; 6: 43-49.
12. Hebert RS, Schulz R, Copeland VC et al. Pilot testing of a question prompt sheet to encourage family caregivers of cancer patients and physicians to discuss end-of-life issues. Am J Hosp Palliat Care 2009; 26: 24-32.
13. Bowman KF, Rose JH, Radziewicz RM et al. Family caregiver engagement in a coping and communication support intervention tailored to advanced cancer patients and families. Cancer Nursing 2009; 32: 73-81.
14. Kealey P, McIntyre I. An evaluation of the domiciliary occupational therapy service in palliative cancer care in a community trust: a patient and carers perspective. Eur J Cancer Care (Engl) 2005; 14: 232-243.
15. Exley C, Tyrer F. Bereaved carers' views of a hospice at home service. Int J Palliat Nurs 2005; 11: 242-246.
16. King N, Bell D, Thomas K. Family carers' experiences of out-ofhours community palliative care: a qualitative study. Int J Palliat Nurs 2004; 10: 76-83.
17. Campbell C, Harper A, Elliker M. Introducing 'Palcall': an innovative out-of-hours telephone service led by hospice nurses. Int J Palliat Nurs 2005; 11: 586-590.
18. Skilbeck JK, Payne SA, Ingleton MC et al. An exploration of family carers' experience of respite services in one specialist palliative care unit. Palliat Med 2005; 19: 610-618.
19. Eaton N. 'I don't know how we coped before': a study of respite care for children in the home and hospice. J Clin Nurs 2008; 17: 3196-3204.
20. Levy J, Payne M. Welfare rights advocacy in a specialist health and social care setting: a service audit. Brit J Social Work 2006; 36: 323-331.
21. Bee PE, Barnes P, Luker KA. A systematic review of informal caregivers' needs in providing home-based end-of-life care to people with cancer. J Clin Nurs 2009; 18: 1379-1393.
22. Gomes B, Higginson IJ. Factors influencing death at home in terminally ill patients with cancer: a systematic review. BMJ 2006; 332: 515-521.
23. Ingleton C, Payne S, Nolan M et al. Respite in palliative care: a review and discussion of the literature. Palliat Med 2003; 17: 567-575.
24. Payne S. Resilient carers and caregivers. In: Monroe B, Oliviere D (eds). Resilience in palliative care: achievement in adversity. Oxford: Oxford University Press, 2007.
25. Malcolm C, Forbat L, Knighting K et al. Exploring the experiences and perspectives of families using a children's hospice and professionals providing hospice care to identify future research priorities for children's hospice care. Palliat Med 2008; 22: 921-928.
26. Small N, Barnes S, Gott M et al. Dying, death and bereavement: a qualitative study of the views of carers of people with heart failure in the UK. BMC Palliat Care 2009; 8: 6.
27. Lynch T, Clark D, Centeno C et al. Barriers to the development of palliative care in the countries of Central and Eastern Europe and the Commonwealth of Independent States. J Pain Symptom Manage 2009; 37: 305-315.